Most frustrating/least manageable PsA symptoms (for me) is fatigue.

I was misdiagnosed for 25 years. My psoriatic arthritis in combination with spondylitis has been a debilitating disease. I am now using an electric wheelchair due to the fact of the arthritis has affected every major joint in my body and also smaller joints. I live in chronic pain. When I have a flare up the pain can get so intense that I think about suicide. I am now taking Cosentyx and have been doing so for two years it helps some and allows me to function on a daily basis.

I'm watching this to see what my dad has struggled with for 26 years. I want to make his life easier, if possible!

I’m happy I found this. I have been dealing with this for so long. I didn’t get psoriasis part until the last couple years. I went to drs in my early 20s about 4-5 different ones and was brushed off with discouraging tone. Assuming I just wanted pain killers. I stopped going to drs entirely. Then found a PA that heard me out referred me to a Rheumatologist. Got Dx properly. Felt good to be heard. Just starting the journey. Hoping for relief. It has taken a toll on my mental health just sucking it up and powering through daily.

I was originally misdiagnosed with RA, before I saw a rheumatologist, who listened to me and asked questions for about 10 minutes straight and ended by saying “I think you have psoriatic arthritis.” I had been telling different primary doctors that I think I had PsA for a while and they all shut me down. It felt good for the rheumatologist to confirm my suspicions because I felt like it wasn’t just all in my head. I’ve also just recently been diagnosed with ankylosing spondylitis in addition, but my rheumatology team agrees that I most likely have both. Fun! This was super informative, so thank you!

I’m 33 years old, just got diagnosed with PsA. Pain started about 10 months ago in my right foot, 2nd toe in from the big toe. Swollen and stiff.. eventually became all the toes and heal pain started. Then developed on both feet about equally bad. Had a very hard time walking, would just fall due to pain. Was the worst in the morning or after sitting for some time. PCP thought was plantar fasciitis. Seen podiatrist, same diagnosis. Chiropractor worked for a few months on my feet twice a week, limited to no improvement. Developed a lot of body stiffness along with the foot pain during these few months. Only thing that worked was Prednisone, but as soon as I got off it pain returned. Was referred to neurologist by my chiropractor after no progress being made. Had full work up and MRI’s. Found bone spur and bulged disc c5/6. Neurosurgeon determined that there was not enough pressure on the cord to be causing my symptoms and surgery was not worth risk at my age. 2nd opinion confirmed this as well. Was then referred by Neurosurgeon to a rheumatologist, finally after 10 months I was diagnosed properly. I have no rashes but do have psoriasis patch on my scalp I thought was just dandruff. Been on 15mg/ day of prednisone for 2 months before the rheumatology appointment and that took care of 90% of my pain. Now starting on methotrexate and slow taper off of the prednisone. Wish me luck. Sorry for any typos, did this quickly on my phone.

Your videos are the best. I was diagnosed with PsA and I have not had a skin flare ever! Your information made me feel like I wasn’t the odd woman out..lol I also have Hashimoto’s disease and degenerative arthritis and I didn’t know you could have PsA with it! Please keep up the excellent work and thank you for sharing your knowledge with us. Many times we are so hurried in our appointments we don’t get our questions answered thoroughly so your videos fill a big gap for me. Thank you so much, Dr. Ortiz!

I have Psoratic arthritis….diagnosed 8 years ago ,This runs in my family . My uncle had it and my grandfather . I have it and my niece also has it . I am an MSN,RN for 38 years .My arthritis is very painful and it affects my spine ,knee , hand ( one side only ) . My arthritis is attacking my joints severely and one finger joint is severely deformed. Anyway thank you for all your information..I have a long story 😂 I am still working at the hospital..I’m tough ..

