The thing about endometriosis is that it just gets worse and worse. The lining in my stomach is trashed from all of the ibuprofen I’ve taken. In the last few years, I’ve started to get severe “endo belly” flare ups. It’s crazy noticeable now that I’m a bit thinner. Oddly, it feels validating. The disorder is so invisible that having at least one shred of visible evidence gives me some sort of comfort. How twisted is that?

I suffered from endometriosis for years… I FINALLY had a complete hysterectomy in 2020 and let me tell you- it was a total game changer 🎉 no more pain, no more excessive bleeding… I felt better than I had my entire adult life ❤ Thank you for this video.

I am 48 years old now. I had endometriosis when I was younger. I ended up having to have a hysterectomy when I was 27 years old. Best decision I made.

I had severe pain and heavy periods that lasted for a couple weeks from my early teens which only got worse over time. I was diagnosed with endometriosis in my early 20s. By that time I had ovarian cysts, fibroids, and endometrial tissue everywhere, even on a lung. I had 6 laproscopic surgeries with laser, 2 without laser to help diagnose and help the pain. So the doctors gave me hormones and increased the dose multiple times till they got the bleeding and pain under control. I was given shots every 3 weeks for 6 years to help with the bleeding and pain. Then I told the doctors I was quiting the shots because I was gaining weight. They said no I couldnt quit. I talked with them on symptoms and side effects, which were not discussed with me till that point. I quit the meds. It was a few weeks later I was fixing breakfast and the news was on. They announced a "new form of birth control", DepoProvara, and that shots were once every 3 months and 30 mg. I was in a medical trial no one even asked me to join and horribly overdosed on the the drug by the doctors. This was the 1980s. In 2011 I had a hysterectomy after having a period for over two months. I won't go into many details, but the surgeon cut the right interior illiac artery with a laser in three places, closed me up and sent me home. When I told the doctor something was wrong, I was told that I was in menopause now and was depressed and needed an antidepressant. I had internal bleeding, peritonitis, blood clots in my legs, lungs, heart, and later my brain. I am now big on telling women ask lots of questions, even if the doctors or surgeons get annoyed. It is important. It is your health. And your future wellbeing. If you feel something is wrong, don't give up if people dismiss you, especially if they just say it is hormones. Read everything you can on your issues, treatments, options. And feel you can talk to your doctors and that they listen and HEAR you.

I'm glad we are now talking more about this. I was labeled a drug seeker and called a liar by Doctors. Endo can be very painful. They treated me horribly. It ended when I had to have a total hysterectomy at 28 years old. I didn't have children and lost that option. I had to beg for surgery grants to even pay for the exploratory surgery that let to the emergency hysterectomy. I was then in debt to the hospital for $200,000.00. I actually have PTSD as a result. It is very difficult for me to go to a doctor. Fun fact: being labeled a drug seeker follows you. If pain is a symptom, they treat you like a junkie. I'm 48 now and still have a panic attack before a doctor's appointment. When I broke my clavical a year ago, I waited 4 days to go in. My friends practically made me go.

I never got the chance have children due to my doctors acting like I was imagining it. Finally the pain got so bad that my new doctor ordered ultrasound and they found gallstones and the worse case of endo; they had ever seen. The surgeon couldn’t believe that I was nice and laughing before surgery and afterwards I personally thank God and the surgeon for helping me. He told my first husband that I was a strong willed person and he couldn’t imagine pain that I had been in and was laughing and making everyone laugh too. I liked my surgeon because even my husband treated me like a basket case.

Great video. This needs to be shown to the majority of Gynae Consultants in 🇬🇧. Most think any pain in the lower abdomen, ovary, uterus, vagina, rectum is IBS. It’s shocking how far behind we are.

I didn't know butt lightning (the sharp pain in the butt) was a symptom of endometriosis. I was told it was normal. It happens in my crotch too!!

