I have to force myself to eat everyday it's so painful I am in the hospital now because of it. I never new it was so many people dealing with it this helps me not feel alone

Thank you for sharing your experience with gastroparesis, it helped remind me that I'm not alone in this battle with gastroparesis.

Try being a foodie with EDS... I can always drink something if I don’t wanna eat... miso soup is great... I even learned how to make it...

I can’t thank you enough for all these EDS vids 💗💗💗💗💗💗💗 you have no idea how helpful it is to find someone else who has these weird symptoms that I’ve had my whole life. Love you!!❤️

Do you ever feel hungry so you get a lot of food on your plate but end up eating like 3-5 bites, because you end up full and your stomach hurts?

I was just diagnosed with gastro paresis after 1 yr of not being to digest anything properly, having irregular bowel movements and terrible stomach pains. It’s strangely comforting to finally have a diagnosis to explain what is going on with my body after having my gallbladder checked, colonoscopy, endoscopy, appendix, several different blood tests all coming back negative. Thank you for sharing your experience and bringing awareness to GP to help others☺️❤️

I am so depressed…this just confirms what I have been dealing with my whole life basically. It’s worse now it landed me in the hospital. Thank you for these videos. I am not sure what to eat at all and this points me in the right direction.

This is such a great a great video for us GP sufferers! Thank you 🙏🏼😊

I can't afford doc but for past 8 months or so I can only keep food and drink down 1-2 days out of a week and sometimes it's 10 hours after I eat and it's still not digested and I puke. Lost about 30 lbs. Never had eating disorder in life. Glad to find so many people with tummy issues on here.

These kinds of videos usually aren't great but being newly diagnosed i found yours and it was actually so helpful! thank you SO much!

Thank you soooo much for posting this video. I was diagnosed with gastroparesis and gastritis last week. I felt as if NO ONE understood!!! I find myself in the bed all the time. Thanks again for posting this. Praying for you.

Glad I found your channel. This is my life

Your GP videos are really helpful to me! I’m waiting to get a gastric emptying study, I’ve been having awful symptoms like pain, nausea, weight loss, getting full early, etc since having a GI virus last summer. In the meantime I’m struggling to eat healthy and high calorie stuff so it’s helpful to see what others eat

I’m in awe at the things you can eat

Thank you so much for posting this video! I was diagnosed with this today. Glad to know that I am not alone. Very helpful video

I been forcing myself to eat to.medical marijuaana helped me

I’m so happy to find this video I have GP also and I’m been having trouble figuring out my diet and this helps me find some new things that I could possibly try and see if it will work out for me or not

Loved this -!!

I feel you when it comes to the clear liquids. I've noticed that even though I love apple juice it causes cramps and sometimes acidic feelings in my gut. I've been eating, like, 90% smoothies and salads this summer and it seems to be helping.

Thank you so much for these videos, my nutritionist suggested I might have it and it makes perfect sense from everything ive read. I feel full even when I havent eaten or have barely eaten and im nauseous so often, i have safe foods like you such as rice or smoothies that hurt less than bread or sweets but even those can sometimes cause pain and sickness.

I honestly feel like i have this so ill be going to the doctor soon to get diagnosed. I gets soooo full & bloated after like 3 - 4 bites of food & my stomach will be hurting like i just ate so much food. The only time i can eat & not get full is when I’m high :(

Wow just got diagnosed I thought I was alone! My family keep making remarks that they don't want me to be anorexic but I just can't eat too painful. I use to eat for 3 days ignoring the pain then spend 4 days in pain. But now that i can't do that i have no idea how to eat without fear.

I literally only eat once per day but I'm still freaking gaining ugh!

Ty for your videos ❤❤❤

Bro I swear I’m starting to develop this, this days I lost my appetite completely and also then my stomach bloats and hurts like crazy, like palpitating pain wtf I just wanna eat

can you please do an updated one of these? x

I went for a doctors appointment on Friday and told her of the chronometer website and she loves the idea of it helping me to maintain my weight, which is really hard for me to do.

i only recently started having these problems, i have no idea why :( it sucks! i wish i could be as positive as you, ive been dealing with chronic health issues for the past 10 years, chronic fatigue, depression, IBS, gerd, and now gastroparesis has decided to join the club! At least life isn't forever!

That sushi looked amazing!

