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I DON'T feel like I have Cystic Fibrosis anymore?! Trikafta Week 3

  Рет қаралды 22,224

Morgan Solo

Morgan Solo

Күн бұрын

WHAT IS HAPPENING TO ME?! TRIKAFTA, THAT'S WHAT IS HAPPENING!
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Пікірлер: 206
@nitab1211
@nitab1211 4 жыл бұрын
What a difference 6 months have made for you. Thank you for staying here. Thank you for not giving up. I’m so happy for you. This is amazing and insane all at the same time. Never knew that watching you breathe could be so emotional and beautiful. You were worth ever single day of staying on your ass. I immensely love you my first born. ❤️
@91jjaaddee
@91jjaaddee 4 жыл бұрын
Well done mamma bear on raising this amazing, strong individual. Well done for being one bad ass mum 💜
@nitab1211
@nitab1211 4 жыл бұрын
Jade Undrill thank you sweet girl. ❤️
@DC-bp8sx
@DC-bp8sx 4 жыл бұрын
Anita B will this medication stop his lungs getting worse? Will it stop them getting any worse? Ive just started learning about CF today and started researching it, its heartbreaking and I’m so happy to hear about this new medication
@nitab1211
@nitab1211 4 жыл бұрын
D C from what Morgan has explained to me I know the medication will increase lung functions. As for it helping to stop CF from worsening, I’m not really sure. After listening to Morgan for 29 years never being able to breathe this deeply without coughing up his lungs, I am so very hopeful that it will help in many many more ways.
@alannacarlson6715
@alannacarlson6715 4 жыл бұрын
Aww You made me cry!
@halarahnjunk
@halarahnjunk 4 жыл бұрын
im the same way. i noticed im able to carry my daughter effortlessly now. shes 43 pounds and i am only 4'9 and 90 pounds so it was difficult for me to even pick her up let alone carry her any distance. now i can pick her up and carry her anytime she wants me too without getting breathless and its amazing!
@DC-bp8sx
@DC-bp8sx 4 жыл бұрын
I’m so happy for you, a random stranger off the internet. I know that’s probably weird but I’m just learning about CF and I’m so happy you guys are getting some relief with this new medication.
@umbrellasaltysalmon
@umbrellasaltysalmon 3 жыл бұрын
So happy for you Haley. My infant daughter was just diagnosed right after birth. Hearing stories like yours gives me hope for her.
@lkm3s
@lkm3s 4 жыл бұрын
Your cough!!!!! That is aMAzing! My brother had CF and I remember SO clearly that "CF cough!" You sound so clear, and you look super healthy. I read in one article that it will be similar to diabetes so more like a chronic management illness, but not life limiting. Is that really the case? CF broke my heart 20 years ago, and it makes me feel healed to know that so many people won't suffer through those horrible symptoms. Its great to hear the huge difference in your speaking, delivery, enthusiasm, and oxygen!
@CityGamingVideos
@CityGamingVideos 4 жыл бұрын
I lost my girlfriend in 2011 to CF and it's so cool to see all this new stuff coming out to help people. Good luck!
@feliciadarling_xoxo2934
@feliciadarling_xoxo2934 4 жыл бұрын
So happy to hear you are doing so well and that this drug is helping so many! You sound so different!! Sending hugs !!!!!
@melmag3179
@melmag3179 4 жыл бұрын
Felicia Darling_xoxo I agree! He sounds different! Happy! Hopeful!☺️
@sharrahelena465
@sharrahelena465 4 жыл бұрын
That hair cut tho!😄 I am glad you feel more energetic!
@sharrahelena465
@sharrahelena465 4 жыл бұрын
@@kathrynseton1 agreed :-) I know he's smart and strong and always keeps pushing and is a good example of not giving up and I admire him for that then there's that part of me that superficial and is like... girl, he is hot!🍌🍒😍🔥
@remis2586
@remis2586 4 жыл бұрын
Duudeeee, that's seriously insane! I'm really excited for you and everyone that get's to try trikafta! I actually tried inhaling and exhaling after you did it and I started coughing like crazy. It made me think "what if I could do that and not cough a single time?" That would honestly be like a dream. Unfortunately it will take a lot longer for trikafta to be approved in my country. According to my doctors I might get my hands on it sometime next year in autumn. But just hearing your results is mind blowing and it really makes me excited and happy!
@pamelavl2523
@pamelavl2523 4 жыл бұрын
Can you ask your doctor to sign up for trial? Contact drug company directly. I hope you can figure out a way.
@staceymounce2502
@staceymounce2502 4 жыл бұрын
You seem better than most “normal” people. I don’t think I could keep up with you right now. You’ve got way more energy than I ever do. It’s amazing. I think you gained superpowers.
