♡ I EAT THROUGH MY CHEST: My TPN Set Up! | Amy Lee Fisher ♡

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Amy Lee Fisher

Amy Lee Fisher

Күн бұрын

♡ I EAT THROUGH MY CHEST: My TPN Set Up! ♡
My Website: www.amyleefisher.com
CHECK OUT MY MERCH & Help Support My Channel!
PAYPAL ( if you would like to donate to help me out, as it was highly requested for me to leave my details) : amyleefisher96@hotmail.co.uk
Amy's Life (Classic Logo):
www.bonfire.com/amys-life-merch/
Amy's Life ( 'AL' Plain Logo): www.bonfire.com/amys-life-mer...
Amy's Life ('AL' Zebra Design): www.bonfire.com/amys-life-mer...
Want To Send Me Mail?
PO Box 62
Willetton
WA
Australia
6955
Find Me On the Net!
► VLOG CHANNEL: / @amyslife4457
►INSTAGRAM: chronically...
►INSTAGRAM: / _amieelee
►INSTAGRAM: / tomharris.95
►TWITTER: / amyleefisher
►SNAPCHAT: @Amyleefisher96
♡ MORE INFO ABOUT MY HEALTH ♡
• HKPP: medlineplus.gov/ency/article/...
• POTS: www.nhs.uk/conditions/postural...
• M.E/CFS: www.nhs.uk/conditions/Chronic-...
• FIBRO: www.nhs.uk/Conditions/ Fibromyalgia/Pages/Introduction.aspx
• EDS: www.nhs.uk/Conditions/ehlers-d...
• GASTROPARESIS: www.nhs.uk/conditions/gastropa...
• MCAD: www.ukmasto.org/ukmasto-medica...
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Пікірлер: 662
@Jayman2800
@Jayman2800 3 жыл бұрын
Rest in peace Amy! You will forever live on in your videos and we all will cherish these memories forever
@Yoongisgreyhairs_
@Yoongisgreyhairs_ 2 жыл бұрын
She was my favorite KZfaqr I snapped her on Snapchat and she responded with hearts 💕 I love you Amy
@DemonSister6
@DemonSister6 2 жыл бұрын
My grandfather is up there with her he passed away last month at 80 years old he was born in March and died September 8th this year
@SarahAParis
@SarahAParis 2 жыл бұрын
RIP Amy. You had a long difficult battle and fought bravely. You are missed.💖
@stevepayne7981
@stevepayne7981 2 жыл бұрын
Rest in peace
@Hopeandpeaceinjesus
@Hopeandpeaceinjesus 2 жыл бұрын
She passed just before my birthday (I found out the morning of my birthday) I have the same conditions and I used to play her videos while I was doing mown stuff so like I put my feed away while she unpacked hers and stuff… was like having a companion… she was so good at making this so much less horrible… I know I for sure am not the only one… I can’t even imagine how it must be for her family and friends… I can’t imagine… this is the first time I’ve been able to face watching since… still choke up… still think about her every few weeks (each time for a few days) I’m glad her channel was left public so many people need her story and many more to come will too… what a beautiful soul she is. I’m glad you’re free from the pain, the suffering, the meds and the trauma these conditions can bring. Be at peace be free. 💜
@makaylamontgomery7912
@makaylamontgomery7912 5 жыл бұрын
My son is 10 months old and he just got his g-tube put in. Your videos have seriously helped not only educate and show how to properly do everything it has made me feel tons better about knowing how to take care of him and his new needs. Hes had 2 open heart surgeries already and has 1-2 more to go. Weve been in the hospital for 92 days and finally get to go home today. Just wanted to say thank you for sharing your story and helping so many people learn what it's like.
@yogabirds
@yogabirds 5 жыл бұрын
MaKayla Montgomery Healing thoughts and hugs coming your way!
