I had two miscarriages,it was 7 years ago. I was feeling scared to have a baby again, but then I tried to find what had happened to the two baby and I found out that I have Aps.Anti Phospholipid syndrome. It made me feel bad about the past, it made me scared but now I have a chance to have a baby again by monitoring and medicine.😢

How encouraging hope to see my rainbow baby soon😍😍

Though a percentage of patients with antiphospholipid autoimmune disorder have a tendency to form clots, it is error to define antiphospholipid autoimmune syndrome as a blood clotting disorder, as current research finds that percentage of patients with antiphospholipid autoimmune syndrome do not have the tendency to form clots and anticoagulants for such patients is contraindicated, if not dangerous.. In fact, APLAS has subsets. Some patients with APLAS have thrombocytopenia (a tendency to hemorrhage), some have both thrombophilia and thrombocytopenia, some have neither but have a history of fetal loss and premature births. Please See: "Nonthrombotic manifestations of the antiphospholipid syndrome: away from thrombosis?," Asherson, et al.

As someone with APS and SLE it is scary to think of what could have happened. I had PEs on two occasions (once in my last pregnancy which I didn't know about and was lucky to survive)! It is time awareness is heightened on these serious condition.

I'm 19 years old and have survived 2 PE's as well.. both undiagnosed as to what they were caused from. My hematologists were convinced it must have been APS, but those blood tests came back negative. More awareness needs to be made about these 'silent killers' however. Too many have been taken so suddenly.

I’m a male and have it and it caused my heart attack due to a clot in the major artery when I was 18, I’m 19 and almost normal now!

my mother had 3 major strokes in 2004 she pulled through and is now a grandmother to my 15 month old son and our next baby is due in july of this year. she is an amazing woman as are all those that survive this disease. and now they are saying it is hereditary. myself my brother and my son have been tested for the disease and we are waiting on the results

I was just diagnosed with APS after a dvt. After finding this out, I was so scared about the miscarriages and pregnancy with this autoimmune disease

I am 68yrs old and I found out I have this blood disease and I found out last September 2023

I’m a 18 y/o male who got diagnosed a month ago when I had a heart attack from a blood clot formed due to APS

My wife suffers from aps, it was missdiagnosed for 7 years, and it has almost killed her twice (venus vien thrombosis and a deep vien thrombosis).

This is encouraging. Gives me hope! 😭😭💗

35yr old male here, had a PE in December '18 and my hematologist diagnosed me with APS. It's being recommended I stay on my blood thinner (Eliquis) for life.

i had 2 PE's at 17 me and you are very lucky to be alive :) but im happy i found out before i had kids

I just studied about APS. Quite helpful vdo thank you guys

Very encouraging :-)

I am diagnosed with APS since 2018.

Will not a Plasmapheresis before delivery reduce the risk of a thrombotic event(Stroke) during a medication-free delivery for such a patient?

I’ve just been diagnosed with this after being tested by my fertility clinic to find out why I’ve had so many miscarriages

I have factor XIII deficiency,and also have a desease 'easy bruises & internal bleeding,my INR and PT rate is also very high,due to use anticoaglant, Rivaroxaban in the past for the led desease,I have no blood clot, please tell me that what I could do.