A Child with Rett Syndrome (Esther the "Quiet Queen")

Рет қаралды 255,390

3 ай бұрын

Esther is diagnosed with Rett syndrome, a rare genetic disorder that impacts the brain. Her family refers to her as the "Quiet Queen" because she is nonspeaking yet still loves to be involved and included. Esther's family wants others to know that she is smart and can understand what you are saying.
Support SBSK at / sbsk
Help Cure Rett syndrome at reverserett.org/
Esther's Family's Blog: / quietqueenesther

Пікірлер: 662

@SpecialBooksbySpecialKids 3 ай бұрын

Anybody who would like to learn more about Rett syndrome, or contribute to finding a cure, can do so at reverserett.org/

@popicalbubbles 3 ай бұрын

that's amazing! :D Keep it up!

@danielle5873 3 ай бұрын

Hi Chris love your videos we can meet you guys I can be your videos can we make TikTok videos?❤❤❤❤❤❤ ❤❤❤❤❤❤❤❤

@Adrielle. 3 ай бұрын

❤

@icrum2009 3 ай бұрын

Muscle contractions and cramps can be caused by gallstones. An abdominal ultrasound examination would be worthwhile. I wish you all the best! 😊

@brittanydaniels1102 3 ай бұрын

@SpecialBooksbySpecialKids There is a newer approved drug for Rett Syndrome that goes under Daybue that is FDA approved for Rett Syndrome patients 2 years and older.

@Heathernd 3 ай бұрын

The heavy breathing is normal with Rett Syndrome. Our neurologist has said it's "neither good or bad", just a trademark of R.S. So, Esther is not in distress when she breathes heavily.

@samanthaharrington8713 3 ай бұрын

I came to ask this, thank you.

@daydream1066 3 ай бұрын

Thanks for answering my question, I was wondering if she was anxious because I know the family would have breathing support if she needed it.

@Heathernd 3 ай бұрын

@@daydream1066 we often forget to explain her breathing because we’re so used to it! But yes, she is ok when she breathes heavily.

@laurenferrell6013 3 ай бұрын

Thank you for sharing this. I was wondering that!

@Heathernd 3 ай бұрын

No problem! I would have been concerned, too, if I didn't already know.@@laurenferrell6013

@ShilasSpellboundCreations 3 ай бұрын

This has me all emotional 😭🥰. My aunt had Rett syndrome. She passed away at 31. My grandma took such good care of her, and as I got older I helped take care of her too. They are so right. Rett syndrome girls speak with their eyes 💜. I miss my aunt every day. She taught me so much. I think it's because of her I am a good special needs mama to 2 with autism 💜

@ShilasSpellboundCreations 3 ай бұрын

My aunt was typically developing until about 4. At that point she quit talking altogether. The over the next 4 years she reverted back to near infancy. She stopped walking, using her hands, etc.

@barbmoore6587 3 ай бұрын

❤❤❤you're an amazing niece, and now mom to our little spectrum, bright light children❤

@CriticalJuice 3 ай бұрын

@@ShilasSpellboundCreationsWhat?? 😢 I'm so sorry that happened to you

@TheCreativeAutistic37 3 ай бұрын

im so sorry to hear about your aunt your such a sweet person and your kids are lucky to have you im actually on the spectrum of autism and so is my nephew though he isnt as verbal as I am but ive always been close with my nephew even though i have two other nephews and a niece -- ive just always been close to paul the most. I finally got my answer when I was diagnosed with autism at just 33

@mercedesramosborrego5115 3 ай бұрын

ESTÁ CLARO EL PAPEL DE LA HERENCIA EN TU FAMILIA.

@mandymoe6493 3 ай бұрын

Not only you interview special needs people but also give their siblings time and space to say whatever they want. I can imagine that it can be tough to be a special needs kids sibling every now and then though not intentionally. I just love how everyone gets the chance to be themselves on this channel.

@isabellrc 3 ай бұрын

He’s wonderful with these kids. And, all of the interviews done with little ones, bigger ones, and adults are done with such grace.

@jannirian2164 3 ай бұрын

Yes, absolutely! My little brother has autism and an intellectual disability and has always needed a lot of support and attention. I regret so much that none of the professionals that interacted with my family because of him ever saw my sister and me, we kind of got left behind. So yes, I appreciate it soo much when somebody sees the special situation of siblings of children with disabilities!