@KateEveling
@KateEveling 4 жыл бұрын
This actually made me tear up a little... so much REAL hope for the future! Cannot wait for it to come over to the UK 💛 thanks for sharing Morgan!!
@CrystallynnC
@CrystallynnC 4 жыл бұрын
I don't want to rush my sons growth, but I literally CANT WAIT until my son is in the age bracket to finally receive this miracle treatment!!
@maricelamora7607
@maricelamora7607 4 жыл бұрын
I hear there are trials right now for a triple combo but for younger kids 😀😀😀
@tamberjune
@tamberjune 4 жыл бұрын
Morgan you've been making me tear up, in the best way. Your life now is So much different than three months ago. Even three weeks! I'm so glad. Maybe I'll send you some flowers (:
@lisakay8288
@lisakay8288 4 жыл бұрын
Congratulations! You have come SO far in 6 months & you should be SO proud! The growth in life you have made is incredible & it’s only gonna get better!
@lassliegen
@lassliegen 4 жыл бұрын
I don't think I've ever gotten this much joy out of listening to someone talk for 23 minutes straight. Morgan, I can't even express how happy I feel for you and how glad it makes me to hear that your hope is shining brighter than ever because hope is vital. I don't think I've ever felt this delighted to see someone gain health, hope and joy but I couldn't be happier for you. You deserve this. Your friends deserved it. And everyone to come in need of it deserves it. When my mum told me that they suspected I had CF as a baby, I never quite understood the gravity of what that would've meant for me, for my life but you've been helping me understand and be so _so_ grateful that that test was negative. I'm giving you one hell of a hug right now. Thank you. ~Liza
@crystalh3248
@crystalh3248 4 жыл бұрын
The video of you, matt, tommy doing those stairs in Seattle. Is proof enough of how hard stairs used to hit your lungs! I am so happy for you! Watching you be able to truly take a deep breath, is incredible! Watching how far you have come in the last 6 months!
@eandg330
@eandg330 4 жыл бұрын
💙💙💙😁 So happy to see this healthier and happier you!! My son is waiting on his insurance company to approve him for Trikafta. He's 21 and his lung function has been in the 30s for 2yrs now. Seeing your results has given us hope.
@codename495
@codename495 4 жыл бұрын
eandg330 I hope his lungs respond well!!
@aamnawhd24
@aamnawhd24 4 жыл бұрын
You're not even tiring whilst talking and didn't need to cough! this is truly amazing... I'm so happy for you, Morgan!
@UNITEDWEFALLthemovie
@UNITEDWEFALLthemovie 3 ай бұрын
Hi Morgan, I just wanted to thank you for giving me hope, a am a father with a daughter who is 2 years old who just received TRIKAFTA today, your words of inspiration I kept as hope these last 2 years of the fight, wholeheartedly thank you so much for helping parents and other children in this community!
@kimberlykirby8093
@kimberlykirby8093 4 жыл бұрын
I don't have CF but i do have 2 rare diseases. And I just binged watched almost all your vlogs in 4 days. Thank you for sharing your energy and being so real and open on how life is. So refreshing. You are awesome!!
@tiredandcaffeinated
@tiredandcaffeinated 4 жыл бұрын
We are all so happy that you are still here to experience this amazing medication. 💜 Never give up, Morgan
@obsessivehobbies5464
@obsessivehobbies5464 4 жыл бұрын
I can't wait until my girls can get on it. they're 4 and 8.
@mbnich0269
@mbnich0269 4 жыл бұрын
What age are they allowed to try it?
@moth1508
@moth1508 4 жыл бұрын
I have two boys with cf, I feel you!
@toria1209
@toria1209 4 жыл бұрын
@@mbnich0269 12 and above!
@kassperilla2303
@kassperilla2303 4 жыл бұрын
It is so great to see what a difference this has made for you. Another KZfaqd I watch with CF has had similar results. In fact she was preparing for transplant in the near future. Now she can put that thought to bed for a while. Just the change in your mood makes me so happy for you.
@Christina-sw5di
@Christina-sw5di 4 жыл бұрын
I am freaking thrilled for you and all the others with CF who are getting Trikafta and able to feel this amazing relief!! I love how you look and sound so great!! My son (12yrs old) starts the process to get Trikafta in a week!!
@raksha6234
@raksha6234 4 жыл бұрын
🙂 i hope you continue staying happy and healthy ..
@aprilgriffin9218
@aprilgriffin9218 4 жыл бұрын
As I watched this video I was clapping and laughing and giggling with joy for you!!!! I am over the moon that Trikafta has blown your mind like this. I just want to say that I am thrilled for you and I love seeing your mind being blown like this. Sending you love from Atlanta GA.