I started my menes in 1983 when I turned 13. I wasn’t actually diagnosed until I was 18. Back in the mid to early 80’s not much was really known about endometriosis. I had my laparoscopic surgery when I was 19. I was told that if I wanted to have any children, I should get pregnant right away. Yeah….my mom was a nurse on Maternity, and she was NOT happy about the OB/gynecologist telling me that! Endometriosis totally 💯 took my womanhood from me. I had at least 5 more laparoscopic surgeries by at least 2 other gynecologists, before getting pregnant and losing the baby. I got my tubes tied, so I wouldn’t get pregnant again, because I couldn’t lose another baby. In 2003 at 33 years old, I had a hysterectomy leaving my ovaries, that were free from disease. I was a severe stage 3, at that time. I did really well until 2018, when I started having severe pain issues with my left ovary and pelvic areas. I told my gynecologist that I shouldn’t be in this much pain, and he agreed to do another laparoscopic surgery. Low and behold!!!--I had endometriosis with no uterus 😮 My doctor was in complete shock, though I was not. I was okay until 2020, when my left ovary started hurting me again and I had it removed. I’m now 52 and STILL dealing with this evil disease. My entire life as a female has sucked……being in pain ALL of the time 😢😢😭😭 I was also dealing with depression, anxiety, migraine headaches, interstitial cystitis, fibromyalgia and IBS. I’m still VERY salty about dealing with this disease, because it is so evil, and does NOT discriminate. I wouldn’t even wish this on my worst enemy. I’m still grieving about my losing my baby, intimacy and being a woman. I’m with a wonderful man now, who was there with me in 2020, when I had my left ovary removed. He has been such a blessing and a great support.

Omg I'm BAWLING 🙃 I've dealt with this for over 10 years and had no idea. My mom is 56 and was only just diagnosed with endometriosis two years ago and had to have a full hysterectomy...since then I've suspected it for myself but still never been diagnosed. 🤯 Going to the Dr ASAP

Thank God The Dr.s are now talking openly about "Endo" issues! For years I was accused of being crazy with all of my symptoms and pains. That#3 Anal pains is no joke 😫. All you can do is grab hold to something sturdy and white knuckle it. Till it passes. I had pain in my navel as well as blood clots leaking out. Some months even having pain all the way down my leg to my calf.

Maybe this will help someone. I had a partial hysterectomy when I was 35 years old. I’m now 53. My symptoms were super heavy painful periods with diarrhea and horrible pain that would start in my pelvic area radiate down to my legs and all around my pelvic/back area and horrible nausea that would cause me to throw up sometimes. Toward the end when I couldn’t take it anymore I was having huge blood clots that would slide down my leg despite a huge pad and tampon. I finally got the Laparoscopy procedure and was diagnosed with a bad case of Endometriosis. The doctor was able to save my ovaries and cervix. One of the ovaries had attached to my uterus. I think this all started (although milder and got worse through the years) when I was a teenager. Those symptoms aren’t normal. There are natural ways to get rid of it and I wish I knew about them back then. I have two boys, both adults now and some of the pain I experience was as bad as childbirth.

Endometriosis began for me at 15 and continued until I got my hysterectomy at 40. Infertility was the worst thing. I never got pregnant. In hindsight things probably worked out better for me without children of my own. I’m glad this condition is gaining more attention and understanding. When I was going through it I was told there was nothing they could do. I had an ovarian cyst removed and a lot of the endometrial tissue was layered away. My bladder is still affected today from endometrial tissue. It’s a horrible thing to deal with.

I had endometriosis and had a hysterectomy in my early thirties. What a life changer! I had no idea how much pain I was in until it was gone!

The sad thing about Endometriosis is that its so often overlooked by doctors who FORCE their patients to suffer for a very long time with pain before they do anything about it! I was only 19 when I was diagnosed with STAGE 4 Endometriosis & it had already infiltrated my ovaries, bowels & bladder! If you have symptoms of Endometriosis what-so-ever, PLEASE do yourself a favor & make your doctor listen to you & if they won't, keep making appointments until they find out! I had exploratory surgery to see what was causing my issues because my right ovary was the size of a tennis ball & it was due to implants on my ovary bleeding into it & causing excrutiating pain & so they drained the bloodfilled cyst & then I ended up having 7 MORE surgeries within my abdomen to burn off the implants! This is NOT a disease which should be taken as lightly as health providers do!!!

it took three ob/gyns before endometriosis was ever even brought up. I was 17 and had been in the ER three times for abdominal pain. I wasn't officially diagnosed with endo until I was 22 when I almost lost an ovary to a cyst. I had been in pain for months and saw my doctor twice before seeking a second opinion from a specialist who finally believed me. I once mistook kidney stone pain for period cramps, delaying that ER visit when I should have gone sooner. The pain is very real, very intense, and unrelenting. This disease is hard and not enough medical professionals know how to respond to it. Thank you for spreading awareness and encouraging people to seek answers for their pain.

