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I was diagnosed August 2023 with ME/CFS, after symptoms began in 2021 and I'm so excited to have found this channel and I can see how much content you have already!!

Thank you Toby and Ash

I’m the person who tried to do everything for everyone. I was teaching full time and had 4 children, ages 3,5,7 & 9 when I became ill (in 2009).

I want to believe I could get better, I have been told it’s impossible to overcome ME/CFS after having it for so long, ( 6 decades ) I do really well, work really hard at putting a lot of effort into getting well and managing my health. I thought I had to accept the fact that I wouldn’t be able to fully recover. I can relate to moving through those different levels. I want to go further, to believe I can create a fuller life for myself.

Fantastic video! I'm a member of your Mentorship program and it is amazing. When you said, "CFS is a Spiritual Crisis" , I burst into tears. YES. It is. Thank goodness your program is here to help. I've moved a long way up that triangle!❤

Ty for the “shout out”!! What a great podcast . A huge benefit for me occurred when I lost my husband . Having been through your recovery program , my coping with this loss was lessened because I applied the principles of MINDSET AND BASELINE. There are so many tasks involved , even after the burial. So many legal matters . Many times I found myself “pushing” to get things done . Reflecting on my training I was and still am able to perform necessary tasks daily . Some days more , others ,less . That is okay .Knowing that everyday will be better , keeps me moving forward . I am reminded of the papaya trees I planted and shared one fruit with Toby; I have one tree remaining which is still bearing fruits !! A LITTLE BIT EVERY DAY GOES A LONG WAY ! Your Recovery Program has brought me so much enjoyment in many activities , everyday 👍❤️

Much gratitude for your podcast! Totally resonated with what you said there! I am still battling with “ trying to be brave to make others comfortable!” It sounds nuts to think some of us do this ? I battled with a loss of identity for a long time! Then feeling like I was put under a label of “ disability “ which I hated with a passion! Even though my symptoms are debilitating! I’m still a person, and yes very active before! It does take you on a spiritual journey. And I believe you go through a “ bereavement of the self “ which goes on for years! I am starting to use the words; “ I am on a healing journey!” I don’t identify myself as my health conditions. I am not pushing it away , but telling myself I am beyond all of this! But, I still fight against the “ trying to be normal ( whatever that is?) to make others more comfortable, than explaining my own suffering! I am sure there’s many people like this? I think because some of us were so independent and resilient. Then we almost make life harder for ourselves to try to fit into the “ norm !” And then frustrated, that we can’t function the same ! It’s a push and pull against asking for the right help whilst holding onto what independence we have! Some of us struggle to ask for the right help , because before in our lives, we were so used to being dependent upon ourselves and when this is taken from us it’s tough and we battle with our identity l think 🤔🙏💜 much gratitude beautiful soul 🙏🦋

This resonated a lot! I had chronic pain and associated fatigue/depression for about 8 years, slowly I just lost myself, passions, style, self worth etc and I felt very miss understood- people seems to think I was lazy and this was just my personality, that I didn’t “want” to do anything. During the pandemic I got better and took control of my health but I did this in a very solitary way and I didn’t resonate with anyone around me, so I left to go on adventures seeking something more suitable. I found myself trying to prove myself, and show everyone that I could do things, I really pushed myself - I literally climbed mountains, started building things, lived off grid, outside (even over winter) I was enjoying myself but I do remember having this fight in me that wouldn’t let anything slow me down and wanted to prove that I wasn’t a failure or lazy or that I’d made the wrong decision (esp as my family thought I was crazy for doing it, but I had no money and thought I couldn’t work due to the pain so I was like this is the only way and I HAVE to make it work) So when some challenges came up (e.g. an unexpected and emotional surgery) I still didn’t stop, the fight in me just got stronger, I refused to pause. And then life just got way worse, way harder, way further out of alignment and I was pushing and lying to myself and desperately trying to prove to people I was okay and also thinking there was something wrong with me on a fundamental level, so I went to loss of healing retreats like vipassana etc and took shit to the extreme. And then. And then I got covid. And I still pushed….. and I’ve been angry because I thought this old person was better and I wanted her back so desperately that I carried on. In the sickest state, pretending I’m fine when everyone can see I’m not. I have been so desperate to prove and show people I’m okay and can do this stuff by myself and to show my parents I’m not lazy or dumb and I’m a capable person. It’s been two years with long covid and it’s really only now that I’m starting to let her go and stop pushing/proving. I am temporarily at my parents again which honestly just took so much time to accept the support. But now I’m calmer, I’ve stopped pushing, and I’ve found these videos and I’m starting to accept that maybe I could make something better going forward. I still find myself dreaming of past times and past me and all the fun things I did and wanna do again, and I definitely feel this identity crisis all over again - it’s hard not to identify with the illness (and get seen as a person that doesn’t brush her hair and only wears baggy clothes etc) But these videos have been resonating a lot and helping me to relax into this journey. Thank you 😊

Thanks for all your videos. I'm finding them soooo helpful 😊

Toby you are amazing, thank you 👍

Absolutely agree! I feel the Spiritual aspect is essential. Illnesses are a deep call for deeper awareness which allows for deep healing. Probably one of the hardest lessons but completely possible. Thank you for speaking to this, Toby. Your videos are a little flash light in the dark night of the soul time. Blessings to you and to everyone on this path oxo.

So debilitating I used to lye in bed and choose if I could get up close the curtain or go to the toilet. I got well and I can tell you how this happened.

Before I was diagnosed with SLE, I would sleep 20 hours a day, when making one cup of coffee I would have to break down making a cup of coffee into three sections with breaks in between of 10/15 minutes, it took nearly an hour to make a cup of coffee. Then I would be exhausted. Now, and 16 medications later for SLE, I can make 2 cups of coffee in ten minutes and no breaks. I still have CFS, I find it difficult even cleaning my house. Recently heard an explanation which is, we all have a ceiling for exercise, people with CFS have a very low ceiling but the there's another group of people whose ceiling is lowered each and every time they exercise ie make a cup of coffee for instance. That's me.

Yep

Amazing video, thank you!

Had the potential to be an informative show but unfortunately I felt that Toby kept repeatedly making the same inessential points so it became a bit redundant to me at times. Also, really Wish I could’ve heard a bit more from Ash on the subject matter, I’m sure she would’ve been able to offer some interesting ideas and insight of her own had she been given the opportunity to get a word in edgewise. 🤷‍♀️ Sadly, I felt a little cheated by this, however, this is definitely a debilitating syndrome to have to suffer from so I’m looking forward to more pod casts on this topic. Thanks for posting on it! ❤

Oooh where can we access the Lifestyle Reintegration course?

Great video ❤

What if you have no family or solid friends you can lean on & single in mid life?

Hi Toby, i follow your channel for manny years now. I did the recovery step by step and after 5 years i was back in life integration state 3 half day of volunteer work i was deining the past 2 years. My body and mind was ok with that progress. But suddely i had two week of gut problem diarree. And stil that moment i am back in shutdown modus with all my old systhoms But worse. It is now 4 mounth going on. Is that normal that kind of sitbak. Sorry for my bad englisch i m from belgium.

It is a spiritual crisis 100%