Allergic to the Sun (Xeroderma Pigmentosum)

  Рет қаралды 1,046,257

Special Books by Special Kids

Special Books by Special Kids

7 жыл бұрын

Fatima Perez is allergic to the sun and supposed to remain inside at all times. She is diagnosed with Xeroderma Pigmentosum, a rare disorder resulting in the body's inability to repair cells damaged by the sun's rays.
This condition has taken Fatima's eyesight, but not her zest for life. She continues to celebrate each day while "shaking her bum bum."

Пікірлер: 77
@leahevehumphries
@leahevehumphries 3 жыл бұрын
She may be allergic to the sun but she is a ray of sunshine!! I love her so much! This is one of my favourite videos on the channel! ❤️
@amper-sand
@amper-sand 2 жыл бұрын
Wonderfully put!
@bookworm4404
@bookworm4404 Жыл бұрын
For sure! 🇧🇷
@cbreezy
@cbreezy 11 ай бұрын
“She’s the same thing that’s killing her!!” 🤨
@anneriekotze2357
@anneriekotze2357 3 жыл бұрын
I love her. I do not smile much . But she let me smile and I could not stop smiling.
@Metalbabilicious
@Metalbabilicious 3 жыл бұрын
This woman is so incredibly inspiring! I love her so much.🥰
@jusme9400
@jusme9400 3 жыл бұрын
Omg her confidence is everything she is awesome
@Kai-eb1fv
@Kai-eb1fv 3 жыл бұрын
I adore her dynamic personality and way of talking, she reminds me of my grandma!
@ginx33
@ginx33 3 жыл бұрын
She is absolutely amazing.
@angelomunoz3791
@angelomunoz3791 2 жыл бұрын
what a powerful powerful powerful women....Shes traveled through realms we can only dream of visiting one day
@wjsnactivist6141
@wjsnactivist6141 2 жыл бұрын
This video is a great motivator! I love revisiting it. Fatima is a joy! So much personality!
@SolarCrush48
@SolarCrush48 3 жыл бұрын
Aw man! I wish this interview was longer. Her happiness really is contagious, and I would watch for hours!
@carlos66965
@carlos66965 2 жыл бұрын
Dont know how i missed this one. This lady is great.
@bedp
@bedp Жыл бұрын
I've watched about a dozen of your videos in the past couple weeks. I find it so inspiring to see that these people that live with such debilitating conditions and experience agony I can't imagine, have nothing but positivity for life. If you ask me what I think of the world, I'll tell you it sucks and it's only going to get worse. These people with so much more to complain about will only tell you about the beauty and excitement of life. Shows you that strength and happiness can only come from within, no matter your circumstance.
@robinhendricks1750
@robinhendricks1750 2 жыл бұрын
Fatima is WONDERFUL!! She is happier than anyone I know, she is a INSPIRATION and deserves all the happiness in the world. Love you, Fatima.
@helenwhite1748
@helenwhite1748 3 жыл бұрын
your smile and laughter is heart warming may father god always bless you
@justicewillprevail1106
@justicewillprevail1106 3 жыл бұрын
Thank you for this video. I really need to watch this at this particular point in my life. She’s such an beautiful inspiration.wow… thank you and God bless.
@MagdalenaKatarzyna
@MagdalenaKatarzyna 2 жыл бұрын
I love her so much! This personality is absolutely golden!!!! She’s awesome❤️
@josesegura7001
@josesegura7001 3 жыл бұрын
She speaks very good english
@SpiciestBee
@SpiciestBee 3 жыл бұрын
Fatima Perez is awesome!!
@ChrisTRex59
