💯

I feel your pain. It's pure torture

their is pogression in the field with neuromodulation medicine and habituation

I’m so sorry. I have it too.

Sleep is a deathlike state.. No consciousness.. Thank god for that 8 hours we get per day...that and some help from my melatonin pills.

I agree I had a few investigations then left to my own devices.

Thanks Ben, same goes for you and your constant endeavours! It's great to see.

@@TMinus-Tinnitus-Wellness I can second that

Thanks to you also Ben,,

@@TMinus-Tinnitus-Wellness is it possible to have a app vers for Android since a lot of Tinnitus hearer are using Android software (that now also part of window) and not iOS. I understand if it takes a few year before release. As long as dine in your life time. 💡😇 Thanks

@@nicholasbeuken2000 Hi we are working on an Android version! please keep an eye out by following us on instagram. instagram.com/tinnitusminus - all the best

I just forgot it, i just want a softer T, i dont care anymore about silence. The sensation of ir, cause it doesnt exist

I’d settle for a 2 or 3 out of 10 again Doctors destroyed me when they gave me Gentamicin, AFTER I told them I had Tinnitus. I went from barely noticing my T … to debilitating in a single instance. I just hope an Objective actual treatment is found and found soon. Dr. Susan Shore’s device sounds very promising. Take care

I haven't experienced silence in 35 years. I hope I'm able to before I die.

Hey William, gently re-introducing / desensitisation is a really important step, keep at it and please take a moment to look at your "reaction" each time you play, or to spikes.

@63philip sit down and stfu! You don’t mind tinnitus! You ignorant insensitive disrespectful to all the millions of people who SUFFER with tinnitus!! 🤬 Of course you’re a coward being behind your mask your true likeness I’d wish loud unbearable tinnitus on you- but you’re NOT worth a sin over

Hey AJ. Please don't hesitate to reach out if we can be of support

Hi, thanks for sharing this story, fascinating to hear your perception as a child and the natural acceptance you have from then.

@@TMinus-Tinnitus-Wellnesshi mate is it possible with TDT treatments therapy over the long term treatment to reduce the intensity to make tinnitus less and less aware of it treatment therapys the best way treat the miss fires in brain and settle all down with treatment devices?!?

@@TMinus-Tinnitus-Wellness hi ropert there is a cure on the horizon aims to cure hearing loss and tinnitus fx322 or 0T0 131 treatment drugs in clinical trials n us

@sangeetasanjiv thanks for your kind message.

I've had tinnitus for 10 years in my head 24-7 from a lost of i pitch hearing. They told me mine were terminal and Chronic. My Doctors put me on a diet it keeps mine down at a low level The buzzing sound gets loud sometimes. Not often. Only when I eat a lot of sugar. Salt. Spicy foods. Maybe one day they will come up with a cure God Bless!

Thanks for your comment Eloisa, it's tough but thinking in terms of proactively managing rather than waiting for a cure is a truly positive and empowering step. We all have it within us to live happy and successful lives with tinnitus.

@@TMinus-Tinnitus-Wellness Thank you! I know. But medicine is too slow. I had to make several researches on my own to create a way to deal with it -- and I went to several doctors until I found one that truly helped me. Most of doctors can only say is that "there is nothing to be done", but there are plenty of things to be done, like meditation, silence, stretching, soft music, sounds closer to the one we hear but with some kind of melody, warm bags, physical therapy for the head, shoulders, neck... also reducing the stress, proper quantity of water, restriction of certain groups of food and even medication. I do all of these things to make my life better (and it is important to say that in my case tinnitus is related to meniére disease, so I have way more symptoms than the noise -- some really bad).

@@eloisaklein1545 Thats awesome. You are doing incredibly well in taking these steps.

Susan Shore's device and potassium channel openers. Do people not do research anymore?

This is an old, outdated documentary. Much has changed in the years that have passed. The somber ending regarding 'no cure' is no longer relevant. A cure (for many) will come within the next 4 to 5 years. Go to the 'Tinnitus Talk' podcast to learn more from scientists working in this field.

Hiya Rob, thanks for your comment. Why don't you join us on one of our monthly group zoom calls, it would be great to hear from you. www.eventbrite.co.uk/o/t-minus-31142630029

Thanks for sharing @Chris. 8 is so young, do you know what caused it? How do you manage your musical hallucinations best?

@@TMinus-Tinnitus-Wellness I had a hole in my eardrum, which the ENT said would heal has I grew up, never needed ear grommets or anything like that, I was just told to keep water out of my ears. But if I’m honest I have neglected my ears over the years with loud music and clubs and such. So I have worsened the condition over time through my own doing, and I have hearing loss in the ear where I originally had my tinnitus. When I first experienced musical hallucinations, I thought I was going insane, I heard a particular Christmas song and assumed it was playing somewhere in the house one night, the same lyric going over and over, searched everywhere in the house thinking a radio was playing it and then I realised the music was coming from my head, certain sounds like fan generators and Vacuum cleaners amplified the music so it sounded very crisp and clear and it was extremely frightening. I took myself to A&A and had a medical evaluation, I was asked a number of questions to rule out any psychosis or schizophrenia. For a few weeks I tried my best to mask the song I could hear which tv and music from the radio but like I said before there were sounds that amplified it. It’s something that has come and gone through the years ever since I first had the musical hallucinations since the year 2000. I tend to notice it when I’m very tired, on any medications especially sleeping tablets or diazepam, and when I’m under stress, and strangely enough I can pick up other songs that might sound similar to the song lyric I hear. I don’t actually hear a whole song, I just hear the lyric of a song going over and over. Really I’d like more research done on my part on this condition as all though it is classed as musical hallucinations, most people with hallucinations are old and can hear full songs, rather than just lyrics going over and over.

you had sounds that dissapeared?

