♡ DAY IN MY LIFE: with EDS, Tubes & Catheters! | Amy Lee Fisher ♡
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5 жыл бұрын♡ DAY IN MY LIFE: with EDS, Tubes & Catheters! ♡
TPN Set Up Video: • ♡ I EAT THROUGH MY CHE...
Why I use Catheters Video: • ♡ All About My Cathete...
My Most Asked Questions: • ♡ My Most Asked Questi...
My Morning Routine with Chronic Illness: • ♡ Morning Routine with...
My Website: www.amyleefisher.com
CHECK OUT MY MERCH & Help Support My Channel!
PAYPAL ( if you would like to donate to help me out, as it was highly requested for me to leave my details) : amyleefisher96@hotmail.co.uk
Amy's Life (Classic Logo):
www.bonfire.com/amys-life-merch/
Amy's Life ( 'AL' Plain Logo): www.bonfire.com/amys-life-mer...
Amy's Life ('AL' Zebra Design): www.bonfire.com/amys-life-mer...
TTMYGH (White Text): www.bonfire.com/things-that-m...
TTMYGH (Black Text): www.bonfire.com/things-that-m...
Want To Send Me Mail?
PO Box 62
Willetton
WA
Australia
6955
Find Me On the Net!
► VLOG CHANNEL: / @amyslife4457
►INSTAGRAM: chronically...
►INSTAGRAM: / _amieelee
►INSTAGRAM: / tomharris.95
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►SNAPCHAT: @Amyleefisher96
♡ MORE INFO ABOUT MY HEALTH ♡
• HKPP: medlineplus.gov/ency/article/...
• POTS: www.nhs.uk/conditions/postural...
• M.E/CFS: www.nhs.uk/conditions/Chronic-...
• FIBRO: www.nhs.uk/Conditions/ Fibromyalgia/Pages/Introduction.aspx
• EDS: www.nhs.uk/Conditions/ehlers-d...
• GASTROPARESIS: www.nhs.uk/conditions/gastropa...
• MCAD: www.ukmasto.org/ukmasto-medica...
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@TALHA-hr6xf 4 жыл бұрын
As med students, we often get so caught up on the signs/symptoms and treatments that we forget what people with conditions actually go through on a daily basis.
@jennylin1390 3 жыл бұрын
the fact that you are realizing that shows you have the qualities to become a good doctor, as a doctor sometimes you can't always cure medical conditions, to have sympathy for your patients and try take into account what people go through on a daily basis despite extreme work pressures, in my opinion, is what a good doctor should have
@lynettespry1919 3 жыл бұрын
Us 888⁸9l
@West-rn-showvn-ist-chick 2 жыл бұрын
Yup!! That’s why nurses are better doctors.. They see more have better bedside care and usually know much more than the “doctors”
@suhkruorav 2 жыл бұрын
@@West-rn-showvn-ist-chick "doctors" in quotation marks, really...? also one isn't better than the other, they literally have different purposes and tasks, no need to be so condescending and unfair.
@erikalangbein4586 2 жыл бұрын
@@West-rn-showvn-ist-chick that is quite unfair. Both are definitely necessary. I never had an actual relationship with a doctor except for one. The nurses are around you all the time so you get to be friends with some of them and not the doctors. But doctors are grouped into so many different categories, so they are mostly only able to take care of a single system. They aren't ment to spend time with you. They only know about their specialty (except family medicine).
@Priya-yj9od 5 жыл бұрын
when she popped her hip back in "I don't know if you guys heard that" GIRL YES WE DID 😂
@quinn2014 2 жыл бұрын
I hope you're resting peacefully Amy. You were so loved and still are as well as missed loads.
@harlow_popcorn_1_edits Жыл бұрын
Did she pass ?
@quinn2014 Жыл бұрын
@@harlow_popcorn_1_edits unfortunately yes
@themelster Жыл бұрын
why did she have to go?
@NobodyUndefined Жыл бұрын
Oh my god I was just wondering why all my recommended videos for her are from 2+ years ago... That's so horrible that she passed
@neomatrix6115 11 ай бұрын
Her passing hasn't diminished her spirit in any way. She is still shining as bright as ever, only now, she is no longer in pain. God bless her and everyone needing to use tube feeding to survive. You are all Gladiators and Gladiatrices!
@marilumendoza7038 5 ай бұрын
I miss her videos. I still watch them regularly. I know she is in peace, but I like to hear her voice every now and then
@blindlovetaurus 5 жыл бұрын
From a nurse perspective I just think your so badass and strong. Not only to do so much care for yourself but to share with the world. So much respect for you ❤️
@icy8042 5 жыл бұрын
*you're
@mllee2008 5 жыл бұрын
@@icy8042 Feel better? Lol
@sharkfinz6 5 жыл бұрын
comment wins the internet!!!!!!
@sharkfinz6 5 жыл бұрын
@@icy8042 insufferable jackass
@juliameade5297 5 жыл бұрын
yes! I'm a nursing student and it's so nice seeing this. I love that she's independent and is able to do all of these skills for herself. Her quality of life must be so much better not having to rely on a nurse to come in.
@rainbowkitty8985 5 жыл бұрын
Okay so I don’t know how I got to your videos but wow girl... my respect to you. I am a nurse, so everything that you do medically for yourself I do for my patients at the hospital. But seeing it from the patient’s perspective is very different. Not only you got your stuff down but your management of the diagnoses is impressive. You are the best nurse you can have. I admire your courage to share your daily routines with a chronic illness. ☺️💕
@dianaasyiqeen77 4 жыл бұрын
....and she looks good at all time! I cant imagine how ridiculous I look when I feel quite disabled. Even with mild fever! And during my postnatal of course! ugly fugly lol. Respect her a lotttt.
