Choosing music over meds, one man's quest to retrain his brain to overcome dystonia

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Күн бұрын

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@amberl4401 7 жыл бұрын

This gives me hope. I've had dystonia since 2003. It got worse after accident which was caused by drunk driver. It's a miracle me and my family still here. Even though dealing with pain all time. I will try dancing. It does seem like it help loosen the muscles and get the brain working. It be nice for a cure for dystonia. I've tried massage, ice packs, heat pads, physical therapy and dry needling. It has helped for awhile then comes back again. It also has helped my posture. My neck would want to pull to the right and down. The dry needling would make me sore few days then better with straight neck. Now I've just been trying tiger balm. It has helped relief some pain. I'm glad there is speakers and a form on Facebook for others to connect. It took a year for my doctor to figure out what it was. He studied about it. We are not alone in this God has a purpose for us and we should do our best. I use to play the guitar at church unable to. I like to draw and music helps me to relax.

@Angeloquinn823 9 күн бұрын

You're amazing! You give me hope. I was diagnosed with CD in May 2024. You're so right. Doctors really don't understand, and the medication does not work. I hope you're still dancing and being awesome! God bless you ❤

@eleanorking3300 3 жыл бұрын

Thank you so much for putting yourself out there! Because of your post on KZfaq I met Joaquin Farais, expanded on the exercises he recommended, and am excited to say that my posture is changing so rapidly that I am feeling empowered in a way I never felt before. Dystonia is 100% reversible!!! I have survived it for 60 years and feel like I am gaining control of my body as well as mind. Thank you so very much and I wish you the best. My Dystonia was a symptom of PTSD and ADD. My goal is to do a Ted Talk to share the specifics of how I found healing during the 2020 pandemic without drugs, or any other help, but rather by applying every thing I have learned in life during my isolation. Thank you!!

@anastasiabarbadonis498 2 жыл бұрын

how can I contact you directly Eleanor . Anastasia ( Australia )

@TomeRodrigo Жыл бұрын

That's cool.

@ShadowFai20 3 жыл бұрын

This video is a great inspiration for me because I love to dance and I still love it I was diagnosed with dystonia last year and it was hard for me. Being so depressed, not being able to do anything. People staring, I didn't even want to leave my home. Looking up so many stories with people with dystonia is so inspirational until I ran into this one and he's a dancer just like me and that fill my heart up with so much hope. You can tell his smile his body position he loves it and that's his treatment and I want that to be my treatment so this is the greatest video I've ever seen and this is my inspiration. Thank you

@arthursimsa9005 2 жыл бұрын

Courage !

@macintoshimann9892 Жыл бұрын

Fight!!! I found this video when I started to recover. Seeing this man smiling while he danced made me want to do the same even tho I always thought dancing was silly. In time I started to realize how easy it was to give in to the compulsion to move correctly when music played! Now I’m starting to notice a background soundtrack playing in my mind where there was just dystonic noise before. It helps me dance through my whole day even if it takes the form of normal movement! Its also become a lot easier to talk about the condition so I started to say things in public like “im sorry that came out kinda weird and I need to learn to use my voice right, let me try again” and taking away the embarrassment has really left the disease pretty powerless. If you still struggle with wanting to hide away I’d really suggest telling a stranger what’s going on. When you realize they don’t hate you it’s a lot easier to be around others and what I’ve seen is that a lot of people are so inspired that it’s something I like to share now! About a month ago I was picking up a delivery that a kid handed to me overhead. “You got it?” He said as I struggled to get my arm up clumsily. “Oh year Ive got it! This shoulder didn’t use to work but I changed that!” “What? Really?” “Yeah dude anything is possible 😉”. The next time I grabbed something overhead it was much easier because I remember this good experience instead of the dysfunctional times I’ve tried to reach in the past. Its allowed me to turn the worst thing thats ever happened to me into something that actually inspires me daily to keep pushing. It all works together. Hoping there’s something you find useful here you will recover too!

@sarai2sarah734 5 жыл бұрын

Wow Frederico is amazing! God Bless you and your healing! And all else with this healing.

@christophermiller3031 9 жыл бұрын

Federico, you're story is one of endurance and inspiration. People can find therapy in so many ways, and I hope you're still dancing :) I've reposted for you cuz I saw it was you who made the 1st comment. I saw your bike video already.