@Kibaheart 3 ай бұрын

my brother has kabuki syndrome and it's shaped my whole family's life and I admit sometimes it's overwhelmingly stressful. my biggest problem is never having friends i could go to that understood the struggles

@Heathernd 3 ай бұрын

Absolutely. I love how his questions don’t seek a certain answer, but allows the family to share their story.

@the_love_monkey 3 ай бұрын

My sister has Rett syndrome & every individual I have ever met with the disorder is the kindest, strongest, and most silently intelligent human I have ever met. 💜💜💜💜💜

@mistytaylor8166 3 ай бұрын

Sounds like she has a great sister!!!

@the_love_monkey 3 ай бұрын

@@mistytaylor8166 Brother * 😅 but thank you so much, she's our world

@hannahj8099 3 ай бұрын

So does my sister ❤ I swear half my city knows her because of how friendly and sociable she is. She taught me to feel joy more often in little ways. She’s also very intelligent, so much so that she pulls the wool over peoples eyes so they do stuff for her that she is perfectly capable of doing herself 😂 sending love to you and your sister ❤

@alexelsden4803 3 ай бұрын

Definitely! My daughter has Rett and she’s absolutely incredible. Her teachers have said they would be happy to just watch her go about her day as she’s just so happy 💜

@wavyremix 3 ай бұрын

God bless you and her.

@baggynilbog9255 3 ай бұрын

I just know if the video didn’t cut there we would have 12 minutes of the sister tryna tell one of those long winded toddler stories lol. All the kids in this video are adorable.

@Heathernd 3 ай бұрын

Definitely! I love how they accept Esther for who she is and can share what’s on their mind.

@Lin.Stone. 3 ай бұрын

OMG ‼️ MY SISTER WAS DIAGNOSED WITH RETT SYNDROME‼️ This is the first time I have ever seen another with syndrome like my sister. She was the only one in NY at that time to be diagnosed.

@JinxMarie1985 3 ай бұрын

❤❤❤❤ I hope that this brings joy and hope to you and your sister!!! Lots and lots of love!!

@Lin.Stone. 3 ай бұрын

@JinxMarie1985 Thank you my dear. Unfortunately, she did pass away. 😢 I'm just so happy to see this. 🌻

@JinxMarie1985 3 ай бұрын

@@Lin.Stone. Oh my... I'm so so sorry hun. I'm sorry. I know that feeling. I'm going through it now. Grief is... hard. And a long journey. May she rest in peace.

@JinxMarie1985 3 ай бұрын

@@Lin.Stone. 🌹🌻🌿🌼💐

@cheerubebayonettaholopaine2638 3 ай бұрын

wish you two all the best for your loss ❤ love ❤

@rdejong525 3 ай бұрын

Mom of a 2 year old prader willi princess… those children are such a gift. Used to watch SBSK long before the birth of my child . Now i can really put myself in the shoes of these parents. From shock at first and disbelief … Now i feel it is a privilege to have my lovely girl who i totally adore.

@brandiehammond 3 ай бұрын

💕 Iam going through a similar thing with my son who’s about to be 14. Been dealing with since he was born. His tests came back negative for Prader Willi and anything on the chromosome end of the genetics within last year. . His symptoms are like prader, with the never being full , the behaviors that go hand in hand . But then there is a period he knows when he’s full and stops. He’s intellectually delayed, has a severe speech disorder called CAS (childhood apraxia of speech) but his type was he never developed the muscles that are in your mouth to help u speak. Was diagnosed at 2 and half and also has processing sensory disorder. Both eyes became severely crossed and gotten surgery last year. We got an another genetic testing done that deals with the other side of genetic testing and it came back that 2 of his genes that causes obesity are abnormal/mutated. Out of the 2, 1 of them causes the problems my son has. Now I’m in the process of being tested to see if I’m the carrier, who passed it down to him and hopefully we get a name/diagnosis so we can get the proper treatment for him. It’s a hard road for us mamma’s, but we got this and u stay strong.

@PixelTheExtraTerrestrial 3 ай бұрын

@@brandiehammondlook into pica mama and aprexia and pica are coman combitys with autisum im autistic with pica and they thought i had parda wili as a child my mum had ur type of tests done same type of results ended up being pica with the autisum all linked to sensory oral sensory ❤

@PixelTheExtraTerrestrial 3 ай бұрын

@@brandiehammondpica can also make parada wili worse and harder to deal with also if u have both

@brandiehammond 3 ай бұрын

@@PixelTheExtraTerrestrial it definitely can. I used to work in a group that only helped kids to adults who has Prader Willi.