@shylasaunders
@shylasaunders 5 жыл бұрын
Poor baby boy, I hope life gets easier. I can’t even imagine how hard that has to be ❤️
@ellie2041
@ellie2041 5 жыл бұрын
God bless you guys he’s going to grow to be a strong person not only because of his struggles, but also because of you standing beside him through them.
@sweetgirl7229
@sweetgirl7229 5 жыл бұрын
Sending all prayers for your son ❤️
@tessmarie3575
@tessmarie3575 5 жыл бұрын
I have a chder with a gtube too. If you ever want to chat hit me up. Our son lives a normal.life and thriving thanks to his gtube and food
@michaelac5104
@michaelac5104 5 жыл бұрын
“You’d think I owned an animal but it’s just TOM” 😂😂😂 I love you guys 😆
@shaniya_hope
@shaniya_hope 5 жыл бұрын
Michaela C nothing has ever summed up having a partner more tbh. My partner asks for attention sometimes the same way his dog does, by hitting you and then pushing you until you pet them. Adults are just large children especially when in love 😂
@rosemaryclarkgreville267
@rosemaryclarkgreville267 5 жыл бұрын
😂😂😂😂😂
@katelynnelson7771
@katelynnelson7771 3 жыл бұрын
"Gotta maintain sterile field" "Touches tweezers with hands and puts it back down on the sterile field, ruining the sterile field" lol
@darkbluematter1753
@darkbluematter1753 5 жыл бұрын
I know you were really nervous about filming this, but you guys did such a great job! The fact that you and Tom have taken it on yourselves to learn all this and be responsible for your own care is so impressive to me. Proud of you both!
@amyleefisher52
@amyleefisher52 5 жыл бұрын
DarkBlue Matter thank you ❤️❤️
@whitneylambert234
@whitneylambert234 5 жыл бұрын
I work as a patient services representative for an IV pharmacy here in the U.S. We’re closed door so everything pertaining to setting up deliveries is done over the phone. We send out antibiotics, chemo, etc, but the patients I am responsible for are all on TPN. I knew nothing about it before starting this job and of course I don’t get to see any of my patients in person. I’m not even sure how I came across your channel, but it is so informative! It’s very cool to me that I am actually getting a true visual of what my patients do everyday! Talking about it, seeing the bags and supplies and all is good, but nothing like seeing it in action. Thank you so much for making these videos!
@amyleefisher52
@amyleefisher52 5 жыл бұрын
Whitney Lambert your so welcome! Thank you for doing what you do! Because without you, people like me would be alive! So thanks ❤️❤️❤️
@lilymayer5444
@lilymayer5444 5 жыл бұрын
Amy Lee Fisher you mean wouldn’t be alive!
@Mia-tw3ye
@Mia-tw3ye 5 жыл бұрын
Amy, I just wanted to give you a quick tip. I’m an EMT in the states. We use the same TB wipes you use. Just be careful since you use these daily. I’ve been told that touching them often can be harmful to your liver because of the chemicals in them. It would be a good idea to just use a glove when handling them since you use them so often. It’s not something that’s bad short term to touch, but over time it can damage your liver. I hope this isn’t taken as me trying to tell you what to do, I just wanted to let you know! :) love your videos!
@amyleefisher52
@amyleefisher52 5 жыл бұрын
Mia thanks so much for letting me know! I will be sure to wear gloves from now on! ❤️🙏🏼
@samanthaguerra8268
@samanthaguerra8268 5 жыл бұрын
@@amyleefisher52 hello amy I love seeing your videos and this is great information to know in the future and question do you text people on their Instagram? I wanted to ask you something idk if you reply back?
@mirandanichols8162
@mirandanichols8162 5 жыл бұрын
Agreed!
@joraston
@joraston 5 жыл бұрын
Samantha Guerra & Miranda Nicholls if you on her instagram profile you’ll find that she does say she won’t answer personal messages.
@angelalall6056
@angelalall6056 4 жыл бұрын
@Phil & Claire Sandercock Maybe look into Vecttor Therapy System with Dr. Rhodes in Woodlands TX to see if his machine can help your nerve. Google it and call him for consult.
