Andy, multiple myeloma survivor

Рет қаралды 46,424

9 жыл бұрын

Andy lost his first wife to multiple myeloma, then twelve years later, Andy himself was struck by the same disease.
Discover how every donation makes a difference at www.lls.org

Пікірлер: 126

@dplmccarthy 8 жыл бұрын

I was diagnosed with MM in March 2015, aged 45. Had stem cell transplant Nov 2015 and doing okay at the moment. Well done on this and best wishes.

@19VOLT97 5 жыл бұрын

How are you today??

@itsjustrenee1320 5 жыл бұрын

Can I give my son stem cells?

@itsjustrenee1320 5 жыл бұрын

i sure hope you are okay.

@Lulu-kt6gr 2 жыл бұрын

Follow up?

@johnnyloungejazz5477 Жыл бұрын

Sir your video is very inspiring, Your not the type to give up and that’s the attitude you need. I was diagnosed with MM in Sept 2020, Had the stem cell transplant in March at The Vanderbilt/VA University in Nashville. I was there for 6 week’s, 2 weeks out patient with tests everyday , 2 week in patient with the Transplant and 2 weeks post transplant. Everyone asks if the Transplant hurt, No it was nothing , even the large dose of Chemo didn’t affect me at all. The first 4 weeks were nothing, but the 2 weeks after the Transplant were the worst days in my life, Not Sick or nauseous just absolutely spent and so weak and tired I could barley tie my shoes or get dressed, I told my wife if this is how I’ll be feeling then kiss my rear goodbye, it was awful. I’m a chef and couldn’t work or enjoy all the sports I loved to participate in, it was a year and a half getting stronger day by day. Luckily today I’m in complete remission , working , walking and golfing but without the same energy and skill’s I had, but it’s not bad. I’m still taking Darzalex IV monthly and Revlimid pills 21 days a month for now . I feel like I’m getting better even today. My attitude from the day I was told was. “The hell with it” it is what it is, I’ll play the hand I was dealt. But there’s hope for MM keeping the right attitude and never start feeling sorry for yourself is important. I was 74 when diagnosed , I’ve seen kids in their 30’s that have to deal with this their entire life. Sad…

@StLProgressive Жыл бұрын

I’ve been preliminary diagnosed with MM pending a bone marrow biopsy next week. I’m a Hodgkin’s lymphoma survivor, had it in 2001. I’m pretty terrified right now. I started having back pain, and increased diffuse pain in my knees and elbows. My pain doc did an MRI during which they found masses on 2 levels. A bone scan showed uptake in those lesions, but no more. Labs were positive for the M spike protein. I kinda always knew it would get me again, but I’ll fight just just as hard at 51 as I did at 30.

@littleme3597 10 ай бұрын

Stay strong. I am a survivor of breast cancer. I know it is all different but that was 30 years ago! STAY POSITIVE.

@leena6754 8 ай бұрын

hope you're doing okay Amy

@jamesthosbaker 5 жыл бұрын

“Every day I’m vertical is a good day.” How true.

@heru-deshet359 3 жыл бұрын

I was diagnosed with MM at age 65 after having my right shoulder looked at for severe pain. Turned out it was a tumor that caused my clavicle to break. They removed a third of it 10/2019, did radiation, placed me on chemo for a year and got the stem cell transplant 11/2020. It's been in remission. Everything looks good with regular testing. I'm just having physical issues due to so many meds and maintenance chemo therapy. Hoping to get physically stronger and with less pain. Blessings to all my fellow warriors fighting this foe.

@Jenkinz2009 2 жыл бұрын

How did you manage to eat after stem cell transplant?

@xiylo. 2 жыл бұрын

How are you now?

@beinghuman12349 Жыл бұрын

I am from INDIA My mother is diagnosed with Multiple Myeloma & Kidney damage too Can you provide me some information please please 😭😭

@okienurse7759 3 жыл бұрын

Written by her son. (She fought so hard and lost her battle, passed on November 20th, 2020. She tried so hard but never gave up even in the end she thought she could win) to anyone that has survived i bless you in winning your incredibely tough battle, to those that have joined my mother wherever she may be, my condolences and blessings upon you all and their friends and family.

