Thank you so much for this channel.... I’ve seen a lot of neurologists and I’ve got to be honest when I say there are few “specialists” for this disease. I’m getting more info from you than from anyone else. Thank you thank you xoxo
@Salvatore-19804 жыл бұрын
ANOTHER GREAT VIDEO DOC... The best and most informative videos on MS on KZfaq... Being newly diagnosed I've learned alot from you. I also tell my family and friends to check your channel out so they can better understand MS. Greatly appreciated Dr. Thank you very much.
@AaronBosterMD4 жыл бұрын
TY! #WeHaveMS
@hegerstroem4 жыл бұрын
I just wanted to say that I am so grateful for these videos. My neurologist is terrific, but you are excellent at explaining theory. Just thanks so much!
@as534u4 жыл бұрын
Dr. B I'm loving the new intro. Your reaction to it makes me smile every morning. Thank you for starting my day off right!! I need a ringtone, lol.
@mennenzewde72933 жыл бұрын
Great video again. You give me hope with your explanation.
@lorilindsey33264 жыл бұрын
The pool is the best explanation I've ever seen to explain functional reserve! Thanks!
@AaronBosterMD4 жыл бұрын
Thanks. That is the creation of Dr. Stephen Krieger at Mount Sinai hospital in NYC.
@carolmcintyre26844 жыл бұрын
Thank you for the video! Had a good chuckle about your coffee break. The pool analogy is great, best way I have had explained. Also the disability scale and the outcome over the coming years... colors... etc. Thank you. I wish that is shown to you at your first diagnosis, might give people hope that ‘one can be their best self’ living with this disease. Thanks again! Wish you all the best with your new practice!
@lw56824 жыл бұрын
Hi Dr B, excellent and informative video, thank you! I am so grateful for you and your channel 😊
@AaronBosterMD4 жыл бұрын
L W You are very welcome! I’m delighted you find the videos helpful!
@hgoldielocks61934 жыл бұрын
As always, thanks for another amazing and informative video! 👍
@Jerusalem_Warrior4 жыл бұрын
No questions. You've made everything crystal clear. Feeling enlightened and empowered. Thanks! Happy Chanukah from Jerusalem. 💪 🕎🔥
@AaronBosterMD4 жыл бұрын
Happy Chanukah!
@hosamazmy19764 жыл бұрын
Excellent, I am a consultant general neurologist and I following your videos for up dating knowledge as well as your immense experience.
@EvenSoItIsWell4 жыл бұрын
Good Morning Dr. B! My question is about the EDSS method. Isn’t it time for an updated method? This one doesn’t seem to take into account the disability from fatigue or cognitive issues.
@kaym98822 жыл бұрын
Meant to write, you are a blessing
@dougtagg91624 жыл бұрын
Thank you for video on disease progression. It’s a scary topic for us all. Doug coffee in hand from lyndhurst.
@AaronBosterMD4 жыл бұрын
you're very welcome Doug!
@Alan01 Жыл бұрын
I prefer the leaky boat model - we are losing water due to holes (lesions) as we patch and bail by taking our meds, exercising and eating a proper diet, never stopping.
@nodeofranviere7638 Жыл бұрын
Thank you for the awesome and highly informative video as always. I wished you lived in Pensacola, Florida.
@mikenicoletti38994 жыл бұрын
Great video Dr B! Recently I've been trying to tell people about the functional reserve, this video makes it easier to understand I will be showing this to family and friends!
@AaronBosterMD4 жыл бұрын
Wonderful!
@LowCommotion4 жыл бұрын
Hi Dr Boster. I have a favor to ask. Your intro and coffee break music are 200% louder than your voice. This means that my ears are blasted suddenly, as I need to have the volume up high to fear your voice. Could you reduce the volume gap by lowering the levels in the music? My ears and headphones would be forever grateful. This was a very helpful lecture. It answered many questions I’ve had since diagnosis and gives me a good framework for discussions with my neurologist. As always, I am so grateful that you dedicate so much time in your busy life to educate the world about MS. your videos have also helped my spouse understand things better and has reduced his fear as well.
@AaronBosterMD4 жыл бұрын
Jephhh, I will start to make this change with my next recorded video. I have one or two already in the cue, so please bear with me.
@greatexp594 жыл бұрын
Thanks for yet another great video!
@womblebuckley53084 жыл бұрын
Hello Dr Boster, I always love your videos, they are really informative, not all of us have the privilege of such eloquent neurologists! I know you like feedback and I wanted to let you know that I personally love your new intro music, but I’m not so happy with the presentation on this particular video as it makes me feel dizzy (which I do quite a lot anyway) - hope you don’t mind me saying this!