@ck8553
@ck8553 5 жыл бұрын
Tom: *plops supplies on sterile counter* Amy: We carefully kind of put it on there. Girl, I laughed so hard 😂 I don’t why I thought that was so funny.
@veevee306
@veevee306 5 жыл бұрын
Hah, yes, it looks funny when we just throw things into a sterile field, but it is the most efficient way to avoid contamination. :)
@hehehehahahaful
@hehehehahahaful 5 жыл бұрын
It is really concerning the lack of proper knowledge/guidance that is exhibited in this video. Central venous access should not be utilized by improperly taught amateurs. You explained that the inside of the sterile field should not be touched, but then 30 seconds later Tom drops the contaminated yellow forceps he just handled directly onto the sterile field, therefor breaking the sterility barrier. You are also narrating loudly to the camera without any kind of surgical mask on while standing right over the open sterile field. In a proper Emergency Department room/operating theatre you are technically not supposed to enter without a surgical mask after the sterile field has been opened, much less TALK right over it! Sorry if I come off rude, it’s not your fault, it is the fault of your so called TPN team, any infectious disease physician consulting on your case, and ultimately the fault of your attending gastroenterologist.
@veevee306
@veevee306 5 жыл бұрын
@@hehehehahahaful The outer 1 inch to 1.5 inches of a sterile field is considered dirty and is a place where outside items can be placed. She is also not talking directly over the sterile field, and some talking is allowed. What's more, home care is different than a hospital (I am a nurse working in home care). Her technique is excellent and better than even I can achieve in a home setting. Leave her alone.
@knuffelbeer193
@knuffelbeer193 5 жыл бұрын
veevee306 she’s also done this a million times and hasn’t had an infection yet. She must be doing something right. Homecare nurse here too and it’s definitely different from a hospital. Most houses are a lot cleaner than the average emergency room.
@jordanmarie1486
@jordanmarie1486 4 жыл бұрын
Plopping is definitely interesting to see, but it is the is the best method to get sterile material out of non sterile packaging. The packaging is exposed to the outside world, but the material inside is not and by “plopping” you are getting the material out of the packaging without allowing the materials to be contaminated (hope that makes sense). I worked at a veterinary technician for two years and frequently did shifts in our surgery suite. It’s just the best way to get everything needed for procedure out and ready for your doctors, or in this case Amy and Tom, before you get started.
@Sam-dw7ou
@Sam-dw7ou 4 жыл бұрын
Love your videos, I am a nurse and I work in neurology, we use those same wipes and I would recommend wearing gloves before using them, they have some pretty irritating chemical in them. Your procedure for starting youTPN was sooooo clean, some people do not take such care to do all that is needed. Thank you for the videos!!
@marieked
@marieked 5 жыл бұрын
Our TPN comes unmixed, as in the lipids are still separated from the vitamin/mineral section and we undo this part on the bag to mix them. As some days we don’t use the lipids. And ours aren’t protected from light. Interesting to see the differences. Great video!
@kirsty916
@kirsty916 5 жыл бұрын
I have SO much respect for you guys. I know this isn't even a fraction of what you deal with on a daily basis, but you handle it like a champ.
@mentallyillsal
@mentallyillsal 4 жыл бұрын
“I’m not lying to you guys” I wish you were cause it would mean you are healthy! You hang in there darling ❤️
@katiewagner8787
@katiewagner8787 5 жыл бұрын
Wow as a registered nurse myself.... I'm so so so impressed with everything you just did.
@barry120
@barry120 5 жыл бұрын
HAHAHA! I accidently snorted when you said the meowing was tom
@kaseyamos8028
@kaseyamos8028 5 жыл бұрын
I’m a student MA & watching your videos has helped me so much! You do a fantastic job maintaining sterile procedure in a home environment. So happy to see you where you are now after so many trials to find what works for you & your health. Thanks for sharing, Amy. ♥️
@hannahruef6694
@hannahruef6694 5 жыл бұрын
Thank you for sharing this! I have been an RN for only a year, and I find this SO helpful, since TPN is something we don't see a lot of on our floor.