@syamalsen5531 2 жыл бұрын

Future is determined by future .every moment is becoming past.so we are striding through future always. Which is unknown is called God. Thanks.

@theheberalchic651 7 жыл бұрын

My mom has MM we are praying for Gods complete healing. Thank you for sharing and giving us hope! May God bless you!

@veronicachristopher-fellow5866 3 жыл бұрын

My sister I am praying too

@nehamalviya2052 3 жыл бұрын

How's your mother now

@xiylo. 2 жыл бұрын

How is she now

@oniveditz 2 жыл бұрын

Hii what is the symptoms your mother got

@arpijoy 2 жыл бұрын

Andy you are blessed. My mom was diagnosed with MM at 75 last year in September, she tried very hard, worked hard to win this tough battle, and never gave up until her last unconscious episode, 911 came 13min late, I gave her CPR, my children and husband gave her CPR, but we could not revive her and lost her. Please carry on the fight to find a cure, God bless you!

@michelsooriah692 Жыл бұрын

Blessings and greetings from mauritius. Sympathy. I am on remission now, diagnosed in aug 18 and BMT in india, oct 19

@itsjustrenee1320 5 жыл бұрын

My 41 yr old son diagnosed today. I am devastated. This man inspires me.

@TheLeukemiaLymphomaSociety 5 жыл бұрын

Hi Renee, we are so sorry to hear this. We encourage you to contact our Information Specialists, who can answer a wide range of questions around diagnosis and treatment. You can reach them here: bit.ly/IRCLLS

@WhomDoctor 4 жыл бұрын

Hoxsey in Tijuana, God bless.

@dangrimes5078 2 жыл бұрын

Yes it's scary but I'm past 12 years and my cancer had never really gone into remission it's just somewhat stable. I feel as good now as anytime during the last 12 years. I hope this helps you.

@venomx4093 Жыл бұрын

@@dangrimes5078 Did you have chemo or stem cells?

@dangrimes5078 Жыл бұрын

@@venomx4093 With mm you don't actually receive stem cells from a donor. What usually happens is they harvest your own cells. You get a massive dose of chemo and then your cells are thawed out and put back in your body.

@peterrush2693 Жыл бұрын

A story that I can relate to, as a cyclist and somebody that was diagnosed with Myeloma on my 64th birthday, 11 days after my 35 year old daughter was diagnosed with breast cancer. We are both fighting it.

@dangrimes5078 Жыл бұрын

I've had MM since 2009. I've had many different treatments. I've seen a few friends die from his terrible disease.

@beinghuman12349 Жыл бұрын

@@dangrimes5078 You have resisted MM for 14 years

@dangrimes5078 Жыл бұрын

@@beinghuman12349 yes

@beinghuman12349 Жыл бұрын

@@dangrimes5078 I am from INDIA My mother has been diagnosed with MM last week We are in panic situation Please provide me some information So that I can help my mom to fight it well Please Please..........😭😭😭😭

@dangrimes5078 Жыл бұрын

@@beinghuman12349 I would help you in any way I can. If you keep sending me messages I will keep responding. You have to find out if your mother has high risk traits. In my case I didn't. This can make a huge difference in her prognosis. I have light chain myeloma. That just has to do with what part of the cell the cancer is in. The first treatment I got was a drug called Velcade. It worked very well. The next thing I got was a stem cell transplant. That was a terrible experience for me. There are many new drugs approved by the FDA now from when I was diagnosed. The problem is that I don't know what is available in India.

@amberlysantos8575 5 жыл бұрын

This disease took my grandma Mary on May 14 2019. She fought hard for 1 year and a half. I miss you my angel.

@randypalazzo1421 2 жыл бұрын

Your a hero, and so are the researchers that are getting close to a cure.

@davidrosenman1889 3 ай бұрын

Extremely moving so far. When he started talking about his wife, I started to cry.

@mrbarranquilla54 6 жыл бұрын

My empathy and best wishes to you. You are a great exaple of figthing spirits.