I feel like a lot of people think you have to eat healthy Bc you have stomach issues. I wish they would understand that your body will only tolerate certain things and if they end up not being healthy then so be it.

dos water just go in fine? thats whats been going on with me, soild food just SITS there forever making me sick, but water is fine as long as its on an empty tum

ive been following you for a while ty for this im currently pegj fed but eat small amounts this looks like a huge amonut compare to what i can eat just shows me how much i do need the tube x

Hey Izzy, love all your videos, so helpful and you seem like the sweetest person! ♥ I think my kid might have EDS or hypermobility syndrome with gastroparesis. He's hypermobile and keeps complaining of nausea, heartburn, low appetite (usually screams NOOO! when I tell him dinner is ready), he's also really thin and short for his age but he almost never vomits. Is it possible to have gastroparesis without a lot of vomiting?

Survey Question for EDSers with Gastroparesis (GP) or w/o GP; Who has chronic Gastrointestinal Esophageal Reflux Disease (GERD)? Hit "Like" or comment if you prefer. Thanks for responding, and thank you, Izzy for another informative vid! 🙂👍

I have GP too, and I so relate to not being able to eat a lot at once and certain foods but theres a lot of food you ate in this video that my doctors told me stay away from like avocado and nut butter (too high in fat) and nuts and sweet potato and broccoli and tomatoes (especially with skins). I'm really happy youre able to digest those, I wonder why I can't.

I found the meal replacement IdealShake Superfood by IdealShape is pretty easy to digest. It has a lot of vitiamins and you can make it as thick or liquidy as you need too. It doesn't have a lot of calories but it doesn't hurt my stomach like other meal replacement drinks do

Do you have a tube for supplements and meds for times you are too nauseous and vomiting to help with nutrition?

How did you get a diagnose for that? I have stomach problems, but no diagnose at all so far. I think I might have this.

I developed temporary gastroparesis, after some years of severe anorexia, purging type at 13 and after totally spiraling downwards at age 16, 19 , and 20.... My worst episodes ever, where I ate more or less nothing than half of a fat free, sugar free Yoghurt ( 90 ml~ 49 kcal) and max. 2 slices of low ckal, fat free crisp bread (~ 25 kcal each) , of course without anything on it, basically breaking these "bread" into 16 pueces each and sucking those tiny pieces until rhey were already dissolved before eventually swallowing, or 125 ml (150 kcal) juice and 2 cookies(~ 150 - 200 kcal) a day for weeks. I still remember when I suddenly had to have my wisdom teeth removed under anesthesia, urgently, because they were pushing other teeth sideways and were so complicated located, a part of them wrapped around the biggest nerve in my lower jaw, ripping that nerve meant eventually no feeling in the gum, lower lip, lower teeth, etc.... - so there was no way doing it without general anesthesia . But i was near my " goal" weight of 55 lbs , at 62.6 lbs/ 5.1/ 20 years, I really, really tried to gain weight before the operation, because I really was afraid of the doctors not checking my potassium levels ( which they did not carefully enough, it was the last thing before it went black, when they put the mask on my face and I pushed it away and slurred, babbling, begged them , crying, to double check my bloodwork for potassium !! (the most important , because i knew my average level was 2.6.at best, that's about 1.0 under the lowest normal level which can alredy cause abnormal heart beat and even heart failure , that doesn't respond to electric defibrillation, because the lack of potassium - easily said - affects the nerves ability to respond to drugs or defibrillation.....and you die..... though they send a message to the muscle to contact, it doesn't get where it's supposed to get and the muscle cells don't have the ability to respond and the heart stops and nothing can be done....) When I woke up I was on a heart monitor and 40 % potassium solution in 1000 ml of of 0.9 saline.... And I would try to eat, but every time my heart rate would go up to 150 , even lying still, after mote than a few bites and even if I tried to eat in the evening and try to sleep through the pain and bloating, I would vomit the next morning, after having the food on my stomach for 12 out 16 hours - (not a big meal......2 slices of toast with cheese or a salad....leaving out the foods that usually are said to may cause problems for IBS, reflux etc) not because of the calories, but because of feeling so sick and my heart racing and my stomach and throat burning, though I slept sitting up with 4 pillows.....It took over 10 years until my digestive system was ok again and if I have a period of relapsing that is longer than 3 month, it all starts again ..... I can somehow imagine how it must feel to feel like that 24/ 7 though I screwed my body up willingly and on my own.....for 26 years now. I'm sorry, this doesn't belong here....I just.....sunk into some dark memories.....I feel like an asshole bevause I could eat , but still .....can't.....and sometimes wish I couldn't at all, so I wouldn't have to fight constantly, these 2 of 3 parts in my head....one that's health, one that wants to binge and purge and one that wants to sew my mouth shut.....forever..

I struggle with high sodium diet and having gastroparesis :/.but if I don't my pots gets bad -_-.

How were you diagnose with this?