⁠@@GreenDayRomaniaVery much so, but the original ringing I had as a child doesn’t bother me, I rarely notice it unless I think of it

⁠@@TMinus-Tinnitus-WellnessThe musical hallucinations seem to come on when I have high anxiety, so it’s about keeping myself happy and calm, but listening to music on low and other musical sounds help. You see I don’t just hear different songs, I hear a particular Christmas song over and over like it’s a broken record, many people who have this condition often hear old rhymes or Christmas songs, it’s such a bizarre condition, it’s also known as musical ear syndrome or audio pareidolia, with the latter, people will hear certain sounds like singing or talking when they are around white noise like funning fans or engines, running water or machinery

Thanks for sharing your experiences James.

So james u in good place now? Whats ur level now may i ask?? Goodday

thanks a lot for this observation

Hi Stephen, Yes going into those quiet environments can be the hardest times. I always have my sound therapy on through the night at a low volume.. it offers that background noise that means you aren't in the quiet, listening for the tinnitus. Let us know if we can be of any support to you.

@@TMinus-Tinnitus-Wellness hi thanks I might just do that and get in contact , I am going through a bad spell at the minute with it , a continuous tone in the right ear plus partial deafness, and my left a totally different tone all of these constant, being outside helps as other outdoor noises help blot it out , what I would give for silence,

@@stephenbramley9405 I totally understand, please check out our events page on our website - it would be great to see you on one of the calls.. t-minus.info/events/

@@stephenbramley9405 hi there is a cure on the horizon fx322 or 0T0 131 aims to cure hearing loss and tinnitus in clinical trials in us

How long have you had tinnitus? That feeling you have, I was there once. I’ve had tinnitus since I was 8 and I’m now 38. Believe me it’s funny what the mind can do.

Sorry to hear about your struggles. I have had tinnitus for a few months now after a concussion. I do have high frequency hearing loss so my audiologist recommended getting hearing aids with the Tinnitus masker from Starkey. So far I have been using them for a few days and they do help with the ringing. I’m hoping over time it will reduce the noise in my head. But we all need to hang in there. Hopefully a cure will be around the corner and we will all have that silence again that we so crave!

don't worry. we will have cure in mid 2020s.

@@NatesTepsin I pray every day.

Hey @Vance Hardman, sorry to hear you are struggling my friend, please feel free to drop us a message on hello@t-minus.info if you'd like to talk further.

Hey @etnad yarag, hope you are coping ok my friend.

You lucky, mine ringging all the time

Hi @Mickey, why don't you drop us an email at hello@t-minus.info

Thanks for sharing Andy, please feel free to reach out if you feel we can be any support.

Hi Alan, thank for sharing your experiences, please drop us an email on hello@t-minus.info, we'd be very happy to chat more.

It will get better... There are peaks and troughs... and there is only one good thing about a tinnitus Spike and that's knowing that it will be not so invasive in the coming days or weeks. Although, it does not stop, it will get better. Try not to fixate on it. I know it's easier said than done. At night it's at my its loudest, unless you are in a trough. Lack of sleep is so horrible but over time people you should be able to habituate with tinnitus. Good luck and know it will get better!

@@john5564fg Very true.... I've only just found this out... So I'm not sure if it will keep doing the job it's doing because of the normalization of taking some pharmacuticals over time. Although what most doctors don't understand is that people with tinnatus will try ANYTHING to reduce their anguish! I'd rather be on a low dose of pharma Vali um and live a productive life than just in total despair 24/7!

@@john5564fg also there is a way of turning back.... It will take some time but just reduce very slowly! Me my self, I would rather take a valiim a day and have a life than not! It's a no brainer! Good luck. Also, GOOD LUCK IN TRYING TO PURSWADE YOUR DOCTOR TO PRESCRIBE THEM TO YOU!

@@caiotefu9856 i was taking xanax about 9 months for tinnitus and i tapered it on 10 days. This drug is godsend for onset conditions and on very stressful days. That's said i am off it about a year and i am taking it rarely (1 per 50 days i think) when my tinnitus is of the roof.

Hi Susan, please drop us an email at hello@t-minus.info There is a lot we offer for free for starters and I would be happy to signpost you to those tools.

@@john5564fg It's better than having no life, though! That's for sure! The real problem is trying to persuade a doctor to prescribe them instead of having to go onto the black market and God knows what you will be getting then, it's such a f***** up place 2 be! I wouldn't wish it on my worst enemy!

Hi - you can email us at hello(AT)t-minus.info to speak to Rupert - all the best

Hi @Rebecca, please feel free to drop us an email at hello@t-minus.info we can look to support you further.

Thanks for sharing your story with us Liam, there are many factors to why ones tinnitus might begin but hopefully you are able to learn how best to manage your symptoms, if you would like any support please do join our private tinnitus support group...we have lots of great discussion here: facebook.com/groups/tinnituswellnesssupportgroup

Hey @Max Common, I also got mine when I was 22. I hope we can be of support to you, the likes of which I never had at your age. Don't hesitate to reach out.