I tried to find myself housing in my area but even the government housing is way beyond what disability and SSI pay me. I've been in a place that had no handicapped parking for the people who lived there and no ramps to get up to the sidewalk. It's crazy
@r0tting_.Bxnes4Ай бұрын
With the topic you were talking about with the head halter, you could try an e collar!! We use one and it’s great especially because you can teach off leash which is helpful for wheelchair use
@jr_dev-xg2xoАй бұрын
This was a great video! I really enjoyed it. I just had my first appointment with my occupational therapist and she is working on prescribing a wheelchair for me! I have Hypermobility Spectrum Disorder and although on a good day I can walk 7-10 miles on others I can barely walk 10 feet. I'm so looking forward to my independence being increased and being less tired at the end of the day. You seem like such a fun vibrant person <3
@CapriUniАй бұрын
Just a clarification of fact: The ADA was signed into law in *1990* -- it just didn't go into effect until January 1, 1991. I also remember the push for the use of Person-first language; it was a reaction to doctors and other clinicians ("experts") habitually saying: "And here is a cerebral palsy," or "John is our Downs Syndrome," etc. 🤦🏽♀ It was definitely needed, back in the day. Now, when I hear person-first language, it makes me cringe a little inside. It sounds a bit like "Person with blackness" instead of a Black person. There's also nuance with this, depending on which specific community you're interacting with. Nearly every autistic person I've met prefers identity-first language, for example.
@flyingpigfarm1Ай бұрын
Gurl, I feel for you. I’m also an ambulatory wheelchair user, and I sold my farm two years ago and decided to take my caretaker and my service dog and move to the city. Even though I’m substantially more affluent that the average handicapped person, I had to fight for my rights to ADA compliance even in my brand new and very upper-class apartment building! Get in touch with your local state Handicapped Advocacy program and let them fight those battles FOR you - I have found a letter from the state listing the concessions I require to be HIGHLY effective! Best of luck!
@booksandpuppiesАй бұрын
Would someone be kind enough to provide me with a company to look at for wheelchairs. I was recently in a car accident, and I'm not sure where to look. And to be honest, I'm a bit overwhelmed.
@disabledconstellationАй бұрын
It depends on what kind of chair you’re looking for. If you’re working with a physical therapist and a wheelchair supplier will talk to you about different options. If you’re interested in custom manual chairs permobil is really popular www.permobil.com/en-us/products?category=ManualWheelchairs If you’re looking for a temporary power chair I’ve also used go chairs which you can buy on Amazon. I also recommend looking on places like Facebook marketplace. Facebook in general has a lot of great support groups for mobility aid users who have a lot of awesome suggestions.
@BenSartenАй бұрын
Love it! Thank you for making this. <3
@sfc-172 ай бұрын
Dig your style
@sfc-172 ай бұрын
Thanks
@CasaTrendy2 ай бұрын
Great content ☺️
@mudlizardz2 ай бұрын
Thanks so much for talking about Queer Liberation Library, needless to say what they're doing is so important (as is having access to Libby period). Just joined and can't wait to check out their collections. I really cannot recommend Witch Hat Atelier enough (though it just barely qualifies in the queer side, tho I would say its just because gender and sexuality are not a huge focus). Such an incredible Eisner award winning manga fantasy series that incorporates difficult, nuanced, and engaging stories of disabled characters and disability within the very foundations of its worldbuilding and magic system. There's a diverse range of disabilities and perspectives of disabled characters explored within it, and they play pivotal roles in the story. If you are up for horror (as well as SFF) and really tough reads, I recommend anything by Rivers Solomon, because their work frequently features queer, disabled, and intersex characters. Their prose is gorgeous and write some queer intimacy like little I've seen in legit romances lol. I recently finished and LOVED The Jasmine Throne by Tasha Suri, another sapphic fantasy about anti-colonialism but adult. Im not sure how the disability aspect pans out in the other books but I enjoyed what was there in the first book. Dense theory is not for everyone but Ugly Laws by Susan M. Schweik is such a cathartic read as painful as it is (not just academic writing but yk the content). Bless the Blood by Walela Nehanda is a good cancer memoir that came out this year if you enjoy poetry and essays. Would love to see more recs of whatever medium in the future! (also need to read Gideon ASAP)
@disabledconstellation2 ай бұрын
Thank you for the suggestions!!!