I enjoyed learning about your routines. Some of my experiences: I find when i track my nutrients in these apps i look closely and it doesnt always include all the nutrition its suppose to have in each food so i find they are not accurate? Its certainly a good idea to study it. Im so glad for you that you can eat such a wide range of foods. Amazing! Is it possible the miso soup had msg neurotoxin or other disruptive chemicals? Im just at the beginning of learning safe foods trying cooked mashed carrots right now. Goal is some type of calorie dense soup I can have with beef, chicken, bone broth, butter, carrots, celery, ginger, salt, & pepper. I do fine with higher fat. I have also been mostly in ketosis for 4yrs to manage other health issues including mental . I cant have eggs yet due to weak immune issues thanks to having the the virus which possibly could have damaged my vagus nerve slowing my MMC & emptying. Im inspired how many foods you can eat. I cant eat high carb let or frequent meals due to my sLuggish MMC, it needs atleast 10hrs but I feel best if i fast 20-24 hrs between meals. Sounds crazy but it guards my energy and misery. I also have sibo. Trying to figure all this out is crazy. I feel i have a hard time drinking enough fluids sometimes because I bloat with them too. So i try to drink them slow in my fasting window starting early morning. I take 3 betaine hcl when i eat also apple cider vinegar to keep my system acidic which has been a game changer for absorption and serotonin regulation for good mental health. I use lemon balm herbal tea x2/day for anxiety. Also ginger tea. They seem to keep me more calm after i eat - as most all eating can cause me anxiety. Im trying to not have fear of food but when you react so much its making me eat less and less. I do deep breathing, strength training, walking, and manual gut massage. I would like to learn more about vagus nerve health as i read this can be very healing. Leaning into prayer and scripture is my saving grace. I hope healing for everyone here in this space of digestion disorder. Thank you for your video. Peace to you. 💕

I have the same, if you have gastroparesis you are very likely to have an overgrowth of candida eating the candida elimination diet helped me tons!! Good luck also look up ‘Montreal healthy girls’ videos tons of good info there!!

I got diagnosed with Celiac and Gastroparesis at 31. When I was 31 my gall bladder quit working but doctor wouldn't do anything and had to get another. It caused damage and pain to my vagus nerve. I got the gall bladder removed and then other symptoms of things continued. Having Celiac and GP is challenging. I went to a Nutritionist and I was given specific guidelines which were so particular, it gave me major anxiety. They had me measuring every morsel. I know not to eat fresh veggies, but to eat only cooked. I still have issues with broccoli . I was also told not have much citrus , and low amounts fiber at a time, and eat small meals more often. After 6 yrs, mine insides have not healed and the acid is eroding my esophagus. I've tried 2 prescriptions, Dexilant and forgot the other, to help digestion but it caused severe bowel issues and side effects. I recently had blood work done and some of it was off . I'm having heart palpitations and my LDL and MCH are low. I suggest have your vitamins and bloodwork checked. I'm trying to figure out what I can do because I don't absorb nutrients do to the damage to my insides. I understand what you're going through.

idk if i have this but here’s my symptoms ANYTHING i eat or drink makes me so nauseous. lost 30 pounds in 3 months constant nausea 24/7 usually worse in the morning and at night. I kinda have an appetite but when i actually try to eat it just makes me feel sick. i also quit smoking weed cold turkey 20 days ago if that has something to do with it.

what method of medical Mj Do ya use :)

You have a whole lot of fiber intake in this video. Surprised you handled it so well. Also what is the food program you use to track your intake?

I have gastroprisis what do you do when you get in pain I hate going to the hospital?

Do you supplement with any vitamins/minerals/etc?

Sleep for 15 minutes after 3-4 hours after food , it helps with food going down.

I eat very similar to you. I can’t digest animal products. Miso soup feels good on my tummy though. Smoothies are my savior. I relate SO much to what you go through!!!! 😔

What is your numbers for mild gastroparesis? Below 35 was abnormal for me. I had 31. Just curious.

The doctors just said my 1 year old has gastroparesis so that’s why I’m here to learn

Revisiting this video. First time I watched it was before my gastroperesis diagnosis. Now rewatching after my diagnosis lol. I’m flaring up big time and food just seems like an impossible thing for me right now.

I didn't know I have gastroparesis until I did the empty test. I didn't understand how some days I feel healthy and others I wasn't able to eat at all. Until I did a test and I found out that my immune system is out of balance. When I increase the th1 cell all my gastroparesis symptoms are gone. When I increase the th2 cell I have digestive problems. I hope this help.

Water gets stuck in my stomach I get slashing? Like 4+ hours later I can still feel the slashing in my stomach....did you ever expirance this?