43 years old. Had horrible periods my whole life, cramps that kept me in bed and horrendous bleeding through my teen years. 8 years ago was diagnosed with HPV had an inch of my cervix removed through a LEEP, 4 years ago I Was told my uterine wall was twice as thick as it should be. And I also have fibroids that cause my breasts to be extremely tender. Was put on the mini pill. Two years ago I noticed that I would get extremely depressed during my periods and had headaches, muscle aches loss of appetite and of course all the stomach issues you said. Was diagnosed with PMDD am now on lexapro and still the mini pill. But it’s only slightly eased my symptoms next step is an ablation. There’s not much else that can be done as I’m told because of insurance. What I don’t get, I’m 43 had my children young got my tubes tied at 26 after my second child. I don’t want anymore kids. I don’t need my baby maker you’d think to save the insurance company money that one operation to remove everything would significantly ease my symptoms if not obliterate them but I’m told I’m too young and that insurance won’t cover it till they’ve exhausted all options but this is what Endometriosis leads to eventually so you’d think they’d just nip it in the butt and cut it out now since I’m begging for it.

I had endometriosis that started when my period started at 13. All the drs I saw told me it was in my head and gave me anti depressants. I finally had a hysterectomy at 29 after I threatened my Dr saying I was going to perform the surgery on myself. I was only allowed to get the surgery because my husband signed off on it. I almost died during surgery and ended up having everything removed. I was no longer able to produce my own hormones and have been living menopausal hell for 20 plus years now. I hate my life and I am so depressed that I consider suicide daily. The pain and hell never end. I also lost my appendix and gall bladder from endometriosis. Nobody really cares hence the suicidal feelings.

I have all these symptoms listed in the video. I discovered I had endometriosis almost 20 years ago. I realized that mine is caused by caffeine. I greatly cut down my caffeine consumption and have been able to control the symptoms and pain. If I have too much coffee or caffeine, the stabbing pains will come back. If anyone has this condition or severe pelvic pains, please try limiting your caffeine and see if it helps. ❤️

I remember screaming to just have someone knock me out and digging scratches with my nails into the wood of my parents couch when I was 16 and just being told I can’t handle cramps. At 40 I had a cyst pop out of my belly button and I’m finally now able to know I have a diagnosis. Pretty sure I have screwed up my insides from all the pain killers and just pray everyday no one takes away my birth control so I can continue to stand upright and get to work everyday. Sad to hear other stories but glad I’m not alone.

I have been following intermittent fasting for the last year and it’s helped me tremendously with endometriosis. I still have all the symptoms but the intensity is reducing and it’s much more manageable.

Not one freaking doctor believed me. I’m an RN. Suffered for years.

I had a complete hysterectomy when I was 31 years old. I had so much endometrial tissue they couldn’t do it laparoscopically. I had to be cut open and my organs scraped. It was the most pain I’ve ever been in. Before my surgery I would have period cramps that would take me to my knees and I would Defecate on myself. It was a horrible experience.

I went in for a partial hysterectomy cuz a tumor had crushed my ovary. When I went under to have that done they said the endometriosis (which NOBODY ever told me about) was causing most of my symptoms. I have been very happy and pain free the past 2yrs since my surgery.

A good diet, Whole Foods and things like turmeric and ginger are what get me through. I was on ibuprofen 3 days every month just to take the edge off ( I knew about the dangers of it, for my stomach) since I was twelve. Been dealing with this crap for almost 25 years and most of those years I had no idea it wasn’t normal. I was told, some people just have worse cramps than others… 🤦🏼‍♀️ I was 29 I think when I was diagnosed and only because I ended up having to go to the ER worried I had appendicitis. The pain was so bad I almost fainted (I have never fainted in my life) and no position I could get into would quel the pain. They put me on morphine… Had to have surgery to remove 2 cysts on my ovaries and multiple adhesions all around my insides. They put me on birth control and that made me feel awful. I tried that for about three years or so until my insurance ran out. Decided to take a more holistic approach. My stomach no longer wants to process gluten (ibuprofen? GMO’s?) I don’t trust doctors anymore so I haven’t been back for a while. And I have no insurance. Stress makes it worse. Anti-inflammatory supplements are life. I have also used maca root l, said to balance hormones naturally (as well as ginger). I can definitely see a massive difference in my periods when I have eaten badly the month before, vs. when I eat well. Green tea is also good

Sciatic pain in my legs radiating down. Feel so heavy and difficult to walk or like use stairs. Diarrhea and constipation.

It's sooooo frustrating to know something is wrong with me & I can't get a diagnosis. What I go through isn't normal. I'm almost 37 now. Seems my period pain hurts even worse lately. 😕

I also take turmeric supplements to reduce inflammation

I used to be in pain 12 days out of every month for years from endometriosis. Within 3 months of eliminating animal products from my diet, the pain completely went away.

I have endometriosis. Before I got it under control, I had diarrhea and the endometriosis diarrhea always had a very distinctive smell. I would hurt from head to toe, be dizzy and lightheaded, lethargic, clammy skin, cold sweats, diarrhea, and vomiting all simultaneously. It was awful. Two weeks before my period, I had the worst pain I've ever had -- in my chest. It felt like I was being stabbed. They checked everything thinking it was my heart or something else. Then when my period started, it'd be black blood, meaning it was old. After six months of tests and scans, they finally decided it was a rare case of thoracic endometriosis. "It's so incredibly rare" were my doctor's exact words. In the end, hormonal birth control was the ONLY thing that helped.