@Heathernd 3 ай бұрын

How is your daughter doing?

@xplayerfireone 3 ай бұрын

Hearing her breathing really makes me feel breathless. It's wild how it can affect someone psychologically

@Heathernd 3 ай бұрын

The heavy breathing is normal with Rett Syndrome. It's neither good nor bad, just a hallmark trait of R.S.

@00zarzu00 2 ай бұрын

thank you for this reply (if true, which i assume it is; i do believe you). i was wondering if she was having trouble breathing, trying to communicate, or just being silly and playing around like the kid she is.

@LeslieMayorga 3 ай бұрын

I am Maddie Rae of Sunshine’s Gramma. Great job to this beautiful family. Rett Syndrome changed our lives. The joy of being Maddie’s Gramma is beyond comprehension. Sending love to our fellow Rett Families!! 💜💜💜

@Heathernd 3 ай бұрын

How is Maddie doing?

@CulviesDogMom 3 ай бұрын

I agree! Hadley is going to London in August to see her favorite singer, Taylor Swift! We let her do everything that a normal 10 year old does!

@Heathernd 3 ай бұрын

@CulviesDogMom good for you!

@LeslieMayorga 3 ай бұрын

@@HeatherndMaddie is doing really well!! Thank you for asking!! 💜💜💜

@nightyew2160 3 ай бұрын

I love that she shared the Book with No Pictures with Chris. It seems like a book that is right up his alley.

@Heathernd 3 ай бұрын

Yes, it brings out the best kind of silly!

@lizebotha8783 3 ай бұрын

I think the thumbnail makes her look like a model 😊❤

@catiedobbs3254 3 ай бұрын

She looks like Drew Barrymore when she was a little girl❤

@DawnOldham 3 ай бұрын

She's gorgeous!

@crystalbaugh5105 3 ай бұрын

it does! I thought the same thing!❤ Esther is a beautiful little girl🥰

@luchirimoya 3 ай бұрын

Totally! She looks like a doll hehe

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@sarahlou7796 2 ай бұрын

I also noticed her reaction when she heard how loved she was. She's very precious and her sentience, awareness and consciousness shouldn't be undermined. She's a lovely little girl, absolutely beautiful and I believe she truly understands how loved she is.

@jenniferclark9170 3 ай бұрын

What precious siblings! And the amazing neighbor girl who hangs out with Esther! Melt my heart!

@lizstallard9902 3 ай бұрын

Olivia is a precious soul , Esther adores her ❤

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@TheNoonie50 3 ай бұрын

I've educated myself about Rett syndrome after watching this. I think Esther could be a model if she wanted to. Gorgeous child, wonderful family.

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@BNHAalltheway 3 ай бұрын

Esther has such a loving family and she is very loved

@Heathernd 3 ай бұрын

It makes all the difference!

@laurenferrell6013 3 ай бұрын

She looks like a supermodel! She is a GORGEOUS little girl!

@Lyds_Art 3 ай бұрын

My best friend Keira has Rett Syndrome, literally the sweetest girl I’ve ever met. She’s so kind and caring and I feel like she’s the one girl who listens to me! She’s so amazing and I love her to the moon and back ❤

@Heathernd 3 ай бұрын

How sweet! How is she doing?

@Lyds_Art 3 ай бұрын

@@Heathernd she’s doing very well! I actually saw her yesterday ❤

@hannahb7038 3 ай бұрын

She seems like a doll baby ❤ What a beautiful child. Lovely family as well.

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@Annikaaa654 3 ай бұрын

My sister has Rett Syndrome, since she is older than me I've been used to this syndrome my entire life. Meeting up with other families who have a member with Rett Syndrome is really helpful for both the parents and the siblings ❤ Both my sister and Esther have so much life and joy in them!

@camh1149 3 ай бұрын

Your channel has got to be one the most pleasant and humanistic there is. It makes people realize that it is good to be kind towards those who are ''different'' in some ways, but nonetheless, alive and parts of our lives. Thank you for your channel.

@Heathernd 3 ай бұрын

It’s amazing how simply giving people a voice brings out their humanity.

