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@lindasmith8771 22 сағат бұрын
So basically the Consultant is cautiously ruling in psychogenic absences. This will be a most positive outcome with hooe for complete recovery.
@SassyFNDLife 12 сағат бұрын
@@lindasmith8771 yeah, ruling in the fact that it is most likely functional seizures 🙂
@user-ft5qs2lv5q 18 күн бұрын
Well done lovely at least you’re trying and managing to walk with your rollater . You certainly are a fighter not a giver uped xx
@SassyFNDLife 18 күн бұрын
Thank you! We have to try as best we can. I'm lucky to be able to get out and about, especially in the lovely weather we're having.
@LadyFreeBird60 26 күн бұрын
Me😂😂😂. Pretty much😎😊
@SassyFNDLife 26 күн бұрын
You can relate! 😆
@LadyFreeBird60 26 күн бұрын
Thank you for sharing your experience. I was diagnosed with fnd in 2016. I don't feel so alone. Nobody understands what we go through daily . I fear when remission happens because I have to deal with ignorant people. " I told y'all she was faking".
@SassyFNDLife 26 күн бұрын
That's awful you have to deal with those sort of comments. It's definitely real and is happening to you, never doubt that. It's hard to find others who can understand what you go through but I hope you find people who atleast want to try and understand.
@ktrean2054 Ай бұрын
Oh gosh Pauline's walking symptoms are exactly mine. This has helped to much as you start to doubt yourself. Its so hard to understand whats happening.
@SassyFNDLife Ай бұрын
I'm sorry to hear about you're walking symptoms but glad you know you're definitely not alone! Sometimes your mind plays trick and you start to worry but your walking symptoms are very much real.
@ktrean2054 Ай бұрын
@SassyFNDLife Aw thanks. I have stroke like symptoms with numbness in my face and sometimes I can't walk at all. Every episode leaves me exhausted. I was a very fit, active person before this, you definitely feel liked you have been robbed. Thanks for sharing 👍🏻
@SassyFNDLife Ай бұрын
@@ktrean2054 totally understand where you're coming from. I was a community carer, walking about everywhere and then I went from being a carer to being cared for with all these symptoms to wrap my head around. It's a slow process to accept this new lifestyle! Something we'd never thought we'd have to do.
@Sahasayed Ай бұрын
Nice😊😊😊😊
@Sahasayed Ай бұрын
Nice😊😊😊😊
@KCsBabies Ай бұрын
Well done you…
@SassyFNDLife Ай бұрын
Thank you.
@jacobomarod 2 ай бұрын
Onito
@angel79892 2 ай бұрын
Wow these are very good and so cute!. You should design t-shirts. 😀
@SassyFNDLife 2 ай бұрын
Unfortunately I can't take credit for the designs as I'm practicing then out of the adorable drawing book. They're so cute though, it's a great book and can't wait to try more out!
@angel79892 2 ай бұрын
@@SassyFNDLifewhy don't you havr a go at drawing your own designs. You can use those as your reference and develop some really cute characters. Those are quite simple it's simple graphical shapes and cute googly eyes. Maybe think of your favourite food and see if you can create a character out of it, doesn't even have to be food either can be simple objects. Just an idea if you are feeling creative. Love to see more of your art keep posting. I'm an artist too by the way and i also have FND. I love your channel and how you are raising awareness to FND. Keep up the great work! 🧡
@SassyFNDLife 2 ай бұрын
@@angel79892 that's a good idea. I'm thinking definitely a chocolate chip cookie with a bite out of it! It's given me ideas to put into practice 😊 sorry to hear you live with FND too but thank you for your kind words and following my channel!
@angel79892 2 ай бұрын
Amazing, can't wait to see that chocolate chip cookie character!@@SassyFNDLife 😀🧡
@paulinepreston5789 2 ай бұрын
So glad you have been offered something
@SassyFNDLife 2 ай бұрын
It certainly makes a change to be offered something on the spot and not have to fight for it.
@CrispeeCrisps15 2 ай бұрын
The one with the hedges is a flower bed.. it’s not supposed to be accessible for anyone
@SassyFNDLife 2 ай бұрын
Actually that's Horizon 22's rooftop garden which is fully accessible. Everything in this video is in it because it's accessible. That's why I have called it "accessible London" Lovely rooftop garden and highly recommend people to try and visit it.