@karinbaird24992 ай бұрын
Thank you for this💞I have Sixten of Crows and Gideon in my audible library but haven’t yet heard them but will start tonight😁 Greetings from Sweden and happy Pride🌈❤️🌈
@disabledconstellation2 ай бұрын
Happy pride!!
@eb61902 ай бұрын
I’M not tired of hearing about it……DO YOU HAVE OTHER FRIENDS??!!!?!😜
@angiemarquez062 ай бұрын
I love books with LGBTQ representation and disability representation
@brainfogray2 ай бұрын
I love the color of ur frame (。♥‿♥。)
@CasaTrendy2 ай бұрын
Great video !!! 😃
@disabledconstellation2 ай бұрын
Thank you! ❤️
@kendal362 ай бұрын
this is a great video
@karinbaird24992 ай бұрын
Thank you for this❤️ Greetings from Sweden
@GingerKiwiDev2 ай бұрын
Love Izzy Wheels! I'm waiting for my first custom titanium wheelchair (7 ish weeks?!). The first accessory I'll be getting is a Lapstacker. It's from New Zealand and designed by a wheelchair user. Kind of like two retractable seat belts that go over your legs and attach with a magnetic hook. It keeps everything from a piece of paper to a shopping basket to a stack of books steady and hands free for wheeling around. Gem Hubbard of WheelsNoHeels did a review on her channel. It's designed both for those of us with hand function and those without like quads. There's a version for power chair users as well.
@disabledconstellation2 ай бұрын
I may get that next! It looks so cool!
@GingerKiwiDev2 ай бұрын
@@disabledconstellation A friend said he’s going to get me a LapStacker for my birthday. I just started filming my experiences as a wheelchair user and posting on KZfaq. People like you who’ve been making KZfaq videos about #WheelchairLife have been amazingly helpful! So I want to add to this community. I have a rental hospital style one this week and it’s hopefully just 6 weeks until I get my custom. I’ve finally caved to all the people who’ve been telling me to make videos. Thanks!
@disabledconstellation2 ай бұрын
@@GingerKiwiDev yay! So exciting!
@lynn8582 ай бұрын
Not whining at ALL! Train every staff member, in every accessibility feature. Would they hire a crew member who was uncomfortable speaking to kids? Or the elderly? You're being so generously kind to them here. I respect you for the balanced opinion, but also... It's not the job of a client, paying full price, to play disability consultant, or have a less excellent time because many people, at many steps, failed you.
@notapplicable26362 ай бұрын
That is unacceptable with how they treated you as an adult in a wheelchair. Honestly I understand that the Disney line is more designed to deal with younger people who can't/don't/won't speak for themselves but it's a total lack of professionalism in my opinion. Sorry but I think the Mouse failed you miserably and I find that ridiculous! Also, elevators should be a universally accessible size regardless of where it is located! Sorry this experience alone shows me that they don't really care/know how to "handle" a person in a wheelchair, much less an adult in a chair who can/would be able to speak for themselves and not having a parent/representative with them to avoid needing to learn to speak to someone with a disability in such an unprofessional manner. I find RCL to do a pretty decent job, at least compared to honestly how it sounds like the "poo" show thet you had while onboard the Wish...
