Hi, I’m in Nova Scotia Canada and I’m now ~ 2 years on waiting list for consult with DBS surgeon.
@katherinefordham671910 ай бұрын
I was diagnosed at 36. I had my first DBS at 39 and my second side at 40. So thankful for a dr who was willing to go outside of norms to help me! I am located in Alabama.
@melindamorgan87817 ай бұрын
Thanks . I am Canadian and recently diagnosed.
@thesecretlifeofparkinsons7 ай бұрын
Sorry to hear that. Find a good PD community if you can and start exercising
@Michael-he7xn9 ай бұрын
Two year wait for me. Canadian. Only Medtronic was available in 2018. Seems to me that things are changing so rapidly that the systems are catching up. Though I do like the idea of doing all of the surgeries in one go. If they can do it.
@suregrip885310 ай бұрын
Thanks for the great information you both bring to the Parkinsons community. Did Marlene say what part of the brain (STN or GPI) the surgeon placed the probes? There seems to some controversy as to what is the best location to place the probes, STN or GPI. This might be a good topic for one of your videos.
@0xedderkop11 ай бұрын
Hi Jessica and Brian. I also have DBS and was operated in Wurzburg Germany. I did it all in one day. Both electrodes and battery. Nuno
@user-hi3jd6ow7r11 ай бұрын
Mine has not been great. Love liatening to the pdcast!
@davidhayes45311 ай бұрын
Thanks!
@ricksuvanto50099 ай бұрын
As a fellow Canadian I'm just interested whereabouts are you from in Canada? And where did you get your DVS surgery?
@Zerobar78.11 ай бұрын
Current information is that DBS is being made available much sooner after diagnosis according to my MDS. I did speak with someone well known in the PD community that also said the same. As well as most surgeons do this fully asleep as the imaging tech allows it now and depending on the individual the entire surgery can sometimes be done all at once. Brian, I don’t remember what your process was with your dbs??
@newworld647411 ай бұрын
it may depend on what city and province you are in here in Canada... cities with a medical university would be luckier ... they are also testing a set of gloves at Standford? university in the States that work on tremor ... but it is still in trialing but looks promising ... it is non invasive
@rajashrichoudhari758311 ай бұрын
How to improve our handwriting after diagnosis with parkison's?
@randompostings779511 ай бұрын
It cost me $125,000 just for the brain implants, but insurance paid it.
@jnm.6245 ай бұрын
Hopefully you are able to do more and your meds are less. 🙏🏼
@newworld647411 ай бұрын
1 Canadian told me it was a 3 year wait
@jnm.6245 ай бұрын
How horrible to be shaking, stiff and curling for that long. Sad, and no one knows what the criteria is for expediting the process? 😢