I have Gastroparesis and I had 1/4 of my lower intestine removed and I watch you and I feel so much better as but liquids so me better but meats hurt me more sometimes

What is the name of the app you mentioned that measures vits and minerals consumed?

How were you diagnosed? I had a endoscopy and colonoscopy with several biopsies, but the doctors couldn'tfind any reason for my constant stomach aches after eating. I have had diarrhea for almost a year now and have no diagnoses, and can't figure out what to eat to help my body. I love your videos, they help me remember that others go through health problems similar to mine :)

I love yes soup. The tomato carrot bisque. No chunks.

Yes!!! Hydration is my problem...water currently bloats me like crazy 😂 we walked around tonight and I started getting dehydrated but I had also drank so much water I threw it up...I was so sad my Dr just told me about he migraine diet...I think I'm cutting out bananas for a while...my only go to fruits are banana and applesauce. Watermelon also makes me pretty sick...the cramps the next day are rough. Can you share the link for the food app. My goal is 1500 Cal's. I only make it 4-5 days a week but this week I did have a 2200 day!!! Yipppeee lol yes!!! I do a lot of salt too... Adding in a protein bar a day helps so much with energy for me

I have IBS and now I fear of food because every time I eat I throw up so I’m scared of eating now

i recently recovered from an eating disorder and i know it’s not the same, but my metabolism and digestion is (temporarily) weird. i can’t drink too much hot drinks else i get dizzy and light headed it’s weirddd. i’m very sensitive to drinking on an empty stomach

I have seriously considered going on a baby food diet. And with eggs.. you will find organic are easier to digest. Actually, a lot of what you described would cause me pain... especially pepper. Bananas have to be very ripe or they hurt. I take Athletic Greens like it is life or death. It has healed many things, and I was concerned about my allergies, but when I called the company, they were willing to give me a 5-day free sample... I was shocked. Many things I have considered myself allergic to were tolerated! I had toenail fungus and loss of sensation in my left big toe, and it healed that and helped my psoriasis. When I introduced my sister-in-law to it, she said she wishes she had it sooner. The cost is $94 a month, but despite being on disability, I will pay it!

I recently take Triphala, it helps the digestion. It's an ayurvedic treatment hope it helps.

Hi Izzy...I do not exactly have what you have, but I have a condition, caused by an abdominal operation in my small intestine after by gall blabber was removed, (non-cancerous cysts), my small intestine was damaged during the operation, now I have narrowing and scarring in several places in my small intestine. My whole diet has changed. I can only eat very small meals. I can only eat soluble fibre based foods, and some days just liquids I am in pain each day from eating. I am scared to eat some days. It is like playing Russian Roulette each time I eat something. I tried to eat half a banana the other day, I was in pain. I then tried just a quarter, which is better. I am having trouble finding foods that do not cause me pain or land me in Hospital. I was thinking about drinking protein shakes, do they help? I am a single Mum so I am scared to go to the hospital and leave my son with a relative, which he hates.

I have EDS and low blood sodium. Do you know if these go hand-in-hand? I pretty much salt every meal.

My favorite line “both my dinners”

I got diagnosed with gastroparesis because I stopped eating for 3 months and it made me sick to eat got tested to see if my stomach was closed nope turned out half wasnt working. Does anyone else get chronic constipation thoe?

How do you deal with all the symptoms? I'm not coping well at all and all of my doctors have given up. I'd appreciate any advice. Thank you.

Why do you need the extra sodium?

I have hypermobile type Ehlers Danlos syndrome and most of the related issues. My doctor finally put me on the prokinetic medication Mestinon (Pyridostigmine), which stimulates the vagus nerve, and it has been a miracle at treating my gastroparesis, intestinal dysmotility, and IBS-C. It's also done really well at treating my POTS. Thankfully researchers at Mayo Clinic and Vanderbilt have repurposed this older medication as a new option to treat POTS and digestive motility issues!

Amazing same symptômes since 10 years . All doctors thinks that was due to my scoliosis but i was a unique case no one could inderstande me or help with my stomach desorders. I had a lot of pain from childhood . Now i've similar problèmes. But have any one some kind of osteoporosis ? And vit D decreasing ? I think that have a link with all this stuff 🤔 Have u an idea about this case of vit D ?!!!

Yummy food. But i find my stomach hurts more if i eat any greens or nuts, all of which i love. Can't eat vege burgers either.

I barely eat at all. Sometimes I might have like a small yogo or a chocolate but that will be enough for me. I don't really get a hungry feeling. At the moment in a day I will have a small bowl of cereal at 9, a yogo at 3, then a milk and something tiny to eat at about 9 or 10pm. I don't feel hungry at 9 or 3 but make myself eat because of work.

