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@nancyfelstein3148 4 күн бұрын
I checked out your bra on Amazon and it’s sold out darn
@nancyfelstein3148 4 күн бұрын
Thank you for sharing funny about the dry lips thing I am one week post op still trying to figure things out thank you again for sharing ps you’re so pretty
@sunshinesummer2024 9 күн бұрын
You look beautiful! Thank you for this. ❤
@user-sq9gb4pt5j 11 күн бұрын
Thank you for these videos, very helpful.
@cristy6676 14 күн бұрын
Thanks you so much for sharing your story. I am going to be on the same situation in a couple of months. You are helping me understand what I will face.
@cristy6676 15 күн бұрын
Hi, I just find out last week that I have the same mutation as you Last year I was diagnose with a lobular breast cancer. The doctors told me it is better to remove the somach and breast also. Thank you for sharing your story, you are helping me during this phase
@BeetinGenes 15 күн бұрын
Hi Cristy, sorry to hear about your diagnosis. Just want you to know that there are new guidelines coming out in October of this year. Please let your doctor know about this.
@LisaCanning-r3q 20 күн бұрын
Truvani is the only protein powder that I can find that does not contain Stevia or some other fake sugar. Yes, its a tad expensive. Garden of Life contains Stevia. Sorry you had this experience.
@corn5484 20 күн бұрын
Did the NIH pay for this portion? Stomach removal, etc?
@BeetinGenes 18 күн бұрын
Yes
@tamalasneed2263 21 күн бұрын
Very cute. Thank you for sharing.
@corn5484 21 күн бұрын
Going to be finding out results soon. My 37 year old aunt just died from stomach and breast cancer 2 months after finding out diagnosis. Uncle died in his early 40’s of stomach cancer. Grandfather has colon cancer. 2 uncles have tested positive and both have children. I have 2 children and I’ve been having stomach issues. Waiting for my dads results and have a CT scan in a couple days… I’m terrified beyond belief. Giving myself panic attacks because I’m convinced it’s too late for me… because that’s where our brains go right? Please pray for me, my sister, my uncles, and my children.
@BeetinGenes 18 күн бұрын
Praying for you. Thank goodness you learned you are carriers so something can be done. CT scan does not pick up this cancer unless I’m advanced stages.
@corn5484 18 күн бұрын
@@BeetinGenes I have a colonoscopy/endo next month! Because I don’t have my results yet my doctor ordered both. I’m glad at least I’m hopefully tumor free from what they saw. Praying my results are clear. Thank you!
@femalesurgeon7436 21 күн бұрын
Very informative video for those who are going for breast operation.
@dlnollan 28 күн бұрын
You were so lucky that the Dr. gave you something up top. I woke up to NOTHINGNESS. It was horrible. I had over a year of terrible mental health, with crying every day and some days crying all day. I couldn't convince myself that I was a female. Finally got to a counselor, that didn't help either. Had my phase 1 DIEP flap last September. That was a miracle. I'm finally a female. I can wear a nightgown to bed.
@BeetinGenes 23 күн бұрын
It definitely can take a toll on your mental health. I knew I didn’t want to be flat. I don’t think I would have good body image. I really admire the women who can stay flat. That’s amazing you did DIEP flap. That’s such an intensive and serious procedure, but you now have your own body tissue instead of a foreign object in your body. I hope it was worth all of that trouble. You did it! Good job!
@stephbonanni4398 Ай бұрын
Hi, any updates on Marie?
@BeetinGenes Ай бұрын
Unfortunately, Marie passed away shortly after this interview 💔🙏🏻
@BeetinGenes Ай бұрын
www.singletonfuneralhome.com/obituaries/marie-white
@stephbonanni4398 Ай бұрын
@@BeetinGenes dang. I was hoping she could pull through. She seemed like such a nice person. RIP.
@armandosanchez8901 Ай бұрын
You look great... keep it up
@FrostyBud777 Ай бұрын
When I did my flush two days ago, I WAS CRAVING THE OLIVE OIL AND LEMON JUICE. No joke! The Epsom salts were disgusting though. Rinsing mouth out with grape juice before and after Epsom salt and then spitting it out can help.
@aprilhansen1111 Ай бұрын
That’s so disappointing to hear that you had that experience. The main reason I love Truvani so much it’s because they do not use Stevia. I have microscopic colitis flares, as well as IBS. Fake sugars are no no for me, but the fact that they use monk fruit instead stevia. Is a win win for me. I have so many gut issues Truvani calms my stomach. I used to use Garden of life, that was one of my first protein powders that I enjoyed, but it caused me so much bloating. It’s crazy how certain products affect everyone differently and it’s amazing how there’s so many varieties of products out there.
@BeetinGenes 23 күн бұрын
I’m considering switching over to just hemp and chia seeds. Something that isn’t processed at all because I do have bloat and I’m sure the protein powder is related.
@aprilhansen1111 6 сағат бұрын
@@BeetinGenes I will say. Most American diet lacks fiber. Once I increased my fiber and water intake my gut feels so much better. Chia seeds and flax seeds really helped my fiber intake. I cannot eat a lot of raw veggies. Good luck to you
@guysolis5843 Ай бұрын
Add the tomatoes anytime you want. Love the quick format. We all know what it is and we don't want to spend 15 minutes watching someone cut, peel, chop and explain..nice format..
