a rough week gastroparesis and pots | gastroparesis days in my life
Рет қаралды 2,894
2 жыл бұрынHi friends! This weeks days in my life vlog living with my chronic illness gastroparesis and pots is a bit of a rough one.
This week I was struggling a lot with dehydration and what comes along with it. The awful fatigue, body aches, headaches, dizziness and so on. This side of chronic illness is something that I hate so much. It effects you both physically and mentally. Towards the end of the week though I ended up getting IV fluids and felt so much better. Remember, don't be afraid to ask for extra help if you need it!
I hope you enjoyed the video and don't forget to give this video a like and a comment and to subscribe for new videos every Saturday! And as always, don't forget to spread kindness and joy!
Products in this video (affiliate links):
✩Heating pad: amzn.to/3GyeMag
Cricut items:
✩Cricut explore air 2: amzn.to/2VWeeIK
✩Cricut standard green mats: amzn.to/3xJdrbD
✩Cricut accessory set: amzn.to/3xQ5Gkb
✩Brayer: amzn.to/3ANaGrp
✩Weather proof matte sticker paper: amzn.to/3lU8Vni This is the amazon link but I prefer to order them from the actual online labels website: www.onlinelabels.com/products...
✩Standard matte sticker paper: amzn.to/3rXyc3Z
✩Sticker laminating sheets: amzn.to/31BFkrL
✩Epson eco tank et 2760 printer: amzn.to/3osWuR2
✩Sticker organizer sheets: amzn.to/3omHO65
✩Thermal label printer: amzn.to/3sS1wt0
✩Thermal labels: amzn.to/3zkwzPA
Sewing supplies
✩My old sewing machine: amzn.to/2TMYVRR
✩My new sewing machine: amzn.to/302463D
✩My serger: amzn.to/2TBeb3Z
✩Sewing clips: amzn.to/2T5Mhgs
✩Cutting mat and rotary cutter: amzn.to/3iiJ9Z7
✩Iron: amzn.to/3xPulFe
✩Drawer system for my plastic snaps: amzn.to/3ndxT1J
Miscellaneous
✩My feeding tube backpack: bit.ly/3ghPpxs
✩Bed wedge: amzn.to/3fVEhrj
✩Apple watch band: amzn.to/2RuBWdu
✩Papasan chair cushion: bit.ly/3gqeiYR
✩Desk chair: amzn.to/3ym4bup
✩iPad pro 5th gen case: amzn.to/3xaFK3O
✩My instagram: kenna.krueger
✩For business inquires: makennakrueger@gmail.com
✩My Etsy: www.etsy.com/shop/ThreadsOfKi...
✩My Etsy instagram: / threadsofkindnessco
Music
✩Music by .irg - falling for u (feat. Brady James) - thmatc.co/?l=A7BEEF76
✩Music by Eric Reprid - Day and Night - thmatc.co/?l=207C258B
✩Music by Ashes To Amber - Sand People - thmatc.co/?l=2F262521
#chronicillness #gastroparesis
@CB-jg6xg 2 жыл бұрын
“Another day; still tired.”- story of my life w cfs 🙄😂 I love ur vids they’re so clam and relatable:)
@KennaKrueger 2 жыл бұрын
😂😂😂 and thank you so much!!
@averyreese7158 2 жыл бұрын
i love your videos so much! i never realized how much making videos helped me cope with the reality of being chronically ill at a young age but you helped me realize that and making videos has helped me so much. i hope you are doing well today!!! thank you for sharing your journey ♡
@KennaKrueger 2 жыл бұрын
Thank you so much!! I really appreciate and I am so happy you have found something to help you cope as well, that is so important!
@Heavenschild9 2 жыл бұрын
I discovered your channel like a month ago and it’s been so informative and interesting, thanks for being so open about everything the ups ab downs , you are really transparent influencer and that’s very beautiful, whisking you the best for your business, your health and your channel. Don’t forget that even when you feel guilty about not doing much , remember you deserved it and your body needs it , so it’s the best. Love ya 🦋
@KennaKrueger 2 жыл бұрын
Aww thank you so much that means the world to me!! Yes my body definitely needed that rest so and I am glad I ended up having a pretty slow week! Thank you for your support🤍
@Hannahhjiue 2 жыл бұрын
I look forward to your vlogs every week! X
@KennaKrueger 2 жыл бұрын
Aww that makes me so happy, thank you!