@katrinakollmann5265 2 ай бұрын

You'd like the youtube channel called Clint's Reptiles if you like animals ♡ same energy

@Junegamingpandasbears 3 ай бұрын

My daughter also has Rett syndrome 😭❤️esther is just the cutest such a beautiful family

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@hagtorn4733 3 ай бұрын

SBSK, thank you for what you’re doing

@Heathernd 3 ай бұрын

Amen!

@anthonymatute6057 3 ай бұрын

What a cute little girl!!!

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@ciaradavidson5510 3 ай бұрын

I'm a pediatric nurse and I'm so thankful for being able to take care of a sweet girl with Rett Syndrome. Each day I get to spend with her and her family enriches my life and I'm glad I can help make a difference. 💜 😊

@Heathernd 3 ай бұрын

Thanks for doing what you do!

@sandidandy72 3 ай бұрын

I love seeing the siblings perspectives. My kids have always been loving, protective, and kind towards their sister despite the fact that they have unselfishly had to make sacrifices of their own as kids growing up. The guilt one feels as a parent is difficult to navigate, but so worth it. As a special need family, you have a unique opportunity to teach compassion through action. I know that sounds wonky, but trying to tell others what it’s like to have a child or family member with special needs IS exactly like reading a book to them without pictures…… so great choice of a book!

@supergorillaz 3 ай бұрын

esther’s community and family is wonderful. olivia seems like a good friend :)

@isabellrc 3 ай бұрын

Watching the siblings love on her is precious. The sweetheart neighbor is a a wonderful friend.

@Heathernd 3 ай бұрын

A child’s love is so beautiful.

@js8303 3 ай бұрын

Esther is the cutest quiet queen!!

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@Moonbunny55 3 ай бұрын

Love Esther’s reaction to Grandma and Grandpa ❤

@Heathernd 3 ай бұрын

Yes, she really lights up!

@lizstallard9902 3 ай бұрын

So much love , beautiful ❤

@debbieschultz9768 3 ай бұрын

Esther reminds me of A very young Brooke Shields. In other wards she is beautiful. I have always loved children and this little girl has so much love to give and receives it right back. Such a loving family.❤❤❤❤❤

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@lisadiane55 2 ай бұрын

I was just about to write the exact same thing, her resemblance to a very young Brooke Shields. Such a beautiful child.

@artisticafflair408 3 ай бұрын

she's beautiful. In the thumbnail, she looks like a 1800s portrait. ❤

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@mikepembo8297 2 ай бұрын

Her laugh around 9 minutes in was beautiful to see. Very clear shes cognizant of her family and knows shes loved. Hope she is being read how many people around the world are seeing her and wishing her well. Mam and Dad, her siblings, her grandparents- youre awesome. Esther, a big hello from the UK here!

@ST21phil07 Ай бұрын

My parents told me I was the best kid ever, but I'm more than happy to pass down this title to Esther. Esther (And all her beautiful family): You rock!!!

@jamesian-allen8725 3 ай бұрын

Her beauty and the love of her family brought me to tears. She and her family are earth angels...so is Chris.

@Heathernd 3 ай бұрын

Her golden hair makes me think she was specially made.

@balaam_7087 3 ай бұрын

I knew a couple who went to my old gym who had a daughter with Rhett syndrome. It takes *a lot* of effort as parents/caregivers to tend to certain special needs, but as the parents in this video and those of the little girl I met show, the rewards are so much worthy of the effort. These children look so bright and full of life, and their happiness is a testament to the hard work (and no doubt plenty of worry and sleepless nights!) of these fine parents.

@Heathernd 3 ай бұрын

It’s amazing how rare this syndrome is yet often I run into other families. I once ran into another pRETTy family at the beach!

@anadejardim7878 3 ай бұрын

These kids are adorable

@Heathernd 3 ай бұрын

They really are.

@DrinkinZima 3 ай бұрын

This is one of the best channels on KZfaq. So important.

@Heathernd 3 ай бұрын

Agreed. I’ve been following it for years.

@marileeb288 3 ай бұрын

I just want my husband and me to be friends with Esther's mom and dad. And our girls to be friends with Esther and her siblings. They seem like such wonderful and intelligent and caring people. ❤️❤️❤️ My grandmother's name was Esther and she passed away a few years ago. What a special and beautiful name.

