I have syrinx from 1974 car accident: the twisting of my spine destroyed every disc and created 6 slipped vertebrae; by 2007 the doctors put me on hospice; Three years later I stopped going to doctors, worked out my own plan, burst the cyst, straightened my spine, and have a wonderful life! No picnic! But my cyst continues to drain (2024) and I've developed a home method of chiropracty to keep my spine aligned.. I wish doctors would listen to real life solutions!

I have syrinx on T6, effects my entire right arm. Mine was rapid onset symptoms due to spinal compression on syrinx. Best way to explain pain is that your finger has fallen asleep and then someone shuts your finger in a door. It took three years to locate source. Yay see neurosurgeon in two weeks.

My nurosurgen keep staring at my MRI he said in the lumbar just here on L4L5 it would take 2rods and 6screws, that disc is bulging into the the cal sac, I hurt. Then I have scoliosis, retrolytheses in thoracic with syringomyelia in the canal just touching the spinal cord. I had a major fall straight down on my buttocks hard enough to fracture my coccyx this was at work. I had to move to another state because im unable to work. Anyway my nurosurgen said with surgery you have a 50/50 chance without surgery you have a 50/50 chance . Not good odds. He said to get a second opinion I did and that nurosurgen just kinda brushed me off. Im in pain all the time my legs give out I drop things. I will be just standing there with something in my hand and bloop it just falls. I can't find any literature or much of anything else on this. He mentioned that my spin was so bad I would have to be basically caged. Please please help.is there any nurosurgen in the New Orleans area that are trained on this?? I feel hopeless. I really would like some educational material. I was a nurse until this. So as you know we like details. I worked cardiac not Nuro 😐 cissy_fl@yahoo.com

Anyone know if a shunt will help with syrinx?

Omg I get intense burning itching pain in my head! It’s the most unbearable sensation to experience. I sleep on a boar bristle brush with the needles in my scalp for relief. It’s the only thing that works. 😩 My nerve pain was contained to my left side for the last 3 yrs. Now 11 months post decompression and VP Shunting, my syrinx has not only grown but my pain has now spread to my right side. I’m so miserable. I just can not face the possibility of syrinx shunting 😞

Curious about dynamic CT and flow studies? Are they worth it? Also read something about the vagus nerve and autonomic system could be a contributor to chiari and syrinx. Are they worth the testing?

I'm currently looking for doctors for syringomyelia in South Carolina. I know there is a fantastic neurosurgeon Dr.patel but i can't find a neurologist yet.

Any doctors up in Canada (Vancouver) that you can recommend to consult with - syringomyelia / syrinx. Ty.