@Dulcimerist 2 жыл бұрын
6:45 - Someone is photo bombing you over your shoulder. :) Glad that the ER visit helped you feel better. I get nervous going to a new place for medical care. Were some of these cool Joann purchases made with that awesome gift card you got for Christmas? I've been looking forward to seeing what you get with it.
@KennaKrueger 2 жыл бұрын
I get nervous too but I was familiar with the hospital system so I was still comfortable going there, even though the facility was new! Yes I did use the gift card! I think it’s almost gone now but I mainly just used it to buy more fabric for my tubie items!
@babiesbytheshore7816 2 жыл бұрын
Can I just say the meals you prepare always look amazing!! 👍🏻
@KennaKrueger 2 жыл бұрын
Aww thank you so much!!
@loislaine2762 2 жыл бұрын
Rest days make me feel guilty too. I keep thinking of all the things I should be doing. However, like you, I made a trip to Joann and bought the same starry night fabric. I am planning to make a mixer cover with it. The bloat and pain are so miserable. Glad the fluids helped. I need to stop being stubborn and go for fluids more often. Hope he had a great birthday!
@KennaKrueger 2 жыл бұрын
I know they shouldn’t make me feel guilty but it’s so hard not to feel that way! Omg that mixer cover is going to be so cute, I love the starry night fabric! Yes I need to be less stubborn too because fluids seriously make a huge difference. He did have a great birthday thank you!
@nourazahry7216 2 жыл бұрын
happy belated birthday joseph!! 🎉 🎂 🥳
@KennaKrueger 2 жыл бұрын
He says thank you!🤍
@gabbihenderson5190 2 жыл бұрын
I’m so proud of you for persevering and continuing to stay productive while feeling tired. I struggle the most with being productive with my POTS and chronic fatigue and it is bad everyday. Very frustrating. I’m glad the fluids helped you and hopefully the increased feeds help your energy! Caffeine seems to be the only thing that makes me feel awake for a couple hours but then my palpitations are terrible so I usually opt for sleep lol. But I have sleep apnea so it’s very unproductive sleep
@KennaKrueger 2 жыл бұрын
Thank you!! The chronic fatigue is seriously so awful I’m so sorry you have to go through that as well. I honestly don’t notice a difference in energy with caffeine I just drink it because I like it😂 aww no not being able to have restful sleep is so rough too and just adds to the chronic fatigue. Thinking of you!🤍
@dcooper1535 2 жыл бұрын
I can relate to this. Check to see if you can get Mestinon (Pyridostigmine) to treat your fatigue. It's currently in clinical trials to treat chronic fatigue syndrome and exercise intolerance, and is already prescribed to treat muscle weakness. It doesn't cause palpitations. Vanderbilt Autonomic Dysfunction Center has repurposed Mestinon to treat POTS, so it could help you with multiple issues. Mayo Clinic has repurposed Mestinon to treat gastroparesis and intestinal dysmotility. It's super effective as a prokinetic.
@linneanelsonvlogs 2 жыл бұрын
First! 😂 I’m sorry you had so much tiredness. I’ve been in the same boat. Although, I finally got to go to my GI appointment. They are giving me all the tests: endoscopy, colonoscopy, SIBO, H Pilori, and gastric emptying study. So…hopefully soon I’ll know what’s making me so sick!
@KennaKrueger 2 жыл бұрын
I’m so happy you are finally on the road to answers! The tests are not fun and exhausting but I hope they are able to find out what’s wrong and get you on a solid treatment plan! I’m wishing you so much luck💛💛
@arinabarron 2 жыл бұрын
yo the song with the BASS 😎🔥 might have to steal it
@KennaKrueger 2 жыл бұрын
Do it😎
@crabbyabby 2 жыл бұрын
i need a joseph in my life so bad like he’s the best 🥺 it’s been a rough symptom week for me too, i woke up dry heaving into my garbage can which is hella traumatic for me 😥 gastroparesis must feel like messing with people this week, im glad you’re powering through it along with your pots!
