You're an inspiration

You're so cute

Hi Nelle, it’s very nice to see you are fine after cochlear implants. I’m suffering from SSHNL and my tinnitus and ear fullness making me more sick. I was wondering did you have the same symptoms in SSHNL and after Cochlear implant do you feel tinnitus? I’m also planning to do CI asap.

I don't mean this as an insult, but it sounds like when the dentist gives you laughing gas. My wife's hearing loss is 110db, and deteriorating rapidly. I signed us up for online ASL. We're going to have to make a lot of difficult decisions before long. She's only in her 50s, I just want her to be happy and enjoy life. I want to be able to hear it when I say "I love you". Any advice would be appreciated.

Love this video so much! I'm gonna have to watch this over & over! I have a character who's whole family has sound based magics. As someone who's lived her entire life around such loud sounds, she & most of her family are deaf. I want to write her as realistically as possible, I want her to feel real!

Hi nelle, I was wondering if u have an audio gram for your hearing. Like can u hear better in lower or higher frequencies? Cause I need to choose an implant device and I was wondering what to get. I am 13 by the way! Love u. Great vids keep it up ❤❤❤

Hi nelle, I am very sorry for u I hope u get better. I understand what your going through. My experience is a bit a different, I was born deaf with moderate hearing loss in both ears (bilateral) but I now have a progressive hearing loss. I now have profound hearing loss in my left (97db) my right is severe to profound (88db). I am 13yrs old, I have the most powerful super aids like u had. I am being referred to ent, and Bristol and I have a cochlear implant assessment etc coming up. I am very nervous and scarred to be honest because they do not know why I have a hearing loss that has dropped. I relate with you so so much and I love watching u. I was wondering what happens at a referral for implants? ❤❤❤

Did you drop it?

Hi, I know this is an older video but I have a question One--if I'm not mistaken, a deaf person can have different severities of hearing loss in either ear, like next to no hearing in one ear and more mild hearing loss in the other. If so, then will hearing aids/cochlear implants even out their hearing, or will there be a notable difference between what can be heard through either ear's hearing aid/cochlear implant? Sorry if this question is hard to answer, it likely may not apply to you but I thought it wouldn't hurt to ask

thank you

Hi Nelle, I believe you and I have a lot in common. I was born hearing, and at the age of five, I started losing my hearing, and I couldn't pronounce any words correctly. I was put in to a speech therapy class to train me how to talk. Over the years my hearing rapidly declined. In my early 20s I became profound deaf. I will be having surgery this upcoming Aug 2024, my next surgery around Sept 2024 after my left ear heals enough to have the second surgery. I'm learning about cochlear implants, that's how I found your channel. I newly subscribed just now. Thanks for this current information. I'm nervous a bit overwhelmed. I hope this surgery helps me to hear again.

I could tell her voice was different. But just barley

My 7 years child just did cochlear implant and activated 2days ago. Not turning when she hear voice

When you said, i can hear people behind me, i started to cry because i am %90 deaf and i am using hearing aids. But doctor suggest me to get implants but i cant afford it now. And i cant understand if i dont read peoples lips. I am 24 years old and i cant count how many times i get fired because i cannot hear.

How is converstaion woth these can you understand speech better

important to add hearing aids dont make everything louder, just the frequencies the deaf person cant hear as well. thats why shouting at us doesn't work but HAs do. if everything gets louder speech doesn't get any clearer

Very informative! I'm writing a character who lost her hearing later in life and this have me a better understanding of what it's like and how it may affect her daily life. Thanks!

thanks so much for helping others 👍🏻

So sorry you got sick after surgery and everything went perfectly for your CI. But if I heard you correctly if you ate nearing your surgery then I think I know why you got sick. I was told a number of times no eating or drinking after mid night where I am located in the US. But happy all is well for you. Enjoy your videos.

Thank you for your words. Where do I get microphones to have people wear if I can't hear them well with my Cochlear Implant?