@CrispeeCrisps15 2 ай бұрын
@@SassyFNDLife there’s no way a wheelchair fits between those 2 hedges
@SassyFNDLife 2 ай бұрын
@@CrispeeCrisps15 it's not meant to fit between those hedges, neither is anyone meant to walk there, that's just the garden.
@Sussxguy 2 ай бұрын
Good for you, well done getting there. Its been nearly 2 years since my accident and finally accepted FND will be here for a while... so time to make my best life. Take care you
@SassyFNDLife 2 ай бұрын
Acceptance is definitely the first step. I hope you're getting on okay. I continue to learn more about this disorder no matter how long I've been living it. Take care!
@fndtogether-tnfensemble1228 2 ай бұрын
Thank you to all the warriors for this fun and informative video about FND. Great job!!!
@SassyFNDLife 2 ай бұрын
Glad you enjoyed it! 😊
@paulinepreston5789 3 ай бұрын
Hope the appt went well!
@SassyFNDLife 3 ай бұрын
Thank you ☺️ update on that coming soon!
@lovefromrosecottage 3 ай бұрын
Just came across your channel and subscribed. I have FND after being diagnosed last May. Thank you so much for sharing and raising awareness ❤️ xxx
@SassyFNDLife 3 ай бұрын
Thank you for subscribing! Great to have you. Sorry to hear you're also living with FND. I hope you're coping okay and getting any help you may require. Xx
@lovefromrosecottage 3 ай бұрын
@@SassyFNDLife you are very welcome. I live in the North East of England and my GP has never heard of FND so its a struggle to get some answers, however I do have an appointment this summer with a neurologist that I've waited over a year for after getting diagnosed in hospital last May. I hope you are OK too and I think you're doing a great job highlighting this illness as it is so misunderstood. Kind regards and take care xxx
@SassyFNDLife 3 ай бұрын
@@lovefromrosecottage sorry you've had to wait so long but I'm glad you're finally seeing someone and hopefully they can offer you some support 🤞 I'm actually seeing a neurologist in London this Wednesday who I've never seen before, so I'll most likely have a update video soon. Thanks again! Xx
@user-ft5qs2lv5q 3 ай бұрын
Wow you were brave but an amazing experience xx
@sumk66 3 ай бұрын
I have on going neck spasms 24 /7..its jinn possession
@user-zs8mf6sw8h 4 ай бұрын
Do u want to be boyfriend and girlfriend y or n
@user-zs8mf6sw8h 4 ай бұрын
Your a very attractive woman
@user-zs8mf6sw8h 4 ай бұрын
Your a very attractive woman Gabrielle
@user-zs8mf6sw8h 4 ай бұрын
Are u single y or n Gabrielle
@user-zs8mf6sw8h 4 ай бұрын
Are u single y or n
@TooManyInerests 4 ай бұрын
any health update??
@wytewillow00 4 ай бұрын
Hi! I’ve just recently been diagnosed with FND. I not only have FND but also Dysautonomia and Fibromyalgia. My life has been a living h*ll for the past almost 20 years because I couldn’t get a doctor to listen to me while my symptoms just kept getting worse. Finally in November 2023 I got a neurologist who did listen and didn’t just quit after 1 test (usually a MRI to look for MS)! I never had even heard of FND until this past February! My doctor explained it well to my husband and me. Many days I have a severe stutter now. I kept telling the doctors that it felt like my hands didn’t listen to my brain or that my legs decided to go where they wanted to while I wanted to go the other direction!! I use a mobility scooter to get around if there will be too much walking. I hate going into restaurants while walking because it always looks like I’m very drunk :( I’m coping with using “spoons”. It helps, but sometimes I have to borrow some of the next day’s spoons. Between the 3 diagnoses it’s been hard on my husband with the mental part of this. I have anxiety and emotional dysregulation. My husband tells me how strong I am, that he would have given up on life a long time ago. I don’t feel strong when I’m in severe pain.
@SassyFNDLife 4 ай бұрын
Sorry to hear you've had such a rough time of it and it's taken you so long to be understood and get the diagnosis you needed. Terrible how long it took and all that time without support! I've also have the "are you drunk" comments multiple times and it gets more and more infuriating. It sounds like you're a very strong person and massive well done to you to keep going and fighting for the diagnosis! I hope it helps you and that you have been offered some form of support through this.