@rajeshmulay900 4 жыл бұрын
Hello my resp.dear...i am from India, searching good friendship..i shall be glad if you share with me...pls.drop me msg...really awaiting for u...bye !!!!
@MuhammadImran-ln4fz 4 жыл бұрын
I love u i like you really i get you 😍😍👫💑❤❤ l Am Single 🌷🌷
@esecallum 4 жыл бұрын
EDS may or may not cause your malabsorbtion issues, but vitamin D can play a very very large role in EDS pain, especially for folks that are hypermobile. Here's what medline.gov says about low vitamin D: "Vitamin D deficiency can lead to a loss of bone density, which can contribute to osteoporosis and fractures. GOOGLE vitaminDwiki
@gwilson420 4 жыл бұрын
Don't stress about the bra dear they look lovely its not a thing anyone should complain about hardly anyone uses them your girls look smashing, just smashing don't feel imbarraseed there gorgeous an really look beautiful you should never feel that You need to explain anything theres nothing wrong with showing what looks to be an amazing pair of breasts. There lovely and I for 1 appreciated you as you are . And to be honest I enjoyed it more just natural it wouldn't of looked normal it they were holstered in a bra. You go thru more than I go thru disabled. I'm impressed. The hardest part is watchi ng the dislocation the 2nd the routine you go thru the best part watching your girls natural as they are in a very flattering top... you are a tough cookie me lady
@Oyxopolis 4 жыл бұрын
No idea why KZfaq recommended this, but I was fascinated and goddamn, there is no end to the respect I have for your patience.
@emilynightingale7758 4 жыл бұрын
not gonna lie, those finger braces are really pretty, they look like rings.
@srishhtea._ 4 жыл бұрын
i really thought they were rings
@billiejoe2791 3 жыл бұрын
They are rings, ring splints x
@emilynightingale7758 3 жыл бұрын
@@billiejoe2791 yes but they function as braces/splints, they only look like rings but that's not their main purpose imo.
@billiejoe2791 3 жыл бұрын
@@emilynightingale7758 yes but they look like rings because they are rings 🤣
@carlieverhagen4908 3 жыл бұрын
My mom has silver splints for her arthritis and I hate to sound superficial but I think they're so pretty! And they help her so it's a win-win. :)
@JustMe1u2 4 жыл бұрын
I am a nurse, and I never seen a patient so positive and so motivated to take care of themselves as you., you are truly amazing, and I really admire you. thank you for sharing your story.
@BoopSnoot 4 жыл бұрын
Also you have an amazing butt. 26:45
@sofial2232 5 жыл бұрын
I graduate next month as a nurse and I honestly cannot tell you how much your videos helped me understand the daily lives of the people I take care of. We, as healthcare providers only see our patients that have chronic illness for short periods of time (usually). You are such an awesome young lady and help so many others feel normal
@chineeandvashee 2 жыл бұрын
My hips are hurting just imagining her experiencing dislocations. Watching this for the 2nd time cause I kinda miss her personality, reminds me that we all have to stay strong no matter what we go through
@madz1100 3 жыл бұрын
Amy's videos are appearing on my feed regularly and each time they do a new wave of sadness hits me. Such a beautiful soul gone far too soon. ❤️
@curtisbemis6640 Жыл бұрын
Fact I miss Amy alot Noone else wants to step in her place so I am going to start a channel , my issues are different but I'm going to bring awareness , to eds, c.f , as I have gp, pots , type 1 or c.f related diabetes . heart disease and vascular eds . Our lives are similar but not. She just had a few different illness. Either way it's about others . God be with her , I'm doing it for her.
@odderotter8950 4 жыл бұрын
You make me feel like such a wuss for even complaining about my little aches and pains . GOD bless you . You are a hero in my eyes .
@avthateck 4 жыл бұрын
So this is what it’s like to drive your body on Manual. All jokes aside I am literally mind blown. Like I can’t even begin to Imagine.
@avthateck 4 жыл бұрын
Husaberg R lmao yoooooo you’re the real MVP! I had no idea!!
@katiehoran82 4 жыл бұрын
This is hilarious honestly... That’s what I’m gonna day from now on 😂😂😂 I’m chronically ill with EDS as well as Lyme Disease. So I’m driving my body in manual, but the funny thing is that there is no manual booklet. I have to figure out and write my own. Which is super difficult when no one can tell you what’s wrong with you or what to do about it 😂
@aaronsharp3858 4 жыл бұрын
@@avthateck I'm just replying too let you know it's now at 568 likes :D
@fmoa9380 4 жыл бұрын
@@aaronsharp3858 I only see 539 on my end maybe more suppression.
@brianr0 4 жыл бұрын
Wow, this brings back a lot of memories for me. My wife died eight years ago from an aggressive form of myelitis. Our daily routine involved lots of the same stuff, feeding tube, central line, etc on top of total paralysis and a newborn. I did the best I could and learned a lot, and now I'm going back to college to get a nursing degree. Stay strong, live your best life!
@mollyoly 3 жыл бұрын
you’re so strong :)
@sara_4ever 3 жыл бұрын
Welp R.I.P to your wife shes in a better place😔🖤😢😓🥺
@chronicinokla 3 жыл бұрын
Rest in peace to your wife. Sorry for your loss. Rest in peace to sweet Amy as well. April 1,2021 she passed.