@lisawinters4681
@lisawinters4681 5 жыл бұрын
You guys did a great job showing and explaining everything... Thank you you for sharing this with all of us. You guys do it exactly how I do mine but I have a port... I am so happy that you are doing so amazing on TPN you are definitely thriving a lot more now that you are getting the proper amount of nutrition... Can't wait to see more videos of your medical storage and whatever else you and Tom want to share. I love being able to see how other people do all the home medical stuff. I always get great ideas on how to organize... It also makes me feel more normal and like I'm not the only person having to do all of this to keep my body going!!! Love your channel sending you lots of hugs and love from Oregon!!!
@alysonjade2461
@alysonjade2461 5 жыл бұрын
Thank you so much for sharing Amy!!! I know you were afraid to show you setting up your TPN, but it’s so incredibly interesting and I really love these almost “behind the scenes” style videos. Love you girl!!!
@taylorgrace21
@taylorgrace21 5 жыл бұрын
I've been watching your videos for a while as someone with chronic illness but I'm also a nursing student, and I've just started my module on nutrition. So of course we look at parenteral and enteral nutrition and I've never so quickly known what two medical words meant. I'm so glad you allow your followers, including me, to follow your journey and become educated on something I quite frankly had no idea about before watching your videos. I am grateful to learn from the people dealing with these illnesses personally rather than just a textbook definition, so thank you. ❤
@mrsfarrellforever
@mrsfarrellforever 5 жыл бұрын
I’m living for this new content. I know you’ve always done videos like this but your so good at explaining things. I’ve learnt so many medical things from you. My medical condition is completely different then mine but I still like to be aware of all other situations etc but I’m really looking forward to your content maturing.
@AllthingsbeautyMichelleS
@AllthingsbeautyMichelleS 5 жыл бұрын
I legit just love you hahaha. I can't stop watching your vlogs and main channel videos because they literally just interest me so much on a topic I had no idea about! I love your personality and seeing what you get up to in your daily life! xx
@nishyasalim1562
@nishyasalim1562 5 жыл бұрын
I thank KZfaq for showing you on my recommended list. ❤ I love how positive you are .
@janeisadora8986
@janeisadora8986 5 жыл бұрын
I do housekeeping at a hospital, we use the Oxyvir TB wipes to clean everything(except C. diff) since it has a very fast kill time and kills pretty much anything- bacteria, viruses, fungus, etc.
@roadkill5655
@roadkill5655 4 жыл бұрын
Why not c diff? Please explain. I am interested in medical stuff!
@infinity3356
@infinity3356 4 жыл бұрын
Thank you for sharing such personal parts of your life with the world. This will inspire and educate so many people. Keep on smiling!
@sabrinatorgerson888
@sabrinatorgerson888 3 жыл бұрын
This is not an easy life you live everyday . But you are lucky in so many ways. Not only are you living in a time when there are treatments for your conditions, but you have also found someone who is willing to go through everything with you. This is not a life that anyone should have to live, but from the few videos I have watched you seem to have a great attitude about you condition. And I think that helps a lot. I look forward to watching more of your medical journey.
@lorileewalters2018
@lorileewalters2018 5 жыл бұрын
You are such an amazing young lady!! You inspire me every time I watch your videos!! You’re in my prayers daily love 💕
@boredjerboa
@boredjerboa 5 жыл бұрын
I honestly think you're amazingly strong. I have EDS though im on the milder side, its more pain & subluxations than anything. I couldn't imagine having a main line, I have panic attacks over a basic IV setup, the idea that there is direct access to my veins isnt something i can handle personally. I really respect you and think your openness is amazing and incredibly helpful to people. Sending lots of love your way.