I would appreciate more like how it will eat away at your bone and joints. Also how it can affect your heart and eyes your organs and more. I have it so chronic it affects my teeth and jaw my throat. neck bottom of my foot wrists ,fingers shoulders, back and please explain how it changes every day. I have it daily in 4 to 7 areas. It is painful day and night. I never sleep correctly because of the extreme pain. I am basically disabled at 56. It is said this condition may stream from out tendons. My nails are affected and I need help for almost everything. Doctors should give even more attention to this condition. I want to say it was at menopause when it surfaced. Please really talk about what we should expect at a chronic level. EVEN ON TREMFYA (biologic)I am in AMAZING PAIN AND LOCKING OF JOINTS AT 56...😢 people look at me strange because I cannot pull a door to walk in or I have to ask to help fill medical paperwork because I cannot hold a pen or hold a cup. I eat with a plastic fork because it will not hurt me it is lighter. Please go further in research I am too young to loose my life without a normal life.

Thank you for this. It answers so many questions I have about my own problems and condition. I have swollen thumbs and forefingers, swollen ankles and stiffness in the morning and two identical patches of psoriasis on the side of both my lower legs. One doctor sent me for surgery to release my tendons as he thought this was the cause of the swelling and stiffness, and another thought I had Achilles tendonitis. Nothing has improved and as a last resort I’ve been researching the internet and your video came up. I know this is what I have and am now going to see my doctor again but this time armed with the correct information. Thank you.

I was only diagnosed because I went to the ER for what felt like an ovarian cyst rupture. They casually, at the end of the imaging report, slid in that I have findings consistent with Sacroiliitis. That's a big deal for a woman that's relatively healthy and under 35. It was swept aside, of course. Next, the extreme fatigue and knee pain. For a while, I felt like I had dropped an arch in my foot, and I'm unsure how that is supposed to feel. I was limping around at work and a client was so kind to me, she brought me orthotics for my shoes. Finally, a Rheumatologist referral. I gave him my medical history, mentioned the imaging and diagnosis of SI, and he asked if I'd ever been diagnosed with Psoriasis. Well, yes, indeed I have! I was an infant. He looked at my nails, which at the time were full of ridges and flaking off, thin, breaking, you name it. He basically diagnosed me right there. NOT EATING GLUTEN HAS MADE SUCH A MASSIVE DIFFERENCE. Talk to your doctor!

Does anyone else have psoratic arthritis and ankylosing spondylitis? Ive just been diagnosed after 10 years of crazy pain and wondering if anyone has regained a "normal" life again? Sending ye all power ♡

THANK YOU for this info. I am just starting my 3td biologic this year. I was on Xeljanz for the longest time but then got really bad about 4 years ago. But my doc made one change (to Enbril) and even though it didn't really help, there I stayed for 3 years. I think between my not speaking up loudly about how I really felt AND the fact that I am overweight and older I was shoved to the side and not really closely listened to. Now I have so much pain in my knees, shoulders, back etc that my life has become very small. Finally, I changed doctors and we are aggressively trying to find something that will work. Taltz is next up. Secretly I am worried that nothing will work and I will just end up in a wheelchair. This disease is like a cruel joke. I used to work out 3x a week, cook, entertain, and go out with friends. No more. I am trying to remain positive, but it is hard to keep hopeful when the pain is so bad. I am so glad I found this channel. I will follow the videos and read all the comments with great interest.

In my experience with PsA, diet is not that influential on symptoms. Flares come and go as they please. I think people overstate the importance of diet to try to regain a sense of control of their body because this disease has a mind of its own. Not to say just let yourself go and have a bad diet, but you cannot rid yourself of flares by going gluten free, sugar free, etc. Have a good balanced diet but don’t go crazy with restrictions. Have a beer or a cookie once in a while and don’t blame it for your symptoms because it just isn’t true. It isn’t worth starving yourself and then also being in pain because you’re just double-punishing yourself! Exercise and medications (biologics) are the only real ways to manage this hell.

Hello from New Zealand. I have been daiogised with Psoriasis Arthritis and mild Sjorgens syndrome. It took a while for them to daiogised. I show no Psoriasis on my skin but have very painful swollen joints. After many trails of drugs I now take Humira which has been a game changer for me.

Have PSA in the joint in my toes at the joint right next to the nail. It’s wicked painful when it flares but it can be calmed with a quick change in diet. Also, I was aware of the possibility for a decade as I had this accumulation growing under my toe nails and a 30 year history of psoriasis. Good on the docs for letting me know what to look for. I’m 48.

