Intense Back Pain - Laura | Multiple Myeloma

Intense Back Pain - Laura | Multiple Myeloma | The Patient Story

Рет қаралды 15,211

6 ай бұрын

Laura began experiencing sudden, intense back pain that led her to go to the emergency room. Doctors initially wanted to send her home with physical therapy, but she advocated for more testing. A CT scan revealed cancer and she was later diagnosed with a rare blood cancer, multiple myeloma.
She highlights how her symptoms were initially dismissed, the complexities of different treatments, including CAR T-cell therapy and bispecific antibodies and the challenges and adjustments in her life due to the diagnosis.
Full story & transcript → thepatientstory.com/patient-s...
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Пікірлер: 32

@deanawells4395 6 ай бұрын

I was diagnosed with Breast Cancer 4 1/2 years ago and I am 59 years old. I was shocked and scared all in one moment 😢. I was told my diagnosis in a mammogram center just out in the waiting room with other women waiting for their test. So unfair to those around me to be scared for me and themselves to get that horrible news. The radiologist told me the diagnosis like she was saying “it is raining outside “

@johnbuckaru 6 ай бұрын

Unfair is putting it mildly. That radiologist needs a lesson in how to share life changing information with a patient in a manner respectful of moment of vulnerability and not to mention legal right to confidentiality. Guess the radiologist forgot about HIPPA laws. May you continue to do well. ❤

@SheliaRPierre Ай бұрын

None of my techs have ever told me any results. They would say the doc will call with the results. So, this radiologist was totally out of line. One tech did tell me a lie about PFTs though. She told me I did great...but my doc told me that Ashtma has worsened "a little."

@joancahill4446 6 ай бұрын

I was Diagnosed about a month ago with multiple myeloma , after months of of been unwell . I start chemotherapy on 29/1 and infusions , I remain positive . Thank you for sharing your story and i am so glad ti see you doing so well ❤

@anniejordan8045 6 ай бұрын

I’m about six months ahead of you. Not that far but I can only say that I worried more than I needed to. I get high dose chemo on 23rd and will update xxxx

@joancahill4446 6 ай бұрын

@@anniejordan8045 thank you Annie . I saw my oncologist tomorrow . As they want to do a renal biopsy due to proteins in urine . I was diagnosed as my kidney function went down to 8 , more testing was done , i was in hospital for a week , and my kidney function returned to normal after few weeks , so chemotherapy should be starting end of February , we will do well Annie . As a lot of treatments , so we will kick cancer bum xx

@joancahill4446 6 ай бұрын

Sorry that was i saw my oncologist today

@anniejordan8045 4 ай бұрын

I was extremely lucky and sailed through the stem cell transplant with no side effects. I lost my hair but my eye lashes and eyebrows have hung on! Xxx

@somewhereinthemidwest9827 6 ай бұрын

My brother passed 18 months after diagnosis. 60 years old 😢 So very glad you have done well with your treatments. 🙏🏼

@elainerobertson1988 6 ай бұрын

Sorry for your loss. 💕

@maryannebarry9123 6 ай бұрын

Thank you for sharing your story. It’s wonderful that you have done so well.

@TD_427 6 ай бұрын

Thank you for sharing your story. Wishing you the very best!❤

@elynrebels4535 6 ай бұрын

Glad to see you doing so well for so long! Thank you for sharing your experience. ❤

@doriasalmon4790 6 ай бұрын

So glad you are doing well, keep up with the positive outlook

@sierragold 6 ай бұрын

Best wishes for you!

@brooks6348 6 ай бұрын

Thanks for sharing your journey. My best friend was just diagnosed with multiple myeloma.

@Dublin1008 6 ай бұрын

All the best for you Laura❤

@TLilacTwilight 2 ай бұрын

Thank you for sharing your symptoms. I was hoping to hear about the symptoms that caused her to go to ER

@Arldavis Ай бұрын

I was also told in the ER. I had been having severe back pain for 8 months, taking ibuprofen to get me through the days at work and then I developed bad pain in my right side. After two months of tests and being told that it was my liver and I needed to lose weight and then everything would be better (I weighed 180 and didn't drink). I finally just told my doctor's office I was gonna go to the hospital so they could figure it out. They did a ct scan and there it was, cancer eating at my bones. I was admitted because my kidneys and liver weren't doing very well because of the ibuprofen that my doctor had prescribed 😡 I'm going in next month for my stem cell transplant and I've been doing so much better.

@YaYaPaBla 6 ай бұрын

I have 2 Aunt’s with this illness.

@barbaradw9969 6 ай бұрын

My Father in law passed away 6 weeks after his diagnoses of Multiple Myeloma. My husband lasted 2 years with Treatment for Multiple Myeloma. He lived in HELL from the Treayment of Multiple Myeloma. Should I ever be diagnosed with this disease, I would NEVER SUBMIT MY BODY TO that.

@anniejordan8045 6 ай бұрын

As a newly diagnosed patient your words really help. Well done 🎉

@Arldavis Ай бұрын

Every person is different. I was diagnosed in February and have been having treatments since. I've been doing very well with the treatment and will go in next month for my stem cell transplant. Only side effect I've really noticed is hair loss but I'm going to lose the rest of it next month so I'm just accepting it. It doesn't help to scare monger people who are newly diagnosed and looking for answers 😡

@barbaradw9969 Ай бұрын

@@Arldavis nor trying to scare anyone, just stating the Facts for what my husband & I his care taker dealt with. Not everything in life is Roses. He also lost most of his, when it came back in it was curly. When he lost his hair, I shaved mine as well, just to show solidarity. It was so much easier to care for.

@lluvita1 6 ай бұрын

What were your symptoms before finding out you had cancer?

@jeanbeans7926 2 ай бұрын

I really wanted to know that also.

@Arldavis Ай бұрын

My symptoms were worsening back pain that was misdiagnosed by my doctor and then severe rib pain that was also misdiagnosed by a walk in clinic as gallbladder pain 😕