@katnoir44
@katnoir44 4 жыл бұрын
This has been a great help Amy. I’m learning home TPN for my mum at Fiona Stanley and it’s been nerve racking. I’ve followed you a while now and watched this video ages ago so it was great to remember and go back to it. I feel a little more confident now. Thank you x
@nicoletagidea6010
@nicoletagidea6010 5 жыл бұрын
Thank you so much for this video! I am working in TPN for almost 1,5 year and I feel that my job really makes a difference. Really good aseptic technique 🤗
@Sheyann_89
@Sheyann_89 Жыл бұрын
I'm not quite sure why I was recommended her videos but I love her energy. Bless her beautiful soul for showing her life. May she rest in peace beautiful sweet girl. 💕
@tacob69
@tacob69 4 жыл бұрын
I'm so glad youtube put this in my suggested videos.I've binged watch some of her vids.I've had Crohns for just under 30 years and it's gotten pretty bad at times over the years.Watching this woman with such a pleasant And self depricading at times is awesome.Ms Fisher you are great and remind me alot of people deal with such worse things than I do.You are an incredible woman.Thank you for sharing your life.
@littlemj90
@littlemj90 5 жыл бұрын
Amy such an informative video! So interesting. I can't believe how much preparation is needed. You and Tom work so well together. Good team!
@emilyvanzyderveld1589
@emilyvanzyderveld1589 5 жыл бұрын
Oh my, I'm early! I love your channel and I feel so educated and blessed to have someone like you on KZfaq to share your stories with us all. Thank you and blessings!
@kchristag
@kchristag 4 жыл бұрын
You are so strong! And doing such a great service to others who may be going through something similar. Glad to have run across your channel.
@schmeat2717
@schmeat2717 4 жыл бұрын
Modern medicine is so amazing , I love learning about all this and of course your the best teacher I love watching you, I could watch you explain anything and be happy listening.
@mollyevansp
@mollyevansp 5 жыл бұрын
You're looking so good lately. Glad to see it. Your videos are so informative and interesting. Keep smiling!
@christinaloveskurree
@christinaloveskurree 4 жыл бұрын
My daughter was asking about someone with a tpn, this was super helpful in educating both of us on how to works. Shes 8 and this made it alot easier for her to visualize what her grandma was telling her. Thanks! Be well!
@libbygibson5612
@libbygibson5612 5 жыл бұрын
You two did an awesome job on this video. Very informative. Thanks for making it.
@celinepinter
@celinepinter 2 жыл бұрын
Hi All, I came across this as I have had a Central Line fitted this week. So sorry to hear of Amy's loss. This video has really helped me though. My sister has a paralysed stomach and now I have had a peek into her daily life. Love to Tom and you all.
@ruthhnjengaaa
@ruthhnjengaaa 4 жыл бұрын
He’s a whole damn nurse GO TOM!!! And GO YOU of course!!!
@cassiepowell3704
@cassiepowell3704 5 жыл бұрын
If you have a garden the left over TPN is wonderful for helping you garden grow
@maggiemagpievlogs4611
@maggiemagpievlogs4611 5 жыл бұрын
I love your videos! I have also had a Gastric tube before when I was a baby till junior high school. Watching your videos bring back memories of me putting my pedicure together before going to bed with pedicure running through the night, and with changing my dressing pad around the G-tube button. Love your videos:) love from the states ❤️💙
@Telle875
@Telle875 5 жыл бұрын
That was an awesome video and I think you were really thorough and detailed in what you showed. I had to watch in two bit but only because I have like zip concentration, but I was able to remember what you'd shown first which demonstrates your thoroughness. xoxoxo
@alanalouisepennell
@alanalouisepennell 5 жыл бұрын
Watching your videos make me feel so guilty about complaining that I have to take medication, when I take them I will think of you, you’re such a strong girl 🥰
@canderson2627
@canderson2627 5 жыл бұрын
Thank you for showing us! I learn so much from your channel ♥️
@brynnejewell1275
@brynnejewell1275 5 жыл бұрын
This was really neat to watch! Always wanted to learn more about TPN. Thank you for sharing🙂
@cecilia-joyadamou2074