@ActiveMiaow2 ай бұрын
Let’s definitely deconstruct some white supremacy. Here is an example of some white supremacy written by one of the white people falsely masquerading as “bipoc” who you cited as a resource: From the March 2000 issue of Fireweed Title: “ammachi stories: excerpt from the last boat, biomythography in progress” Author: Leah Lillith Albrecht is writing here as Leah Piepzna-Samarasinha (pen name) Prior to this Leah had written under several other names including Leah Lilith Albrecht-Samarasinha (LLAS), as Leah Lillith, as Leah Albrecht, and as Leah or LL, with the last names completely omitted. But at the time of this March 2000 essay, Leah had changed it again to Leah Piepzna-Samarasinha. Note: Leah was not yet using the name Lakshmi. That was added a few years later. Leah was one of several white riot grrrls who were frustrated at being rejected by some mainstream presses so they made the unfortunate decision to “work the [publishing] system” by taking on self-bestowed ethnic sounding names with the explicit intent of defrauding small bipoc presses. Essay text: “Ammachi stories Excerpt from the last boat, biomythography in progress” By Leah Piepzna-Samarasinha 5 years I think after she died & I barely noticed, my grandmother starts talking to me from just under the bedroom ceiling. Things I don’t even want to hear about the father I don’t talk to. 1943, Kuala Lumpur It was almost too late when we got to the Singapore boat. *Buddhu amme*, the bombs coming down, one time two time everywhere all around the house, Ayah Nancy screaming, Jeremy, God-rest-his-soul screaming, all I can think about is Christabel and G and Renee. How they didn’t move away. They didn’t move to Malaya because of any damn engineer job, or to start the labor revolution someplace that wouldn’t kill them. Wild Alvis girls settle down quite nicely, thank you. I’m seven months heavy with Christian, the belly sticks out of my skinny body. I feel every bomb hitting like a fist pounding my womb, & I think, *stupid*, *superstition*, *is that what the nuns taught you*. Maybe this is the Almighty’s punishment. For how I made this baby, even though Ellis still pat my belly and smiles, clueless. Maybe I’ll lose it & it’ll be all for the good. All that pregnancy, ay-o, I’m in dread. Who know what colour the baby will come out? I pray every night for him to be light, anyway, even if not blonde, like Frederick. Then while I’m trying to sleep I think no, damn them all, no! Let him be dark as his father, dark, and bitter as tamarind pulp, with great black eyes like Roshan’s. Then Ellis will leave me, all the aunties will cluck in trembling disgust and smack their lips over me. I don’t care! All this going through my head as- boom- the window glass crashing out of the frame- boom- the almyrah tips over- boom- Ellis is going red and brown, in and out, like a puffed up balloon and then like a hollow man. There’s no rickshaw, no, nothing. The servants have fled or are hiding under the house with the kingsnakes. I grab the two photograph albums before Ellis grabs my arm and I grab Jeremy and we are running through the streets. There we see a few rickshaw but even for a rich Burgher family with a 7-month gone wife and Ellis, waving a fist of money and screaming, and a little screaming blonde boy, maybe especially for us, they don’t stop. The last boat comes when we have been standing for hours. I’m shaking all over, flying glass has cut my scalp & we are all plastered to the knees with red brown mud. I grip the albums under my armpit, and as we get onto the last boat out, going back to the family I spent all of me fleeing from, they are the only thing I take back. I clutch them to my mud-streaked breasts, the home I’ve spent all my life running away from. [this is only part one of Leah’s essay but I can only address so many lies at once]
@ActiveMiaow2 ай бұрын
Let’s start with the word Ammachi. Leah is using that word here to mean grandmother. The problem is that Leah’s real grandmother, Louise, was a European woman and an English speaking Anglican Christian. She was of Dutch and Portuguese European heritage. She spoke English. Leah’s grandfather Ellis was of Dutch/German European heritage. He also spoke English and was an Anglican Christian. So if we are going to be changing the language and applying a different term of endearment to Leah’s grandparents after their deaths that she never used for either of them when they were living, then “ammachi” is not even close to the right word. These are not “ammachi” stories at all. The Dutch/German word for grandparents is Oma and Opa. In Portuguese both grandmothers and grandfathers are referred to as avo, but the pronunciation is different. Avô for a grandfather is pronounced "a-voh," with the variant vovô being pronounced "vo-voh." Avó for a grandmother is pronounced "a-vaw," with the variation vovó being pronounced "vo-vaw. But no matter what, Leah has never had an “ammachi” That’s a lie.