I had hip pain at night only on my period I’m 6 days past my endometriosis surgery I had all symptoms since I started my monthly when I was 11 years old and I’m now 27 with three small kids and like I said I finally found a doctor that is older and he said it’s normal for girls to have pain but not that severe and my second appointment he scheduled me my surgery date for the following week this is a on point video thank you

I had stage 4 endometriosis, after surgery it came back with a vengeance. My doc said mine was the worst he had ever seen. That’s the only thing that I ever wanted was to have a child.

If you think you have endo or know you do, please continue to advocate for yourself until you get the proper care you deserve. This nasty disease stole 22 years of my life. I FINALLY found a surgeon that would give me a hysterectomy and I've never looked back.

I have endometriosis stage 1 and for the longest time since 2012 I’ve suffered a lot of pain in my lower abdomen including the sharper nerve pains in my rectum/tailbone! It was so infuriating and no matter how many times I went to the doctors, they couldn’t do anything so I mainly ended up popping painkillers, painful mobility, collapsing on the ground clutching my stomach, nausea/vomiting, cyst, irregular vaginal bleeding and etc. It wasn’t until August of last year my god sister suspected that I had developed endometriosis after telling her the various symptoms I’d experienced and neither me or my mother ever heard of endometriosis and on further researching many of what I experienced matched with what we found and discussed it with my doctor. In less than a month I underwent surgery and it confirmed our suspicions and thankfully it was in its benign stage and I was prescribed birth control to help monitor the symptoms and regulate normally again.

Each month a week prior I begin cramping, nauseous and fatigued to the point of staying in bed all day, only getting up as needed. Then the day prior, I feel like I have the flu!!! I start and the pain hurt so bad and then the night sweats😓 I clot and bleed heavily from start to stop. I hurt like I have just given birth, and then there are the "pimple pop stabs" every few hours. Come the day i stop to 3 days after I'm sick with fly like symptoms again!!! My flow is typically 7-8 days. It's never ending. And looking back now my pain got worse after my 2nd pregnancy and tubal 8yrs ago. My mother also had Endo

I just got diagnosed with endometriosis in June. I’ve had symptoms for years but finally got insurance to cover the surgery to check if I have it. Apparently it was pretty bad.

I've been running around in circles with my horrible pains and endometriosis and this video just calmed me down so much. I match the second symptom and now I know I'm not crazy and should mention it if I can ever find a specialist. Thank you, really.

Can it affect your heart or cause palpitations? Also my doctor said the IBS symptoms had nothing to do with my period so Im glad I saw this...

Hysterectomy at 33 was best blessing ever. I suffered for 20 yrs!

Here's MY Problem: I ALSO have very severe uncontrolled Crohn's Disease, along w Endometriosis. Btw, the symptoms are VERY similar & overlapping for both diseases. Pelvic Congestion Syndrome (varicose veins on my uterus) was found in my 1st exploratory Lap; it was once considered an Endo symptom b4 changing it to a separate condition. My next Lap 1yr later actual Endo tissue was found. 6mos later I ended in the ER & almost died from a deadly impaction (deadly constipation) found to be caused by Crohn's Disease. It is NOT my GYN's fault that the Crohn's wasn't found sooner. He sent me to a GI doc for some testing, including a Colonoscopy & Endoscopy a few months after my 1st Lap bc my symptoms were bad & meds weren't really helping. Those scopes are how Crohn's is usually DXed, just like Endometriosis is found via Lap. They didn't find any GI problems. Just like Endo might not be seen in a Lap even tho you have it, Crohn's isn't always easily seen. Until it tries to kill you, in my case. Endo almost killed me, too, from surgery complications. I almost didn't wake up after 1 surgery bc my lungs stopped & refused to start working again in post-op, while my brain WAS awake enough to realizing I was dying. It was horrific & I have mild PTSD from it. My Crohn's has almost killed me at least 5 times. Hell, even complications during my reg Colonoscopies & Endoscopies have made me go hypoxic, stop breathing, BP crash almost sending me into cardiac arrest, etc. I often wake up during my scopes as well, which is traumatizing. My story is long & complicated. It truly began & got serious in 2007 @age 23. But, looking back, I had symptoms of both since HS, including miscarriages b4 I even knew I was pregnant in my late teens. Because of my medical problems, I'm unable to have children. My only chance would've been to go off ALL my medications & Crohn's chemo treatments. Ya know, the things that are *trying* to manage my conditions & pain & give me some semblance of a life. My husband accepted it years ago. I'm not sure I'll ever be able to accept that I'll never have babies. And don't comment "There's always adoption!" Bc it's not an option for us for a variety of reasons.

