Amity & Liliana - Seeking a cure for DIPG

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Amity & Liliana - Seeking a cure for DIPG

Рет қаралды 48,985

3 жыл бұрын

DIPG is the most aggressive, most difficult to treat cancer. It's an absolutely devastating disease and unfortunately there is currently no effective therapy.
However, the Children's Cancer Institute recently organised a protocol where parents may donate a child's tumour after they have passed. For the first time, scientists were able to actually grow these cells in the lab, and have had the opportunity to screen thousands of drugs. Although the majority of these were ineffective, several lead compounds are showing promise in laboratory experiments and others are involved in clinical trials.
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Пікірлер: 72

@ankitsinghal2212 5 ай бұрын

I lost my Son 2 weeks ago to this disease. No one should suffer with this 🙏

@Ellie-057 2 ай бұрын

I’m so sorry

@beth6288 25 күн бұрын

Peace and love to you ✌️❤️🌹

@timothygarrett2785 Жыл бұрын

I lost my granddaughter, who was nine years old, three years ago to this disease. It’s truly heartbreaking.

@Weatheredstorms1 5 ай бұрын

I lost my daughter six weeks into her cancer journey. She was my middle child and the only child I had to make it to 8 years old. My other two were stillborn due to a doctors malpractice. Our kids deserve more than 4.

@beccabally3711 8 ай бұрын

I just lost my niece November 10 2023 at 11:54pm to this disease. And it was traumatic. Ahe was surrounded by family who loved her dearly . Rest in peace Skylar. And god bless any child who has to go through this. There absolutely need to have more funding for this disease. More research needs to be done. These are children 😢

@Truthbetold2us 7 ай бұрын

My daughter just got diagnosed. Where in the hospital now.

@laurenblackmore 6 ай бұрын

@@Truthbetold2usI'm truly sorry

@laurenblackmore 6 ай бұрын

Becca I'm so sorry for your loss

@guillermoiturriaga7863 Ай бұрын

Visit making DIPG history Chile no Face book 🤫

@speakaholicstown Жыл бұрын

And my 2 years old baby is going through all this😭😭😭 Pray for her 🙏🏼😭😭😭 such a lovely happy kid and now completely on bed😭😭😭 Everybody says,that God has good plans for us, ... Whats good in this, I don't know 😭😭😭😭😭😭😭😭😭😭

@Open2OpenUT 2 жыл бұрын

I couldn’t imagine the pain of losing a child, I’m sobbing just watching this. They (the parents) are so brave to donate the tumours to aid research to help others and I applaud them.

@jenniferwells9032 2 жыл бұрын

I too cry with that pain like no other 😢 this is true. A child gets over losing their parent, but a parent NEVER gets over losing their child 🥲😢🥲😢

@mcmlxii4419 2 жыл бұрын

@@jenniferwells9032 No, a child DOES NOT always "get over" losing a parent. What a ridiculous assumption to make!

@erikak8187 Жыл бұрын

Yes. Watching them suffer and having sever pain. Unimanagable head aches . I can’t imagine.

@overgrownkudzu 7 ай бұрын

@@mcmlxii4419 it's still less traumatic, because it's normal. almost everyone will at some point lose their parents, and hopefully when they're old and lived a full life. that doesn't make it easy to deal with, but it's not comparable to losing a child that you thought would outlive you.

@abigailc9322 Жыл бұрын

a little girl in my community recently passed away from DIPG it's absolutely awful. i'm not sure how parents cope with a diagnosis like that, but i have infinite respect for them being able to carry on

@sallymccoy6286 2 ай бұрын

So sorry for your loss

@eeeeemeeee9047 Жыл бұрын

This was always my worst nightmare. On 4/20/20 my beautiful daughter was diagnosed with brain cancer. I thank God every day that she wasn't diagnosed with this.

@kevaflores1476 2 жыл бұрын

You as parents are amazing to give the girls’ tumors. I too weep for you all. Again I am so sorry for your loss! I will never forget your daughters!!

@user-xy1uo7pj3g 10 ай бұрын

Heartbreaking. I’m so sorry for the parents loss. Thank you for donating. A child I cared for passed away from Digp .. 2 days ago , I’m crying for him and for his parents. It’s horrific disease. Rest in peace little angels.

@kimgibson2644 3 жыл бұрын

Omg how heart breaking 💔

@chelciewentzel8191 5 ай бұрын

everyone is so beautiful ❤❤

@stephenfermoyle4578 3 жыл бұрын

i am so sorry such heartbreaking that a small child would have to endure. RIP

@paigeoak5637 2 жыл бұрын

Bless their hearts...so heartbreaking 💔

@bradfordjr9905 8 ай бұрын

Rest In Peace sweet angels! ❤🌸💐

@user-ht1lt1hw5o Ай бұрын

Poor Amity😢

@kevaflores1476 2 жыл бұрын

So sorry for your losses. I pray for a cure every day!!

@joshuasayler2425 2 жыл бұрын

If you want to learn more about DIPG kzfaq.info/get/bejne/h6pdrMaTrr63l3k.html

@darlenew1981 2 жыл бұрын

I'm so sorry for your losses! Such a horrible, horrible thing for a child to have to go through, along with their families. I really hope with research that they can find a cure.

