#75: A deep, personal view of The National Plan to End Parkinson's Act with Fred Piccolo

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#75: A deep, personal view of The National Plan to End Parkinson's Act with Fred Piccolo

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Күн бұрын

As you saw in Episode #74 with Chris Jones, we discussed the National Plan to End Parkinson's Act. In this episode, we interview Fred Piccolo, a young-onset Parkinson's Patient AND the Director of Special Projects for Congressman, Gus Bilirakas, also working on this National Plan. His personal story and hope that is inspiring. By passing this bill in Congress, he believes we could see a cure in our lifetime.

Пікірлер: 23

@elizabethsky4681 2 ай бұрын

Jessica, you are a powerhouse ❤

@marktaylor3047 11 ай бұрын

Man! Fred's confidence is uplifting and amazing. Raised my spirit

@thesecretlifeofparkinsons 11 ай бұрын

Right?! I never felt so energized about a possible cure until this conversation!

@fredp1776 11 ай бұрын

The cure is coming. Like a thief in the night we will see the day that we go to our movement doctors and they say, "Congratulations, you have defeated Parkinson's. @@thesecretlifeofparkinsons

@BishopJoe 11 ай бұрын

I just found your podcast, love what you guys are doing!!! Also, I recently had an opportunity to join in with the Micheal J Fox foundation in presenting and sharing with my state representatives office the importance of this bill and its impact on the state's constituents. Awesome interview you guys!

@thesecretlifeofparkinsons 11 ай бұрын

That's great! How did it go?

@BishopJoe 11 ай бұрын

It really was great! The statistics/info and personal stories were received with care and consideration. We were told that this bill would be put at the top of the congressman's list for endorsements. Hopefully this is the case!@@thesecretlifeofparkinsons

@davidhayes453 11 ай бұрын

Great interview to follow #74. Thanks!

@thesecretlifeofparkinsons 11 ай бұрын

Agree!

@johnjacobs9334 11 ай бұрын

So glad of this podcast! So important. I am a relatively new caregiver for my Dad who has Parkinson’s. Jessica, I used to work with you at Abbott. So proud of the work you are doing! Thank you!!!

@thesecretlifeofparkinsons 11 ай бұрын

Omg! Hi John! Wow, it’s been like 10 years since I saw you last! Are you in Columbus? I can’t remember. Please reach out any time to connect!

@joycebaker603 11 ай бұрын

I agree with you on all those ads i often wondered the same thing. So glad it to hear someone is working on this. Great pod cast

@thesecretlifeofparkinsons 11 ай бұрын

Agree! Here's hoping to the passing of this bill!

@pault6940 11 ай бұрын

Great guest, great video.

@thesecretlifeofparkinsons 11 ай бұрын

Thanks!

@Zerobar78. 11 ай бұрын

It would be great to see better testing for Parkinson’s or the ability to delineate or differentiate from other diseases. I’m going through significant testing right now as my movement disorder Specialist believes I do not have Parkinson’s but I may have MSA or PSP. I do read that PSP, over 90% of the patients with it are diagnosed with Parkinson’s first. There’s so many things that we can do as the proper funding for research and development of treatment and testing for these issues.

@thesecretlifeofparkinsons 11 ай бұрын

I agree! We just interviewed Dr. Patel (MDS) about the difference between PD, MSA, and PSP. That podcast is coming soon so be sure to tune back in!

@Zerobar78. 11 ай бұрын

Looking forward to it. @@thesecretlifeofparkinsons

@pattyb7090 11 ай бұрын

Hi Jessica, Great video as always. Hi Brian, Are you happy with your DBS? Has it helped you? My husband is thinking about having it done.

@brianbaker4648 11 ай бұрын

Yes, I am very happy with my DBS. I would do it again. As you are aware there's a lot to take into consideration age, lifestyle, symptoms. Everyone's results are different.

@pattyb7090 11 ай бұрын

@@brianbaker4648 Thank you!

@hollycooper3875 11 ай бұрын

I had DBS 23 months ago. Like Brian, I highly recommend! 20 months and I haven't taken any Sinemet 😊 Plus, I was asleep the entire 2 surgeries 😊 Louisville KY