I usually cramp so badly, and One day I was fasting around the time of my cycle and I didn’t cramp at all.

Can you please explain why gyns are taught in med school that cervixes have no nerve endings and doing medical procedures on womens most sensitive anatomy is fine without anesthesia? Like how is a great number of women saying they are traumatized from procedures such as iud insertion or leep procedures not sparking a revolution in gynecologic care?

I'm 39 and was diagnosed with both IBS and endometriosis at the same time in 2010. I was in extreme pain for a whole year and no one believed me because they couldn't find anything on scans. I took LOADS of pain pills that didn't help at all. Finally I went to the ER where they did extensive scans and test and found out I had a "chocolate cyst" on my left ovary and needed to remove it. After surgery they told me they found endometriosis. I was so scared because I didn't know what it was. They explained I'd be ok but it would bother me during my periods. I explained I've been having horrible period pain for a few years and I cramp like I need to go to the bathroom. They then told me I had endometriosis and IBS and I was like wow. So now I'm wondering if I don't have IBS at all. I only experience my cramps and pain on or around my menstrual. I'm so shocked because I have these 3 symptoms you've listed in your video and I never knew it was all connected! Thanks for sharing. I'll speak to my gynecologist asap!

Omg I have all these 😩 with Gerd and PCOS and my stomach always hurts and I have no idea what to even eat anymore

I have all three of these only during my period. I know that I have endometriosis but don’t have diagnosis. Luckily, I have found that my symptoms only appear when I foods that inflame my body. When I eat low carb along with eating a lot of vegetables and fruits works for reducing my pain. Along with this, I use an enzyme called serrapeptase which has been a game changer for me. This supplement has reduced my pain so much that I sometimes don’t need painkillers some months or reduces the amount of painkillers I take. I do admit that I don’t always eat in a way that is best for my body but Serrapeptase has saved me from potential pain I would suffer when I’m not strict on my diet. As much As I wanted help from a doctor, I struggled to get a diagnosis and treatment but luckily through accidental experimentation, I have found relief. I always recommend people to do their own research and find what works for their own individual body as we all don’t experience endometriosis the same but for me, my endometriosis due to being inflamed.

I was having such severe pain, to the point of passing out. Lost 40 lbs in less than a month among other symptoms and issues. Saw a OBGYN surgeon, he diagnosed me as having endo after only using one finger to do a check and when he pressed to the right side of my vagina I almost passed out. I couldn’t have sex with my husband without being in absolute agony and tears 😢so he had some tests done, and long story short, I ended up having a complete hysterectomy, at 28 and they also removed my gallbladder and appendix. All in one surgery. Before getting answers for all these issues and all the pain and suffering I went through since getting my period at 10, and only getting worse as I got older, I literally thought I was slowly dying. My gallbladder was completely bad, full of stones not working. Then my appendix was near rupturing. Then the pain of endometriosis with cycles where I would bleed for weeks and occasionally months. Even with birth control. I’m blessed to have two kids since I can’t have anymore, obviously. Wanted to save one ovary but it wasn’t possible. 😢ladies please listen to your bodies. I very well could have died from many different things. Literally almost bled to death from my period lasting for 3 months and had a transfusion when I was 14. Mom finally took me to the doctor when I passed out crawling up our stairs smh. My parents thought I was just being a lazy teenager when I was in fact bleeding to death.

Thank you this was helpful I felt like I was the only one for years this is a relief

I was just diagnosed with pcos and went to doctor and he wants to do a diagnostic laparoscopic to see why I’m having the pain and this was a he first thing he mentioned thank you for the video

Oh wow. I am 47, and get constant ache in my left hip, and glutes, every time I get my periods now. Its awful. 3 years into perimenopause..this pain started 4 months ago. I suspect ive had endometriosis all my life. I also have an endometrioma.. this video has been helpful, thankyou. Anyone else get hip or bum/glute ache???

Good someone is talking about this

Im suspecting I have inguinal endometriosis. I have a pain and discomfort during my period that radiate to my hip and low back, along with swelling of groin lymph nodes, and a feeling of something catching between my groin and left leg. How do I get exploratory surgery without having to try birth control first? I have seen a surgeon twice about my firm and painful lymph nodes and he wasn't concerned.