I have this too! So I’ve had the bobbing since I was a child but only when running. When my symptoms got worse I thought I’d mention it to my ent doctor he asked why I never mentioned it before? Well to be honest I thought it was normal when running. But now it’s when I walk. I’m at the stage where it’s so overwhelming and trying to adapt with work life and going out on my own. Anyway thank you for your video.

Why have u not for two cochlear implants? 😊😊

With my auditory processing disorder I would still have to read her lips to understand :(

Hello Nelle ! I just want you to receive my good thoughts. One more person cares about you.

Hey my name is Jasmine I’m deaf too

I'm sorry stop looking for pity or whatever I'll never come back to this channel i get a phony vibe just watching you.

Lovely analysis ❤

I HAVE THIS ISSUE TOO! Been dizzy for last two years and when I walk my vision isn’t stable. People in my life can’t understand fully which is understandable. Glad I’m not alone.

Wow you’re beautiful, We’re the same, i got Asperger’s too! And very hearing impaired as well. I’m in the process of getting a cochlear implant soon! Really excited to be able to ear out of my right ear again hopefully. Unfortunately my left ear is going even with my hearing aids. Struggling but living day by day. It sucks no one can understand unless they have this disability. They see it as invisible.

Quite funny how deaf people develop an accent based on evironment too 😂

Hello Nelle, how do you make simulations? Id like to Do this too with my hearing device.

I'm told other than being 1.95m, my voice is my only redeeming quality 😅..I guess with you I have no redeeming qualities then lol😂

I’m not sure if this is part of your question, as you phrased to focus on old-fashioned language, but I guess I am answering more on the topic of signs I view as being offensive or irrelevant to the word being communicated. I dislike and avoid to use signs which I view as holding a negative connotation. Those relating to history, appearance, and those carrying a racist, sexist, classist, ableist tone and making any assumptions not linked to definition. Most signs referring to an expected appearance I really dislike and try to find alternatives to. For example 'farmer' I dislike and would rather indicate work with gardening and animals depending on the farmer. For countries, I would much rather avoid racist and offensive visuals and have found alternatives through the first letter or spelling or country shape. For words with more meaning (in comparison to a name), I try to explain with other vocabulary. For example 'nasty' I dislike as it brings in an assumed physical element, which I believe isn't related to the meaning. I would probably try to use 'bad' or 'cruel' instead, or explain the situation. Some words I don’t feel explain properly the term. Such as with ‘curry’ I don’t see curry as always being spicy, but rather with a mix of spices, so I may try to explain a different way or spell.

That's a really interesting thing to talk about, thank you for asking :) Putting aside sign language for accessibility reasons, as you said, technical language is a major reason. Speed in some cases eg if there is a certain complexity and lack in sign vocabulary speaking may save time. If there are more words to explain verbally, and a simpler sign, then sign could be better, eg pointing, shrugging, a finger to your lips, indicating direction, a flat palm to stop, a strange position or expression. To carry on from that point, when you can't see the person's face it can help, eg from behind people can sign their direction, as cyclists may, or in a group situation people can raise hands to get attention or answer questions or vote. Yes, I agree, signing is so perfect for events and situations involving visual elements. I think it's great for food, animals, activities, emotions. I find it useful to use to communicate from distance (eg across a supermarket, carpark, or signal for help or beckon) or from a place cut off from sound (such as through a window in a building/car/train. Additionally, I like to use it in noisy or quiet situations, eg when a child is sleeping, at the library, in a cinema. Also a fun thing to use if having a private or secret conversation, eg across a school classroom, across to a neighbour's house, across the dinner table, behind someones back to get across a secret message or plan. I also find it can help when the spoken vocabulary has the same word with two meanings, or when the sound of the word could have multiple meanings. It could also be of benefit if a country uses multiple spoken languages and a smaller number of sign languages. It can also help to use as a universal language, when you don't share the spoken language. For example book, home, eat, drink could all probably be signed much more quickly and easily than learning those words in different spoken languages. I'm not sure if this is a part of the question, but it can also be used together with spoken language to emphasize or highlight something.