@MaxDillion 3 ай бұрын

The girl give her strength, courage and to follow her heart amen.

@Heathernd 3 ай бұрын

Amen!

@trexx987 3 ай бұрын

When her dad is talking, i instantly know where the "smartness" came from

@scramblendan 3 ай бұрын

So nice to see the warmth in her expression when she is interacting with her family. This kind of support is so very important for her personal growth 👍

@Heathernd 3 ай бұрын

Absolutely! I pray for all families to be so loving.

@jennifervonbusch9335 3 ай бұрын

I love this! My daughter has Rett Syndrome and she loves books and music soo much!

@777anakin 3 ай бұрын

God bless these parents tremendously.

@Heathernd 3 ай бұрын

Amen!

@jnicole6266 3 ай бұрын

I worked with kids with Rett Syndrome in Early Intervention. I truly believe they understand everything and are intelligent but just can’t get their words out! It breaks my heart!

@laurenferrell6013 3 ай бұрын

That little girl Olivia is a gift from God for Esther. What a special little girl to be a friend to a special needs person at such a young age. Olivia’s parents should be so proud of raising such a special little girl!

@Heathernd 3 ай бұрын

Agreed! Olivia will always understand children on a deeper level, I think.

@mblp4092 3 ай бұрын

Beautiful laugh she gives at 8:52

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@emilymack4064 3 ай бұрын

Esther has some of the best hair I've ever seen!! The siblings always get me -- my triplet sister had severe cerebral palsy and passed away in 2005 at the age of 9. What a blessing these kids are to each other.

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@burly636 3 ай бұрын

Beautiful little girl.

@leahbee1992 3 ай бұрын

I cared for a young lady with Rhett syndrome. Her friends’ nickname for her was “sassy girl” because she was so expressive in her face and eyes.

@Heathernd 3 ай бұрын

Sassy is great! I love how our girls show their sassiness even with their communication barriers.

@bambina320 3 ай бұрын

Aww Esther is a ray of sunshine. Her siblings are so sweet too. May God bless this family. And every child.

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@sharonkinsella7435 3 ай бұрын

What a beautiful family! God bless precious Esther and her precious siblings and her whole family. ❤️

@Heathernd 3 ай бұрын

Family makes all the difference.

@rebekahhesketh1220 Ай бұрын

Just the other day at work, I met another young woman with Rett syndrome, and my heart went out to her and her parents. My heart is with anyone, young or old who has special needs. I love them all. ❤

@WinterIsWelcome 3 ай бұрын

Esther is clearly loved by all her family.

@Heathernd 3 ай бұрын

And she knows it! I love that joy she showed when they loved on her.

@robiny.4395 3 ай бұрын

I had a patient with Rhett syndrome. She was in her 30’s and looked so young. She was wonderful and her Mom took such great care of her.

@Heathernd 3 ай бұрын

How is she doing now?

@graciesmom62 3 ай бұрын

Three beautiful children, parents and grandparents….there’s tons of love in Easther’s world ! Thank you for sharing your family’s story with us. ♥️

@sheenagriffith2635 3 ай бұрын

Such wonderful siblings. May God shine down his love, and grace and healing touch on Esther and may she live a long, happy and fulfilling life.

@Heathernd 3 ай бұрын

Amen to healing!

@Myyt6908 3 ай бұрын

The whole family is loving and adorable!❤

@Heathernd 3 ай бұрын

It makes all the difference.

@FresiaMathern-Jacobson-qv7nz 3 ай бұрын

I have a strong connection to this video. I do child care for a girl with Retts. She is the kindest girl who loves everything and everyone.

@Heathernd 3 ай бұрын

That’s awesome. How is she doing?

@flannerymonaghan-morris4825 3 ай бұрын

She’s so pretty!

@Heathernd 3 ай бұрын

Yes she is!

@chocolatecoveredants 2 ай бұрын

He gives me hope that there's still good men out there and maybe I'll find one one day. 😢💜 Esther is an absolute sweetheart. 💜

@davidvenegas-qu2fj Ай бұрын

What a wonderful Family ...she is precious!!!!!!

@daniellewallace1996 2 ай бұрын

I love it when the whole family is involved with these videos. I love when the grandparents even want to be included. It really shows the amazing support system these awesome kids have.

