Nicole Bishop I got mines done in 2016

how do you feel now? Is it better than before the sugery? What type did you had? I was diagnosed with chiari type 1, 1 cm. they problably wont operate, they are not sure yet. But I want to get rid of my headaches. Would you recommend it?

I had my surgery 4 years ago. it took me 2.5 years to get a diagnosis, my neurosurgeon told me the day of diagnosis that for me surgery was my best bet because mine was so bad. scheduled surgery for 4 weeks later. was in hospital for 1.5 weeks, 2-3 days in ICU. I have to say my symptoms have actually gotten worse over the years.

ronald pauwels Hello, My name is Lindsey and I’m 26 now but had Chiari cranial decompression and cervical stabilization surgery in High School. Only you and your doctor can decide what’s best, but my personal advice would be to use surgery as a very last resort (avoid it if you can)!! There are many possible complications and residual issues that can occur because of the procedures (which I unfortunately experienced), so I would suggest that you proceed with extreme caution. I had the surgery about 10 years ago, and my headaches are worse now then they were originally. Again, it’s different for everyone, and I had compilations, but I just want you to be aware that the surgery is not necessarily a “magical fix”. I wish you the best of luck and health! (Also, following some nerve blocks, I’ve recently gotten cervical nerve ablations that are really helping with my head pain and are MUCH less invasive than the decompression surgery; maybe ask your doctor if this is a route you could also try?)

i had this surgery an a couplee months later i had horrible nerve pain in my head an ever since i cnt do no force or walk an im in pain 24 seven any help?

I’ve had 2 Decompressions and a vp shunt placed in the past 5 years

​@strokiinyourmom how are you doing now?

the wombat says how is your wife doing

36mm are you ok now

Is these surgeries are successful in patients.

⁠@@prasannakumar-cl9fu that’s 3.6 cm so about 1.4” sounds bigger than it is.

Did it work

I'm.interested to hear about your results too please.

do not worry you will be alright

did you do it? did it work?

Can I ask what symptoms?

Hope you're recovering well 🙏🏻

How are you getting on after your surgery? Hopefully well.

Pooja Sreenivasa

I have 7mm herniation chiari 1malformation

@@prasannakumar-cl9fu sir aapko chiari malformation with syrinx problem hai

@@bhupatbhaikarmur7038 nahi

@@prasannakumar-cl9fu to kisko problem..

Dylan Rawr Did the sensation return? Or were you left paralyzed?

Oh! That’s unusual! Despite the pain from the wound and the drums in my head (obviously) I woke up feeling a great chance! It’s like when you have a feeling like something is missing when any strong pain gets better.

Oh my gosh can someone please tell me if the feeling In her legs returned. I'm a nervous wreck. My 7 year old daughter has chiari 11mm and is going to see the neurosurgeon next week. This little girl loves gymastics. I can't imagine her waking up not able to move her legs. Breaks my heart to think about that.

@@heatherdiaz4380 Hey! She's gonna need a decompression. I played soccer and danced with chiari. But I also have a syrinx on my spine that left my right hand paralyzed. I am able to walk but I do have a foot drop. High releve I'm not able to do. But let the surgeon do the decompression. I can't begin to imagine the pain your daughter is in. My chiari/syringomyelia was found when I was 6. I'm 28 now: ) I drive and have an apartment. Stay on top of this disease my mom didn't hence the reason I'm paralyzed. Good luck!

@@heatherdiaz4380 I've had the disease since I was 7. It was found by accident via MRI. I had one decompression at 7 then again at 17 with a 4th ventricular shunt placement. I played soccer and was a ballerina. My mom tried to keep me in a bubble lol. When I woke up I couldn't walk or feel my legs. I learned how to walk again though I do have a right foot drop. Stay on top of this disease cuz it's unforgiving. My mom who is a nurse and a narcissist ignored me and the cyst on my spine took hold and now I'm paralyzed In my right hand. Let me know if you want my email. Good luck! Go to Boston children's hospital they are so much better than chop. I had chops chief of neurosurgery before he retired. Leslie Sutton! That hospital is not the same without him. He knew what he was gonna do if my cyst didn't get smaller. The surgery I had at 17 he talked about 10 years prior in his notes. He wrote if the syringomyelia doesn't reduce he would shunt my spine

Because it is not always enough space

@@brittanyscully5302 chiari malformation with syrinx surgery success full

@@brittanyscully5302y

do you have Type 1

@@naysinnine9335 yes

what was your symptom's before doing the surgery? do you have any visual symptoms?

@@Basharkk Headaches, losing feeling on the right side of my body, memory deficits

@@connernolan migraine like?