@edgbfksc3349 2 жыл бұрын
I’m sorry man no one deserves that to happen and Im sure you tried your best to make her comfortable and now you got to move forward it’s hard to get back up when you get knocked on the fucking canvas but all you can do is get back up and fight
@michelelemieux-gh5zv Жыл бұрын
Bravo Briano and Amy. You are inspirational. Keep up your precise care. Much ❤ 💙 💜
@slyfor2 4 жыл бұрын
Dude I'm a Surgical ICU nurse and all I've gotta say is goddamn you are one tough cookie. Your daily care routine is usually what I do for 3-4 patients across a work week of 4 days x12hour shift. The fact that you just nonchalantly popped your hip back in and didnt even flinch says a lot about how tough you are. EDS is one of the toughest chronic conditions out there and I hope every day in your life goes as smoothly as this one. Keep hangin tough dude, you're an inspiration to someone who thought he's seen it all in an ICU.
@xAithne13 5 жыл бұрын
I think your finger braces are so cute. They look like cute little rings. Stay strong beautiful, you're amazing
@DoveEnigma13 5 жыл бұрын
Yeah they are really cute. The reason she must wear them sucks, but the splints look pretty cool
@daniellerom4529 5 жыл бұрын
You should call him "Dan" for danlos. Dan the IV pole. And then when he beeps you can say "Damnit Dan!"
@amyleefisher52 5 жыл бұрын
Omg 😂❤️❤️
@Mary-op8hi 5 жыл бұрын
I don't know why but I really love this
@katieismobile8898 5 жыл бұрын
Perfect!
@tiffytoo 5 жыл бұрын
Me too how cool. Shut up Dan bahaha 😂😂 cute ♥️
@bonkers5416 5 жыл бұрын
That's funny. Perfect name.😁
@Aleeha_Ahmed66 3 жыл бұрын
R.i.p Amy such a lovely young woman x
@BilaMamaKukunka 4 жыл бұрын
I can't even keep track of my meals, this girl deserves a frickin' medal
@MsNeal2023 5 жыл бұрын
You're a freaking rockstar. I am a nurse and i don't even think i am strong enough to be this amazing while going through all of this. Bless you beauty!
@norajung4513 5 жыл бұрын
I am absolutely amazed at what you go through on a daily basis. Makes it hard to believe you have any time for anything else. I couldn't imagine how much pain you are in when your joints dislocate. I am having issues with my s1j in my back and about to go mad from the pain. You are a warrior. Take care and take it easy.
@als2480 5 жыл бұрын
Ive been dealing with chronic pain for 5y. It's something you just get use to. I just recently got muscle relaxers for my back spasms (I'm 20 and people refused to believe something was wrong because of my age). My knees have been bad for a few weeks as well. It takes me 1-3hrs to adjust in the mornings, but as I said, you get used to it.
@norajung4513 5 жыл бұрын
So sorry you have to bo through that. I don't think drs realize that no matter what age you are, you can have chronic pain. Hopefully you can get the relief and help you need.
@misshissable 5 жыл бұрын
I was thinking the same thing. It's a lot of work.
@AstoriaHeard 5 жыл бұрын
@chronicallybeautiful Have you been tested for Lyme Disease? ☺️💓
@MissJessyeNorman 4 жыл бұрын
Chronically Beautiful What does you pain feel like? And how did it start? Was there an initial trauma, and then instead of getting better, it got worse?
@lucretialee3691 4 жыл бұрын
As someone who's now spent a 3rd of my life bed-bound due to EDS (I'm 44), I have to say you're coping very well with everything and I hope things stay good for you. :)
@BlayzMonet 4 жыл бұрын
Just curious because I don’t know really anything about the condition, but is the being bed bound like something that always happens eventually or is it a special kind? 🥰 Stay beautiful
@odin4306 3 жыл бұрын
Myss Mone’t Not sure what you mean by special kind.... but of us are bed bound at some point, depends how bad it is. i currently am not able to do much. i'm not bed bound but i've been house bound for a year now
@BlayzMonet 3 жыл бұрын
V.C. Lewis I meant like a variation of EDS because I know there are different types and they all can affect each person differently. I guess I should’ve said Do all of those with EDS eventually end up bed bound?
@erikalangbein4586 2 жыл бұрын
@@BlayzMonet not necessarily. People are differently affected. Severity is also different in everyone. I personally go through flare ups with different comorbid illnesses that temporarily leave me bed bound.
@olivedog1880 Жыл бұрын
She had the best attitude towards life, with all of her different illnesses
@katiej9006 5 жыл бұрын
I think sometimes the internet or youtubers unintentionally glamourise chronic illness, having such a positive attitude and all. I love that this DITL video showed just how sick you feel and just how much goes into surviving daily. It must be exhausting and frustrating at times. Great video. Very educational. Bless.
@LostInStydia 5 жыл бұрын
For alot of people positivity is what gets them through it all
@skino1 5 жыл бұрын
I suffer from chronic illness and I'm disabled. I watch these your of videos and often feel inadequate because I generally look like hell, I'm breathless, moaning, vomiting etc. And other people seem to cope so much better. So I know what you mean. She definitely feels more relatable though.
@randommess6667 4 жыл бұрын
@@LostInStydia not sure how to be positive about feeling ill all the time, it just is depressing me
@skimsully22 5 жыл бұрын
I can’t believe how strong and beautiful you are! Your such a badass throwing your hip back in and then continuing with meds!!!
@icy8042 5 жыл бұрын
*you're
@Nexavious 4 жыл бұрын
Seeing things like this make me understand just how weak of a person I really am.