How long does it take to hear normally. I am considering CI implant, but scared to death of compatibility issues. Also, how badly would this impact one's career choices?

Hi, Nelle. Of all the comments you get, it is unlikely you remember any of mine. I've asked you about your ability to appreciate music with your implants, and so on. I'm not hearing impaired, and I'm much older than you are. But I kept checking up on you because I felt a kinship on some other level. The reason became clear when you shared your autism diagnosis in another video. We're part of the same neuro tribe. I was diagnosed at the age of 44 back in 2006 on that high end formerly called Asperger's syndrome. Like you, I've been grandfathered in under the ASD label. I had a late in life diagnosis because our end of the spectrum wasn't in the DSM or ICD until I was in my 30s. I was raised in the US by my British father and American mother, so I didn't know my UK family at all. When I first connected with them via FaceBook I learned there is autism all over my family tree. I live in the UK now. I left the US because, growing up and undiagnosed/untreated autistic, I was traumatised by a lifetime of teasing and bullying due to my social awkwardness common in people on the spectrum. Today, I live with complex PTSD because of it. The US is a nation of bullies and no place for people like us. But that's a story for my own channel when and if I get it set up. I like your videos, I hope you get monitised.

Hi Nelle! This was a FANTASTIC video! You provided great and thoughtful points, especially about technology and diversity, that hopefully will spark a lot of conversation and definitely got me thinking! I am planning on making a response video to this, since it is a fascinating topic. I will let you know when it is finished.

I voted for this on your survey 😅

I agree with a lot of the points given here. Most disabilities are inherently negative for the person with them. Even though you can learn to live with them and be happy in spite of them. I'm sure there's few people with debilitating disorders that would say they don't want a cure if one was possible. Personally, I'd take it in a heartbeat.

If you hear things as the link in your description states, how come you sound 100% perfect with your speech? This isn't a question due to any doubt but rather curiosity and amazement. There is an accurate representation of what it sounds like on youtube done by a university in America using a female that is deaf in 1 ear. It is quite different from what you posted in a way. It's more clear and as the girl explained, sounds like a wall between you and the noise. Perhaps because you are deaf in both ears, you are not able to give such an accurate representation. Awesome video btw.

Nelle , thank you for another informative video . I would like your opinion on your CI as regards to music appreciation . Has it improved or detracted the quality for you , tone wise I mean ? You are in a good position to pass on your personal viewpoint on this subject having both now and previously had two hearing aids. I`m finding professionals can speak with a bias one way or another depending on which field of audiology is their specialty , CI or hearing aids .

I really enjoyed this video and learned a lot. thank u!!

Did you have any difficulties related to your hearing aids when you got your drivers license? I'm curious about how it might affect driving in general!

You're awesome! loving this channel. Cogitate implants absolutely fascinate me, I hope they can move the tech along more, so that people don't sound scary.

I was born in a hearing family so I do feel I lost my hearing even tho it was in utero because communication difficulties.

I must not know much about Autism because you seem much more put together than myself , and I don’t have autism .

As the technology advances thre will be the ability to do more with those 22 channels. Your second processor will likely be beetter than this one

We absolutely need a 2 years update Nelle :)

I would love hear how u went therew your cocohlear implant as I’m in next stage off going threw it

Enjoy learning about your hearing experiences. I was implanted in 2013, and like you, I use a Nucleus 7 and I have a compatible Resound Enzo hearing aid. My hearing aid audiologist has set up the program on my hearing aid to complement the implant. Specifically, it is set up to provide bass frequency information. It "fills in" the sound in such a way that I enjoy music. At the same time, the feedback whistling is eliminated. This may be an option for you. I've just been informed that I'm now going to be receiving the Nucleus 8! I'm extremely pleased with my implant experience, and judging by your videos, which I enjoy immensely, I suspect you are very satisfied as well.