@cecilia-joyadamou2074 4 жыл бұрын
Hey! I've just found your channel and I think you're amazing! I have had a heart transplant and used to be on TPN when I was waiting for my heart. I also had a NG and NJ tubes and what not so I recognise the struggle haha. Luckily I don't have to use them anymore but I think you're amazing for carrying on so well despite having to use them still. I also have a channel documenting my life as a double transplant patient! Anyway, just wanted to say I think you're gorgeous, determined and an absolute star! I'm subscribed! xxx
@blakekemp9248
@blakekemp9248 5 жыл бұрын
I am so amazed at how brave and confident you are ❤️
@hazey2464
@hazey2464 5 жыл бұрын
I feel so bad for you girl, you have to do so much just to survive 😭 definitely not taking my luck for granted. God bless you ❤️
@m.f.7708
@m.f.7708 5 жыл бұрын
I am living in germany and this is so insane for me to watch how you are doing so much stuff at home where I was thinking you can only do it in a hospital. You are such a strong woman!!!! I cant imagen how expensiv a life like this must be. Wish you all the luck of the world! ♥
@starrailsunday
@starrailsunday 5 жыл бұрын
These videos are very educational and inspirational! You’re such a wonderful person, I would also love to see daily life vlogs or updated daily routines as well ❤️
@haleystewart6364
@haleystewart6364 4 жыл бұрын
My little sister is seven and she has had a feeding tube her whole life and I have never watched a KZfaqr with one you are. amazing!!
@thelma1251
@thelma1251 3 жыл бұрын
@Elizabeth Michaels does she have one that goes into her stomach which is called a peg because if so my little sister has one as well
@jeanspeer4053
@jeanspeer4053 5 жыл бұрын
Love how informative your videos are, thanks!
@CreeperCatsGaming
@CreeperCatsGaming 4 жыл бұрын
I have had a g-tube for almost my entire childhood, It's probably one of the worst things that I was required to have, I can't believe you have 2 tubes going into your body, you are an incredibly strong person.I hate to see good people go through all this suffering, I hope life gets better for you I really do.
@patriciabrlisari2214
@patriciabrlisari2214 5 жыл бұрын
I will never not watch your videos in complete awe of you. I know you are only doing what you are used to and what you know but damn it I have to say that you are absolutely amazing! XOXO from Newtown, CT.
@supbitx1529
@supbitx1529 5 жыл бұрын
Im so proud of youuu, you are really brave and intelligent!
@amyleefisher52
@amyleefisher52 5 жыл бұрын
Mavlo thank you ❤️❤️
@dianetina
@dianetina 3 жыл бұрын
I still watch all Amy’s videos , I always loved her and found these videos very relaxing . When I watch them I feel sad .
@rabekkah_3741
@rabekkah_3741 5 жыл бұрын
I love your video's so much you are such an inspiring person I look forward to watching your videos every time you upload
@daniellecassara2475
@daniellecassara2475 3 жыл бұрын
I enjoyed watching your video very much, I work for a home infusion closed door pharmacy. I am a certified infusion technician, I mix many TPNs daily as well as many other IVs and I love what I do. So glad to see your video help others to not feel so overwhelmed. God bless you and your health.
@beccalynch3049
@beccalynch3049 4 жыл бұрын
I’m on it too woah finally something worth watching 👏🏻💕
@Yaziceed
@Yaziceed 5 жыл бұрын
Wow this is a lot of work and Tom is good for being there for you and helping you through this your both amazing💗
@kimkookie6289
@kimkookie6289 4 жыл бұрын
You are lovely! I'm a nursing student and it was such an informative video💙 A tip: When you drop the utensils unto the sterile field make sure nothing is below your waist [Meaning the table, etc.] Because when it goes lower than your waist it is considered unsterile. I hope this helps💙😊
@geofox-clark8515
@geofox-clark8515 5 жыл бұрын
Whenever i see you at you home it makes me so happy because it means you’re doing great xx love you lots
@EllaJane1992
@EllaJane1992 5 жыл бұрын
LOVED this video! So so interesting to watch xx
@rayvenner3340
@rayvenner3340 5 жыл бұрын
Very cool video! I'm glad to hear the TPN has been working well, thanks for the very informative and interesting video!