@christophermiller3031 9 жыл бұрын

*your

@powerdisney 3 жыл бұрын

Returning to ballet aged 50 removed balance issues for me ...it was like re wiring brain pathways

@cozyteascones8978 7 жыл бұрын

I am happy for Federico. A few years ago I attended jazzercise classes (dancing/exercise) and found that while dancing my symptoms disappeared, but when dancing was over they came back. Have been getting botox for a long time and have decided since November 2016 to try to go without botox. My head wants to turn to the right and not the left so I am trying to train my brain by turning with difficulty to the left. Perhaps dancing at home will help in the long run for me even when the music has stopped. Thank you for the video.

@AimeeJoshJensen 9 жыл бұрын

How amazing of this man to do a video to show the world!!!! (my husband has chronic akathisia and dystonia from medications)

@Alice-kq9li 2 жыл бұрын

He's so inspiring (and handsome)

@macintoshimann9892 Жыл бұрын

This video has been so helpful to me. I was just starting to figure out how to use my body in new ways using music to reduce the full body electrical storm into something I could tolerate. In time I could walk normally with music on… I saw you dancing and I realized tho I’d never been a dancer my body wanted to do something new when music played… it wanted to dance through life! I managed to do a push-up and ran to the gym to get a membership. I started weightlifting again and notice the urge to dance when music comes on turning into the compulsion to move normally! Like you, I discover new things daily, and wonder if this condition isn’t so treatable I might call it cured one day. I see nothing but hope for patients with dystonia! In the gym, I’m not sick. Sometimes I walk pretty funny but there’s nothing to laugh at when your easily lifting over 300lbs with a movement disorder 😃

@Kristian-sd7up 10 ай бұрын

I like the way you said " Electrical storm " that is just so me...

@macintoshimann9892 10 ай бұрын

@@Kristian-sd7up I think I turned into lightning ⚡️ along the way 😂

@Kristian-sd7up 10 ай бұрын

@@macintoshimann9892 Well Heck, Maybe I can too ! 😄

@macintoshimann9892 10 ай бұрын

@@Kristian-sd7up definitely give it all you have! I posted a video when my right side started working again I was so happy! Neil Durrans and Hope For Dystonia are two channels that have info on recovery. Can verify Hope For Dystonia is correct on psychedelics. Can verify also that hypnotism works well too as Neil Durrans supports. This illness isn’t what science tells us, it’s treatable 100%. Go get your health back!

@Kristian-sd7up 10 ай бұрын

@@macintoshimann9892 Sometimes I do feel my life is over- but miracles happen - Thanks for the encouragement!

@paulineburke7965 3 жыл бұрын

Me too! I have Dystonia and what works for me is singing and dancing! 💚💙

@sarahfinucane2185 Жыл бұрын

I found out I have distonia a week ago. Music is my muse in life I have stabalised and dancing well within a week I am so proud of myself and this inspires me soooo9 much thankyou

@jenchinburg7424 9 жыл бұрын

Wow, this is so inspiring. I love it! Thank you for sharing your story. I have spasmodic dysphonia and I can literally feel my brain "relax" and click into a more comfortable space with different kinds of music. I think I need to start dancing!

@macintoshimann9892 Жыл бұрын

That was the first thing I noticed with music... a little better. I ra woth that feeling til I was able to get around with headphnes on. Then I got back to the gym, now I feel like im healing! Run with it, recovery is possible!

@ohh338 8 жыл бұрын

wow, I'm so happy for him!!

@leifbennett1354 Жыл бұрын

I suspect it's the equilibrium getting as much exercise as we can, that gives us a base of stability for the rest of the neurological system to build on. The equilibrium problem doesn't get any talk about it. I bet everyone with dystonia will agree, it's the biggest battle we don't even think about or talk about. I think it's core to the relearning process. We get pulled more crooked without the balance of the equilibrium working. Brother Insights Chi Gong exercises work excellent for me.

@skittles732003 8 жыл бұрын

Oh wow that's fantastic! my Dystonia is very similar to that, though I was born with mine, it started in my speech .. I excelled in dance when growing up and I find I'm more confident when dancing :-D

@michaelw.9775 5 жыл бұрын

Dr. Farias treated me as well. I've been symptom free for over two and a half years.

@BB-uz8pn 2 жыл бұрын

Wow! I’m doing his program and stopped for a while as I my symptoms increased after. I want to start again but nervous

@dystoniaovercoming9145 8 жыл бұрын

Im starting something big and I just like you to participate on it! Thanks. You whee my hope and support in my worst moments.;)

@erinavenant2387 3 жыл бұрын

I'm an RN preparing for my psychiatry practicum - this video is inspiring and beautiful, and I hope to carry things like this into my practice. How is Federico doing now??