@@Frankgaming not that intense but they were not comfortable

Que gusto saber que a tu hijo le fue muy bien despues de este tipo de operacion, a mi hijo lo operaron hace 3 semanas en Tamaulipas, me puedes contar como fue su recuperacion postoperatoria? tuvo problemas? si me puedes contactar o decir como contactarte para compartir experiencias te lo agradeceria mucho

@@javieralejandrogamboasoto4331 buenas tardes Javier, a su hijo lo operó el Dr. Silva?

@@abrahamrhoads Es correcto lo opero el Dr. Silva, como supo?

Bende ameliyat oldum olmak istiyorum kaç santimden sonra ameliyat gerekiyor bilgi almak istiyorum lütfen

Ernesto, cómo está tu hijo?

Also had a very large syrinx.

But i hope, you mean that your symptoms are getting better after the surgery. I will get the Operation in 2 weeks and get more and more scary

Yes it will leave the patient with instability. Most chiarians have Cranio Cervical Instability already, after decompression it can get much much worse.

Took the words out of my mouth! Yes!!!!

No. Empirical evidence speaking right here, no.

Myself, along with most other Chiari patients that I know, had a cervical stabilization surgery at the same time as the decompression. I was fused occipital to C5 to stabilize my already unstable neck. Ehlers Danlos, a connective disorder, is common with Chiari patients; I used to be like a Pez dispenser and could practically bend my neck backward to the point where the back of my head was flat against my back!

I also had cervical stabilization at the same time as my decompression surgery. I have spacers but was not fused. I still have neck pain, but much improvement since surgery.

Khalid Bouallali After placing rods to stabilize my cervical spine, my doctor also applied BMP (Bone Morphogenetic Protein). BMP is a cream that actually grows into bone. When my body rejected my rods (and I literally ended up with a screw loose in my head-I’ll never live that one down!😂), I was able to get my hardware removed since the BMP had assisted my body in growing my own bone and fusing my cervical spine that way! It’s pretty badass! ;) haha (What’s even cooler is that I have all of my rods and screws that used to be in my head in a bucket at home-they let me keep it after they took it all out!)

Nathan Steffanic naw trust me you don't want those migraines

Hello! Is it being treated? Arnold Chiari's Cindy? What are the chances of success? Is there any danger? Are there any side effects after surgery? Will it not affect vision?

Everyone's different, some have CM without symptoms. Others have headaches, from manageable to debilitating. Some, like me, begin losing sensations, cannot walk, bowel and bladder problems, etc... As it progresses. I lived with "just headaches" (and other things I took as normal but were CM related) for as long as possible. Do surgery when you've exhausted all other options for any quality of life.

I asked that question to my daughter's neurosurgeon yesterday, 05/15/24. He said that is covered by a think rubbery dura and covered again by your muscles. He mentioned if only c1 is been shaved down your still perfectly protected. My daughter is 7 years old. The surgery date is 06/25/24

María escribeme a mi correo electrónico susiq1399@gmail.com.te voy ayudar en eso

هل اكو علاج غير الجراحه

Where you able to feel your legs when you woke up from surgery?

Oi. Eu falo inglês e sou brasileiro. Onde vive? Já consultou algum neurologista?

Libian Amaro Ami si que me da miedo

Pero no aguanto los dolores de cabeza

Mimi Jimenez eso me pasaba a mi y despues de la operacion desaparesieron

Mi hijo ya tiene fecha de cirugía y tiene mucho miedo

Patricia Rivadavia fuerzas y fe

my 11yr old had it about 2wks ago and she is more unhappy since. Really scary and i thought surgery would make it better😳 hasnt yet

Emarshall Marshall I'm so scared that will happen to me I think I'll live with these headaches

Emarshall Marshall Bless your daughter. I have a girl the same age. I hope in time it will get better for her. I know your love and support can help everything from her perspective.

Nathan Steffanic me 3!

Hi, how do you feel now? Did it get any better? I'm diagnosed with chiari type 1, 1cm. there not shure yet that they will do the surgery. But I really want to get rid of my headaches. Could you give me some more information from before and after. how bad was yours. What were your symtomps?

Be prepared for really bad headaches after. Had mine done 5 weeks ago this coming Tuesday and still have brutal headaches.

How are you now? Had mine 10 days ago and have strong headaches still too. do you think thats normal in your case?

@@schmendrick90 very strong headaches. Worst pain I have ever felt. Not be a bearer of bad news but I had them for about 4 weeks off and on. They only get better tho. After they stop everything is good. I feel a lot better now. Just hang in there. It's worth it.

@sandy go with it bro.. it saved my life almost 8 years ago.. i’m completely fine and still no issues from that surgery.. my symptoms were immediately relieved after the surgery.. although some damage was done to the spinal cord because there’s a large syrinx in my cervical and dorsal cord but they are asymptomatic now.. but for this i had lost some sensory in my both arm and they had never returned... other than that everything’s fine :)

+Nikolas Rodriguez they are removing the tonsils off the cerebellum. There are different ways surgeons perform this. The ones I have seen they go in and shrink it with bipolar coag and put the dura patch in with fibrin glue sealant.

