a day in my life with gastroparesis and a G/J feeding tube

Рет қаралды 10,086

3 жыл бұрын

Hi friends! Today's video is a day in my life with gastroparesis and a G/J feeding tube! The past couple weeks have been pretty rough for me so I decided that in today's vlog I would do a couple things that I enjoy to cheer myself up.
I got ready, did my makeup and put on a cute outfit, baked a delicious dessert of course, and sewed a few tops! I also showed you what it is like living with my tube at the moment and how I care for my feeding tube and set up my tube feeds. I also show you the cutest tubie pads I got!
I hope you enjoy the video and don't forget to like, comment and subscribe for new videos every Saturday. And as always don't forget to spread kindness and joy!
Tubie pad links (affiliate links):
✩Honeybee: bit.ly/3v09C1B
✩Yellow plaid: bit.ly/2MPw0JD
✩Kittens: bit.ly/3edp7xe
✩Peach polka dot: bit.ly/38e9S3c
Smores Bar recipe: frommybowl.com/gooey-smores-b...
✩My instagram: kenna.krueger
✩For business inquires: makennakrueger@gmail.com
✩Music by Naomi - The Coffee Shop - thmatc.co/?l=817FD82B
✩Music by Eric Reprid - June Blues - thmatc.co/?l=39333B5C
✩Music by Citrus Avenue - Elsewhere Palms - thmatc.co/?l=78186CB1
✩Music by Reggie San Miguel - Daydream - thmatc.co/?l=C51C7DC8
#gastroparesis #feedingtube #chronicillness

Пікірлер: 70

@KennaKrueger 3 жыл бұрын

Thank you all for watching, it means the world to me! I hope you all have a wonderful weekend💚💚

@TerriWhyton 3 жыл бұрын

I literally just discovered your channel an hour ago. Before this video I watched another day in the life vlog of yours before your tubes or anything and you were really struggling. I have to say you look so much better in yourself now and it's really warmed my heart. I hope you continue to recover and am wishing you all the strength in the world from another gp warrior

@KennaKrueger 3 жыл бұрын

Aww thank you so much! I was definitely struggling a lot back then but I feel l was often in denial at how bad I was and didn’t think I was that sick, but when I look back at old bloating pictures I was like oh my goodness how did I deal with that discomfort and exhaustion. I am slowly improving but each day I am starting to feel the benefits of actually getting nutrition and not walking around feeling like I have a bowling ball in my stomach and I am so thankful for that. Thank you so much again and I am sending you all my best!💚

@jennamunkres6350 3 жыл бұрын

You're lucky the food tube formula is giving you energy and everything. It hasn't been giving me anything, I'm still losing so much weight. It's so nice having another person in this world that can understand daily pain

@KennaKrueger 3 жыл бұрын

Yes I am very thankful I am getting some energy back. It’s a slow process but I am getting there. I am so sorry to hear yours isn’t going better, keep fighting and keep advocating for yourself so hopefully you can find something that works! I am wishing you all the best!

@sarofan 3 жыл бұрын

oh Kenna, your smiles brightens my day

@KennaKrueger 3 жыл бұрын

aww omg you are too sweet thank you💕

@babiesbytheshore7816 3 жыл бұрын

We share a lot of GI issues and I love seeing you every week! Thank you for being there😊

@KennaKrueger 3 жыл бұрын

Omg you are the sweetest, these comments mean so much to me thank you!💚

@alyssawssinging4039 3 жыл бұрын

Same

@JessicaLeigh 3 жыл бұрын

so glad you had a good day! the puppy sweatshirt turned out so cute!

@KennaKrueger 3 жыл бұрын

Thank you so much!!❤️❤️

@carolinelily7775 3 жыл бұрын

Definition of strength. You are amazing!! This video really helped remind me to prioritize my health. Thank you for sharing your journey with us💚

@KennaKrueger 3 жыл бұрын

Aww thank you so much, you are too sweet! And yes your health is sooo important and it is more than okay to rest more than usual. I am still reminding myself of that but I always feel so much better physically and mentally when I actually just take the time to rest and not overexert myself.

@Allison-ow2hm 3 жыл бұрын

Awww great to see you recovering so well!! This is random but I literally have the same elevation pillow in the end clip lol gotta love Amazon

@KennaKrueger 3 жыл бұрын

Aww thank you! Haha no way and yes Amazon has everything😂

@piper363 3 жыл бұрын

I have a mild form of gastroparesis. I can totally relate to no energy and pushing yourself to get the smallest of tasks done. I enjoy watching your videos. Keep up the good work. :)

@KennaKrueger 3 жыл бұрын

aw sorry you know what the fatigue feels like too because that can be so rough. Thank you so much for your support!