@youejtube7692 2 жыл бұрын

@Erin Avanant - have you seen this Ted talk he did later that year? kzfaq.info/get/bejne/et2be65k18yvf2Q.html

@macintoshimann9892 Жыл бұрын

Not sure how hes doing but he inspired me to try and recover. Now i wake up to miracles everyday! Anythng is possible with dystonia

@leslielucyameto2603 9 жыл бұрын

Grazie Federico Bitti e Joaquin Farias!

@annamaria0815 11 ай бұрын

Ein Hoffnungsschimmer für alle Dystonie Patienten, zu denen ich auch gehöre. Meine Dystonie begann in 2015 und wurde bis 2019 immer schlimmer. Tanzen hilft auch bei mir, alle Symptome sind weg, weil ich durch das Tanzen wieder die Leichtigkeit spüren kann. Seit 2020 geht es mir nach sehr schlimmen Zeiten stetig besser. Ich bekomme zwar noch Botox, aber momentan bin ich ohne und es ist trotzdem noch richtig gut. Ich hatte vier Wochen lang regelmäßig Schädel- Akupunktur mit einer Super Wirkung. Den Arzt finde ich klasse, er beschäftigt sich sehr mit der Krankheit und sagt unter anderem, dass ein Trauma der Auslöser der Krankheit ist. Den gleichen Gedanken hatte ich, als ich nach dem Auslöser für meine Krankheit suchte. Nun stellt sich für mich allerdings die Frage, wenn das Trauma aufgelöst wird, kann dann die Krankheit komplett wieder verschwinden?

@anasilva-xi8xt 6 жыл бұрын

Thanks Federico

@mjmmjm5370 2 жыл бұрын

Amazing story!!!

@barbarawoods8716 4 жыл бұрын

God bless you! I’m going to try this for mine!

@JimmySkaggs 2 жыл бұрын

Just discovered I may have Dystonia today. Apparently, a lot of times in my life, I've involuntarily jerked my head around and it's gotten more pronounced. At least I have a name to the condition. Federico gives me hope v

@IAMGiftbearer 8 жыл бұрын

I am pretty much wheelchair bound and looking for somebody in the Atlanta area to help me do this. If anyone can put me in touch with someone nearby I'd appreciate it.

@matsidisobambo3921 3 жыл бұрын

You got rhythm in your moves.

@kumargowda4433 Жыл бұрын

@bouvier0407 8 жыл бұрын

Amazing

@kumargowda4433 Жыл бұрын

My same problem

@sryjk 2 жыл бұрын

Use lions mane mushrooms supplement with black pepper

@snehasoyam7768 2 жыл бұрын

I hv torticolsis feel the pain😔

@TheMichaela67 5 жыл бұрын

Amazing

@adriangabrieldias Жыл бұрын

music is the cure my tounge keeps sticking out try eating black seeds

@ri_rie_ange Жыл бұрын

💙

@adriangabrieldias 2 жыл бұрын

i got this and I am afraid to go to the hospital they pull my things without my things they let me stay inside a hospital in the state of Kuwait

@adriangabrieldias Жыл бұрын

i fell down in the washroom

@kathygroeneveld9022 Жыл бұрын

How you doing now frederico? Stillcdancing for treatment.

@jonathanward9536 2 жыл бұрын

Cogentin 2mg, propranolol 20mg twice a day, riaperdal 1mg twice a day,, song and dance,,,take it easy,, be safe

@jamescontactyelena 6 жыл бұрын

what if you can't dance... :(( when I move my dystonia worsens

@TomeRodrigo Жыл бұрын

That's super cool. Sometimes what may happen is that certain food will suddenly become irritating your immune system that will be creating certain antibodies that will be attacking your nervous system, and one symptom of it can be the unexplainable need to move your arms or head or whatever. It may happen with Milk products or gluten mainly (also prolamine protein in all grains). When not eating those products, the sensation from the nervous system can completely disappear. (I've read it somewhere)

@DZ-mo3yf 2 жыл бұрын

اينا هاذا الشفاء

@gulsahe.8548 3 жыл бұрын

Keşke Türkçe altyazılı olsaydı

@amelias6858 9 жыл бұрын

Oh wow. Dance!

@gracehunter6279 Жыл бұрын

Romans 10:9 ESV if you confess with your mouth that Jesus is Lord and believe in your heart that God raised him from the dead, you will be saved. John 3:16 16 For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.