Advice to Undiagnosed Patients by Dr. David Saperstein

Рет қаралды 668

Center for Complex Neurology, EDS & POTS

8 ай бұрын

Dr. Saperstein Provides Advice to Undiagnosed Patients. Here at the Center, it's gratifying to recognize these patients and bring explanations and even more so, treatments to patients that were previously told that they didn't make sense.
#complexneurology #dysautonomia #posturalorthostatictachycardiasyndrome #ehlersdanlossyndrome #potsie #butyoudontlooksick #cranialcervicalinstability #longcovid #cveds #spoonie #chronicillness #invisibleillness #eds #hypermobility #chronicillnesswarrior #arizona #phoenix #phoenixarizona #phxaz #drdavidsaperstein

Пікірлер: 3

@erikavaleries 8 ай бұрын

This is so validating and encouraging from a doctor. EDS & POTS for me, it took a long hunt to be heard & treated after lots of “you’re too complicated.” FB groups are lifesaving

@UncommonEyes 5 ай бұрын

80 years old here. Was this many years old when I learned from KZfaq that being “double jointed” had some medical explanation. Only last month mentioned to my PCP about being “double jointed” and he said “Ehlers-Danlos“. Lucky to have this guy for my PCP. Can someone teach AI to spell Danlos? they want to spell danilo’s

@fdauti_ca 8 ай бұрын

If EDS was correctly diagnosed early, many patients would know what they should avoid doing to not injure themselves. Yet we do things that put us in danger of disability because doctors thing that Eds is rare, especially if you are a male, and you should be super flexible in evry joint to have it.