You are awesome ty ..I hope you do more on Psoratic Arthritis..I have wonderful doctors and my rheumatologist is amazing

I was diagnosed with Psoriasis in my early 30s now I’ve had so much fatigue, joint and muscle pain and I was just diagnosed with PsA and will go on Humira. I hope it gets approved and hope it works.

Very informative--waiting for a diagnosis from my Rheumatologist, already have Fibromyalgia for over 25 years

Dr Ortiz, Thank you for this presentation. More than 2 years ago I was diagnosed with psoriatic arthritis, which initially showed up in my left toes. A dermatologist had recently put me on Otezla, and it quickly cleared up the psoriasis. A podiatrist saw my toes , which became inflamed, and sent me to a rheumatologist. By that point, I was on Otezla for a few months and the foot felt better too. Out of nowhere, I was hit with a massive case of shingles of the eyes & face. Three of the doctors were convinced that Otezla caused it. A year ago when the toe pain started up, the rheumatologist put me on Cosentyx. After one injection, five days later, the shingles returned to my eye but was quickly distinguished 10:36 with Valcyclovir. A new rheumatologist believes that Otezla is the remedy that won’t lower my immune system. Do you agree? The joint pain six months ago has spread to my left hand & toes still bad.

I feel bad for U.S citizens issues involving GPs/hospital fees. In Australia, you see your GP & no fee. PBS prescriptions are $5.95. Our Medicare system is great. There's no mortgaging our homes for an operation

Thanks for this video. I was just diagnosed yesterday with PsA. I work in physical therapy and suspected I had it. Mine presents very much like RA (MCPs, PIPs and same joints affected in feet). I so appreciate your channel. Very helpful!

You’re right. Stress pulled the trigger on the PsA gun and diet and exercise does have a profound effect.

Love your channel..like and subscribed..thank you

No swelling whatsoever, hands and feet are fine, but was diagnosed with PsA. Not sure my symptoms fully fit.

I’ll tell you what, I thought I was dying I was in so much pain.. And out of nowhere, too, really.. I was diagnosed with psoriasis, but nobody told me about this.. The ER doctors were stumped, too, but I eventually got to a specialist, who diagnosed me in seconds (the nail pits were the clincher).. I appreciate the info, and even though I’m not exactly sure what a gluten-free diet is, I cut out all the sugars.. And it certainly helps, I’m guessing?.. Thank you again..

I was diagnosed with this after lumps developed on my left hand.I'd originally been diagnosed with ezecma and after the condition didn't respond to anything they threw at it a hospital decided that it was psoriasis but it was neither it was a very rare cancer called Mycosis Fungoides and the lumps where malignant tumours which lead to an amputation of a finger and part of the thumb.

6 is a hard one because the medications maybe available but not always accessible because insurance companies deny claims for it. ive had psa for a long time and only have tried humira because of my insurance making it so difficult. also psa is highly debilitating. a lot of dr and people in genral dont realize the impact it has on someomes financial and social lives . its a horrible horrible disease

The answer to arthritis is MORINGA POWDER, I have arthritis all over my body and tried everything but MORINGA has took the pain away and is resorting my bones and skin

My symptoms started w skin flares (that stayed, didn’t come and go). A biologic has. Early cleared it up. I’ve started having pain in first and second joints of a couple fingers wo redness. One hip can really flare when I walk. Main question I have is about something I’ve heard of recently-LDN treatment for inflammation. Have you had any experience with this?

can you get diagnosed with psoriatic arthritis WITHOUT psoriasis? my rheumatologist just diagnosed me with PsA basing it on about a half a centimeter of dry skin (confirmed by my family doctor) which is completely gone now for 6 months (its dry skin) and a dactilytis which I never had. please help.

Great presentation! Thank you a lot, Doctor!

Thanks for great information!