@Truerealism747 2 ай бұрын
Do you have heds I have CFS fybromyalgia classification years I've had pots to.now diagnosed autism ADHD fnd is highly comorbid with fnd ime awaiting to do sleep apnea test and try ADHD meds for pain 27 years CFS 6 years fybromyalgia which all same condition and lost my mum.last year to severe ms heds autism in to
@sumk66 4 ай бұрын
Its jinn possession..i had seizures since ruqya its calmed down
@KCsBabies 4 ай бұрын
Hope things have improved for you since this video - I have severe seizures myself and have fallen down the stairs - no fun 🥺
@SassyFNDLife 4 ай бұрын
I've definitely had my ups and downs since then, like I'm sure many of us unfortunately have! Sorry to hear you experience them too, they can be quite dangerous! I've been told by neurologists that functional seizures can't hurt me but it really depends on where they happen!
@KCsBabies 4 ай бұрын
@@SassyFNDLife Bless you. I don’t think Drs really know what it’s like to live with any type of seizures. I have Epilepsy myself, but even those have many types and a person can still fall - even with minor ones.
@SassyFNDLife 4 ай бұрын
@@KCsBabies absolutely. I've known lots of people, myself included, who have hurt themselves from falling or during a seizure.
@KCsBabies 4 ай бұрын
@@SassyFNDLife Sending hugs 💐
@MikSonus 4 ай бұрын
Congratulations on getting in your feet. I hope your progress has continued to grow. Truly inspirational 🫶
@SassyFNDLife 4 ай бұрын
Thank you! There have been ups and downs but the ups are always amazing and far out weights the downs.
@MikSonus 4 ай бұрын
@@SassyFNDLife Yeah, the up’s make everything worth it. 🫶
@user-ft5qs2lv5q 5 ай бұрын
Amazing well done you x
@SassyFNDLife 5 ай бұрын
Thank you! X
@bunnyisdreaming6081 5 ай бұрын
I'll do this later tonight! Where should I send it? I'll also message my fellow FND havere
@SassyFNDLife 5 ай бұрын
Ah brilliant! You can email it to me, or if you have Facebook, Instagram or Twitter it may be easier to DM me. I'm at Sassy FND life on everything. If not I can give you my email.
@tinanash194 6 ай бұрын
I can relate to soo much of this. I live on my own and it can be very frightening at times.
@SassyFNDLife 6 ай бұрын
I can imagine living on your own is very scary when you're having a rough day/days or even weeks with FND! Do you have anyone come in to support at all?
@tinanash194 6 ай бұрын
No I don’t
@tinanash194 2 ай бұрын
Me too and I live in a flat with stairs.
@durancakr914 6 ай бұрын
Günaydın güzel siz kız güzel
@craigpittman9764 7 ай бұрын
I get an aura before I go into a full scale seizure and can usually get to a safe place to have my seizure, though sometimes I go into an absence seizure right in front of other people. Some people who are aware of my seizures notice my absence seizures and try to bring me out of them . The one person who was most familiar with them though, has died.
@SassyFNDLife 7 ай бұрын
I'm glad you can usually get into a safe space but it can take a long time for someone to be familiar with the seizures and guide you through them, I'm sorry to hear they have passed.
@theautisticcat198 7 ай бұрын
I’ve just been diagnosed with FND in Wednesday
@SassyFNDLife 7 ай бұрын
Sorry to hear that. Have you been offered any help, treatment or support?
@theautisticcat198 6 ай бұрын
@@SassyFNDLife not as of yet but slowly coming to terms with the FND diagnosis any advice or support would be appreciated greatly thank you in advance x
@SassyFNDLife 6 ай бұрын
@@theautisticcat198 have you thought about asking your GP for a Neuro physio referral? And I know CBT/talking therapy can seem scary or not worth it but it's good to talk it out with someone, especially when you've had a diagnosis and are living with a disorder that's changed your life.
@theautisticcat198 5 ай бұрын
@@SassyFNDLife I’ll request that
@Northern-Sounds 7 ай бұрын
🎄🎅❤️🤗✌️
@allisonphillips1682 7 ай бұрын
If you "meow" "verbally" in your *thoughts* the symptoms will stop! <3
@spiritman-em4qr 7 ай бұрын
God bless you, child!
@wendybird5104 8 ай бұрын
Thank you for sharing.
@user-ek5xi1gj2z 9 ай бұрын
Thank you for sharing. I will buy one of these as I fall a lot when trying to transfer to my wheelchair when there is no one here to hoist me
@SassyFNDLife 9 ай бұрын
I think they're a great idea! Not only puts our minds at rest but our loved ones too who might be worried.