How do you even get gastroparesis?

Is stomach pain common in gastroparesis??? Coz i have all other symptoms other than stomach pain....plsss help

I can only drink distilled or reverse osmosis water. 😣

Can I ask you how often do you go to the bathroom in a week

Thank you. Great video. Although the volume is really bad

This is all new to me honestly I am having to be very careful of what I eat and drink now and it’s just like she said you never know what can happen. (Sorry for being random just so many thoughts going through my mind).

I'm sorry that you have to experience this. I lose weight really easily(it's been a big struggle since I was diagnosed with UC) and if I don't eat a lot for 3 days I can go down 5 lbs, I cannot imagine what you go through. You probably know so much more than I do but I take Cruciferous Vegetable tablets and it has helped me so much. I don't know if it would do the same for you but I figured I would tell you (:

Eat fruits such as apple , papaya, banana, avocado etc for morning breakfast instead of omlet or bakery.

How do you manage actual food with gasterparesis? You are so strong all I can manage is yogurt four times a day.

I was diagnosed a few days ago. It's horrible. And since I am only ten, they are having trouble finding out what's causing it.

It's been a very lonely ride.. I'm now 48.. I have no colon anymore but do have small intestine stomach ect.. sick everything i eat no matter what it is.. I can't st nd and cook anymore because of my back and lower legs and feet.. pots.i live in a small city now.. so i dint ha e good docters here so I have to basically try and diagnose the MCAS..im allergic to so much.. its just a mess..

Do you eat fermented foods. So easy to make. Vegetables, sea salt. Distilled water. Easier to digest and you get more nutrients from the food. Beet kvass is also easy to make. Beets, water, salt. You can also use whey in the fermentation.

Can we (me too) eat cooked spinach?

High fiber foods I have a terrible problem digesting. I can’t do ANY apple. If if cooked into applesauce.

I eat once a day because of this. Gastroparisis plus gerd plus i have hiatal hernia. I’m gonna have surgery.

I don't know what digestive problems I have, it's obvious related to EDS but I don't know more. But I completely agree that liquid are easier to eat and smoothie are gold, I also try to eat highly calorics stuff because it's less food to eat and I still have an healthy energetic intake.

I have chronic gastroparesis. And it's worse than my muscular dystrophy cardiomyopathy and everything else wrong with me. My digestion gets into a limp mode during sleep. Just gut wrenching starving pain and nausea all night and being sick or recovering from the worst experiences of my life. Daily.

Miso soup hurts so bad Chocolate and matcha is awful on my stomach 🥴 having a flare up and came here

do you find red meats affecting you? i feel like ever time i eat a steak or even a burger, i have worse stomach pain/nausea.

I don’t know if I have Gastroparesis. I used to eat a lot in a day but I had a super fast metabolism. I was 10 pounds lighter too. When I wake up in the morning no matter what, I feel so full and sick. It always feels like there’s a lump at the top of my stomach. I have gained 10 pounds because I force myself to eat . I’m eating how I used to eat when I was lightener but now for me, it’s over eating. If I don’t force my self to eat or over eat I will eating nothing all day and not physically be hungry but mentally . My doctors and family say that it’s acid reflux because it runs in the family but it’s so much more than that and they think I’m crazy. Could it be Gastroparesis?

I don’t eat anything after 2 pm because I’m suffering all night if I eat after 2pm my stomach finally releases around 11 pm then I can sleep 😴 but I’m up at 4 am starving I try not to eat until 7 am I have matcha 🍵 tea around 6 am and it helps

Have you ever tried FODMAPS diet?

I'm able to eat so much more at once with a gastric pacemaker now

Have you heard of mast cell activation sydrome girl? sounds like the symptoms overlap and I have EDS and POTS and its common for mcas to happen alongside these 2. :) xxxx

How do you get diagnosed with gastroparesis? My husband has cyclic vomiting syndrome but he also has these flares of nausea and vomiting undigested food. He’ll have these burps that smell like rotting food. Even a sip of water will make him vomit. This can last for a few days. And then he’ll be fine and go back to his normal issues with cyclic vomiting syndrome. They both seem like completely different issues. He has had a endoscopy, colonoscopy and ct scans. They’ve never done a swallow study or anything like that. He cannot eat food that is too greasy, fatty or spicy. Also, when he goes through these flares he’ll lose about 10-15 pounds. He used to weigh about 250, now he is 160. And that’s just from his GI issues. It’s honestly pretty scary. You might not write back. But I follow all your videos and I am pretty certain he has gastroparesis or something similar