@ChrisTRex59 Жыл бұрын
She is incredible !
@marleenninaka1303
@marleenninaka1303 3 жыл бұрын
Hi everyone: It's so nice to see you all again on KZfaq. I want to meet you all one day. Take care and stay safe.
@scottcunningham378
@scottcunningham378 2 жыл бұрын
God Bless Fatima.
@maleahlock
@maleahlock 3 жыл бұрын
I thought my photosensitivity from SLE was bad, I feel like a whinger now. Thank you for your story. 💐💐 Also, it's like people forget you can go out at night. The night is beautiful!!
@martina5296
@martina5296 Жыл бұрын
Especially in spring/summer and listening to the crickets and other nature sounds.
@tracy4591
@tracy4591 3 жыл бұрын
You are so inspiring and amazing Fatima ❤ I love your positive thoughts and attitude ♥ People could learn so much from you 😊
@dollsNcats
@dollsNcats 2 жыл бұрын
She’s amazing ! I want her positivity. Anyone know how this amazing women is
@inestorres6789
@inestorres6789 Жыл бұрын
Felicitaciones Fátima !!!!! Sigue así de positiva !!!! Es es resiliencia pura !!! Saludos desde Uruguay 🇺🇾.
@rogo8133
@rogo8133 2 жыл бұрын
Got me a smile, amazing story
@sickboy703
@sickboy703 2 жыл бұрын
I absolutely love Fatima Perez. You're joy is definitely contagious!
@prettypumpkin6891
@prettypumpkin6891 2 жыл бұрын
She is just like everyone else, we can't live a day without our electronics (computers, tablets or phones). I'd rather be in her situation with her struggles than be depressed and miserable. Fact!
@cambriainouye595
@cambriainouye595 3 жыл бұрын
Beautiful lady inside and out!
@mollyprysunka7741
@mollyprysunka7741 Жыл бұрын
She’s exudes class and charm. I’d like to be her friend ❤
@martina5296
@martina5296 Жыл бұрын
She exudes what everyone wants. She sees only the positives in her life and works around the not so positives. We all have that choice.
@nindikaur2095
@nindikaur2095 Жыл бұрын
Wonderful Fatima, she is an amazing happy person.
@carlasuannelockett1694
@carlasuannelockett1694 3 жыл бұрын
She's awesome!
@giulugo5413
@giulugo5413 3 жыл бұрын
She's amazing
@lucash1297
@lucash1297 Жыл бұрын
I love Fatima’s outlook on life!!! She seems like an absolute joy to be around and I would love to be her friend
@claire_eve8531
@claire_eve8531 2 жыл бұрын
Wow. What an inspirational lady. Hello Fatima 👋🏻🙏🏻
@toomuchtotype6079
@toomuchtotype6079 2 жыл бұрын
Fatima is a warrior! 💪🏼🙏🏼🙌🏼 Day at a time madam! Much love and respect to you! You are beautiful inside and out. ✨✨✨
@martina5296
@martina5296 Жыл бұрын
Fatima's contagious happiness and joy is brighter than the sunlight. She is sunlight. Can we have an update of Fatima Perez? PLEEEEEEEEEEEEEEEEEEEEASE!!!!! Make it a long video. Maybe in 2, 3 4 parts. She's just such full of incredibly and contagious happiness. She would be a fantastic inspiration for kids. Also to fate people are. Especially the brothers and sisters of young kids with special needs. They are just so proud of their brothers/sisters and fiercely protective and incredibly articulate, well spoken and wiser than really any kids should be. But in a very good way.
@JonathanHernandez-mm3nd
@JonathanHernandez-mm3nd Жыл бұрын
May god be with Fatima and I’m sorry for what she went through.
@tzazella751
@tzazella751 2 жыл бұрын
i caught her happiness. I'm going to dance now.
@samucaandrade8344