I haven’t been “officially” diagnosed, I’m almost 32, and still want to have a kid…I’ll be happy even if it’s just one. But pretty sure I have it and my gyno just said they would have to cut me open to know for sure and left it at that. My greatest fear is not being able to have a child before having to have everything removed. Need some prayers, maybe some tips. Much love

I was diagnosed with PCOS but wonder too if I have Endometriosis because of the period runs. My pain can sometimes make me neausiated too.. I did not get diagnosed until my early 30s and almost done with periods (38 now and carrying a surprise pregnancy). I might be close to done with periods. But wonder what menopause will look like.. also I haven't looked up to see if it's genetic as I have a cousin who was diagnosed with endometriosis and how to hysterectomy early in her twenties. I also had clear signs on my teens but my then guardian didn't pursue doctors much, she just kept allowing me to come home from school when I was dealing with horribe period pain.

Doctor Rich, could you do a video on Adenomyosis?

Holy cow! Endometriosis is in my family and I have been trying to either get a formal diagnosis or to rule it out. I literally have all three of these and most of the normal symptoms but none of the obgyns I've been to have helped me. It's extremely infuriating to be in this much pain so often and have no hope for relief.

What about constant bowel pain/pain flare ups despite all tests coming back normal. Can that be a reaction from the bowel in response to endo?

Funny I find this video 10 years too late however Endometriosis runs in my family so I kinda knew what to look for. It got so bad in my Grandmother 50 years ago that it actually wrapped around her large bowel and caused a bowel obstruction and she had to have a colostomy bag for six months before they did reversal surgeries to fix her bowel. So I know it’s no joke don’t ignore the signs when I went to the doctor I had the monthly diarrhea which I thought was irritable bowel syndrome or anxiety and Left hip pain that wrapped around from back to the front I was 31 years old thankfully with 3 Gloria‘s children because when I complained to the Doctor and my physical was coming up she did a whole woke up and felt some thing thought it might be fibrosis she sent me out to a specialist he did an ultrasound and I was in surgery 2 weeks or so later. Afterwards they told me that the L fallopian tube and ovary were engulfed and the normal female uterus weighs 60 to 120g and mine was a 240 grams.

I eat less right before and during the first few days of my period

Had endo. I’ll skip the parts where I could have died, but the short version is that it traveled to my intestines which cause it to kink and had to have emergency surgery to remove 12” of intestines. At 45, they finally granted a hysterectomy and I was so happy for a couple of months. Now, despite topical estrogen (can’t take pill form), I am suffering everyday with vaginal atrophy. It’s like a raging yeast infection on the outside with a barrage of paper cuts in the worst places. At this point, I would gladly take back my one week per month endometriosis symptoms 🥹

Endo symptoms for me: blacking out! Stage 4 .... it helps if I watch the whole video first lol. Painful sex also blood or spotting after sex. Abdomen pain upon standing or stretching, reaching high.

What about cramps in the front of your legs?

What about pain on one side during your cycle ?.

Can u do a video about the types of endo

Only been four months and I’m already on the edge, I don’t even have a diagnosis. Just lost a baby before this started 💔 I’m 26 (one living child)

Started menstruating at 15 and by 16 cramps and heavy flow were so bad I got a laparoscopy. In less than a year I had developed scar tissue and cysts that they removed. I’ve been on birth control ever since, but I sure wish someone would develop a treatment specifically for endometriosis. I don’t like the emotional and weight gain downsides of being on birth control.

Me too. Dr. Drsia in Phoenix az gave my life back.

I just thought all this was normal

I had endo that badly presented in my 30s. I was told I was crazy for complaining about cramps for years. Doctors don’t listen. I had to fight for a hysterectomy.

I had endo. I was first misdiagnosed even after the tech side eyes you knowing your turkey purse is out of whack, so I switched obgyn. Ended up having a hysterectomy. The pain would have me hunched over, best way I can describe it was like a 20 minute (sometimes longer) contraction. It's so bad you can't sit, forget trying to use the bathroom. It's pure hell!!

Any provider recommendations? I feel my pain is worse leading up to menses. Started having extreme pain under left rib cage .. er doc said gi muscle spasms? Lord only knows I have three children 5 pregnancies smoked for years (quit , proud of that).... Just not treat my body as good as I could have But the pain is starting to affect my ability to function.... Attitude etc Also have pmdd which is like hell for lack of a better word . On my mental ... So misunderstood... So awful But coupled with the pain I am starting to shut down half the month basically... It's frustrating Take three head meds Multiple vitamins

I've had a partial hysterectomy in 2019, after 3 c sections and years of severe pain from endometriosis and adhesions. I had to go to a different doctor because the one i was seeing wouldnt listen and finally told me to see a psychiatrist. It was confirmed I had endo, and after my surgery, I had relief for a couple years. Then went through alot of stress and suddenly started feeling the same symptoms of pain and cramping but now in other places. I'm thinking its back. Also, i have been getting painful swellings and lumps in my toes and under my feet which turn purple and I'm crippled.. but it ONLY HAPPENS FOR ONE WEEK EACH MONTH. So I'm really wondering if some of the endometrial cells migrated through my bloodstream to my feet. Sounds crazy, but I did read that those cells can go anwhere in the body, so... I'm not going to bother going to a doctor because I am very familiar with that game of 'pay me to tell you it's all in your head'. So frustrating. Anybody else experience subcutaneous endo?