@lizzzzzzzz
@lizzzzzzzz 8 ай бұрын
love you Amy. you're literally an angel 👼🏻
@kateharvey186
@kateharvey186 3 жыл бұрын
I don’t really have much of a reason for this, but Amy’s channel and this video in particular have always been one of my go tos on KZfaq. I’ve loved being able to watch any though her journey, and I hope that she is able to rest easy knowing she impacted so many lives. Rest In Peace Amy
@alexiswood9338
@alexiswood9338 5 жыл бұрын
It must be really hard to be going through what you deal with everyday of your life. I honestly feel so bad for you. Being at a very young age, and dealing with your everyday situations, and routines must be difficult. You keep on fighting girl! you've got this!
@taylorharthun5979
@taylorharthun5979 4 жыл бұрын
Amy thank you don’t know how your video came up. But your an inspiration I have an autoimmune disease I thank you so much for posting. My days can be tough but not like yours yours you might have saved someone’s life thank you so much
@ThelouwseFD
@ThelouwseFD 5 жыл бұрын
This is so interesting !You would both make amazing nurses (I have an unconditional love for nurses)
@veevee306
@veevee306 5 жыл бұрын
Thanks for showing a home TPN set up! I have given TPN in a hospital (I'm an RN) but have not seen it at home. It always looks scary at first because of the central line access and filters, but it is really just a more time-consuming infusion to set up. My TPN sets in the hospital have nutrients and lipids hung separately; many of my patients had midline access with multiple ports.
@purpletetrisdragon
@purpletetrisdragon 5 жыл бұрын
Omg, i love the little zebra you have on your feed pole!
@HighTen_Melanie
@HighTen_Melanie 5 жыл бұрын
I was on TPN for about 6 weeks and I called it Totally Posh Nosh! 😂 I had a mid line in my arm because having been fed through my wrist was absolute agony. Now am back to peg feeding and eating small amounts.
@angelaturk7409
@angelaturk7409 5 жыл бұрын
Thank you for sharing Amy. That was very educational and interesting ❤
@ralucadax818
@ralucadax818 5 жыл бұрын
Thank you so much for sharing!! So informational.
@kaylaharrington4556
@kaylaharrington4556 5 жыл бұрын
Love all your videos Amy!!! You and Tom are truly amazing. Sending lots of love from the smallest state in the USA!💕
@jessa.4529
@jessa.4529 5 жыл бұрын
You know now I understand why people get ill when they get weary of all this work or cant afford the supplies. I hope you keep your positive attitude
@maryroman7587
@maryroman7587 5 жыл бұрын
I love watching your videos you are such an amazing person and they make me smile
@marisolgomez5579
@marisolgomez5579 5 жыл бұрын
I came across your channel and wanted to let you know that I admire you for being such a strong positive beautiful young lady. I pray that God may give you the strength you need to overcome anything because in your videos I've seen its not easy. You will be in my prayers God bless you beautiful 😊😇❤
@photadyta
@photadyta 4 жыл бұрын
Tom is a good man. I’m sorry you need to go through so much careful preparation just to feed yourself properly. I’m proud of your positive attitude and taking very good care of your health. You are an inspiration.
@jacinta9906
@jacinta9906 5 жыл бұрын
You are so incredibly strong!! Tom is so amazing to you! X
@elyssa4159
@elyssa4159 4 жыл бұрын
this reminded me of setting up and breaking down a tattoo station a little bit; it was a lot more interesting than I thought it would be, honestly.
@PickThatString
@PickThatString Жыл бұрын
Since the start of 2021 i've been living on TPN myself. Watching this video made me feel less alone in this world. When I realised she passed away, my heart got broken.. I hope she is in a good place, and does not have to suffer anymore.