@Jomoplays 4 жыл бұрын
Mk
@lyt6732 3 жыл бұрын
this is the first video I saw of Amy’s.. been a good year binging all your old vids.. I caught up right before you passed. ): in shock... rip sweetie
@tpabst8632 5 жыл бұрын
As an in home nurse, I can’t tell you how amazing you are and i wish more of my clients fight as hard as you do. You are sooo inspirational. ❤️
@amyleefisher52 5 жыл бұрын
this means a lot to me! thank you so much! ❤️❤️
@amandamarie7329 5 жыл бұрын
Girl, YES. Persistent nausea is SO much worse than actually vomitting! I deal with extreme nausea on a daily basis but I rarely ever actually vomit! When it gets bad to the point that any movement, even switching positions in bed makes me nauseated, I just cry that I wish I could just vomit! Ugh!!! Stay strong beautiful girl 💪🏻💕
@SRBOMBONICA86 5 жыл бұрын
I can relate to that,I never vomited in my life,I literally dont know what ti feels like to vomit,but I do have a gag reflex,still I cant vomit,my throat is SO narrow also...so when I get nauseous from my gastritis,I just want to die lol
@airmidia7100 5 жыл бұрын
Zofran is my best friend. Just wish they would give me more than a week supply at a time..
@eldritchm3ow 4 жыл бұрын
Completely different but I deal with what feels like constant nausea from my anxiety and the severe emetophobia (fear of vomiting) makes it 100 times worse for me. But I can't imagine how scary it must be to deal with constant nausea from an actual physical problem. I couldn't handle that at all, with anxiety I know it's caused by my brain but.. you guys are so strong!!
@SRBOMBONICA86 4 жыл бұрын
@@eldritchm3ow my nausea is real and comes from anxiety. Anxiety does cause physical symptoms(nausea, diarrhea,vomiting) ,this is why it must be treated before it gets out of control
@eldritchm3ow 4 жыл бұрын
@@SRBOMBONICA86 Ah I'm sorry to hear that, I know how awful it is so I hope you're getting treatment for it now,,
@rkaur6166 3 жыл бұрын
This was so exciting to watch. As a medical student I always see the doctors POV but never have the opportunity to see exactly what the patient has to go through. It is a lot of commitment on the patients behalf and this was a very good visual to show the steps. But most importantly, it was really cool too see you not just as a patient but a person with a life, committed to do your best to make life as easy as you can. I will definitely bare you in mind in my career, so thank you sincerely for teaching me something no medical school could ever do! Love, Rav x
@GingerKiwiDev 2 жыл бұрын
Hi Ray, I hope you’re doing well (or have finished) med school. Something to keep in mind with us “zebras” (EDS) is that we age slowly on the outside because we tend to wrinkle less … but age quicker on the inside especially our joints. Also, look up the medical journals on redheads and pain and anesthesia. As a redhead who finally has an EDS clinical diagnosis, and who has EDS related dysautonomias including syncope triggered by blood draws (last time I had a blood test I stopped breathing) how I’ve been treated by many doctors has caused ptsd. Yes, I can feel it (redheads need 125% up to 200% of anesthesia and we have a different ratio of non opioid to opioid pain receptors). No it’s not all in my head. My mom is in her 80s and just got her EDS diagnosis. She can still touch her thumbs to her wrists.
@Smith.S.sStocHasticSs Жыл бұрын
😳 Jesus christ this is eye opening. How they not teach u that patients are people?? Seems like an extremely important part of being any health care provider to be thinking about their life when they leave. It was somewhat traumatizing learning how many if not most Healthcare workers are there for the salary and their more interested in their social life at work and getting back to their desk and where they're going for lunch. Helping people is like an irritating nuisance that they really didn't think about when they signed up for it. There was soooo much help that I needed that shouldn't have been neglected like 3 people asking me the same questions then going to get someone else who wasn't briefed on my situation and then realize that this isn't their area of whatever and it takes waaay too much to finally get to the right person that I requested to see and was referred to at the start. Haven't you ever been a patient before?? Or just not for this level ? It helps that she's so young and stylish and pretty and charismatic. It makes it real and like ohh this doesn't just happen 2 other ppl it's.... yeah... wow. Thank you for sharing! 🙏
@annasartor5065 4 жыл бұрын
The cool part is, your finger splints look like cool rings!
@nikkirenee5696 5 жыл бұрын
110% agree with the vomiting vs nausea thing. I’ve told people that before and they look at me like I’m crazy? But why would I wanna suffer through nausea when I could just vomit and get on with it? Also glad I’m not the only one that dislocated a shoulder or two just brushing my hair 😂
@amyleefisher52 5 жыл бұрын
Porcelain Beauty haha yes! Brushing hair is the worst! 😅😱
@mckennass 5 жыл бұрын
I agree with y’all, I’ve had gastroesophogeal reflux disease since I was out of the womb and feeling like I’m going to throw up is so much worse than actually doing it. Normally I’ll just force myself, which probably isn’t a good thing, but at least I feel better?
@Mary-op8hi 5 жыл бұрын
I was sitting up in bed nodding so much that I hurt my neck. If I could throw up once a day without nausea it would be so easy to deal with and probably would barely be debilitating; just go puke and you're done! Instead of spending hours lying around feeling like you're dying from nausea
@Mary-op8hi 5 жыл бұрын
@@mckennass I do it to. From my understanding the only "bad" parts of making yourself vomit to get rid of the nausea is you could hurt your teeth and dehydrate yourself depending on how often you're doing it, But every now and then I'm sure is fine. Although obviously I am so not a doctor just going off of what I've been told my different professionals over the years.
