Ask the MD: Myths about Levodopa

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The Michael J. Fox Foundation for Parkinson's Research

Күн бұрын

Rachel Dolhun, MD, movement disorder specialist and vice president of medical communications at The Michael J. Fox Foundation, dispels myths about levodopa, the most commonly prescribed Parkinson’s medication.
The "Ask the MD" series is intended as an educational resource for people with Parkinson's and their loved ones. Please consult with your personal healthcare provider to address individual medical questions.
The Michael J. Fox Foundation for Parkinson's Research is dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today. www.michaeljfox.org
We gratefully acknowledge the Steering Committee members of our Patient Disease Education Consortium in conjunction with The Albert B. Glickman Parkinson’s Disease Education Program and Charles B. Moss Jr. and family, whose sponsorship allows us to create and distribute materials, while preserving our track record of efficiency in stewarding donor-raised contributions for maximum impact on Parkinson’s drug development. Sponsorship support does not influence MJFF’s content perspective or panelist selection.

Пікірлер: 51

@FullTimePatient37 Ай бұрын

Because you are a Dr I'm 🧐 I've started it today for dystonia i hope it helps 🙏🏽 i don't want to need the increase of baclophin 😢

@lynnemurphy6583 5 жыл бұрын

Great information ! Thank you sharing

@SwollenGoochy 5 жыл бұрын

Thank you for the vid, great information.

@kissme4492 4 жыл бұрын

Thank You

@shubhamvats8620 5 жыл бұрын

Very effective thank you

@raymondamaechi6353 Жыл бұрын

INBRIJA has changed my life. It’s the fastest on demand Parkinson’s treatment I’ve ever used. INBRIJA starts working in under 5 minutes because it’s inhaled not an oral pill that takes an hour to start working.

@benjaminbahrami5714 2 жыл бұрын

Loved her presentation!

@mildredbaxter3071 5 жыл бұрын

Very helpful.

@solomonkane8136 3 жыл бұрын

Wow! No mention of Levodopa causing massive audio and visual hallucinations, psychosis, as it did in my grandfather and now my father. There has to be other medication because what’s the point of having a bit more range of motion if you don’t know where you are or who you are talking to? And yes, it was definitely the drug because when the medication was discontinued the psychosis disappeared.

@JSErwine 3 жыл бұрын

My personal experience is that Levodopa stopped the hallucinations.

@davidr.wilson8194 Жыл бұрын

Yes,my dad was put on this drug a few weeks ago.He's currently in the hospital recovering from hallucinations and psychosis.Neurologist took him off the drug.

@AB-kw2ux Жыл бұрын

@@davidr.wilson8194 My mother is currently in psychosis, caused levodopa. Which antiparkinsonian drug is your father on now?

@davidr.wilson8194 Жыл бұрын

@@AB-kw2ux My dad passed away in Nivember 2022 at the age of 84.He went peacefully with me, my sister and my brothers wife by his bedside.My sister contacted me to let me know that it looked like he would pass soon.He lived five minutes after I got to his home.I prayed with him and I know he's in heaven.He never got better even after a doctor stopped him taking this drug.For his last two weeks he was almost comatose..Couldn't respond or talk to us. ❤

@AB-kw2ux Жыл бұрын

@@davidr.wilson8194 I'm so sorry for your loss. I don't believe in heaven, but it's comforting to know that his last moments were with family. My mother is currently in psychosis, due to levodopa, and we feel helpless. I'm looking for an alternative antiparkinson medication to levodopa, so if you're aware of anything do let me know.

@joelmagee3322 Жыл бұрын

Is the reason some people think PD-associated symptoms can suddenly flare up the levodopa wearing off?

@okomojelepo 4 жыл бұрын

What do you think about Mucuna,it has l dopa, natural. thanks

@jasonsmith902 2 жыл бұрын

Is Levadopa safe to use against depression

@JustME-ft4di 4 жыл бұрын

Isn’t ‘off-time’ usually called interdose or tolerence withdrawal in other drugs?

@ronwolf6409 2 жыл бұрын

Has any one successfully replaced levodopa with Macuna Pru. What is the titration off levadopa like? And how can you gauge how much affect the Macuna has it is in comparison to the levodopa . I have just purchased Macuna Pruriens extract from double wood supplements.it says it is standardized to 20 %. Each capsule is 500 mg. … Am I correct for assuming that one 500 mg capsule is equivalent to 100 mg of Levadopa.. .?

@jackcarls2893 10 ай бұрын

I thinking I was mis-diagnosed with PD in June 2021, but have been on Sentimet since. However the only symptoms Ive ever had to date is related freezing of the gait, which seems to be getting worse over time. Carbidopa Levodopa doesn’t seem to help. What is the proper PD med for me? 4:46

@raymondvanatolli7985 Жыл бұрын

INBRIJA is an Inhaler that delivers Levodopa almost immediately through the lungs. Amazing for Parkinson’s patients.

@GypsyPuppypup 3 жыл бұрын

Can LDopa awakes a pacient in a long time coma? It just came to my mind

@garyclark9807 Жыл бұрын

Mom doesn’t have tremors she has gait issues and speech issues. No hand or head shaking. When she takes levadopa she throws up all the time. She can’t keep anything down due to vomiting and they have given her meds to help but nothing works. She quit taking her levadopa 2 months ago and now she can eat and not become dehydrated snd malnourished as she did taking levadopa. Her speech is better too. She just cant walk She can feed herself and there are no tremors.

@jaytetzlaff 4 жыл бұрын

Not happy that mucuna isn't even mentioned,unless brevity is more important than info.

@joeandamyaleo 3 жыл бұрын

Mucuna does not produce dyskinesia. A different study, this time in monkeys (with unilateral parkinsonism induced experimentally), produced very interesting results on the possibility of dyskinesias. One group was treated with Sinemet (levodopa and carbidopa), another with Mucuna plus carbidopa, and the third only with Mucuna. All the animals experienced an improvement in their symptoms. Dyskinesia was then assessed by the study of spontaneous activity in the substantia nigra. Larger dyskinesia appeared in the Sinemet group. In those treated with the combination of Mucuna and carbidopa, dyskinesia seemed more moderate. Interestingly, in those who had only taken Mucuna, no dyskinesia was found

@darrenstroble6717 Жыл бұрын

My INBRIJA Inhaler is amazing for my Parkinson’s!!!!TY so much❤️

@michelelindseth8250 5 ай бұрын

I was diagnosed with Parkinsons and put on carbidopa -levadopa, increasingly making me sicker and sicker. I finally quit taking it and stopped seeing doctors except for twice per year. That is so my two important doctors, a PCP who prescribes my arrhythmia medicine and a doctor who prescribes another drug l do need. I no longer have faith in modern medicine or, especially, in Big Pharma. I use holistic, natural vitamins and supplements that sufficiently keep me going. For PD l use Mega Benfotiamine and Magnesium Theonate which stp the tremor and do not have side effects.

@ManuduBruxale 3 жыл бұрын

I take Madopar

@ronwolf6409 2 жыл бұрын

What is mad opar

@ManuduBruxale 2 жыл бұрын

@@ronwolf6409 Madopar dispersible tablets contain two medicines called levodopa and benserazide. They are used to treat Parkinson's disease. People with Parkinson's disease do not have enough dopamine in certain parts of their brains. This can result in slow movements, stiff muscles and tremor.