@carolehaines1321 2 жыл бұрын

thank you

@bakrelafifi5662 2 жыл бұрын

Dear Andy, Many thanks for sharing your experiences with MM you extremely gave me more and more power to keep fighting against that disease where unfortunately I got it at the age of 60 and back again right after recovery for the second time in less than one year with the same horrible symptoms, the immunology doctor treated me with “Vanked” in addition to some other drugs. The MM directly affected the performance of my kidneys as well so I’m going for renal dialysis three times a week for a certain period of time until they get back to work. I wish I go back to my normal life again soon, swimming, gym activities that I used to practice all over my life. Many thanks for the great support of my wife, friends and family and I wish if you tell us how things are by now with you right after the 6 years of recovery🌹👍

@bobbymoncada6861 4 жыл бұрын

You are owsome and God bless

@elantra45 4 жыл бұрын

My heart is broken right now. I just lost my father to this 5 days ago. He fought long and hard. 😪

@francesconicolai 4 жыл бұрын

J B I hope you are doing better now. Stay strong!

@tashjohnson8710 4 жыл бұрын

Same

@veronicachristopher-fellow5866 3 жыл бұрын

Oh no sorry

@heru-deshet359 3 жыл бұрын

God bless you. I lost my dad last year from a heart attack fighting cancer, my wife's uncle from leukemia and my sister in law 10 days ago from cancer.

@Lulu-kt6gr 2 жыл бұрын

I’m sorry. Do you mind telling me: How long did he live with it?

@sergerosenbaum2771 Жыл бұрын

"If I am not for myself, who will be for me? And being for myself, what am I? ... Hillel the Elder.

@laurilackey2235 6 жыл бұрын

How is this man doing today, Dec 2017? Prayers...

@ubavec5 2 жыл бұрын

Yesterday i lost my father from this disease. He found it late and he lived with this diagnosis 2 weeks. We are all broken. We all fight with him and we lost.

@xiylo. 2 жыл бұрын

I’m sorry for your loss.

@30lifeafterthirty38 Жыл бұрын

I am really sorry for your loss currently my dad diagnosed with MM and looking for some people opinion who experience it and to find out how we can help him to go through it 😢😢😢.

@thetruthalwayswins340 Жыл бұрын

@@30lifeafterthirty38 how is your father doing. Is he getting a treatment for multiple myeloma

@Aliiloa2010 4 жыл бұрын

Thank you Andy! I have Multiple Myeloma. I will be attempting to move back to Arizona in 2021. I will send you a message when I leave.

@jameshenry6098 5 жыл бұрын

God bless

@pgk-wv4ku 2 жыл бұрын

my mom just passed away last week with MM, she battled with it in 29 months.

@daisyvalentino2414 6 жыл бұрын

my Father is fighting MM right now he was diagnosed a few months ago.

@kl3625 4 жыл бұрын

Joe Schmoe is your father ok? My husband just got diagnosed he’s 51.

@vndvr78 7 жыл бұрын

This disease took my fathers life on 3/30/10. He fought hard for 3 years.

@TheLeukemiaLymphomaSociety 7 жыл бұрын

Andi, we are so sorry for your loss. Please know we are working on your father's behalf for a cure. Sending our best to you!

@seaya3593 6 жыл бұрын

Same :(

@BityKfemcee 6 жыл бұрын

Can you please give an update on Andy? Is he alive and well..I hope so.

@duckdodger3080 Жыл бұрын

When someone dies from cancer, they did not lose the battle! They aren't with us anymore, but they have no more cancer, no pain, they are at peace and that's a winning battle!

@tashjohnson8710 4 жыл бұрын

I lost my father to this April 24,2020

@johnneff9175 8 жыл бұрын

Well glad he's doing so great. I have MM in remission but my life is over thanks to peripheral neuropathy. My day is spent popping Percocets and feeling like crap. Also, stem cell transplants are not the super treatment they want you to think. I pressed the expert in Atlanta and he finally admitted that the survival rate between meds ( Revlamid) only and transplants is comparable. No transplant and giant bill for me.

@venomx4093 Жыл бұрын

A buddy of mine had a lot of chemo for leukemia. $1.6 million debt. No insurance. He died. I do have insurance with a fairly low maximum out of pocket expense, but I would most likely refuse chemo. I'm down with stem cells though or Fenbendazole.