@MrSuperdelf Ай бұрын

Her Parents and Grandparents and siblings and Olivia are amazing. Esther has a huge support group

@zerolightness6674 3 ай бұрын

Rett syndrome is so sad, I took care of a little girl with Retts syndrome, she was a little older when parents started noticing she would just drop things. You have to be patient with these children for sure.❤❤❤❤

@melanieoftheeast 3 ай бұрын

It's sad, but I've never seen such pure joy from a little girl!

@katrinakollmann5265 2 ай бұрын

Mmmm... I guess it's sad that she can't always respond but she seems happy and joyful and smiley and silly and clean and well loved. Not sad at all.

@LilyRoberts561 3 ай бұрын

Esther has beautiful hair!! Love her bows too❤❤❤

@Heathernd 3 ай бұрын

She rocks the bows!

@mandyw242 2 ай бұрын

Oh my goodness my daughter has Rett syndrome, my daughter was diagnosed when there wasn’t bearly anything known about it, exactly the same with my daughter she’s now 30 years old this year, she’s never been able to do anything for herself, my daughter can’t speak or use buttons or use the eye choice buttons. My daughter has the most beautiful smile she’s so beautiful. I have 4 children and daughter with Retts syndrome is the oldest, her name is Brookie. She thinks it’s funny when we hurt ourselves and shout ouch, she loves celine Deon and being outside, she loves being told she’s beautiful. It’s a hard life but the most rewarding and I can’t imagine ever being without her. THANK YOU FOR SHOWING THE WORLD ABOUT OUR BEAUTIFUL GIRLS

@Heathernd 2 ай бұрын

Sounds like a spunky, smart, loving girl!

@emilybaumeister4980 2 ай бұрын

Chris you are such a blessing to this world ❤❤thanks for all you do

@katiedunk4901 3 ай бұрын

My older sister Jodi has Rett Syndrome. She will be 47 later this year. My parents cared for her at home until December 2022 when her needs surpassed what my mom could handle. She is doing well living in a nursing home. She is a beautiful woman who has taught me a great deal about unconditional love. So much love to all the Rett girls … and boys 💜💜💜

@Heathernd 3 ай бұрын

Thanks for sharing. She has a great family, too.

@wavyremix 3 ай бұрын

What a beautiful kid.

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@Mark-om3cl 2 ай бұрын

She’s so pretty and adorable. Such a shame this happens to us, that smile when Chris was reading to her made me smile. Must be so hard knowing she understands what’s going on or talked about but struggles to respond. Amazing family and brother and sister.

@cal2527 3 ай бұрын

man what a great family. Thank You All for the interview. Very Educating and enjoyable.

@bkeri2673 3 ай бұрын

I like the way her friend asked Esther to be her friend❤❤❤❤

@Thoroughly.G. 3 ай бұрын

You really show the whole family and I love that!

@joyis9638 2 ай бұрын

🥰Once again, what a terrific family: grandparents, parents, brother and sister, and Ester! If anyone needs proof of the power of love .. or the eternal beauty of love, look no further! Prayers and Blessings and Love from God, from us, to each and all of them!

@Heathernd 2 ай бұрын

Agreed!

@djlamar2 2 ай бұрын

She doesn't need to talk for them to know how she's feeling. I love it. I had a friend who couldn't speak and was wheelchair bound (Her mom and dad were in a wreck and she was in the car with them but at the time there was no carseats and she was a baby) but every time she saw me she'd get excited by waving her hands around and squeal which to me meant "My buddy is here" and I loved it.

@paz335 3 ай бұрын

Olivia, her friend, what an amazing caring girl! Wow. Children are incredible sometimes!

@officialflikz 3 ай бұрын

Such a beautiful, kind and smart girl, we love you Esther

@Heathernd 3 ай бұрын

Amen!

@ARTWV 2 ай бұрын

Beautiful little girl. My heart goes out to her. Her heavy breathing is not fair. Someday she will have a new body.

@SFayeLewis 2 ай бұрын

You're referencing Heaven right.

@ARTWV 2 ай бұрын

@@SFayeLewis yes

@shineisland7447 2 ай бұрын

She may be the most beautiful child I’ve ever seen and she probably so beautiful within that this world just couldn’t handle it.

@frankjosephdaniels3733 3 ай бұрын

what a blessing to hear this family's interview. It brightened my day. Thank you to Esther and your whole family!

@Heathernd 3 ай бұрын

Such simple yet powerful love they show.