@2lasnenas
@2lasnenas 5 жыл бұрын
Hi.I live in Puerto Rico and love your videos.Have learned so much.I took care of my Dad and did most of the th8ngs you do.
@metricdeep8856
@metricdeep8856 4 жыл бұрын
Smart and beautiful! You are amazing in how you handle your extraordinary needs. Simply inspiring.
@charleennicholson6280
@charleennicholson6280 4 жыл бұрын
Amazing! Also, Tom is a saint. Thank you for sharing this, it's very helpful and interesting.
@marielau1135
@marielau1135 5 жыл бұрын
I’ve had TPN since July. I’m having a surgery on 1/28 and hopefully 3 or 4 days after I can eat and drink!!! I can’t wait. It’s been 6 months since I’ve been able to eat and drink anything.
@ahsokatanogaming1491
@ahsokatanogaming1491 2 жыл бұрын
I miss your videos Amy I don't comment much but I am so sorry to your family and friends you were an inspiration to everyone that seen your videos even though I don't have an illness like that I still was inspired by your videos rest in peace Amy
@heatherbaker9551
@heatherbaker9551 5 жыл бұрын
Thank you so much for your videos doctor is talking about TPN and your videos have helped me not be so scared about it. I have GP, POTs,Nero endocrine carsanoid syndrome, being tested for Eds, TBI, mitrolvalve prolapse, Degenerative disc disease, small fiber neropothy, dysautonomia and my list keeps growing but your vlogs have helped me 🤗
@tinabaldino8663
@tinabaldino8663 5 жыл бұрын
Fascinating!! And youre amazing!
@sylviawilson8769
@sylviawilson8769 3 жыл бұрын
You and Tom are so amazing. God Bless you two and your team.
@thatawesomebitch14
@thatawesomebitch14 5 жыл бұрын
So cute how he helps
@mradj9629
@mradj9629 4 жыл бұрын
stay strong, your very beautiful and your personality is one of a kind!
@kristennewbs777
@kristennewbs777 5 жыл бұрын
I love how you are alll serious opening the bag and explaining why you do it and you can hear Tom yawning
@SouthernGlitter
@SouthernGlitter 4 жыл бұрын
That's a lot like the port a cath they use for cancer. It goes in the biggest vein under the shoulder directly to the heart. Mine hung out like that but, there are ones that are up under the skin.
@ginamarie6462
@ginamarie6462 5 жыл бұрын
This was so interesting to watch. I have a power port in my chest and it's similar, but we aren't nearly as sterile when touching my line. I've had it 2 years with no issues, so now I'm worried they taught me wrong and I've been doing things incorrectly this whole time lol. Like when I hook up my line to my saline/potassium, I don't have to clean the whole line, and we only wipe the end for about 15 seconds with an alcohol swab. Now when we're actually accessing my port, we're super careful, but that's totally different.
@drewharris7785
@drewharris7785 5 жыл бұрын
The handwashing footage reminded me of how the show surgeons washing their hands on tv; don't know if surgeons really do i that way or not though. Also I really like videos like this; I have a lot of medical crap (although nothing resembling what you do) so I watching your channel and others like it makes me feel less alone. Sorry if I've said all that before; my memory sucks
@knuffelbeer193
@knuffelbeer193 5 жыл бұрын
Drew Harris this is the way nurses wash their hands. Surgeons do it very different.
@tyrstyranny7060
@tyrstyranny7060 5 жыл бұрын
Oh my gosh we twinning! Although I have a picc line ... and had surgery today to place a gtube ❤️ good luck tho!
@doridorothy
@doridorothy 4 жыл бұрын
Your videos are actually educative
@nathancox6134
@nathancox6134 5 жыл бұрын
Hi, my name is Nathan and I've had to have tpn all 16 years of my life because I have short but with crohns I like the fact that you share your routine with others because I have seen no other channels that do this. It is very appreciated.
@joraston
@joraston 5 жыл бұрын
This was incredibly interesting Amy. Thank you so so much.
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