@ActiveMiaow2 ай бұрын
The next problem I notice in this essay is that this “history” Leah is claiming to possess knowledge of is not coming from a living person but instead from… the ghost? or a spirit Leah presumes to be her grandmother, who takes the form of a disembodied “voice” coming from a talking ceiling in Leah’s New York bedroom in 1996. Leah’s grandmother Louise died in 1991 near her home in Victoria, Australia. In 1996, which was five years after Leah didn’t even notice or care that her grandmother died, Leah Lillith Albrecht was living in New York going by the false name Leah Lilith Albrecht-“Samarasinha”. No one in Leah’s family and none of her ancestors have names like “Samarasinha”. Leah pulled that name out of her ass in an act of ethnic fraud intended to obscure and hide her actual European heritage. And a disembodied voice from a talking ceiling is not a reliable source of genealogical or historical information. Leah is basing her entire fake identity on bogus family lore that she herself concocted out of nothing. She’s a horrific fraud.
@ActiveMiaow2 ай бұрын
The next problem I notice is that in this essay Leah falsely claims her grandparents lived in Kuala Lumpur in 1943 when Leah’s grandmother Louise was seven months pregnant with Leah’s father. Leah’s father, whose name is actually ROGER was born March 18, 1943. So Louise was seven months pregnant with Roger around January, 1943. Roger was conceived approximately July 1942. Leah claims that her pregnant grandmother caught “The Singapore Boat” from Kuala Lumpur with her grandfather Ellis, a blond haired blue eyed child named “Frederick”, and an infant named “Jeremy” in 1943… …while bombs rained down around their Kuala Lumpur house. This… is such a MASSIVE LIE. For so many reasons. This “biomythography” Leah is writing is complete and utter fiction. It is fraud.
@ActiveMiaow2 ай бұрын
1. Louise and Ellis did not live in Kuala Lumpur in 1943 2. Louise was only ever pregnant twice. Neither of her sons had blonde hair or blue eyes. Leah is getting into some really deeply f’ed up crap with these fictional children she calls “Frederick” and “Jeremy” 3. Louise never had any children named Frederick or Jeremy. 4. Furthermore Louise actually didn’t have any other living children at any point during her pregnancy with Leah’s father Roger. At no point from summer 1942 when Roger was conceived until his birth in March 1943 did Louise have any other children. 5. There was a boat that at one time did go from Kuala Lumpur to Singapore. That boat was not running in January 1943. 6. At no point during Louise’s pregnancy with Roger did any bombs rain down anywhere in their vicinity. That did not happen. 7. There was no bombing of Kuala Lumpur or of Singapore in 1943. 8. There wasn’t any naval evacuation of Kuala Lumpur or of Singapore in 1943 or at any point during Louise’s pregnancy with Leah’s father Roger. 9. The mythical “last boat” of 1943 is entirely myth. It’s fake. 10. Leah is a massive lying fraud.
@ActiveMiaow2 ай бұрын
*Buddhu amme* For those who don’t know, a Buddha is literally an enlightened one, a knower. Buddhists believe that a Buddha is born in each aeon of time, and Buddha-the sage Gotama who attained enlightenment under the bo tree at Buddh Gaya in India-was the seventh in the succession. But a Buddhu is actually the antithesis of a Buddha. Using that term is the equivalent of calling someone an unenlightened stupid dumbass. Who is Leah calling a Buddhu? An amah/amme or ayah is a woman employed as a wet nurse or as a caretaker of someone else’s children. They are a domestic worker employed to care for babies and children. Like most of the characters in Leah’s fake story, Ayah Nancy is not an unenlightened stupid dumbass because… 1. She’s not a real person! 2. Leah’s grandmother Louise was an Anglican Christian and did not have a Buddha because she wasn’t Buddhist!!! 3. Leah’s grandmother Louise didn’t employ a domestic worker to care for her children in 1943 because… SHE HAD NO CHILDREN IN 1943!!!! At no point during her pregnancy with Roger did she have another child. There was no blonde-haired or blue-eyed children in need of a nurse. Leah just made that shit up. She pulled those children out of her ass to sell her story to a small bipoc publisher. It’s all completely fake.