I still don’t know for sure I have endometriosis, but I’ve talked to many women who do and our experiences like up. I’ve now been on birth control for 4-5 years and it use to work at first but I can feel the pain getting worse as time goes on. The most pain I’ve ever been on was when I was not on my period and instead on a 3 month long cramp cycle where I wasn’t bleeding but felt all the pain I would have. I was woken up to the most intense pain I’ve ever felt. It genuinely felt like I was being stabbed and that pain radiated through my entire chest, I couldn’t breathe because of how much pain I was in and how much more pain I was in when I tried. I was so exhausted I remember wishing that maybe If I just stopped breathing for long enough I’d pass out and go back to sleep. I was 16, a virgin, and had been having problems arise over the past year. I went to my doctor with this information and she blew me off saying I was young, my cycle was irregular, and I needed to lose weight. I went back again and finally got out on birth control which has helped up until this point.

I have stomach cramping as well as back cramping. However, the pain initially started in my right leg and lower stomach.

My whole stomach tightens with sharp and heavy pain for hours all day and night. My whole stomach squeezes hard which makes it feel bruised. It somehow puts pressure on my chest and makes it hard to breathe.

Thank you soo much for sharing

What happens during and after *menopause???*

Yep diarrhea cuz intestines are stuck to my ovaries and the inside of my stomach, yes left hip Pain still to this day(after complete hysterectomy).. shooting pains when you sit down that goes right up into you like you sat on a spike..... that's cyst on your ovary, I had them at least 10 times.

Endometriosis is very common in my family, and almost all of my sisters have it. I don't get the pain during periods like they do, but I was always confused by period constipation because I get diarrhea. Could be nothing, but it would be interesting if I just had a different firm than them

For those who were tested for Endometriosis, how did you get a doctor to do it? I think I might have it. I started my period when I was 9 yrs old and felt all these symptoms as long as I’ve had it and I’m 34 now. I also noticed everything intensified when I turned 30. Including terrible depression. A coworker told me about endometriosis and suggested I talk to my OBGYN. All they did was prescribe me with BC and Ibuprofen. As I write this comment I’m two weeks into still having a period on this BC and my body adjusted months ago, this just happened randomly. I’ve tried to get tested for Endo and nobody will do it. Reading comments of ppl saying they had to get a hysterectomy scares me because I haven’t had any children yet and I don’t want it to be too late for me.

What about severe chest pain and lung pain that feels like your rib cage is going to be crushed. This happens every month during my period the worst my period is the worst the pain is. I saw online that endometriosis can go into your chest region but it’s rare. What are your thoughts? I actually figured this out while seeing my cardiologist and he said it was my heart that it was heart burn. I started paying attention and it’s only severe when I’m on my period.

I had severed pain in my hip for over a year. I could sleep on that side whenever i menstruated and ovulated. My doc just pit me on continuous bcp and the pain went away. She never put endometriosis on my chart as diagnosis ( i already have pcos). My doc just said we will treat the symptoms and there is no need for a definitive diagnosis unless i ever want to get pregnant. She did say that i do most likely have endometriosis though

I'm so glad I seen this video! I was unsure but I use a period tracking app and based on the symptoms I've logged, it suggests Endometriosis. I have all of these ☹️ every cycle I have is very painful!

I have vomiting a few days before my period….every single month. And massive headaches. And high heart rate. My OBGYN says it’s not related. I disagree as it’s cyclical and predictable. Any ideas?! I’m miserable and it’s effecting my family life

Can you please do a video on causes of prolonged MPs that last for years. I am on year 7 and am wondering what could be some possible causes since all of the testing has come out normal.