@leahlewis6487 Ай бұрын
Love these ideas. How’s that Mac? Do the kids like it? I’m hoping to find the churro chips too
@alennyam1544 Ай бұрын
I did mastectomy LD flat surgery last month.
@user-ek3zu8jz1b Ай бұрын
the question is how long have you been living without a stomach, I'm 5 months into recovery and it's going very hard, I'm not sure if I'll succeed, how long did it take you to recover?
@BeetinGenes Ай бұрын
I am nearly 2 years. What is happening. Why do you say you won’t succeed? 🙏🏻
@user-ek3zu8jz1b Ай бұрын
I don't know, recovery is difficult, luckily I didn't have cancer but gastroparesis, so they had to remove it, how did you feel after 5 months, I have a stool once but always rare and soft and frequent nausea?
@armandosanchez8901 Ай бұрын
Your videos are so illuminating
@odeemom Ай бұрын
The worst for me was the epson salt water … that was horrible .. grapefruit olive oil wasn’t bad at all but it was so much by that time of the night I felt so full.
@armandosanchez8901 Ай бұрын
I got gastrioparesis and before it was under control was hell on earth...if it comes back I wouldn't mind to have them taking out my stomach... videos like yours give me hope that is that ever happen I will be okay
@carolinelloyd-doolan6724 Ай бұрын
You don't stay overnight! Omg!
@kennethmaese4622 Ай бұрын
Great recipe just keep in mind that when your buying the 505 green chile it comes in mild, medium and hot so buy according to your personal heat profile. Also, we in New Mexico traditionally use pinto beans in our stews and soups.
@Brildain1 Ай бұрын
i don't think ur flush worked. Those apparently are not stones, stones will not float and a lot of people get the green blobs and mistake them as stones. Goodluck trying agian
@jessishort Ай бұрын
This video gave attacking another influencer vibes just off one smoothie you made. Cause the suggested uses on the back of the bottle gives 3 ways to make it work based on preference. Not sure why you kept name dropping.
@BeetinGenes Ай бұрын
Thanks for your input 👍🏻
@armandosanchez8901 Ай бұрын
Let me ask you a question...let say that you are sitting in a pak right now...how does reality feel after all this time not to have an stomach... when i was suffering from my gastrioparesi,i feel like taking my stomach out....i was thinking " it can't be fucking worse"
@BeetinGenes Ай бұрын
I feel very normal now. No issues. Can eat just about anything. 🙏🏻❤️
@armandosanchez8901 Ай бұрын
So glad to hear that...see you in your next video
@giaaig9460 Ай бұрын
She is so funny. I liked this interview.
@giaaig9460 Ай бұрын
Can you be a vegan post gastrectomy?
@BeetinGenes Ай бұрын
I remained vegan for 1.5years after TG. But then I started wearing a continuous glucose monitor about 5 months ago and learned that it’s not benefiting my blood sugar. Too many carbs. Pasta, bread, rice, grains…. Spike and drop blood sugar. (I do t have symptoms) Unfortunately I’ve had to start incorporating meat again after 7 years of being vegan. 😭💔
@giaaig9460 Ай бұрын
Apparently, she is not ready yet to have her gastrectomy.
@BeetinGenes Ай бұрын
She actually had her gastrectomy 1.5 years ago.
@giaaig9460 Ай бұрын
The sound was so bad, I couldn't understand anything😳
@BeetinGenes Ай бұрын
😰
@armandosanchez8901 Ай бұрын
I spent an entire month with horrible nausea,24/7.... because of my GP....I understand exactly the hell you went through
@BeetinGenes Ай бұрын
Horrible! 😰
@sandraschuler5965 Ай бұрын
I just found out I carry the CDH1 mutation. I am a 61-year-old female. My sister died from stomach cancer 2 years ago. No one else has had stomach cancer, and I haven't heard of anyone having lobular breast cancer. I really don't want to have a gastrectomy. I also don't think endoscopies with biopsies are a good idea. I believe I could have indolent cells but if biopsies are continually taken may start a process that would otherwise not happen. I was told if I notice pain or something different to then have the gastrectomy. I have read too much about this mutation which has caused horrible anxiety for sure. You are both quite a bit younger than I am although I am very physically strong. I know Polly had a gastrectomy but I don't know if Taylor has. Are you glad you did this?
@BeetinGenes Ай бұрын
Hi Sandra, So sorry to hear of your sister. 🙏🏻❤️. Our thoughts and prayers are with you. This is a very difficult diagnosis. These cells are very sneaky. With that said, Taylor and I are not experts on CDH1 or gastrectomy. We recommend you seek care at a center of excellence. One that is versed on CDH1. I, Polly had a TG after 7 years of surveillance. Taylor still has her stomach. I am very grateful I moved forward with TG. Life is pretty normal for me and I don’t have the stress that came with surveillance. (I was 46 when I had my TG) Who is doing your screening?