@ActiveMiaow2 ай бұрын
Also, Alice Wong is a vicious enabler of many narcissistic abusers including Leah. Alice is fully aware of the egregious abuse that is occurring and has participated in erasing reports of harm smearing survivors who try to address the harm and aiding abusers in financially exploiting disabled people on ssi. Alice has stonewalled all attempts at accountability and has viciously attacked survivors and endangered lives by condoning and endorsing dangerous narcissistic abusers. She is actively colluding in abuse and harm.
@ActiveMiaow2 ай бұрын
Care Work is not a resource it is written by a white person named Leah Lillith Albrecht who is a fraud and is actively abusing disabled people (and animals) in multiple cities states and in at least two countries. Leah has a very long history of harm spanning decades that has dodged accountability for since at least the mid-90s. Speaking of lies, Leah’s ancestors are European. Leah did not grow up poor or working class either. And Leah has told egregious lies about their education and background. Leah falsely claimed status as a first generation student to steal thousands in resources designated specifically for first generation students. Her parents actually both have undergrad and graduate degrees and postgraduate education. Leah is a fraud and has no business speaking for or representing any of the communities she is defrauding and exploiting
@olilumgbalu56532 ай бұрын
Whenever I think of disability, I picture a PHYSICALLY disabled person but I'm getting the feeling more and more that disability advocacy includes (and may actually be a majority) MENTALLY disabled persons. Is there friction between the two groups? And I also get the feeling that those who identify or have been diagnosed as neurodivergent/autistic make up a large portion of the mentally disabled group. Do those with other mental health diagnoses like, for example, schizotypal or bipolar disorder or schizophrenia feel heard in the disability advocacy community?
@disabledconstellation2 ай бұрын
You're asking a really great question and I'm going to try to answer it the best I can without getting too off topic lol. I can only speak to what I have seen and I can't speak to how everyone feels. I do think that there is a lot of division in the disability community. This is not because we are naturally adverse to one another, but rather that when you become or find out that you have a disability a lot of times the only context you have for it is the ableism that is spoon fed to us. As someone who was born with a physical disability with siblings with ADHD/autism as their main disability, my mental health and disabilities were missed by everyone including myself. I struggled with a long time thinking of ADHD as a disability when, to me, my disability meant that my friends with the condition were dying. There's a lot of comparative things that happen in advocacy spaces that frustrates me. For example, when someone says, "you wouldn't touch a wheelchair so why are you touching a dog?" As a service dog handler and wheelchair user I can tell you both happens frequently. So sometimes people can get stuck on the comparison that they miss the fact that both groups are having strangers touch them/their aids in ways that they shouldn't. I don't think that people with physical disabilities have gone anywhere. I think that we are seeing a rise in ADHD/Autism activism bc being at home helped people get diagnosed, including people who have a physical disability. I think that there are a lot of young autism/adhd advocates, especially those who are white, are making a lot of white young advocate mistakes. I think that true advocacy work is happening on the ground every day. I think that people who are more visibly disabled are pushed to the side and patronized on the internet, but that doesn't mean they're not doing the work. I think this is also where a lot of young disabled (newly disabled) advocates run into a wall is actually doing the work besides raising awareness. Like I said in the video, telling people about a thing will only get you so far. As far as other mental conditions, I have bipolar disorder too. It's hard for me to separate down my conditions. I can tell you that I tell people that I have a physical disability, but I do not tell them I am bipolar until I can absolutely trust them. There's so much stigma there. But I don't necessarily feel left out, but I put my other conditions forward first because they are first in my mind. Great question though! I hope more people will comment with their own thoughts.
@xOzymandias2 ай бұрын
I want to take my dad who has mobility problems. Does disney have wheelchairs we can rent in the ship? Im flying from california to florida and dont want to take the wheelchair.
@disabledconstellation2 ай бұрын
I don’t believe so. Though in FL there’s a lot of places that will rent. I’m not sure about renting and going on a cruise
@tdadp2 ай бұрын
It breaks my hart to hear all this as a wheelchair user I understand where you’re coming from especially when minutes add up to hours I think it would be easier for imagers to spend the day in a chair thinking of designing something for easy accessibility
@disabledconstellation2 ай бұрын
I wish they hired actual people with disabilities trained in this in imagineering. 😩
@tdadp2 ай бұрын
I am shocked because the first thing you learn in traditions is to one get on that person‘s level and talk to them directly. It’s called inclusion it’s called courtesy and show.