@KennaKrueger 2 жыл бұрын
He’s is truly the best I am so lucky🥺🤍 I am so sorry you are going through a rough symptom week as well. Dry heaving is awful I’m so sorry. Gastroparesis needs to take an easy on us!! I will be thinking of you!
@crabbyabby 2 жыл бұрын
@@KennaKrueger ❤️❤️ thank u ☺️
@emiliac2644 2 жыл бұрын
As someone who is dairy free because of my chronic illnesses my favorite dairy free ice cream is the Ben and Jerry’s non dairy chocolate chip cookie dough it’s amazing you can find it at most grocery stores
@KennaKrueger 2 жыл бұрын
Oooo I will have to try that one thank you for sharing!!
@sophiamoss3810 2 жыл бұрын
you should do a medical supplies organization video!!🤍🤍
@KennaKrueger 2 жыл бұрын
I made one awhile back when I first got me tube and the organization is pretty much the same!
@kaylibenak4416 2 жыл бұрын
lmao “linzess is so unpredictable” PREACH IT SISTA 😂🙌🏻
@KennaKrueger 2 жыл бұрын
It really is😂 like it doesn’t give you any warning, some days I could be completely fine going out while taking it but other days oh my gosh no
@annarachmiel6402 2 жыл бұрын
The rose fabric could be for Valentine’s Day
@KennaKrueger 2 жыл бұрын
It def could but I would not be able to make it in time!
@alyssawssinging4039 2 жыл бұрын
I’m still in a horrible flare it’s been like 2 months for me now gastroparesis is really horrible
@moreofalyssaw1921 2 жыл бұрын
Hey kenna ive been in a bad flare with my gastroparesis I’m having a procedure for it upper endoscopy on feb 2nd for them to see what’s going on and there going to be opening up the thing in my chest with a small balloon for my dysphagia and I have been having rough months
@KennaKrueger 2 жыл бұрын
Aww no I’m so sorry you are going through an awful flare. Good luck with your procedure I hope everything goes well!
@moreofalyssaw1921 2 жыл бұрын
@@KennaKrueger thank you kenna ❤️
@highmater 2 жыл бұрын
Went to the ER last night for fluids. They wanted to admit me but with all the craziness of covid I was scared and said no. May pay for that later and have to be admitted anyway but for now Im feeling better. It's also so hard balancing school and health. I want to take care of myself and go to the hospital if needed but then my school work will be comprimised. I understand feeling guilty for rest days.
@KennaKrueger 2 жыл бұрын
The craziness of Covid is definitely scary I hope the fluids were enough to keep you going for now! I know how hard it is to try to balance school when you are sick. It’s so tough to find the right balance of doing what you need to do for school and doing what you need to do for your health. It’s so tough. I hope you are able to manage all right but don’t forget to ask for help when you need it!
@mike0133 2 жыл бұрын
Hi Kenna, sorry dor the personal question but what is your experience about G-POEM? Some people really improved on it.
@KennaKrueger 2 жыл бұрын
Overall I had a good experience. I improved a lot for about 2-3 months after the surgery but then my symptoms returned just as bad as prior to the surgery. I don’t have any regrets though because I was able to have those few couple months where everything was nice and I feel like my nausea overall is better controlled because of the surgery! Plus I had no complications and it was a pretty easy recovery for me.
@mike0133 2 жыл бұрын
@@KennaKrueger Thank you so much for answer me Kenna K. Sorry but i have another question, did you take botox injection in the pylorus before G-POEM or you was directly on G-POEM? And after the surgery, how many times passed before your first meal?.Sorry for too many question but i am curious because most probably i am going to have G-POEM.
@KennaKrueger 2 жыл бұрын
I did not have botox before. I had Botox back in February of 2021 after my surgery to see if it helped and I noticed no difference. I was on liquids and soft foods for about 2 ish weeks after the surgery I think and then slowly started eating more. I think I was able to start eating more food around 1.5-2 months after but honestly I can’t really remember
@mike0133 2 жыл бұрын
@@KennaKrueger Thank you so much again Kenna K. I hope i get early G-POEM, i have a medium grade gastroparesis but at least i can eat e be if I felt nauseous, pain, reflux, and other symptoms. I can only wish you all the best. Than you Kenna, you are so strong.
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