@sandraschuler5965 Ай бұрын
@@BeetinGenes I just found out I carry the CDH1 gene 2 weeks ago. I don't agree with the biopsies for surveillance. I am thinking about total gastrectomy and have been texting with Thad Hamilton about this. I have seen your videos, and it seems you have done well following your gastrectomy. I have been doing medical transcription for 23 years and never heard of the CDH1 mutation. I have been reading about it. The percentages of who might actually get HDGC are all over the place. The gene has only been discovered in 1998 so fairly new. I have talked to a genetic counselor and my medical provider. I am looking to find a surgeon who has done many gastrectomy surgeries as a possible plan in the future. I don't have any symptoms and am going to the gym and trying to eat healthy. I almost wish I had not been tested, it was my idea, as I think and worry too much now about this.
@lucienlachance390 Ай бұрын
What are the ramifications of letting the HDGC progress to the point that it's detected on an endoscopy- is it just that it moves so fast that you're unlikely to catch it right at stage 1, and it could already be stage 3-4 when it first becomes visible?
@BeetinGenes Ай бұрын
Hello Lucien, The key is to capture the cells with surveillance so that a skilled pathologist can visualize them and ‘stage’ them. These cells are diffuse and not necessarily seen until advanced. With that said, I am not an expert. We recommend you seek care at a center versed in CDH1. Have you reached out to no stomach for cancer? They may have more/better answers for you. We wish we had more answers for you. There will be new guidelines coming out this year. Have you spoken to a genetic counselor? Who is your doctor? Are you receiving care at a center of excellence?
@lucienlachance390 Ай бұрын
@@BeetinGenes Thanks for the reply! I found out about my CDH1 mutation via a free mail-in test and the genetic counselor with that company just recommended seeing a gastroenterologist. I do have an endoscopy scheduled next week at a local center in town but depending on how it goes I can for sure reach out to No Stomach for Cancer. I’m not sure if every endoscopy center does the 30+ biopsies or however many are recommended for the diffuse type, they might just be glancing around for anything noticeable to biopsy. Mostly I’m nervous that they’ll find something very visible and late stage since I’ve never looked into it before 😅
@pilotwall Ай бұрын
Thank you for this video! Wish you all the best! God bless
@amazingautumn12 Ай бұрын
What mutation did you have BRCA1 OR 2? Thank you
@BeetinGenes Ай бұрын
Neither. I have the CDH1 genetic mutation
@amazingautumn12 Ай бұрын
@@BeetinGenes Thank you. Wishing you health and longevity
@bungiebungie2858 2 ай бұрын
Thank you for sharing your journey.
@davidmcpherson8752 2 ай бұрын
Yes it might be the chia seedmy wife has a sensitive stomach when she eat chia pudding her stomach on top is very bad pain its the fiber the doctor said
@user-yd1du5ny2i 2 ай бұрын
I need to go have my endoscopy completed for myself as my Papa Carlyle (my mom's dad) passed away on June 22, 2010 from stage 4 gastric cancer at just 70 years old. I miss him every day.
@lucienlachance390 2 ай бұрын
I hope he's doing well
@arupdebbarma4420 2 ай бұрын
Hello sister wow you are good....I can't believe how can live without stomach because when stomach remove also vagus nerve cut😢😢😢😢
@Cmpennin 2 ай бұрын
I haven’t and wonder if you’re sensitive to something in it. I like them even though higher price point because of heavy metal testing they do. Garden of life is known to have heavy metals when tested by third parties. :( and I won’t do stevia. Just a heads up in case you care.
@lilycabrera59 2 ай бұрын
Thank you! Will be going to Trader Joe’s for some goodies.
@arupdebbarma4420 2 ай бұрын
How are you now??
@BeetinGenes 2 ай бұрын
Better than when I had a stomach. 😅
@arupdebbarma4420 2 ай бұрын
Wow but sister after surgery you got any symtoms like dumping syndrome....
@BeetinGenes 2 ай бұрын
I do not have any symptoms but I wear a glucose monitor and have low blood sugars on occasion. If I didn’t have the monitor I would never know.
@LornaMatheson-rx7bn 2 ай бұрын
Everything will be ok and believe that you will be the strongest you have or will be #1 for yourself #2 for you children and your husband and #3 for everyone that you love and who loves you know more than anything in this worrld
@imcnagpc2 2 ай бұрын
I also hate stevia.
@Twinsnottwins129 2 ай бұрын
Mmm that looks so good❤
@BeetinGenes 2 ай бұрын
Chocolate Creami Sweetened with banana and a bit o’ honey: 6oz whole milk 6oz heavy cream 6oz Greek yogurt (4%) 11/2 scoops whey protein 1/2 spotted banana 1 tablespoon cacao powder (unsweetened) 1 tablespoon honey 2oz HU Keto chocolate chips, melted Dash of salt ⭐️Taste before freezing, add more honey or banana for desired sweetness. Blend, freeze, and spin! For the entire tub: Calories: 1345 Protein: 58g Carbs: 66g Fat: 89g
@user-mp5xf4xs4l 3 ай бұрын
When would I start doing these? After remove drains?