@champagnebulge12 ай бұрын
It's time for Disability Advocates to go beyond requiring ramps to businesses and so forth. It's now a matter of broad cultural representation and personal psychology. It's time to move into the gray areas...
@lynn8582 ай бұрын
Thank you for the resource list!
@Zeruleon2 ай бұрын
Given how ashamed you seem to be of being white and the fact that you feel the need to apologize, I'll take what you say to heart. I've chosen not to listen to anything you've said, because you're a white woman. Sorry about your mitochondria or whatever lol
@FinntasticMrFox2 ай бұрын
"It individualizes us to the point where we can't identify or empathize with other people" is such a brilliantly succinct explanation, thank you for that and for this whole video.
@8lec_R2 ай бұрын
Thx for the recc
@___vlc___57303 ай бұрын
I'm assuming you are in america, and can everyone just use the disabled parking space? I'm in germany and here you only can park there if you have a plag, if not you get a parking ticket and have to pay a fine. Which is good on one side so non disabled people dont abuse it. But on the other side, you aren't abled to decide if you are disabled "enough" but the state does and also only people that are serverly disabled (schwerbehinderter) are able to use this accommodation.
@disabledconstellation3 ай бұрын
We also have the disability parking pass, but there’s a lot of assumptions that people are stealing their grandparents placards.
@SleepInVomit3 ай бұрын
At some point it will need to be acknowledged that European culture was far more sophisticated then any other culture. The reason "white people" are drawn to European culture is because it has a higher standard. American culture use to be closer to the European model which was more difficult. In turn created more resilient and intelligent people. It would be better to hold everyone up to the same high standard. Then you can truly judge accomplishments instead of people getting handouts and pity.
@disabledconstellation3 ай бұрын
My first question to you is, what is European culture? Europe has a wide array of cultures within it each with their own unique history. If you mean colonialism then you're just wrong. Colonialism destroyed and stole science, art, and knowledge from people that countries like Britain and Spain thought were barely human if that. Colonialism destroyed sacred, ancient land that had been protected by indigenous people for centuries. Destroyed food sources and whole species of animals for sport and nothing more. The consequences we are facing today. Are you talking about today where there are multiple European countries which prioritize giving people with disabilities access to euthanasia over appropriate healthcare? Or, are you talking about indigenous groups like the Sami from Norway or the Irish who fight every day to protect their ancestral land and cultures? I would say those are resilient cultures. The grand colonizer culture is not a "high standard" or create "resilient people." It creates people who cannot bare to hear anything that is remotely different. It is a bully at the playground who lashes out because it is afraid if it doesn't then it will lose the power it never should have had in the first place.
@SleepInVomit3 ай бұрын
@@catxtrallways Could you tell me one civilization who has had no war and killing of other groups of people?
@SleepInVomit2 ай бұрын
@@disabledconstellation Can you really not see all that you benefit from that has come from Europe? When I speak of Europe I speak of the whole of Europe and all of the accomplishments from that region. You would not even have this phone with the Internet if it were not for Europeans. You probably wouldn't be able to read had European Christians not placed value on being able to read... All civilizations have done terrible things to one another. The Middle East which you brought up earlier for their achievement of math was also the place that had the largest slave trading operation in the world for the majority of it's history. Africa was involved in that as well especially when they were higher in power. They traded in gold and people. Persians were certainly not remember as being kind people. They were known for their brutal fighting tactics and dominance over other cultures. If you were disabled in the past you would most likely not make it long if any famine or war came. Plus there probably wasn't the sophistication we have today in care for a disabled person in general. Personally I think the direction of hate towards all white people is wrong. People with white skin also don't owe anyone anything for being born the color they are. Life is difficult, no one is perfect. I think you may have more of an issue with corrupt wealthy individuals more then whites as a whole.