@kimulm0619 3 ай бұрын

This is such a great and beautifully compassionate family and y. tube channel. It is the compassion of divine source moving through each one behind and on camera. ❤❤❤❤❤❤❤

@Heathernd 3 ай бұрын

Agreed! Only God can gift a family with this kind of love.

@JinxMarie1985 3 ай бұрын

What a beautiful little girl. She is so lovely and kind and gentle. I love that her siblings just love her so much. And her parents love for her... It's honestly joyful to see. Tears of joy. ❤❤❤

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@game-editor2 3 ай бұрын

I love you guys from SBSK, I love what you're doing.

@lidu6363 3 ай бұрын

Her whole family is amazing and I really admire her friend Olivia. So many of us have much to learn.

@Heathernd 3 ай бұрын

Olivia is a special friend, for sure.

@lindamarie6574 3 ай бұрын

She is adorable!❤

@xkero 3 ай бұрын

She reminds me of 80s singers fashion in a good way

@fondasnow 3 ай бұрын

Thank you for making these videos. It is important work.

@cyndiwinzeler5016 3 ай бұрын

SO grateful for this! I know and love Sharla (and see much of her in her daughter), but have never had the pleasure of meeting the rest of their family. The more you watch Esther the more you can see how she truly does understand and have a wonderful sense of humor. Praise God for her AND her incredible family that sees how valuable she is

@gonavy1 3 ай бұрын

You really have an amazing channel. This brings out and shows the positive side that social media can have. ✌️

@Heathernd 3 ай бұрын

It’s one of the few I’ve followed for years.

@southernoregoncatmom6519 3 ай бұрын

What a darling little girl with such a loving family.

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@ozmonto 3 ай бұрын

What a beautiful family. These parents should be so proud of how they have raised these kind, intelligent, empathetic children. Esther has such a light to her. What a magical soul and blessing to this earth. Really lovely and touching interview ❤

@Heathernd 3 ай бұрын

Agreed that she has a light, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@CulviesDogMom 3 ай бұрын

You made me smile and cry. As a Grandmother to a 10 year old granddaughter with Rett Syndrome I can relate to everything that has been said. I have a feeling that Esther does the same as my granddaughter when she gets excited. She appears to breathe very heavily when excited or glad to see someone. Hadley has been snorkeling and ridden roller coasters. She loves to cruise. I wouldn't trade her for the world! I pray daily for a cure for our Rett girls and boys. Very well done! Thank you for shining a light on this! My grandson (her brother) also has a rare disease called Congenital Central Hypoventilation Syndrome (Around 1200 worldwide last I heard).

@Heathernd 3 ай бұрын

How is your granddaughter doing?

@jannirian2164 3 ай бұрын

It was so sweet to see how she warmed up to you while you were reading her the book!

@TheChorister51 3 ай бұрын

What a beautiful family.. Esther is so pretty. Thank you for sharing this. It is so informative.

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"

@britty23 3 ай бұрын

Chris, thank you so much for all that you do. You give a voice to those who might not have been heard otherwise. It really does make a huge difference. Keep up the amazing work. ❤

@Heathernd 3 ай бұрын

Amen!

@jungleboy82 3 ай бұрын

People wouldn't understand how blessed they are to have her. They see different we see blessed love and an amazing person, almost like autism a disorder that a parent is blessed with. Pay attention to the little boys answer when he asked what's so special, He replied she was sweet. He couldn't have described it any better.

@Heathernd 3 ай бұрын

Yes! I often hear “she’s so lucky to have such a great family” but WE are lucky to have her!

@turtlebop 3 ай бұрын

So in LOVE with the awareness you bring to our community ❤❤

@Heathernd 3 ай бұрын

Agreed. This is the best KZfaq channel.

@MP-vy7ot 3 ай бұрын

What a loving family, bless them!

@Heathernd 3 ай бұрын

Family makes all the difference!

@Adrielle. 3 ай бұрын

Esther are queens, my sister calls her Ester, without H😁❤️ I just opened KZfaq and found this video. May she be very happy

@shalacarter6658 3 ай бұрын

Welcome! I hope you stay and subscribe. :)

@Heathernd 3 ай бұрын

Agreed that she’s beautiful, inside and out! Just like Esther from the Bible. Esther 4:14 "And who knows but that you have come to your royal position for such a time as this?"