@samucaandrade8344 2 жыл бұрын
Que Deus abençoe esta senhora
@trevorblade6241
@trevorblade6241 Жыл бұрын
I find you to be very beautiful & inspiring Fatima👍. Thank you for sharing your story, you are awesome
@lyssabiss2317
@lyssabiss2317 2 жыл бұрын
she is so COOL
@chiarapiola
@chiarapiola 10 ай бұрын
tu riesci a rimanere felice nonostante la malattia congratulazioni
@KarolinaKwiecinska-zl6od
@KarolinaKwiecinska-zl6od 3 жыл бұрын
Super positive :)
@ms2507
@ms2507 2 жыл бұрын
God bless you Mam. Surely will pray for your fit health & fitness.✨💜💜💜💜💜💜💜💜💜💜💜💜💜💜✨
@jade-wr9pn
@jade-wr9pn 2 жыл бұрын
I want to know Fatima Perez!!!
@casadare32
@casadare32 Жыл бұрын
Wow shes is wonderful
@notmarkeza7937
@notmarkeza7937 Жыл бұрын
Support!
@nicholaslehouillier6880
@nicholaslehouillier6880 2 жыл бұрын
True boss lady
@mikecampos5123
@mikecampos5123 Жыл бұрын
God bless her ❤️❤️❤️❤️❤️🙏🙏🙏🙏🙏
@dawngibson1157
@dawngibson1157 2 жыл бұрын
Poor happy go lucky woman
@gemmalouiserowledge545
@gemmalouiserowledge545 Жыл бұрын
Yes you're the gift you're amazing 🤩
@tromick
@tromick 4 ай бұрын
Out of sudden I remember her today. Wondering how she is doing...
@godisacritter8571
@godisacritter8571 2 жыл бұрын
My younger brother whenever he went out in the sunlight when he was younger sunblock or not he would get hives all over the back of his neck and head when he went out in the sun.
@postal4936
@postal4936 2 жыл бұрын
I’m inspired by her
@happybergner9832
@happybergner9832 2 жыл бұрын
Farina IS the sunshine❤️😎
@tyrellwilliams2914
@tyrellwilliams2914 2 жыл бұрын
In Prayers 🙏 Bless you all and In Prayers daily and Love And Care and Concern always ❤️❤️❤️❤️❤️❤️❤️ Best wishes for Good health and Prosperity and Happiness 😊 ❤️ ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️ ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
@1324TN
@1324TN 28 күн бұрын
Amen!!!
@willielee2376
@willielee2376 3 жыл бұрын
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
@LionGoddess1
@LionGoddess1 Жыл бұрын
can't go outside at night?
@GlowingGirl37
@GlowingGirl37 2 жыл бұрын
she is so cool her accent is just like my doctor and she is so funny im not allergic to the sun very much but i have photosensitivity so i have some times burns by accident opps haha
@baroonono
@baroonono 8 ай бұрын
wow.
@aronlelenora9572
@aronlelenora9572 2 жыл бұрын
❤❤❤❤
@ethansons7085
@ethansons7085 2 жыл бұрын
Jesús 🙏 Amén
@johnjobin7694
@johnjobin7694 Жыл бұрын
❤❤❤❤❤❤
@arsalanabolfathi552
@arsalanabolfathi552 Жыл бұрын
❤❤❤❤❤❤❤❤❤❤❤❤❤👏👏👏👏❤
@GodlessFiend
@GodlessFiend 10 ай бұрын
I think we found Dracula’s wife(saying this respectfully)
@kellyfernandx
@kellyfernandx Жыл бұрын
No way Jose 😂❤
@Cetrifuga1945
@Cetrifuga1945 11 ай бұрын
Ciaooo come va nn ci conosciamo io sono gabbriele ti mando un 🐞ti piace ok ti piace ballare ok sei troppo forte ciaoooo ti saluto
@valentinagonzalez9519
@valentinagonzalez9519 3 жыл бұрын
Poor thing she has to live in the darkness a lot like a vampire 🧛‍♂️ the sun is way to beautiful the sun for humans is good for you Atleast a little if we lived in darkness always we can get chemical imbalances in our body and get depressed
@bakerlegendas945
@bakerlegendas945 Жыл бұрын
She's so happy that made me cry.
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