@Nat_7782 ай бұрын
You are parroting white supremacist rhetoric because you don't know anything about other cultures and fail to see the value in them. "European culture" created a horrendous class system where thousands of people toiled away to funnel wealth and power upwards to the lucky, lazy few. Funny how the exploitation by the rich is never decried as a "handout" despite the fact that those in poverty are forced to work the hardest.
@Impossibleshadow2 ай бұрын
@stacey7265 Its obvious you didn’t watch the video. You don’t even address a single point brought up in it. Why should I listen to you?
@harmalalkaloid3 ай бұрын
thank you
@lookingoverjordan3 ай бұрын
HI! I'm a Neurodivergent BIPOC Queer person and I deeply appreciate the clarity of your points (and your call-out from inside "white culture")! It's TRUE, the erasure LAYERS! The angles of marginalization push people further and further from stability and inclusion. In terms of disability advocacy, it requires all the more "spoons" on-top, just to reach the same conversations when dehumanized for additional identity factors. Trying to be one of those voices out here and I thoroughly enjoyed your video! I have a series on my @spookyjthebard channel called "Neuro Spicy Jam" that aims to reframe BPIOC-ND experiences through music. It's all about telling OUR bigger story together! Subbed and liked! Blessings in your work and life, Kindred!
@disabledconstellation3 ай бұрын
Thank you so much! Your comment means a lot. I just wanted to make the video that my 16yo self needed.
@kellybrown86383 ай бұрын
With respect, the Disabled community comes in all shapes and colors... we are just people. PLEASE dont "color" us
@disabledconstellation3 ай бұрын
You're absolutely right. However, race shapes healthcare and how we are treated as disabled people. With respect, if you don't acknowledge those elements in advocacy no true change can ever happen.
@jwsuicides80953 ай бұрын
I live in the UK. I don't know what it's like where you live but what you're saying has already been disproved. Btw, one of my diagnoses is also a mitochondrial problem...and it ain't no fun, right? Opportunity is about class and filial background, not about race/colour. What "guilt" should I have as a white working class woman? Under your criteria I'm calling YOU out for hurting ME. What would you like to do about that? Certainly you're proving in your reactions that being disabled doesn't automatically allow you to understand other people's troubles. Thank you for that exhibition. I have NEVER had the privilege of ebbing assumed "innocent". Perhaps you're just lacking imagination that you can't see other realities? I suggest that YOU just listen and "hold space" for the working class people who are disabled. "White fragility". What cool-aid are you drinking? To use your own words you're "doing something wrong".
@jwsuicides80953 ай бұрын
"Deal with your white guilt'...I can't stop laughing. You can't be real?
@jenbunnyaqua3 ай бұрын
I’m really enjoyed everything you had to say on the matter- please bear with me, I have a solid 7 minute +/- 90 second attention span, and from there I sacrifice either understanding or information. So I’ve been fascinated by this very concept of Lies 1- blurring into Lie 2 ever since I had my first ‘real’ (not small/superficial) talk with white non-NJ people. This matters as the most shocking takeaway for me was that they legitimately did not see ignorance as a fault or deficit of the ignorant which was SHOCKING and very VERY WTF to me as the Court of Law is VERY blatant when it comes to addressing accountability even when ignorant. So, ever since then, I have come to define very strict distinctions as I do feel it is my duty to educate ignorance (I have benefited more than most exploiting my ‘passing’ demeanor and relishing in white privilege) since the least I could do is be a voice for the systemic voiceless. So, I have just come to emphasize, the overall structure of the system when it comes to white supremacy literally existing in every corner of our society. As in, many cultures would address and emphasize land in their Laws whereas Western governments never did that and since they were the ‘colonizers’ deciding who was a person or not- obviously those laws and their supporting structure designed by colonizers were white-centric because those were the only humans and everything else were merely resources, not to be factored into law only as property when needed. So, I know you began with good/bad- but any discussion I have I explicitly state that is not a valid argument and if that’s your only position, you do not have one to provide. If they try deviations, but not really- then, I immediately switch to how good/bad can be replaced with ignorance. They eventually concede and so begins my dismantling of why at the core of their ignorance is an unconscious support for white supremacy- usually by emphasizing how if land was not considered and up to 1865 only ‘white men’ were people, then obviously the overwhelmingly white male government in USA (60% vs general USA population of white men is like ~half that) is going to keep pushing a system their literal grandfathers supported (because average government elected is like retirement age of 68/70s vs general population being like mid/late 40s or so). Turns out, many of the ‘ist/ism’ supporters struggle with using ‘logic’ and ‘research’ to argue their points when you impose on them strict timelines w/ the points you addressed about ‘advocacy’ and the constant push for a ‘sob’ story- which by the by, is a hugely CONDESCENDING element to consider- we mostly feel’ bad’ because we think the sob story stems from a ‘lost’ or ‘hopeless’ situation and therefore ‘not like us’ perspective. If the story of disability was meant to make us all feel ‘relatable’ there would not be a need for the pity element. So dehumanizing, I do not have the clay to highlight it anymore.