@Jack-hy1zq Жыл бұрын

@@venomx4093 I'm expecting my first delivery of fenbendazole and tudca etc. I'm going to refuse chemotherapy at my first oncology appointment next week. Good luck, friend 👍

@venomx4093 Жыл бұрын

@@Jack-hy1zq Best of luck and put your faith in the Lord. Stop ALL sugars in all forms. Look into Glutamine blockers as well. Start fasting to starve cancer. Cancer needs glucose and glutamine to survive. Our normal cells also live on Glutamine, but can adapt to ketones for fuel. Cancer can't live on ketones. Chemo is a Glutamine blocker, but you can find natural ayurvedic glutamine blockers as well.

@venomx4093 Жыл бұрын

@@Jack-hy1zq After reading comments on Fenben alone, it doesn't work without vitamin E. There is a study on Fenben with and without vitamins that you can find.

@HiddenHandMedia 8 ай бұрын

@@Jack-hy1zqcan I ask why you refused chemo. I was recently diagnosed and am preparing for a stem cell treatment.

@wendyeesue 2 ай бұрын

Ive got different symptoms, Top of my head very sensitive when i wash my hair, never there for years now starting to bother me. My upper right side of my gums is sore to the touch when I brush my teeth, Dentist did not know what it is. It is my bone in my gums..My left hand index finger knuckle burning like a lit match inside. Im awakened in the middle of the night with a burning sensation, again, like a lit match running accross inside my leg..There is a red bump at the spot where the burning sensation stopped. Ive got red dots all over my legs which recently was told by the Doctor its caused from Low Platelets...I start a Bone Marrow Biopsy June 4th 2024. I believe this all start 1 year ago when I accidently Breathed in Carbon Monoxide...

@Lulu-kt6gr Жыл бұрын

How is it possible that would be a coincidence? Is it possible that the two of you were jointly exposed at the same time to a toxic substance? I’m very sorry to ask such a personal question.

@christopherdelacruz1598 Жыл бұрын

hi! i need to know where did you consult reagrding stage 3 multiple myelome right now may relatives have stage 3 multiple myeloma this is her second opinion were here at PIH Hospital in whittier almost 1 1/2 years fighting foe that cancer and now the doctpr said is not curable because stage 3 already they took chemo for her Bellgate, Kyprolis and Revlimid now she is bed ridden can you recommend me where is that place and who is your doctor.. Im begging you pls save her..her heart is good condition, she can breath at her own without tube.. can you give me the address and the place where is that???

@Lulu-kt6gr 2 жыл бұрын

How are you doing today??

@Nika-co9nx 2 жыл бұрын

My dad has his last minutes. He has myeloma all his bones broke

@brent4770 5 жыл бұрын

I have smoldering MM and I'm waiting for the other shoe to drop. It's torcher and you think about it 24x7. I'm 56.

@itsjustrenee1320 5 жыл бұрын

How are you doing Brent? I hope you find good health and long life. Maybe there will be a stunning cure. We can always hope.

@charliehandy6 3 жыл бұрын

I was diagnosed with SMM 2 years ago.i got into a clinical trial at NIH. Reached a MRD level of 0. I urge you to look at clinical trial for SMM, before your MM goes active

@brent4770 3 жыл бұрын

@@charliehandy6 I lost my PPO and I'm using the my VA benefits. VA is extremely passive and don't like doing anything they don't have to. Market Place insurance was $800 a month for a decent plan and I couldn't afford it. I did do a clinical trial 2.5 years ago and it did help. My M-spike is only at 0.68. It was 1.4 going into the trial. I will still keep looking for another trial though. MD Anderson won't take market place insurance so I'll have to look else where.

@charliehandy6 3 жыл бұрын

Brent: My research included Spark Cures, a site that lists all the various MM Clinic trials. Their site allowed me to plug in certain variables which brought up trials that fit my situation. They then help steered me to NIH. I had no out of pocket fees as it was a trial. Hope this helps and stay strong

@natashab3412 2 жыл бұрын

I've seen at least 3 cases of family members both having mm. What is that about. I wonder..