@jarred333Boss 5 жыл бұрын
Era
@locksmithmuggle 4 жыл бұрын
OK, I'm officially done complaining.
@overgrownkudzu 4 жыл бұрын
Your problems aren't less valid because somebody else has more to deal with.
@locksmithmuggle 4 жыл бұрын
@Big E Not everyone has a properly functioning body. I am completely healthy and have never had to deal with any of those things. The things I do have to deal with seem petty in comparison
@mladendenni7062 4 жыл бұрын
@@overgrownkudzu yes but still this is torture, i would prolly end mine
@Paretozen 4 жыл бұрын
Tell ma bound it, im might evn stop drinking
@dieselgeezer18 4 жыл бұрын
@Big E her issues are much harder to deal with. And its not because of her fault. Shut up dude and be glad you are healthy
@lindajedeon9441 3 жыл бұрын
You will be missed so dearly 😢😢😢 our heart is so broken I hope Tom and the family are ok you are in our prayers 😢🙏
@grimmzarakiffxiv6350 4 жыл бұрын
Watched to the end honestly your a a true spartan I can’t imagine myself going through this everyday
@jcook2574 5 жыл бұрын
I would never wear a bra if my boobs looked as good as yours!!! No shame in your game girl! You are beautiful and I enjoy your channel so much!
@alyssafatony29 5 жыл бұрын
J Cook she’s so amazing and I very much enjoy watching her channel.
@markkram7346 4 жыл бұрын
you enjoy her suffering
@nickfranco3375 4 жыл бұрын
J Cook thirsty much 🤣 pathetic ass
@nickfranco3375 4 жыл бұрын
Filiz Booday 🤣 lesbian tendencies
@alyssafatony29 4 жыл бұрын
mark kram no I don’t, I just simply enjoy watching her channel cause she’s inspiring to me
@MsEpicArt 4 жыл бұрын
I am a paramedic and it is so encouraging to see you be so positive and take such great care of yourself. Managing a chronic illness is not something most people understand, thank you for spreading awareness of what it’s like to love yourself through the hard days. You go girl!
@Jessi-44 4 жыл бұрын
And that my friends, is how I realised that I am a huge wuss in life.
@ripvanwinkle420snoopdogg2 3 жыл бұрын
Cheer up...find your level love.
@oriaaane 3 жыл бұрын
I think it's really important for people to get that perspective and realize that, so good on you
@Turtletech_ 4 жыл бұрын
I was home off work today setting up my game room and was watching random things on my pc here while im getting things done and this video poped up. I dont ever comment on anything i watch....for some reason watching you go through all this daily really made me think on how we take so many things for granted in our daily lives. Not that your a sad case if you know what im trying to say.....just that people in general sometimes can be so weak and unappreciative including myself. Keep up the positivism and courage and keep putting out vids they reach people...im proof...have a blessed ride through your lifes journey....stay strong.
@emmagaie 5 жыл бұрын
It still blows my mind that some people think you're faking all of this, you mentioned it one day and it has stuck with me every time I watch your videos! Insane what you go through every single day
@MsYolandalee1991 4 жыл бұрын
Gemma people are ignorant!
@BariAdams 4 жыл бұрын
It blows my mind that people throw acid on women regularly in some places, but it happens. The fact that you cannot fathom something isn't a good reason to decide it doesn't exist.
@gordonwybo898 5 жыл бұрын
If no bra is better for your body then go free. No one should be embarrassed by their body. Can you use a magnesium liquid for your bowels? You would make a hell of an educator at the university!!! Thanks again.
@BeeeatrizMello 5 жыл бұрын
You go girl! #freetits
@amyleefisher52 5 жыл бұрын
Never tried magnesium liquid 🤔
@gordonwybo898 5 жыл бұрын
Amy Lee Fisher magnesium is the same thing they use before a colonoscopy. It’s easier to use than the other flushes that the clinics use. In the US the product I use is “CALM.”
@alys4570 5 жыл бұрын
I have hyper mobile EDS also and I use magnesium citrate. I am able to swallow soft gel tabs (liquid inside the gel capsule) . They sell it in liquid form but you’d have to talk with your dr as to what dosage to take with the liquid. I take two softgels each day (am & pm ) which contains 250 mg of magnesium citrate (in two caps). 250 mg of magnesium citrate is 60% of a daily recommended dosage. I’m not sure how well magnesium would work with a completely paralyzed gut, but it does work great on my gut that moves extremely slow. It keeps me from doing enemas. My daughter (who also has EDS) lived the first 20 years of her life with terrible stomach trouble and pain. She very rarely could have bowel movements on her own. She started taking magnesium a year ago and now has trained her body to have a bowel movement every other day on her own. It was life-changing for her. None of our doctors ever recommended this therapy. I’m not quite sure why because it does work really well for both of us. We learned this from other zebras.
@Lucailey 5 жыл бұрын
@@gordonwybo898 Yes! As someone with anxiety disorder any back/jaw and joint stiffness CALM is a great product! I use it at night - mixed with my sleeping meds. It makes the taste much better because of that kind of sprite like product! CALM is so awesome, I thought I was taking a risk buying a bottle of "fizz" for $10 was a lot but now I have to say it is a great product. Good for staying regular, tmj and back issues, and arthritis AND a mood stabilizer. Can't complain spending $10 for all of that!