@jenbunnyaqua3 ай бұрын
PS- sorry, my biggest point about my ramble, which I totally forgot was that I actually legitimately feel that this is why DEI is such a current ‘boogeyman’ especially for white b00yz of a physical adult age is because the whole idea of DEI initiative flips the notion of Lie #1 entirely in their court. DEI initiatives are a ‘symbol’ of how now they will be held accountable and responsible for their ignorance- just as it is imposed and done to BIPOC individuals- and they will be seen as ‘bad’ for choosing to be ignorant of a minority’s situation in society. Hopefully, something I rambled on about made sense to you!!!
@TheTravelTechBear3 ай бұрын
We learned heaps about mobility on our last cruise, our first with my husband in a power chair. I agree with you about people being inconsiderate - staff guiding through restaurants either rushing ahead too quickly (if my husband was using his cane), or not being aware of chairs and such in the way (when using the power chair). It was a good eye opening experience.
@meryembetulcesur3 ай бұрын
Lütfen tekerlekli sandalye de giyinme videosu çek buna ihtiyacım var ❤bu arada çok tatlısın ❤
@disabledconstellation3 ай бұрын
I'll probably have to do that video when I move because it will be easier to record my clothes then :)
@meryembetulcesur2 ай бұрын
@@disabledconstellation I'll be waiting 😁 I want to dress tight but it's hard in my wheelchair 😔
@FamilyInTexas3 ай бұрын
Omg! The response that some people feel uncomfortable is OUTRAGEOUS!
@dollybabiesreborns3 ай бұрын
Prayers
@therealzuxana3 ай бұрын
"Some people aren't comfortable talking to people with disabilities" ... Well they need to be PROFESSIONALS and freaking GET COMFORTABLE. Jesus Christ this ticked me off!
@JackMorgan-ol6yh3 ай бұрын
Stay strong and im sorry that happened to you!
@disabledconstellation3 ай бұрын
What's your favorite wheelchair accessory?
@HeatherLandon2272 ай бұрын
The wheel covers!
@monicabo943 ай бұрын
For the last couple weeks, I've been watching a lot of families and couples take Disney cruise and decided to go on my very first Disney Cruise from my milestone birthday next year and I was thinking how about the people who are in Wheelchairs is the ship accessible for them, as I’m Disabled too, I am able to walk on my own, I do have Family members who are in Wheelchairs and I did see a Couple who were assigned a ADA state room on a cruise which they did not request they said… I also hate when people don’t talk to me directly. They talk to the person with me..
@disabledconstellation3 ай бұрын
I will say, that this experience is rare for a Disney cruise which is partly why I was so surprised.
@kamiko703 ай бұрын
get on the internet, look up independent living, and add your town. they are wheelchair accessible and usually affordable housing. im pretty sure all service dogs are allowed. hope that help sweetheart. - you can also report apartment buildings that are not wheelchair accessible to the ADA!
@kittenfostermomtpchs3 ай бұрын
As a person with multiple autoimmune diseases I look for lack of a better word normal but on the inside I’m not. I’ve told people yes I can walk but if I do I won’t be able to do anything else for days. We don’t want sympathy we want to be respected as we are. I’m glad you spoke up even if nothing changes all we can do is try.