@loritrudeau4782 9 ай бұрын
Thank you for sharing your experiences with us. I hope you feel better soon. ❤
@SassyFNDLife 9 ай бұрын
Thank you. Had a slow couple of days recovery but atleast it was only a couple of days, could've been worse! Hope you're doing okay. Xx
@MikSonus 9 ай бұрын
I’m glad I discovered this channel. Very inspiring.. warrior queens 👑 ❤️
@SassyFNDLife 9 ай бұрын
Thank you! I'm glad you found it 😊
@MikSonus 9 ай бұрын
@@SassyFNDLife ❤️
@loritrudeau4782 9 ай бұрын
Thanks Sassy.
@SassyFNDLife 9 ай бұрын
Thank you for watching!
@mattrozdoba5660 10 ай бұрын
Who took the vaccine prior to being diagnosed?
@SassyFNDLife 10 ай бұрын
Not me. I was diagnosed over a year before the pandemic.
@tinanash194 6 ай бұрын
I e only had the first one Astra Zenica but I won’t have any more. I heard they can cause neurolocal problems. My FND started before the pandemic but I ignored the symptoms and put it down to clumsiness, being accident prone etc
@tomatkinson1986 10 ай бұрын
Glad to see things have gotten back to some sort of normality, love the positive energy you have too!
@SassyFNDLife 10 ай бұрын
Thank you! Hard to stay positive sometimes but we have to keep trying!
@Sussxguy 10 ай бұрын
I fell over at a private hospital yesterday as they had arranged an appoinment which they really didnt need to, 3 hours travelling there, had a seizure leaving so 4 hours home and it was only 13 miles away. that face on the stair lift was like mine last night trying to walk lol. keep smiling you.x
@SassyFNDLife 10 ай бұрын
Oh dear! I hope you have a much more restful day today. And hope you didn't hurt yourself in the fall? Keep those spirit's up best you can! X
@Sussxguy 10 ай бұрын
Got my diagnosis 2 weks ago, had an accident last year at work and landed on head and back, spent 11 months thinking i was literally going mad with memory stuff, sensory stuff, pain, limb weakness etc etc etc, my shoulders were same where i try and stretch it out but doesnt work, takes like 2 hours after this to even start relaxing. This is life though ah and what we gotta deal with.
@SassyFNDLife 10 ай бұрын
I'm sorry to hear that. Sounds like you've had a rough one! Atleast you have awnsers as to why these symptoms are happening. Although it still seems confusing at times!
@Sussxguy 10 ай бұрын
@@SassyFNDLife for sure, as a middle aged man whos worked in agriculture all my life it was hard feeling like i was going barmy!! its all good though, every day is a learning curve, keep doing what you do.
@SassyFNDLife 10 ай бұрын
@@Sussxguy absolutely. I went from being a full time carer to having someone care for me. Such a massive adjustment! But we work with what we've got don't we 😊
@SusiBrown 11 ай бұрын
Glad to hear you are moving around better on some days. Those 5 day migraines are really rough to go through, all I could do was lie in the dark as well when I’ve had them. It is such a relief when the pain lifts. Thanks for the update. I Hope you enjoy the rest of your summer. 🌸
@SassyFNDLife 11 ай бұрын
Thank you. They really are! It's awful because you can't do anything to distract yourself from it. Hope you have a lovely summer too 😊
@loritrudeau4782 11 ай бұрын
Glad you’re symptoms are improving. I’m glad you told us what’s been happening.
@SassyFNDLife 11 ай бұрын
Thank you. I'm happy to hear the update is appreciated 😊 hope you're doing okay.
@SusiBrown 11 ай бұрын
😊❤
@user-nb4zj6gh9r 11 ай бұрын
😊
@Northern-Sounds 11 ай бұрын
Wow. Quite an eye opener. I guess that people ought to seek some assurance that everything that should work does work when booking hotels, hostels, boarding houses, etc. I doubt that all of them would be 100% honest but perhaps the question would make them sufficiently worried... Very sorry to hear that you have been talked across too. Some people are bloody awful but it's heartening to know you have a decent man. 🤗
@SassyFNDLife 11 ай бұрын
Yeah, I always check with the train stations just incase. But atleast at the hotel the lift was working to begin with, it was just on our first night when we came back that they were both our of service. The being spoken over was probably the worst part for me, not being treated the same. Definitely glad to have my brilliant partner!