@jennycarlsso 5 жыл бұрын

How is he today?

@luciferr09 8 жыл бұрын

My mother was diagnosed 8 years ago with multiple myeloma. she went into remission for a year and it came back. Since then, she's been fighting it with the help of whatever they can find will help it. I'm so scared.

@visilencer7219 7 жыл бұрын

Athaina how she doing now

@seaya3593 6 жыл бұрын

Update?

@jeffreyhill3960 6 жыл бұрын

Keep up positive energy..cure will come. I was diagnosed in 07 . Had transplant in early 09... still in remission... Thalidomide was the pits but it worked for me....along with steroids....lots of side effects though..better stuff is available now. Keep up your spirits..

@scuddrunner1 5 жыл бұрын

If you can, contact Dr. Kumar at the Mayo Clinic Rochester MN. He knows all the tricks, great doctor!! Keep a positive attitude! Don't sit around the house.

@surenderjaiswal3809 4 жыл бұрын

@@jeffreyhill3960 wat side effects u hav?

@binflynn1 3 жыл бұрын

Every day is the best day , keep her lit 👍

@jameswebb8162 6 жыл бұрын

Hi, my name is James and I was diagnosed with multiple myeloma in August of 2013 at the age of 41. I have had 2 stem cell transplants and so far I have been in more or less remission. It's strange that when I get my blood checked it's like those old jack in the boxes where you turn the handle waiting on it to jump out. Every 6 weeks I get my numbers checked and it feels like I am turning the handle. Does any one feel the same way?

@Questinia1 3 жыл бұрын

I hope you're well, James. I wonder if you still need yourself checked every 6 weeks?

@dangrimes5078 2 жыл бұрын

I don't even know what the hell you're talking about but I hope you're doing well. From one survivor to another.

@venomx4093 Жыл бұрын

Did you have to get chemo first?

@thomasmichaelpenders 4 жыл бұрын

I am 42 years old and I was a greenskeeper 20 years ago using agricultural strength glyphosate which is generic roundup. 4 months ago I had testicular cancer and had one removed. After going back to have a ct scan they said they saw 6 inches of my pelvic bone eroded away. They did the biopsy and found myeloma. What's next?

@geomancer6371 4 жыл бұрын

Speaking from experience (I have MM, biopsy revealed 4 months ago), some tests for prognosis and to determine the treatment. You'll be given the choices for chemotherapy, depending on your current and existing health condition. Good luck and do not stress yourself out.

@veronicachristopher-fellow5866 3 жыл бұрын

@@geomancer6371 my sister too has this praying for a mircle for you both

@geomancer6371 3 жыл бұрын

@@veronicachristopher-fellow5866 Thank you for your thoughts and prayers. My cancer markers have been going down as a result of chemotherapy and lifestyle change, especially the removal of sugar and simple carbs from my diet, eating only whole, non - processed foods and walking a lot under the sun. Still quite a ways to go, but at least progress is seen in the right direction. Hoping for the same or better results for my fellow MM patient above.

@saranagh7097 8 жыл бұрын

We've come this far by FAITH, leaning on the LORD. Hang on his Holy word He NEVER FAILED ME YET. Thx for this video.

@dianewolfthal1738 4 жыл бұрын

Please rely on your doctors, and be thankful for science. (Wife of patient with multiple myeloma.)

@heru-deshet359 3 жыл бұрын

@@dianewolfthal1738 God provides them for us. Blessings to you and your family.

@bakrelafifi5662 2 жыл бұрын

@xiylo. 2 жыл бұрын

How are you now?

@bakrelafifi5662 2 жыл бұрын

@michelsooriah692 Жыл бұрын

Full support from mauritius. Diagnosed in aug 18. BMT in oct 19, India. Remission now.

@kharinaricasio1921 Жыл бұрын

I wish we had enough money for my farher so his doing stem cell but we dont have enough money for this kind of medication😢

@christinan005 3 ай бұрын

I was diagnosed with multiple myeloma in march with kidney failure. Had to have 2 blood transfusions within 3 week of eachother im very anemic. I'm fightingbtho😢 I jst turned 42 yrs old three week ago