Acute Myeloid Leukemia: Survivor Story

Acute Myeloid Leukemia: Survivor Story | The Patient Story

Рет қаралды 56,674

Күн бұрын

Mary Clare, who survived a diagnosis and relapse of AML, shares her incredible story addressing every part of her experience: bone marrow biopsies, induction chemotherapy, consolidation chemotherapy, bone marrow/stem cell transplants, bone marrow donor matching, to side effects. On the personal side, she shares how she got through the mental, emotional, and sexual impacts of cancer on her and her family's lives.
FULL STORY HERE -- www.thepatientstory.com/cance...
Do you relate? Have other questions? Want to share your story? Leave us a message in the comments below 👇🏻.
(Topics by estimated time code below)
1. Symptoms and 1st Hospitalization (0:00)
2. Bone Marrow Biopsy & Diagnosis (11:30)
3. Induction Chemotherapy (20:00)
4. Bone Marrow Match & Transplant (39:50)
5. Transplant Recovery (55:00)
6. Clinical Trial (1:00:30)
7. Resuming Life (1:02:40)
8. Relapse (1:10:50)
9. 2nd Bone Marrow Transplant (1:17:00)
10. 2nd Recovery (1:24:30)
11. Mental, Emotional & Sexual Impacts of Cancer (31:30, 1:06:40, End of Video)

Пікірлер: 33

@tauhirahjeanloew570 3 жыл бұрын

I'm soo grateful you were willing to share so much of your journey. I am newly diagnosed with an unfavorable type of AML. I hope I will find a transplant match.

@ThePatientStory 3 жыл бұрын

So glad Mary Clare's story was so helpful. We are thinking of you.

@limitlessss2493 2 жыл бұрын

R u ok

@bohochic2459 Жыл бұрын

Tauhirah, How are you coping? Thinking of you. 🌼💐🙏💗

@dothatch5147 Жыл бұрын

@Mimi-fe2gm 5 ай бұрын

🙏🏻💗🦋

@KO-qr7cs 13 күн бұрын

Thank you for sharing your story and I’m glad you survived. My mom was diagnosed with AML during a routine blood check, she had a blood disorder. She was sent to the hospital that day, disease progressed rapidly, she was in ICU that night. She survived exactly 3 months and suffered the entire time. I wish they could have done more but that was not Gods plan for her. God Bless you always.

@thegoodanfamily9817 10 күн бұрын

❤

@katinabotten 10 ай бұрын

I’m 62, and I feel like something isn’t right with me either but no one seems to know what is wrong with me. It all started in July with incapacitating itching on my lower legs and then sores morphed into open wounds that had bleeding under the skin, and then it happened to my right breast. Dermatology took a biopsy of my lower leg but it didn’t show anything, and the ER did a skin culture that showed I had STAPH AUREUS. Today is September 18, 2023, and I have (4) new open wounds that bleed so easily. I also have very dark purple spots on both lower legs that are not fading away. The ER doctors tell me not to worry that the dark purple spots will go away. My CBC was normal except for my GR% was high. I’ve asked repeatedly for a referral to hematology but instead I’m being sent to a wound specialist (mmm, no one has called me yet). My fatigue has me bed ridden. I’m too tired to eat.

@schildca 16 күн бұрын

Have you gotten any help yet? Please keep trying to get a doctor to help you. 🙏

@arthurgphotography 3 күн бұрын

Have them check your pancreas, itching can be a sign of pancreatic cancer

@Michelle-wk4ek Жыл бұрын

My dad was diagnosed with this in 1994 and passed away in 1999 he was 64 years old. He lived well till his last 6 months. Only was given tablets, from the diagnosis as no other treatment was available for his age. It’s an awful disease.

@kellimorton9079 Жыл бұрын

Thank you so much for sharing your story, Mary Clare!! How are you doing now?

@NEGAN310 Жыл бұрын

Thankyou for sharing, Mary. My friend has Multiple Myeloma. She's in remission.

@Legittoquit1 Жыл бұрын

Family is important. People don’t realize .

@mgal6234 Ай бұрын

Literally everyone realizes that family is important

@PBottomPoochies Жыл бұрын

All these cancer patients discuss varying symptoms- and all could be attributed to other things- which is what makes cancer even more scary. You just don’t know until things come to a head and doctors are made to take notice.

@AnneMarieBibby1966 9 ай бұрын

What an amazingly strong lady. Thank you Stephanie for bringing us all these stories. I wish you did updates to these folks. 3 yrs have passed I wonder how she is doing. God bless ❤

@Mimi-fe2gm 5 ай бұрын

Thank you for being so open and honest! All of it was so very helpful. ❤

@darlenefalast9419 Жыл бұрын

You have been through so much. Thank you for sharing.

@alanrivas6259 9 ай бұрын

My wife last year was diagnosed with leusemia, the same as hers. She was 10 weeks pregnant. They sent her to do prenatal tests and her white blood cells were 0.8 and her platelets were 66. They sent her to a hospital the same day they gave her the news on September 13, 2022, Duero 1 was admitted to the hospital and given chemotherapy at 10 weeks of gestation, it was devastating news.

@auroraduran284 7 ай бұрын

I am sorry to hear that. Wishing your family well.

@jenniferboughton5966 Жыл бұрын

Thanks for sharing your experience, very helpful and I’m praying for you!

@CancerNewsTV 4 жыл бұрын

Thank you Mary for sharing and encouraging many! All the best!

@kathleenmiller516 Жыл бұрын

Fascinating. I love this!

@donnamiley6778 Жыл бұрын

Good luck to you!

@elijahperfecto9560 3 ай бұрын

God bless this womem❤️❤️ just a strong ass women

@Mongoose118 3 ай бұрын

Brave brave lady

@pegKrobertson 11 күн бұрын

I’m so try to hear about your diagnosis. Just to understand, I thought you said it spread to your Omentum, the apron like fatty tissue in our abdomen. But you have said “chemo to my Peritoneum “ you also said you had a port put in your abdomen. If you know where these part of the body are? You understand why I’ve got?????

@HAIDARAVEN 3 ай бұрын

AML…..since 2021……blood so thick it gave me a heart attack

@jmw0368 8 ай бұрын

Big boned alright!!!…..Got the bingo wings too!!! 😂 This poor love is also suffering from those awful ugly dark blue bruises around her arms, which has seemingly caused the start of that modern-day sandpaper voice syndrome. ❤