@pamelavl2523
@pamelavl2523 4 жыл бұрын
So glad you see improvements. It's exciting to listen to you. On not having your stuff for work. Prep ahead of time, double check meds in your car night before. Pack lunch the night before.
@vincentjflorio
@vincentjflorio 4 жыл бұрын
The blow out for the PFTs was impressive. The inhale back with no recovery? Literally astounded.
@Trexrush1
@Trexrush1 4 жыл бұрын
If my insurance could approve the drug sooner, thatd be great. The day i get on is going to be a spectacular moment Update. Took first dose today!
@Trexrush1
@Trexrush1 4 жыл бұрын
@@kathrynseton1 thank you! Luckily im doing ok rn healthwise, but I could use the benefit of not feeling like shit every morning and eating breakfast at 4pm
@melmag3179
@melmag3179 4 жыл бұрын
When I first was diagnosed with MS, in 2016, my insurance didn’t approve of the medication my doctor wanted to put me on (Tecfidera). They wanted me to try an older drug. They said if I has a relapse THEN I could go on the new drug. My neurologist went to bat for me! She was like “This isn’t the 90’s anymore!” My insurance caved and I was able to Tecfidera. Can your doctor do anything to help you?
@melmag3179
@melmag3179 4 жыл бұрын
Trexrush I’m praying for you, by the way!!!
@DC-bp8sx
@DC-bp8sx 4 жыл бұрын
How did it go?
@staceyd8165
@staceyd8165 4 жыл бұрын
Wow!!! Morgan...Just wow. The difference even in hearing you talk. Like normally you have to cough or clear your throat and it didn’t even sound the same this time. Thank God for those amazing doctors and scientists for making this medicine. Sending love and huge smiles from Oz.
@rowleyproductions3093
@rowleyproductions3093 4 жыл бұрын
Hey man. I’ve been completely taken off of enzymes because of being put on Kalydeco. Completely off of my vest and nebulizers. All I’m on is Kalydeco. I wanna see you get to that point. When that happens you feel completely normal. It’s an amazing feeling.
@juliececerle3014
@juliececerle3014 4 жыл бұрын
Wow! I am so happy for you and everyone else who is taking Trikafta now! This really is a big step for the whole CF community.
@catieandthebopeeps
@catieandthebopeeps 4 жыл бұрын
This is exciting! I’m so thrilled for you! 🎉🎉🎉🎉🎉🙌🙌🙌🙌🙌🙌
@amandacasteel7810
@amandacasteel7810 4 жыл бұрын
Such an awesome thing to get to witness! So happy for you! My CF is not near as bad as most, but it’s so awesome to get to watch everyone improve health wise who have had to struggle for so long. Keep feeling good!!
@catloverKD
@catloverKD 4 жыл бұрын
I think you're probably in better shape than I am, and I'm normal! Please tell me we're getting a clinic vlog at your next appointment to find out what your numbers are. I'm dying to know how much they've gone up.
@NickyNorvege
@NickyNorvege 4 жыл бұрын
Hope it will arrive to the Czech republic soon :-) It is a real magic! Cant wait for it
@carjam49
@carjam49 2 жыл бұрын
Your excitement is contagious. I'm so happy for you.
@paytonbrooke11
@paytonbrooke11 4 жыл бұрын
I’m really happy for you! I hope it can continue to help you and make a difference in your life!!!!!
@lilbit_lupe
@lilbit_lupe 4 жыл бұрын
Love the fact that your are super happy. That smile you give when you are talking is the best thing to see
@zsbnovelties89
@zsbnovelties89 4 жыл бұрын
So happy for you! You sound 100%! Happy happy happy for you!
@rachy_pan
@rachy_pan 4 жыл бұрын
I stopped watching your videos a month ago for no real reason. The point is, I’m watching this video and I can hear that your voice is so much clearer you also seem a lot fitter and healthier. I’m super happy for you!!
@CappyMoon369
@CappyMoon369 4 жыл бұрын
These are the miracles in our lives we only read about...I feel privileged to be experiencing this miracle through you 😊 #theresjustnowords
@kimberlykennedy4247
@kimberlykennedy4247 4 жыл бұрын
You have every right to be excited. It seems you have a future you may not have really pondered before the new medication! So happy for you!!!
@codename495
@codename495 4 жыл бұрын
It looks like you’re a new human! Congratulations New Human!!
@ascendingfires
@ascendingfires 4 жыл бұрын
Exciting! You sound GREAT! I was waiting, and waiting, and waiting for you to clear your throat!! I cannot love this update enough:-)
@shannonwarren6588
@shannonwarren6588 4 жыл бұрын
My son can start it next months watching you give me a awesome feeling I’m so glad your doing so well my son is 5 about to be 6 on December 18
@ottakringcalling
@ottakringcalling 4 жыл бұрын
You look and sound so much better. I’m so happy this is helping you!