@swillmee Жыл бұрын

I also have a feeding tube and I'm very insecure about it, especially in front of my bf. But let me one thing say, this Video of you gives me so much strength to don't give up and to look up at the Things from another side. Very thankful💞

@maryhuffman4034 2 жыл бұрын

I’m so glad I found your channel. I have a J tube only and I can’t get past 20.

@eliskelton1501 3 жыл бұрын

your face is perfect hun, don’t beat yourself up

@KennaKrueger 3 жыл бұрын

aw thank you!

@danaverkerk6957 3 жыл бұрын

To see someone else living with gastroparesis is great. It makes me feel less alone, seeing you have a tube too, and the same problems spilling formula lol! Thank you for making these types of videos. It's great to hear you are benefiting from the nutrition, happy for you :)

@KennaKrueger 3 жыл бұрын

You are definitely not alone! Omg I spill the formula more often than I should and just today the tubing from the formula bag just decided to fall out while I was walking and formula got everywhere haha. You are so welcome and I am wishing you all the best!

@danaverkerk6957 3 жыл бұрын

@@KennaKrueger thank you so much! Being able to relate to someone when I feel so different from my friends is amazing! Hahahah once I spilled a full litre of formula. Like, HOW?! 😂

@KennaKrueger 3 жыл бұрын

You are so welcome! And yes having someone to relate to is so comforting! Omg one liter haha that is so much but I would definitely be the person to spill that amount too😂

@lilianamendez5560 3 жыл бұрын

Congrats on almost 700 subs!!!

@KennaKrueger 3 жыл бұрын

Thank you!

@AmitysLife 3 жыл бұрын

I totally get you with the pacing yourself thing, I just want to be so productive and ever since I was young I have kinda grown up in a family where productive is always done. However since getting sick with Gastroparesis I have had to learn to pace myself and man that takes a lot of brain retraining 😭 I love your videos they give me something I can connect too. I might be getting TPN sometime this year, not a tube but still restrictive. This has giving me a look into live with feeding support 😊

@KennaKrueger 3 жыл бұрын

Yes omg trying to retrain my brain like that is sooo hard but it’s nice to know I am not alone in feeling like this! And thank you so much! Learning the restrictions and all the extra steps involved in feeding support is definitely something to get used to but it helps me to remind myself there are others right there with me learning too. Thank you for being here and I am wishing you the best!

@AmitysLife 3 жыл бұрын

@@KennaKrueger Thank you 😊

@KennaKrueger 3 жыл бұрын

You’re welcome!

@jessmoore8420 3 жыл бұрын

Hey! Just wanted to throw this out there, but this past week I had autonomic testing done that showed small fiber neuropathy, which we think is the cause of my GP. Wasn't sure if you've been down that avenue before, but may be worth advocating to have the testing done! Regardless, glad to see you so positive and hanging in there! Sending well wishes!

@KennaKrueger 3 жыл бұрын

Hi! Thank you so much for sharing and I am so glad to hear you are getting some answers! And I personally have not been down that route because I really don’t have any other symptoms other than GI related symptoms but that still might be something to consider. My doctor is working on referring me elsewhere to hopefully get more tests and answers so that is definitely something I will consider asking about, thank you so much again and I am sending you well wishes too!

@kerryhorrocks4453 3 жыл бұрын

You look so much happier kenna that’s amazing to see that puppy sweater was so cute on you I will definitely be making that s’more Treat looks lovely when I can eat without pain and nausea my surgeon is driving me mental anything more than a mouthful sends my stomach my bowel issue is even slower than my stomach my bladder is letting me pee without catheters so that’s good honestly kenna your smile made my day them kitty’s are adorable ...I’ve got a pug and a french bulldog puppy my stomach right now is huge I feel likes it’s going to pop 💕💕💕💕

@KennaKrueger 3 жыл бұрын

Thank you! I am slowly starting to feel the benefits of finally getting nutrition and it is amazing. I really hope you are able to get in contact with your doctors soon so you can finally get some relief. Omg pugs and french bulldogs are so cute!! Thank you so much again, rest up and I am wishing you all the best.

@gray333 3 жыл бұрын

can you do a video on what you keep in your hospital bag x

@KennaKrueger 3 жыл бұрын

Yes! I have to get a little more organized but when I do I will definitely share!

@ltetobago Жыл бұрын

How does it feel when the food goes in? Is it uncomfortable? Do you get full? Ty

@patsyfoster8730 2 жыл бұрын

Hello,,, July I was put on feeding tube ,,,,,,, my whole crashed I was vouleentering, loved my clothes getting ready for work,,,, loved shopping ,was walking , my boots I have every color possible ,,,,,I love you tube ,,hit me this morning to look up feeding tube found you ❤😀,,,,,,,,,,your an answer to my prayers

@donnaallison7462 Жыл бұрын

How long after placement did it take to get the buttons removed?