@AaronBosterMD4 жыл бұрын
Oh no! Can you help me understand what contributed to making you feel dizzy?
@womblebuckley53084 жыл бұрын
Hi! yes! It’s quite funny but when the screen rotates with your face on it, somehow I feel really giddy, perhaps it’s just me, I don’t mean to be rude.
@susanb4034 жыл бұрын
The PDSS was really informative. I had never seen it before. Could you do a video where you discuss it in more detail? Thanks!
@AaronBosterMD4 жыл бұрын
yes Ma'am!
@matusgramblicka39944 жыл бұрын
Thank you for information Dr. Boster. [Question] Why is the same dosing used for both for example 50 kg patient and 90 kg patient (except Mavenclad), does body weight not matter in MS medications?
@adrianaluciacespedes92524 жыл бұрын
I have the same question. I'm on interferon and my weight is 47kg.. I suffer more side effects that some people that I know who are in the same drug but weights 70 kg or more..
@ginablamer7132 ай бұрын
I discovered I was misdiagnosed as having MS. I have Leukodystrophy. I am not sure which type I have, I’m too old to have the most common types. I next see my neurologist in August. I see Dr. Pace in Owasso, Michigan.
@stjernoga4 жыл бұрын
Great video as always 💕😊
@laurielipson57294 жыл бұрын
Thank you very much! So interesting and you made it understandable.
@AaronBosterMD4 жыл бұрын
TY Laurie!
@meloneyparker4 жыл бұрын
Excellent video as always! Thank you for sharing your knowledge!
@chrisc7574 жыл бұрын
Dr Boster, where could a person get a copy of the chart you referenced in todays video relating to MS progression. All you videos are excellent, however today you addressed a topic that is on every MS patients mind.
@AaronBosterMD4 жыл бұрын
Do a google images search for Patient Determined Disease Step (PDDS) and you'll be able to find it!
@lourdescabrera25444 жыл бұрын
I MISSED YOU DR.BOSTON
@babsgrumpton4 жыл бұрын
Another great one Dr B. Perhaps you could do one on that chart you shared. It interested me but not sure I fully understood it. Thanks from 🇬🇧
@AaronBosterMD4 жыл бұрын
TY for suggestion. Actually, my very 1st video on KZfaq was about the Multiple Sclerosis Severity Score (MSSS) which is very very similar to the chart I showed in this video (Patient Determined Disease Step or PDDS). If you want to see some REALLY BAD videography (gulp) check out that video LOL! kzfaq.info/get/bejne/g8ddi7aLur_On5c.html
@dianaadmiral31354 жыл бұрын
How can you not comment on that intro! 🤟👏👏 lol i love it
@AaronBosterMD4 жыл бұрын
Thank you!
@lisaboo58064 жыл бұрын
Hi thank you for your videos. What DMT seems to be the best for delaying MS progression in your opinion ?
@brightwhitesneakers6874 жыл бұрын
Dr. Boster, I’m starting to see some of these stalagmites breach my surface. I’m on, Tysabri. Is it to be expected I will still see activity or should I be completely symptom free?
@poppopcupboy4 жыл бұрын
I could not see the PDSS on my iPad and I cannot locate the same scale you were discussing. Do you have a link to this scale so I can follow along? Thank you again for posting these videos.
Thank you for this video! Question - Is there ever an appropriate time to stop disease modifying therapy? In your opinion, what is the best available DMT to slow progression?
@desiredecove58154 жыл бұрын
Reshare
@tiffanyaguilar59854 жыл бұрын
Dr.Boster my question is, can you flip flop on ms levels? For several years I was told I had spms then my new neuro said that I have rrms. Thanks for your help
@AaronBosterMD4 жыл бұрын
Tiffany Aguilar not enough info to be able to comment Tiffany, sorry
@georgia-60794 жыл бұрын
If you have PPMS from a young age (very early 20’s) is the progression worse as you are living with it for longer and will you end up bed bound?
@samanthajcollins124 жыл бұрын
Dr. I only have 3 lesion in my brain .. largest one disappeared and NO symptoms i was only Dx 2 years now I'm on tecfidera.. I saw a natural dr who suggested I ased if I could have guillain barre syndrome vs MS .. do you think doing this would be a waste of time
@AaronBosterMD4 жыл бұрын
Samantha Collins is need to take you full history, examine you, review your MRI scans and EMG studies to sort it out
@katharinelockhart31894 жыл бұрын
I really wish that I lived in Ohio! I have one doctor that did a brain MRI on me and he said get to a neurologist fast .A neurologist that says “Why do you want to have MS?” Talk about depressed! My question is about gadolinium. The second time that it was given to me to enhance an MRI, I developed the worst migraine that I have ever had within a minute or two. Since then, I won’t let a radiologist use it. Now with all the doctors confusing me so much, I think that I have to use it. Is there some way to use gadolinium and not have a really bad reaction to it?