@joshuasayler2425 2 жыл бұрын

If you want to learn more about DIPG families kzfaq.info/get/bejne/h6pdrMaTrr63l3k.html

@georgiehollander2199 7 ай бұрын

I am so sorry for your loss...........xoxo

@jenniferwells9032 2 жыл бұрын

😢😢😢I’m so very sorry😢as a parent with a child that fought cancer stage 4 for 2 years. I know the terror I went thru😢she survived due to stem cell transplant! Her twin donated his stem cells ❤️❤️♥️🙏🙏

@alisonscofield6653 8 ай бұрын

My twin sons were diagnosed with lymphoma, one had more severe disease. He was treated with stem cell transplant. Both are now considered "cured"! Thanking God every day!

@calliecooper99 Жыл бұрын

Praying 🙏🏻

@dianerobertson4894 4 ай бұрын

These are not praying hands. They are high 5-ing!

@alseescecidancer1214 2 жыл бұрын

This is my worst fear. I have two beautiful daughters and I just simply can’t imagine it. I’m so sorry.

@gordanazakula5669 Жыл бұрын

Allie, childhood cancer is very rare. However, it is the second leading cause of death among children. Your daughters will be fine!!!

@SUPERSPAZD Жыл бұрын

@@gordanazakula5669 You.Have.No.Clue.🙄

@justelleslife507 2 жыл бұрын

Until this particular tumor was explained to me I thought it was just a solid mass in a very difficult place, no it's not that at all, what makes DIPG tumors different are the way they're intertwined, one layer healthy cells, next layer cancer cells, 3rd layer healthy, and so on, they're tightly intertwined impossible to remove the cancerous layers, knowing how your child is happy and dancing with joy, coming to terms that one day they'll be gone along with seeing their joy gone too, my immediate family are now gone, my dad 52 years now, I think grief is the unexplainable reason why they've gone somewhere before but have always come back, while in death they'll never be coming home, your brain can't process that fact and there lies what grief really is.

@alisonscofield6653 8 ай бұрын

Excellent explanation!

@kyliereed3665 Жыл бұрын

im so sorry xx poor baby xx ive lost my aunty who fought cancer for twenty years and it had spread everywhere, 9 tumours in her brain.. seen so much pain, sickness all she kept saying and crying over was how can babies and children go through this? love to you all

@chelciewentzel8191 5 ай бұрын

to anyone going thru this/have people close to you or something going thru this: i’m so so sorry💔 it breaks my heart so so much hearing/seeing people be in/go thru pain i swear. i wish sicknesses never ever even existed at all whatsoever… but i will say please please please never ever forget that god/jesus are so beyond amazing and they have everyone thru everything always and forever❤ the people going thru this are so beyond strong and always will be! i’ll be sending so much love and hugs to you all💪🏻🙏🏻🩷✝️ stay strong everyone❤😢 i know it’s hard watching people go thru this stuff so if you are/had to watch this never forget how strong you are too❤

@wafflekorea4582 2 жыл бұрын

Please help 😢 a 5 years old baby has DIPG. He just start radio therapy 20 days ago 😢 🙏 🙏 🙏

@lucasmarley5639 Жыл бұрын

I'm on this journey right now. My princess was diagnosed with DIPG a few days ago. ...it's hard...

@poloab2273 9 ай бұрын

I hope your daughter is surviving

@sorinaghencian1058 2 жыл бұрын

🙏🙏🙏

@poloab2273 9 ай бұрын

My daughter is in hospital right now. I hope there is a medication for this treatment

@atxdavid4650 Жыл бұрын

❤️

@debbieschultz9768 5 ай бұрын

This cancer is horrible, no cure and death is immigrate. RIP to the babies that died 🙏🙏🙏🙏

@gordanazakula5669 Жыл бұрын

Heartbreaking, but positive!!! It is more heartbreaking to watch your child die, despite horrific cancer treatment. Those children "live", but suffer horrific physical and mental problems. If l was a child, l would rather die than go to a children's cancer ward. Some wise parents have seen that the pain is not worth the gain, and refused treatment for their children.

@SUPERSPAZD Жыл бұрын

wtf?!?

@alisonscofield6653 8 ай бұрын

It's the disease that's called "terminal at diagnosis". Our community lost a beautiful young lady to this horrific tumor. If you're able to, donate what you can to finding a treatment for DIPG.

@Sah-m2v 10 ай бұрын

I’m on this journey right now .. i was diagnosed with Dipg yesterday . I’m 15 yr old . Plz pray for me i don’T wanna die . I’m so sorry about lose these amazing ,strongest And pretty girl’s

@mcmlxii4419 2 жыл бұрын

I keep hearing about more and more cases of DIPG these days. Doesn't seem as "rare" as they say it is. It seems almost like an excuse they use for not getting the funding for it that it needs.

@translucentorb 9 ай бұрын

If something ever happened to son I don't know if I would make it. Not that I would kill myself or anything, just that my heart would probably give up and I'd collapse or die in my sleep.

@tomill1085 2 жыл бұрын

First case in 1920. Still haven’t found a cure. Western medicine really sucks. I hope there’s a cure out there.

@SapphirasMama Жыл бұрын

It has nothing to do how western medicine sucks. This type of tumour intertwined with normal cells. If you think you have removed one layer and the following layers are clear, sadly you are wrong. One layer could be clear, next layer would have cancer cells, the next layer clear and so forth. We have come a long way in treatments for cancer. Yet there is still so much to do with regards to research and treatments available to patients.

@poloab2273 9 ай бұрын

😢😢😢😢😢😢😢😢😢😢😢😢

@tomill1085 2 жыл бұрын

Crinum latifolium