@cricket531 8 ай бұрын
Yep there are people who pack a punch with just a little blow She was one of them I like to pay tribute to those souls It keeps my spirit lifted I recently discovered her journey, only to learn she passed on That young lady lifted me up and I didn't even know her She was a true champion of heart and unrelenting spirit I hope when she got to her paradise, God made her whole and brand new And I thank you Amy, your light will shine because you touched so many hearts Smile down on this old world It makes it a better place
@nancydrew1882 3 жыл бұрын
Wow! I’ve never seen anyone with so many ailments. To boot, you’re helping yourself and keeping track of your treatments and maintenance processes. I’ve never heard of eds until I stumbled in your video. I’m very amazed and inspired by you. My son has a disability and I’m working on teaching him to be as independent as possible. I don’t mind helping him till the end of time but I realize that being independent does so much for a disabled persons self esteem as well as their navigation of this oftentimes intolerant world.
@kerrywood407 5 жыл бұрын
Amy I just want to say even though your doing a day in the life i mostly see your personality shining through more than your chronic illness. I think your an absolute trooper and I wish I had your strength in dealing with my own chronic illnesses. Your a true inspiration and for that I thank you. Sending love and hope you had a good night hun. Xxx
@brandi2hip103 5 жыл бұрын
I have Ulcerative Colitis and for the past month in a half I have dealt with nausea. You explained it best when you said "it feels like you soul leaves your body." I agree with that statement 100%. BTW I love watching your videos.
@emilythomas7340 5 жыл бұрын
I have UC too! Not meaning this as a self promotion but I post my journey on Instagram @chronically_emily_ if you ever want to speak to someone going through the same thing you can dm me! x
@brandi2hip103 5 жыл бұрын
Emily Thomas thank you ☺️
@brandi2hip103 5 жыл бұрын
Echo 9970 thank you ☺️
@brandi2hip103 5 жыл бұрын
Emily Thomas just followed you my ig is fyew_doe
@SRBOMBONICA86 5 жыл бұрын
nausea is THE WORST feeling for me,I delt with pain,but there is something about nausea thats horrifing...I have some mild stomach issues,like gastritis and nausea is quite common with it
@rhaziel69 4 жыл бұрын
I'm convinced that the strongest people in the world are those who live with serious medical conditions. I've been there for short periods of my life, and it was the toughest thing I've ever had to do. Amy, you are most definitely tough as nails. Much respect.
@vampobsessed 4 жыл бұрын
Paul Copeland I 100% agree with this comment. They put a lot of us to shame.
@Christinesobsevations 9 ай бұрын
I’m so thankful to have these videos to look back on . Miss you Amy ❤❤❤
@Christinesobsevations 9 ай бұрын
With the bra they hurt me …. Can’t stand them !
@tomkitchen2764 4 жыл бұрын
What a terrific person, Amy deserves everything good in life
@emilycontant890 5 жыл бұрын
Amy you are so strong!! Seeing what you go through every day makes me realize that I have it truly easy! Your so strong. Like your hip came out and you pushed it back in without a fear! You go girl!! Thank you so much for sharing! Love you girl ❤️❤️
@waikikimum3521 5 жыл бұрын
So much respect for you Amy. Having a chronic illness is a full time job just to keep yourself well. I am loving watching your videos and learning so much. 💗💗
@tessdejaeghere6972 4 жыл бұрын
Amy, I have so much respect for what you have to go through on a daily basis. Thank you for sharing this with us. Wishing you all the best!
@Wayne1359 4 жыл бұрын
Amy I had chemo therapy a little over a year ago and thought that was the worst but seeing your daily routine has changed my perspective. You are a brave and upbeat young woman with great fortitude. I paused your video to look up EDS and familiarize with it . Thank you for the learning experience and feel no shame in discussing the whys just for you to have another more pleasant day.I hope someday (sooner the better) a cure or treatment is found for those like you who have this. I am greatful for every day since my diagnosis and treatment.
@shalinkeir8989 4 жыл бұрын
When I had a bad reaction to surgery, I had to go through a tube and a lot of similar meds and etc, and the nausea was horrendous. I can’t imagine having to do what you do, you’re an absolute unit ❤️
@THEREisAplaceFORus8 5 жыл бұрын
Oh my gosh, you are freaking amazing. I can't fathom doing what you do daily and with the organization you have. You are truly an inspiration, Amy!
@megansanchez2942 4 жыл бұрын
Girl you are amazing! My mom is on TPN and your videos helped introduce us to TPN before she got put on. Keep being strong and thank you for all the videos! Again you are beautiful, strong, and wonderful!
@DefWun 4 жыл бұрын
Man,I seriously admire how positive she is while going through all of this. I wish I had half of the positive energy that she does.
@jeffmaddry4940 4 жыл бұрын
For years I have been dislocating my joints in my sleep and never knew there was a reason, or connection with being double jointed. I just found your channel, and while not a diagnosis, seeing what you experience, I have so many similarities that I never thought of as being connected. I appreciate your openness
@mangosoda7117 5 жыл бұрын
Omg! Yay!! This is the first time I have been able to relate to someone before and I am so grateful that you have given that to me... It's also the first time I have met someone with some of the same conditions I have.... I can't tell you how much I appreciate this, but THANK YOU from the bottom of my heart...
@BlueMiaou 4 жыл бұрын
Your tiny "rant" about bras halfway through the videos makes me want to stop wearing bras lmfao Honestly, it's amazing that you do all that by yourself. I don't have the motivation to take care of myself properly and that's why I always feel discomfort. You are amazing and I hope the best for you.
@kiokothecuddlyquailspud1389 3 жыл бұрын
I already can't wear them cause of of chronic osteochondritis so basically the cartilage between my ribs become inflamed and hate me. Feels like I've got a vice squeezing me 24/7 and I have to breathe shallow breathes. I can't imagine having to have all the other issues this sweet young lady has to deal with on top of rib pain.