Wat meds works best for psoriatic arthritis n wat ointment or cream best to use also fir scalp

Thanks

I believe nail involvement is often associated with psa

My chiropractor told me I can have psoriatic arthritis. I went to him thinking the pain was sciatic nerve. After doing an X-ray he told me it could be psoriatic arthritis. I currently suffer from plaque psoriasis. Should I request a referral to a specialist ?

High doses of fish oil daily helps mooe effectively then pain killers. Pain killers actually make it worse as you irritate swollen areas when the nerves are sedated. A muscle hangover. I take 12,000 mg a day. No pain

What about cancer low immunization and a severe flare after 14th surgery. It's bad on skin joint bone. Left mastoid area swollen in lymph noids from getting sick at schools.

It is not red on me. I have blackness the looks like burned skin. I did end up with psoriatic arthritis

Thank you so much for this. What would you recommend someone who is pregnant or trying for a baby?

My rheumatologist is reluctant to discuss her diagnosis of PsA on me with me. We seem to be limping along on changing doses of methotrexate; and very little is presented regarding what ‘flare up’ feels like or what the normal progression is for this affliction. Do medications (pills/biologics) merely treat symptoms or do any of them hold prospect for curing PsA?

What are the side effects of these medications?

Thank you for this informative video :)

Does anyone know if water itchiness is related to this. I have been suffering from this for about 7 years. My doctor just diagnosed me with psa because of swelling and stomach issues. He saw a rough patch on my elbow and did tests. I'm constantly itchy if I have a shower or go to the pool in summer

I never had a single skin outbreak until after I started dmards.

Ohh yeah I has Psoriatic arthritis it's painful made me suffer for 12years,

I had no issues with my joints until i caught covid. Now my fingers on my left hand hurts all the time. Stiffness, swelling, itching and burning. Its been miserable. I think they intentionally put something in the man made virus to destroy our joints and lungs.

Why is it so difficult to distinguish psoriatic arthritis pain from osteoarthritis pain?

I have just been DX with psoriatic arthritis. I have ankylondis spondilysis, complete bone fusion in neck and partial lumbar spine. Also my psoriasis is pretty bad and I have those attractive sausage fingers and bad heal pain with extreme swelling.. I haven't had any remission in the last 7 months. I have started Cimvia injections q2 weeks and take Lyrica and steroids to help some with pain. When could I expect remission?

Ok so my question is.... I had childhood psoriasis but I don’t have it now. Does that mean my hip arthritis is NOT psoriatic arthritis?

Hi! I was diagnosed with Psa after under treatment for psoriasis for 2 years. Suddenly my breast up to my back is in pain coz of swelling so my rheumatologist said it is indeed Psa. Does psa apply on muscles as well? Thanks!

In our belly button, and butt area.

i was diagnosed last year and have questioned it since. i have no skin issues and never have . my sister and mums hands look same as mine. they have been diagnosed with osteo. why would i have something different.

In conclusion, does Biologic treatment cause cancer in long-term use?

I've had psoriasis since I was 6, first symptoms of arthritis when I was 13, diagnosed at 17, been on and off medicine. I'm 24 now and all my doctors don't really care, because I'm so young they think I can deal with it, literally had a doctor tell me that. Despite numerous x-rays and MRIs tell otherwise.

My docs can’t get an actual diagnosis but swears I have it . I got Epstein Barr about 7 yrs ago and I’m not even sure what that is but ever since then all I know is I’m falling apart ! And my skin joints and body are a mess . Double pneumonia in the hospital 4 times in 3 years . I’m so overwhelmed. Methotrexate did wonders for pain but severely weakened my immune system even worse that it already was and I got all kinds of skin infections! So now I’m on hydroxychloraquin. Doesn’t do much, My 2 nd Rheumatologist which is my current thinks I may be at the start osteoarthritis and my family dr thinks I have psoriatic arthritis along with my 1st rheumatologist. Insurance 🤦🏻‍♀️. I wish it was easier to diagnose ppl !

Bloked i can play Moree than theseee 55555555555555555555555555👋👋👋👋👋👋👋👋👋👋👋👋💅💅💅💅💅💅💅💅💅✅✅✅✅✅✅✅✅✅✅✅