This is such helpful information! I've watched a couple of these videos from Dr. Levy, and it helps reinforce understanding about the disease for me. I'm a middle-aged female who was diagnosed in late 2020. Initially, it presented itself in my lower spine, resulting in not being able to urinate, extreme pain in my torso and lower body, and balance/lack of strength issues in my legs. I relapsed in February, 2022, and this time had issues with pain/vision issues. I've been on IVIG infusions for over a year w/no relapse. That said, it's hopeful that there are new clinical trials out for MOG patients, since IVIG is cost prohibitive.

Great Video, Thank You!

Thanks … very helpful video … not so much visual information about this MOG. Close family just diagnosed with this, from Denmark, Europe. Keep up the good work. ❤

fabulous, concise presentation. My son was diagnosed in Dec of 2022. He spent a week inpatient for high dose IV 1g methylprednisone treatment due to brainstem lesions and cranial nerve involvement which impacted his vision. He was also experiencing weakness, discoordination, trouble with having to think in order to articulate words, and think to walk. Since is treated outpatient with Rituximab infusions and has been tapering off of steroids. He is back to his base line and we are grateful. Some relapse symptomology. Would love to get into contact with Dr. Levy, MD.

What would be the recommended drop if I have been prescribed steriods? So far it's 60 MG for four days then a step down every four days

I am 37. I have ADEM and MOG

what is a MOG attack ? can someone give me a link to explaination. thank you

I also have mog. I would love to be in a group if others to learn what helps. What question to ask the Dr. Things like that. There’s is a group on face book but I have found little help. ☹️

I want to share my problem please let me know where I can

My husband has this disease and now he is doing rituximab injection... 4 done now.. treatment in Kozhikode medical college.. next month he has injection... we are worried if this disease will go away completely... now he is taking visalon 5 mg and vitamin pill...in India plz help

My brother had his first attack of optic neuritis in March 2022. After that he was given steroids, as soon as the steroids were stopped, he again had another attack.He was given steroids again, then again after stopping the steroids, he again had another attack. After that it was found in the testing that he is positive for the MOG ANTIBODY disease.His plasma exchange was done in the last week of June. After plasma exchange azathioprine was also started and steroids were tapper. But as soon as the steroids were reduced, he had another attack. This is his 4th release. Please help us regards the treatment. We are from India. He is just 16 year old.