Wait... So...period shits(diarrhea) are NOT common when on ones period? Or the random lighting strike to the chocolate starfish every now and again while on the period? What about the feeling of being kicked in the crotch? Because that happens as well!! I also have pain in my ovaries during my period and not on my period, especially after 'happy fun times' with my husband. I have a really heavy flow, like I go through a super plus tampon in less than 2 hours. I'd always had a heavy flow, with moderate cramping, since first starting my period when I was 12. I'm 32 now and it is way worse. I have had 2 children, and after each child my flow got even heavier and the cramps even worse. I've had Severe cramps. Diarrhea. Hot flashes. Cold sweats. Periods last 5-7 days. I always thought I had endimetriosis, but my doctor keeps telling me I don't show any signs of having it. Says that 5-7 days is the average period length(I knew this already). He says my ovay pain is just due to the non-cancerous masses in my ovaries. I've asked about getting a partial hysterectomy, just remove the uterus and leave the ovaries. But he said that 'If it isn't medically necessary, I will not do that. But tying or cutting your tubes IS an option. However, you need to be sure you don't want to have anymore children before committing to that option. Besides your young(I was 27 at the time, 6 months after giving birth to my second child), you could want more later.' I told him the same thing 3 years later. Even more sure that I didn't want to have anymore children than before. I told him my body physically couldn't handle carrying another child, especially when I give birth to such big babies(first was 9lbs 12 ½oz with 40 hours of labor, second was 8lbs 7 ½oz with 15 hours of labor). My pelvic floor is literally riding the floor. At month 7 in my pregnancy with my second it felt like he was hanging out between my knees! He said, 'You're still young, and there are exercises you can do for that.' 🙄 I gave up with him. Currently waiting to hear back from my insurance on whether or not they will cover a tubal removal for me through a women's clinic. At the very least, I can insure I cannot get pregnant anymore. But I still wish I could get my uterus all 'Exito seato' out of me. I have a genuine concern about it. Especially since my mother(RIP) had to have a partial hysterectomy in her late 30s a month after my little brother was born, because she suddenly started hemorrhaging in the middle of the night and nearly died.

I knew something was wrong with me before I had my iud removed in 2016. I also had a d and c to remove the iud because my doctor couldn't find the string from the iud. I also had a cyst on my right ovary. That's when my doctor told me I have endometriosis. It's horrible. So I'm considering having a hysterectomy. I'm 46

I have migraines but they only happen 3 days before and on my period. Can this be a sign of endometriosis. My migraines started when I got my first menstrual cycle. They're so crippling I can't stand it. I really want my uterus taken out

I've had endometriosis stage 1 and 2.. What are the chances of endometriosis coming back a 3rd time after a hysterectomy and ovaries removed?

I do have diarrhea or either I get constipated or gas or the 💩💩💩💩💩💩💩 and I have butt cramps 🍑 very sharp pains in the bum.

Ba Zhen Wan.... this is a Chinese herb that my natural doctor has me on for endometriosis and it has helped greatly! I have two periods a month and they usually last about 7 to 9 days. This supplement has helped greatly with the amount of blood I would lose during my periods. Endometriosis is horrible to live with, I've been doing it for over 20 years. Diet can help a lot, and exercise, but as for supplements, this has been the one thing that I have noticed that has done a great job in helping with healing the symptoms of it.

What could happen if stage 2 endometriosis involving ovaries and cervix is left untreated for 17 years

Love the videos

Went to my gp with complaints about debilitating shoulder pain that radiated down my arm every time I had my period. Came out of that appointment with a prescription for combination birth control. Endometriosis is so weird.

What do I do if I have these symptoms? I eat way less as soon as I start my cycle because of the diarrhea, to ease the cramps I have to use heating pads and try to walk around, do to the rectum pains sometimes its nearly impossible to walk. It interferes with my job performance too.

I had tube ligation and tubes got removed. But been 3 months and have pain middle to on right side . How can I be tested for endometriosis?

My pain is not only in my pelvis it targets my quads. My quads are so painful I can't even walk 😫

Don’t forget to mention bleeding from the urethra

I get the shooting pains in my rectum, glad to know the root cause.

I'm 53, still having periods with no signs of stopping anytime soon. My sister had endo with a hysterectomy and I was told by several docs that I do t have it. True I have never had the heavy bleeding and diarrhea, but since I was 11 have had debilitating pain and vomiting nearly every month. For the past 5 years I have had no pain with the period but vary intense pain in the lower left abdominal area as well as the pubic bone and vagina which usually comes at night, 4-7. Nights in a row roughly 17 days into my cycle. Had my left ovary removed but nothing changed. Gym docs are perplexed and can't help. Any ideas?

I’ve been having IBS symptoms since about 5 years ago. Sometimes I get painful periods (those kinds when only a hot bath can relieve the pain) not so much these days, and I feel infamated when in that period. I am trying an elimination diet now with no sugar, no gluten, no lactose, no fried foods. I still felt weird and sometimes pain in intestines even after this diet. I took some progesteron and I felt pain in my lower abdomen after taking progesteron. I have infertility, that’s why I am wandering if I could have endometriosis too.