@MOJORAPSCALLION 3 жыл бұрын

Just wondered what type of feed you’re on due to the color. I’m on Peptamen HN. Please could you share the video to crop tee’s & jumpers (the sewing part) Thank you 🙏🏼 xx

@KennaKrueger 3 жыл бұрын

I am on Nestle compleat organic blends plant based formula!

@billdoty6438 3 жыл бұрын

Thank you for showing us a day in your life. Good to see you at home. You are quite the Susie homemaker.

@KennaKrueger 3 жыл бұрын

You’re welcome!

@KristenBarnett-lr8zz 3 ай бұрын

Does it help with the nauses feeling I have it meds don't help me

@Paxxxxxxxs 3 жыл бұрын

I have a GJ tube have had to all my life i just get really stressed its going come out and it gives me a panic attack is that normal its been happening for a few years now to the point all i can think about my GJ tube coming out idk if its my PTSD tho since one time at school it got ripped out by some kid and it was focused back into my body and hurt alot

@quinn2014 2 жыл бұрын

What's in your formula that makes it orange?

@AleinWonderland 9 ай бұрын

Im in a horrible gastroparesis flare. Had 5 this year as it’s progressing. Liquids only for 2 months at a time. Doctors will not do anything because im not skinny but lack of nutrition is debilitating. I’m used to it now though. Hope i get a tube eventually to feel better. How did you get one if you don’t mind me asking?

@KristenBarnett-lr8zz 3 ай бұрын

I'm the same way I have it het sick all the time but I'm not losing alot of weight

@larissabowen33 3 жыл бұрын

Soak your tube pads in a garment bag and then wash on gentle also need a ton of them

@KennaKrueger 3 жыл бұрын

Thank you for the tips! And I am trying to learn how to make them myself too so I can have enough!

@larissabowen33 3 жыл бұрын

@@KennaKrueger I'm sure you can make them your so crafty. Also what is the name of your formula, it looks very food based.

@KennaKrueger 3 жыл бұрын

Aww thank you! And it is nestle compleat organic blends and it is a plant based formula!

@KatitaPaytonBormey 2 жыл бұрын

Kenna K can you please reach out to me I’m in Florida as well and I just got the type of gj tube you have an I am confused on how to use it

@ServiceDogRosie 3 жыл бұрын

See if u can get some 500ml infinity bags

@KennaKrueger 3 жыл бұрын

Those would be too small unfortunately :( I put two bags of formula in at a time and each bag has a little over 300mls in it

@julietannOsfan1972 3 жыл бұрын

I’m confused. I just watched your video about when you had your op. I thought it meant that you don’t have Gastroparesis anymore. If so, how are you coping with it all? My main problem is that I’m never hungry, ever. It’s so hard to eat when you’re not hungry. It makes me feel really nauseous & I want to be sick. I have a phobia tho about being sick. Please could you give me some tips on how to eat when you’re never hungry?

@KennaKrueger 3 жыл бұрын

I thought so too but then symptoms first started to appear again about 3 months after surgery and then slowly got worse and worse and recent tests showed that my stomach isn’t really working, which would explain my symptoms. And I am coping all right. Some days are better than others. Some days I’m okay while other days I am so upset I can’t just eat and live a “normal” life. I have already tried almost every medication and had surgery and my stomach still doesn’t work so that adds to the frustration too. But I just keep trying to remind myself this is happening for a reason and to not lose all hope. Yes it is so hard to eat when you aren’t hungry. When I wasn’t hungry I would just pay attention to the clock and if it was 4-6 hours since I last ate I would make sure I would go try to eat something. When I wasn’t hungry I would usually stick to things I know are easier on your stomach. It’s different for everyone but for me it would usually be smoothies, soups or some crackers. I also have a phobia of being sick myself too but overtime I had a good understanding of my nausea so if my nausea wasn’t too bad or I felt like it wouldn’t get too bad after eating that’s when I would eat. It’s a lot of trial and error learning about what works best for your body but find a couple safe foods and medications/natural remedies (like nausea wristbands, peppermints, teas, etc) that help with the nausea so you are able to eat a little more. I am so sorry you are going through all this. Know that you aren’t alone and we are all fighting with you!

@julietannOsfan1972 3 жыл бұрын

@@KennaKrueger Thank you for your reply. You have helped me a lot. x

@KennaKrueger 3 жыл бұрын

You’re welcome!