Perdón mi correo electrónico es susiq1399@gmail.com l

I just had this surgery going on 3 weeks ago. My surgery only took 2 hours. Not going to say it's easy when the surgery is over but i'm doing pretty good so far.

Angie Lenk can you give an update on how you’re doing now after almost two years?

I had it done 5 years ago at 31 years old, the younger they get the surgery, the better.

@@1luciagodfrey Thank you my son has just had his first operation done it was the ICP monitoring and he gets his second operation on the 22 nd of this month x

@@emmamurphy3613 hey can you tell me what symptoms he had?

I was about to ask the 3 same question. hope they reply. amazing video. I have a.c.m with associated syringomyelia. after 2 ops and the fluid drained I am left with severe nerve damage. wish I had a magic wand. xoxo

Nothing... funny thing. I’ve watched many of the surgeries and wonder if the swelling most patients receive after the surgery in their arm is related to the surgery. I have separation in all my vertebrae this would render me useless.

Kaysie CY Chong Kaysie CY Chong After placing rods to stabilize my cervical spine, my doctor also applied BMP (Bone Morphogenetic Protein). BMP is a cream that actually grows into bone. When my body rejected my rods (and I literally ended up with a screw loose in my head-I’ll never live that one down!😂), I was able to get my hardware removed since the BMP had assisted my body in growing my own bone and fusing my cervical spine that way! It’s pretty badass! ;) haha (What’s even cooler is that I have all of my rods and screws that used to be in my head in a bucket at home-they let me keep it after they took it all out!)

From what I understand, they don't necessarily go in and remove both for every patient. I've had 3 procedures, and they worked very hard to leave me with partial bone for movement and protection.

​@@lulumoon6942o problema voltou?

@chris who is he and how does he do it himself?

გაიკეთეთ?

My "empirically based" neurosurgeon suggested when symptoms could no longer be managed non-surgically, but before they were too severe, as that affects your potential for recovery. This is almost verbatim.

Libian Amaro hola podrías describir cuales eran tus síntomas y como estas ahora? Muchas gracias por compartir

Hola mi hijo fue operado en Querétaro y afortunadamente a un mes tres semanas ya está bien y reincorporado a su trabajo

@@ernestohervert9264 hola Ernesto su hijo no tuvo problemas de fuga de líquido cefalorraquídeo, mi hermana lleva casi un mes de operada y tiene fuga y no le han quitado dos puntos el médico no la puede ver porque no está en la ciudad, ha sido una recuperación muy lenta para ella

Hola mira mi hijo si tuvo fugas pero el Dr estuvo mucho muy al pendiente y hoy ya tiene ocho meses y medio y su vida ya es normal tan es así que ya inicio a ir al gym y sin problema alguno

Brizie Skittles are u there

It took my son 7 hour in total x

@@phillipadoran9341 6 to 8 indeed

I do.

Angela are you there

რა ჩივილები გაქვთ?მეც დამიდგინდა ეს

I've just found out I've got it too x

+Aman Saroye what are the complications ?

+Sapandeep Toor you need to take care yourself after Surgery in my case i had csf leak from dura after 1 month of surgery . r u going for surgery or just getting information . contact me i will explain you bro.

+Sapandeep Toor send me your no i will call .

aman I am in Australia.... you can give me no and I shall call you. Thanx for reply

But are you feeling nu better

Only the back side of those vertebrae are removed. The front supporting portions are left in tact.

@@trialfx1 thanks ☺️😊

Toda su vida mi hija lo tiene

Como fue el tiempo de cirugia y su recuperacion? Tuvo alguna complicacion?

Le but de ce blog il a pour but d'informer, pour l'opération par une craniectomie de ma fille. (Décompression) d'une malformation Arnold Chiari. matendrefille.canalblog.com/

trialfx .com would it be okay to use this video for a presentation on Chiari Malformation?

Oh yeah! Without the surgery, the person can have a lot of headache, dizziness and problems with gait.

Kaysie CY Chong how Long does the surgery last?

Diego Valenzuela I was in surgery about 8 hours. Never knew I had the problem till I turned 32 started having grand mal seizures

Doc Holiday Blessings to you.

Richard Burchett Thank you and many more to you.

Doc Holiday how are you doing now ?

Before the surgery did you have the leaking or after my dear? Inquiring mind would love to know.

MzClementine do you have also cm? Syrinx?

And holy that happend to me? LOL

el cerebelo inflamado, que te estaba haciendo daño

como te sientes?

alexis jesus Al parecer siii Yo hace 15 días me opere de lo mismo. Tu as sentido alguna mejoría de tu operación hacia acá?

Yo di he sentido mejoría en un 80%

La gente que se opera del chiari puede hacer el tratamiento botox

Slava ukraine and all the Best for you