@jazzombi9680 3 жыл бұрын
Yeah no I haven’t worn a bra in like half a year cause their way too hard to put on. The kind that clip in the front seem a little better though. I’ve been thinking about getting them
@alicornalley211 3 жыл бұрын
Apologise for the year late comment but thank you for educating everyone. I have EDS and POTS, I'm not nearly as bad but seeing how strong you are with having a worse case of EDS than me is very inspiring to me. My knees and ankles dislocate so often and nobody understands how I just fix it without being grossed out, it's been isolating. I love how you're educating and how strong you are. I hope everything's good
@mercyfulvickv2810 Жыл бұрын
She died years ago
@heysselg.3993 5 жыл бұрын
One of the most brave and independent young woman I had seen in my life. Thanks for sharing sweetheart, you are amazing. I am healthy and I don’t wear bra, c’la vie and I love it! ✊🏻 x
@michellemuskeyn329 4 жыл бұрын
Heyssel K. I am also a part of the “Free Titties Club” lol 😂
@SuperCreeperHater 5 жыл бұрын
I have noticed and love that you are doing what makes you the most comfortable and normalizing not wearing a bra in your videos! You just make it a normal fact of life and you don't apologize for it and I love that.
@amyleefisher52 5 жыл бұрын
TheOneandOnly thank you! Because it took a lot for me to do that 😅❤️❤️
@ithinkiwoulddie9196 2 жыл бұрын
I have eds and right now I’m having extreme issues so seeing your videos is comforting. I’ve never met anyone else with eds so it’s interesting watching someone talk about their experiences with the same things I have
@Hadleyrille_ Жыл бұрын
She’s gone..
@mercyfulvickv2810 Жыл бұрын
Unfortunately she died years ago
@usagi_t 10 ай бұрын
@@mercyfulvickv2810 Was EDS the reason for her passing?
@mercyfulvickv2810 10 ай бұрын
@@usagi_t yes complications related to it
@Alesha_Lewer 3 жыл бұрын
You are so strong and so brave. I can’t imagine living like that. Be blessed 💖 Thank you for making this video and opening our eyes
@JJ-yf9oz 4 жыл бұрын
I can't imagine how you do all these, but thank you for not giving up. You're an inspiration to many.💜
@jessicacacax5336 5 жыл бұрын
You honestly have so much to remember on the daily! Not just meds etc but remembering to be sterile and remembering which meds you need I guess you’ve gotten use to what you need and it becomes routine and normal for you. On top of that dislocations and pain aswell to deal with. You’re amazing and a great inspiration Amy lots of love to you ❤️ from the uk xxxx
@ashleyrangel5782 3 жыл бұрын
You are absolutely amazing. There are no words to explain how strong you are. It makes me realize that some of the things I complain about (I have three fractures in my back and a broken tail bone while being pregnant) on a daily is nothing that compares to anything you go threw! You really are super human girl!
@SaieedDavis 4 жыл бұрын
this was recommended, as a medical student and seeing the way u live. its amazing ❤❤❤
@twidntrue848 5 жыл бұрын
Amy, you are so amazing! So many details you have to handle every day to keep as healthy as possible and you are able to smile and stay positive and have a life! Thank you for sharing so much with us.
@hatstephla1769 4 жыл бұрын
The fuzzy sweater she’s wearing looks so cute and comfortable. I want it
@xmrpaintx1 4 жыл бұрын
After watching just the first 5 minutes of this and having no idea about EDS, I find your strength inspiring... thank you for sharing your struggle.
@gillyana 3 жыл бұрын
So incredibly sad that we will never get to watch another day in the life or just seeing you on camera. SWEET DREAMS BEAUTIFUL X
@meganallcock4955 3 жыл бұрын
Amy sadly passed away on April first
@gillyana 3 жыл бұрын
@@meganallcock4955 yeah I am aware of that so incredibly sad. I had contact with her a couple of weeks before talking about trauma from the ICU as I have been ventilated and in ICU many many time due to my type 2 respiratory failure x
@NaeKid 4 жыл бұрын
I'm a guy with EDS as well. It's not to the same extent as what you go thru daily, I can function fairly normal. Joints pop in and out (usually painless), I bend in ways most couldn't dream of, walking in the morning can be a chore if I don't do my stretches, and, I have some stomach/intestine issues that are gross to talk about. Yup, that's me upside down in the picture
@musicisfun273 5 жыл бұрын
this is amazing you are such a brave and courageous person. You haven’t turned bitter on the world from your disease but have instead become a positive day of sunshine. Bravo 💗💗💗
@meganhanson6790 2 жыл бұрын
So open and full of life, more than I feel most of the time with my couple mental illnesses. That’s not to dehumanize her or the chronically ill as “inspiration” content - but personally going through a hard time right now and it helps to see her show there are always ways to keep going
@m1n0l 3 жыл бұрын
I watch all your videos and I know this one is older but you make me feel like what I’m going through isn’t as bad I have sickle cell so I deal with daily infusions and pain medication and nausea all the time in to see someone who is going through much worse but still stays so strong really makes my day 🥰💕
@j.fraley6862 4 жыл бұрын
Oh my god! I was a Firefighter/EMT for 10 years and I have never gone on any medical calls for anyone with EDS. I've never seen how this affects people until now. I am so very sorry you have to go through the treatment or for that matter the issues you have. You and Hannah Espenschied are incredibly strong ladies for what you do, and I am so glad you shared your experience with the Everyone who watches this video.