@CatMc4 жыл бұрын
This would actually be a really good topic for a Dr. Boster video. I'm allergic to gad, so my neuro tried to pretreat with Benadryl and steroids. Didn't work for me, which seemed to amaze all the radiology technicians in the hospital ¯\_(ツ)_/¯ . My current neuro doesn't order it for routine MRIs anymore; not even for his patients who can tolerate it. Nonetheless, I still have nurses in radiology try to administer it from time to time...because they're just used to doing that I guess.
@catmcc614 жыл бұрын
Ah! That may be why my neuro doesn’t routinely order gad! My last two MRIs were in 3T machines.
@katharinelockhart31894 жыл бұрын
Laura Carlson, the 3T MRI that I had was in Poulsbo, WA just outside Seattle, WA. They were one of the first imaging centers on the West Coast to have the machine. It is 3 minutes from my home! Who would have guessed?!
@lizleonard62164 жыл бұрын
Hello Dr. Waiting dx at 61 yrs old very scared of what's ahead . Is there meds available for my age group ?
@Sharla12134 жыл бұрын
Great video as always! I have two questions if I may be so bold 😆 1. If spasticity is sometimes very helpful in keeping you walking with a weak leg because it helps support it, how do you determine if treating the spasticity would be helpful or harmful to walking? 2. Why aren’t there more neurologists like you?!
@pooljunki14 жыл бұрын
how about the more i do in a day the worse i feel...dizzy lose coordinstion.
@DeborahPiens4 жыл бұрын
Dr. B - I love yourvideos. Thank you. Question - can you have symptoms or worsening of symptoms without a change on MRI (my MRIs have bern 3.0 tesla). I understand you can have MRI changes without identifiable symptoms but I'm wondering about the opposite. Thank you.
@AaronBosterMD4 жыл бұрын
yes you certainly can have this. The MRI (even excellent protocol on 3T scanners) do not capture all of MS disease pathology.
@ArmwrestlingAddict2074 жыл бұрын
Hi Dr. I'm 19yrs old and newly diagnosed with RRMS and I'm on dimethyl fumarate so my question is will I get any sort of disability in upcoming years as doctors were saying I have a mild type of ms
@MsDesiree394 жыл бұрын
I have ppms and very much hate drugs but I receive ocrevus treatments and am interested in trying drugs to help with spasticity and fatigue, do u generally recommend them? Are any of them somewhat effective?
@bronwebster21964 жыл бұрын
Hi Aaron, the stalactite analogy really helps but leaves me with a concern for the future. I'm 49, was dx at 25 and live in the UK. My MRI shows lots of outer brain lesions (in addition to the deeper lesions). My daily functioning is ok and I'm relatively mobile. My question is, as time goes on are the symptoms I've experienced in the past - most of which have now subsided - likely to resurface. I'm doing all I can to maintain my reserve, but I stopped DMTs and am on the cusp of moving into secondary progressive. DMTs in SPMS is more tricky plus I had a malignancy in 2014 ... how should I best protect my reserve? What might I expect as the reserve drops?
@kristenlynnoliver4 жыл бұрын
Willl everyone change from RRMS TO PPMS or SPMS eventually or can you stay RRMS indefinite for life? Thanks Dr. B!
@kimberlywirths30674 жыл бұрын
Back awhile ago, you talked about pts who fizzle out during mth 5 on Ocrevus. OMGoodness...that is ME! But, I thought you said it was in the pkging. I can't find written info. My Dr is opposed & I have orig MCR w/ a supplement. In order to get it paid for, I need some source in writing. HELP, please! Thx!
@AaronBosterMD4 жыл бұрын
1. The FDA label specifies the drug is to be administered every 5-6 months. 2. There was a presentation at the AAN this past year that shared data on "wearing off" effect in patients with a higher BMI.
@cdsnov654 жыл бұрын
What treatment is available for MS related vertigo?
@krystinasepulveda56224 жыл бұрын
On my first MRI my neurologist said it was very obvious i had MS...does this mean that before my symptoms became noticeable (14 yrs old), i was having active demyelination prior and didn’t know?? Or did all my lesions pop up at once??
@desiredecove58154 жыл бұрын
❤️
@momtazjee4 жыл бұрын
hi, is there a name for that finger tapping test?
@AaronBosterMD4 жыл бұрын
you'll laugh. It's called "finger tapping". seriously!