They be so quick to tell u so much about diseases but never do they have a cure...yeah here take medication 💊💊💉💊

Thanks for sharing your story

My amazing granddaughter Naomi was only 13 when she took part in this awesome video and is still singing loud and proud❤

Awww so SO sorry to hear that. God bless you sir. ❤️🙏🏻

😮 we we q m

Baby Thiago will be just fine 🥰 I am 22 and living a normal and full life, my parents tried to keep things as normal for us as possible and im so grateful for that

Best regards to you drosuma I'm permanently cured from pulmonary fibrosis all thanks to your herbs ..

i really hope there will be more research done on how to improve gut microbiome in CF, i really feel this is the key to loads of issues we face, mental and physical!!

To all sufferers of CF , friends and family of sufferers, love you all . I was diagnosed in 1964 and just turned 60 last month.

Sometimes I can’t understand the Geordie “people”

Hiii My name is Ankit kumar I am Indian I am all Cystic fibrosis I live in Delhi I am 32 year old

God bless you

My beautiful son Kalyan 15/03/1997#07/03/2024 at the age of 27 years old died from cystic fibrosis complications of post Lungs transplantation operation at yashoda hospital secunderabad May he rest in peace and Love ❤️🙏 my son Kalyan

My only beautiful son Kalyan died cystic fibrosis and after that both Lungs transplantation operation may he rest in peace at age of 27 years old boy

What a load of BS you have NHS care, you have low to free cost meds. Hospital care costs nothing. Heating soup etc is low cost. Invest in proper blankets etc. Theres NO way our govt , CF centre national govt or state govt let anyone wirh CF or else live in damp or mouldy conditions ! If that was the case we would go to the media and hold relevent authority accountable !!! There is no way our govt with CF would let anyone in Australia live in these conditons ! We would seek the power of our own parliament member in our own town and CF foundation ! Youre literally being ripped off and rail roaded by your own govt ! You pay taxes therefore, they owe YOU quality care of life and housing !! We just wouldnt put up with this as a natuon here ! We also provide our citizens on disability with enough money to eat, subsidy to help pay for power etc. Subsidy for hospital car park and travel, and more. Id be disgusted if i were you for being part of Britain ! We have much more exceptional care here.

Amazing video - wonderful to hear these personal accounts. Thanks for sharing.

Why is there no surgery? Like CARDIAC BYPASS SURGERY

I just found out that my adult child's CF team has mentioned CF STORM to him. I do hope he gets to take part

Thanks, I'm finding this very interesting as a parent of an adult with CF

This was an amazing video

I began working in the healthcare field a few months ago and I'm glad I overheard my clinic manager mention CF. Thank you Emma Lake for sharing your feelings about CF and spreading awareness! I hear you and I see you. 👏💜🎗

😢 i saw this video 3 years ago now am using this creon like u brother stay strong❤❤

I hope to you good health and You should be Muslim

"So he flips him over and he ffff....funnily enough it lands on its wheels and drives away"

Does your family care for you? If they do that's a good thing. As long as they don't overcare. I've noticed families with no money problems care more. Is that because I have no money problems?

👣🌍☯️🤷🏻‍♂️ I am healthier than most. But I still get sick a bit. At the moment it's as bad as it's been in a while.🫣 I will have some money to get a nebuliser soon. Saving. Usually I'd go to hospital when I'm this bad but I can't. Believe what you want to believe. Cause that's what people do

Melanie chisholm is asome woman l feel exercise again

Well 19th march another young ade's birthday he's my cousin

Well done ade.

I'm so grateful for the incredible progress in CF treatment! Kaftrio and Kalydeco has been a miracle for me for the past 3 years, thanks to the dedication of researchers like Dr. Nick Simmonds. While his talk highlighted the challenges faced by those not suitable for Kaftrio, the HIT-CF project offers immense hope for those who haven't found their miracle yet. Thank you, Cystic Fibrosis Trust, for supporting Dr. Simmonds and other researchers in their quest for a cure for everyone! I'm beyond excited to see what the future holds for personalized medicine and can't wait to hear more about the next steps for HIT-CF."

Believe Almighty Allah I am also cf patient facing problems in daily life but I trust Almighty Allah any desease is not the reason of any death.How many persons they even take a tablet in his life time but suddenly they died Why because death keeps no calendar.May Allah protect us all and give healthy life to all people..Nice video.....

someone experiences coughing fits for a long time after eating... every time they eat is this not just asthma? And with constant lung infections, it seems like that wouldn't just be asthma?

Awesome😍

Wow Great🥰😍

love everything about you, your a true gem.

My son totally agrees with you.

My friend had this, he didn't make it to high school. His parents smoked in the house he was in a terrible environment for that stuff. The gym teachers used to force him to run, in the Texas sun, after they cut the dry grass and there was particles thick in the air. He didn't get the care needed. I used to get so upset at the teachers but they never listened. I should have went to the cops. His name was Javier. He liked Pokemon. I visited him in the hospital and brought the whole gang. I remember his voice, his laugh, he used to make this really strange honking sound. I wish I remembered more, I wish I had deeper conversations with him, he was always so upbeat.

Thanks for adding this ! I lost several friends of CF in Australia in the 1990s from it all before 18. I miss them so much. This is dedicated to ; Dimity Siimonds, Aija Rahnel, Michelle Dyer, Jenny Glenn. I loved you all xx Sonia

Your experience is articulated very well, thanks for that.

Thank you for that information.

Adorable young man, wishing him the best with a healthy long life.

And then he spies this cookbook right and he says “that’d be nae good to me that, would it”

Amazing story, well done mother and toddler for pushing through, I can’t imagine how hard it must have been. Hope things have improved for you both now. Wish you both all the best.

I have CF and I can confirm through personal experience that there are a whole host of CF symptoms that were alleviated once a focused on my gut flora. I was already taking Trikafta and focusing on the things my doctor told me which made a huge difference. That difference was further improved when I began paying closer attention to my gut flora. Hope this helps other fellow patients.

Is she still alive ??

Microbiome. Its all destroyed. Fix that and watch miracles happen guys fast. !!!

"Promo SM" 🤪

He played as Aus Tinky Winky from Teletubbies

Really nice video.....wish you the very best

He has the same problems as you. Loneliness and fears. Wishing to do what he loves. Piled on top, several complicated life-threatening problems, including a precious loved one could sacrifice themself to give him lungs............. 😔 God bless you friend my heart breaks for you very deeply... I saw the ghost of my dead best friend run down the hallway and my cat Tobius saw it with me it was 4am. She did it to make me stop fearing the afterlife. I miss her so bad I don't have the ability to sing... I wish you to Heaven someday... but it kills me inside that you live underneath this hovering condition... may you and others form a strong bond and may you get what you deserve in this great experience we call life. I'm greatly sorry the way you go through some of these things.