@MsTRAVISHILL 4 жыл бұрын
I just wanted to tell you I really admire your strength to keep moving forward and have the will to want to live. You are very beautiful, you are truly an angel.
@Rose-qh4qh 3 жыл бұрын
I just love watching you. 💯 As a trauma nurse. I'm so inspired by you. Living with a chronic illness such as EDS is not at all easy breezy to handle, but your a trooper! I'm impressed by your abilities to maintain your daily routine and proper techniques to execute each procedure...👌 You are more knowledgeable than a lot of nurses and doctors i know! You keep up the good work. So proud of you my dear! Bravo👏 🙌🙏
@patches3432 4 жыл бұрын
So much respect for your patience and perseverance to keep going on strong in life, your an inspiration!
@atheistmommy3710 4 жыл бұрын
"You are in control of your body" - I strongly agree. Also, you are unbelievably strong and brave person.
@thedolyn9954 4 жыл бұрын
Yeah, I'm another random guy squirreling through youtube at 3 am and I know you don't need anyone else to say this but hold your head so high! Your absolutley slaying it. EDS runs hard through the women of my family and I see day to day the struggles. With the little things, a dislodged tube. A fall or a trip. And the tremendous pain, my heart truly goes out to you, and let me repeat. YOU ARE SLAYINGGG ITT!! KEEP ITT UPP
@NickMasseyRideon 4 жыл бұрын
13:56 I think the finger splits look cool, like jewelry
@tracyvercelli892 3 жыл бұрын
Same
@Izeba 4 жыл бұрын
This popped up on my feed ! I’m watching this in amazement ! Your positive attitude is inspiring ! Love from Usa!
@zombieCupcake9183 5 жыл бұрын
Thank you so much for sharing! I loved watching this, as a nurse it taught me so much. Stay strong beautiful!
@geluuhhbuds 5 жыл бұрын
I’ve been watching ur videos since u had 15k subscribers and i have so much respect for u and u motivated me to not be “bitvhy” with my life and just be happy with what i have. ❤️✊🏼✊🏼
@ats_nigel8860 4 жыл бұрын
Its 12am in the states and I stumbled upon your channel shows how life is different for everyone but not so different, I love how strong you are so positive
@Nimerian 4 жыл бұрын
You are a trooper. I wish you strength, resilience and long fulfilling life from the bottom of my heart. This video inspired me to keep strong on quitting my heavy smoking. It's a shame to have a perfectly healthy body and keep running it to the ground from what killed both my grandfathers. I swear I was going insane a few mins ago and was about to go buy a pack until this popped in my recommended for no reason, what an insane coincidence.
@mandyschaan8776 5 жыл бұрын
I love these videos, it's like seeing my life in someone else and it makes me feel less alone!
@SaRah-21532 5 жыл бұрын
I know you purposely didn't film things multiple times, but I think it would actually be pretty interesting for EDS awareness month or something if you filmed all of it to show people how much you actually have to do in a day.
@roxii247 3 жыл бұрын
This is so informative! I’ve learned so much through your videos so thank you heaps for sharing your life and struggles with us ❤️ also the sound of your hip popping back in was sooo satisfying to me 😂
@johnnyappleseed738 4 жыл бұрын
My gosh dear, you are a true warrior. I have suffered from extreme deprsssion to this day and you inspire me so much. I just happened on your channel and am so bloody impressed with you. You are so beautiful in so many ways. I will be watching your stuff from now on....love from. Old Canadian fella❤️🙏🏽
@breetomlinson5904 4 жыл бұрын
I don't know you but I feel proud of you. This absolutely consumes your entire life and whoever you end up marrying is going to be a lucky person because you're self sufficient and strong. You need nothing of this world and no one to help you. You're awesome.
@KateWiium 4 жыл бұрын
holy crap :( !!! this is intense,, how amazing though that you do this, but so much work :(
@Frogger790 3 жыл бұрын
Thank you for sharing your experience! In the past, I have studied in medical textbooks about EDS but it didn’t sink in till I watched your video! 🍀🤞 your very optimistic & pleasant! I wish you lots of luck!
@Bluecashew1 4 жыл бұрын
Sweet buttered biscuits I can't even skip around this video without being bombarded with more problems, pain, and difficulty than I've had in my whole life. I'd give you words of encouragement but the peasants don't need to encourage the king. You've got some real drive in you. I'm just blown away at your ability to cope with this issue. Wow.
@joellawilkins6335 5 жыл бұрын
My hat is of to you!! I live with severe scoliosis of the spine, but I have nothing to complain about! You inspire me, God Bless You!
@Qwertqwerty010 4 жыл бұрын
Jesus Christ is willing and able to heal you and set you completely free. It’s a personal choice. A decision only you can make. Knock and He will answer. God bless 💛✝️🙏🏼
@P0SS1BLYS4N3 4 жыл бұрын
When I was 3 I had a throat surgery(abscess behind my tonsils...was always throwing up) and I called the IV pole my "doggie" while I was in the hospital and the IV lead was my "doggies" leash
@ellespoonies 4 жыл бұрын
Lazarus Serphant this is so cute
@stacieb4780 3 жыл бұрын
Not sure how I found your videos but you girlie are a rock star! Thank you for sharing your journey! I only though I had it rough with MS. But with chronic illnesses you learn how to adapt, overcome, and carry on. You are a true inspiration!
@ass1421243 4 жыл бұрын
This is wild.your strong as hell to be going through this.i wish the best and long lasting life.you got full support 💯
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