@Bestbirths
@Bestbirths 4 жыл бұрын
I praise your mom for taking such good care of you to prepare you for this day that you can gain so much wellness. I am so happy for you. You are an amazing responder. I hope you can go over to Dave La belle KZfaq who was at lung function 13 and day 9 of trikafta give him a word of encouragement. I am so happy for you!!
@nitab1211
@nitab1211 4 жыл бұрын
Shelly Nichols thank you. Love Morgan’s mom. ❤️
@stephaniethelander925
@stephaniethelander925 4 жыл бұрын
I am sooo excited for you!❤🎉🥂
@Tee84
@Tee84 4 жыл бұрын
I'm seriously Happy for you, and all the CF patients that are able to get this mediaction. I'm still thinking about the other 10% that can't, I hope their turn will come soon! And I also hope that this medication can get into other country too. :) So happy for you, really!
@alidiegashi8909
@alidiegashi8909 4 жыл бұрын
Ohhhh I’m so happy for yoouuuuuu!!! Hugs!!!!xx
@debbistewart2074
@debbistewart2074 4 жыл бұрын
SOOOO happy that the meds are working so well for you!
@yaq-yaq
@yaq-yaq 4 жыл бұрын
I haven't watched any of your videos in a while, so seeing this video was a pleasant surprise. It's good to see you're doing so well!
@jessicaweirup6386
@jessicaweirup6386 4 жыл бұрын
So happy to see you doing so well! I’m so happy that this new drug is working for you! I’m a Respiratory Therapist and I’ve taken care of my fair share of CF patients and I’ve lost a few to the disease and I’m so happy you’re doing so well :) xoxo
@chanelesmith8989
@chanelesmith8989 4 жыл бұрын
That's awesome, thanks for posting this! My son should hopefully be getting approved any day now and I'm super excited for him, especially after seeing this post!
@PrecisionTV-
@PrecisionTV- 4 жыл бұрын
Super glad you have this treatment! All us CF patients feel amazing thanks to modern medicine. I’m super grateful for science. Let’s continue to kick ass, my brother!
@thebrokenbreakingseas8317
@thebrokenbreakingseas8317 4 жыл бұрын
Wow, you sound great! I can hear the difference in your voice and speech patterns. That's incredible! Congrats, dude. I'm happy for you.
@rosemarys2465
@rosemarys2465 4 жыл бұрын
I'm so very glad for you. I know you might have some rough days in the future, but we all do. It's wonderful to see you appreciating your days...I wish more could appreciate the every day of life. It really is all amazing, if you get right down and think about it! Best wishes.
@rmjames83
@rmjames83 4 жыл бұрын
Im SO Unbelievably happy for u!!! I don’t have CF, but I can’t even do PFT’s without it causing a coughing fit!!! That was INSANE that big blow u did!! I’m SO happy for u!!! SO INSANELY AWESOME!!! Ur physical job is probably going 2 help u gain muscle!!!
@AlyssaSaldana1
@AlyssaSaldana1 3 жыл бұрын
I’m so happy for you. I’m seeing this a year late, but I’m happy to see you happy.
@iheartbewbiezx3
@iheartbewbiezx3 4 жыл бұрын
You look so excited, and happy, and it's the best thing ever. ❤
@MarieRhondelle
@MarieRhondelle 4 жыл бұрын
So happy for you!!!
@lori.sabrina
@lori.sabrina 4 жыл бұрын
This is so freaking amazing. Someone I knew passed away last week at 19 years old and she had CF. To see that things are getting better for people with CF is just making me so happy.
@karenlmcculloch
@karenlmcculloch 4 жыл бұрын
I smiled the whole way through your stories. Can't wait till we are successful in getting this accessible in Canada!
@reneenaynaysworld1782
@reneenaynaysworld1782 4 жыл бұрын
You look a lot healthier!! So happy for you!
@gioiaschonfeld2388
@gioiaschonfeld2388 4 жыл бұрын
I'm really really happy for you! 🎉 🎊 You seem to be doing really amazing! You don't have to be coherent, you just keep feeling how you're feeling! 😍
@jellybean4501
@jellybean4501 4 жыл бұрын
Awesome!!! I’m so glad the medication is helping!
@hime2004
@hime2004 4 жыл бұрын
Dude I am so excited for you! You are totally contagious with all the good feels!
@amybrown1161
@amybrown1161 4 жыл бұрын
I’m glad you are doing better I’m happy for you
@brittanywatkin3134
@brittanywatkin3134 4 жыл бұрын
This is so amazing! I love hearing these stories 🖤😍 I’m so so excited and happy for you.
@melmag3179
@melmag3179 4 жыл бұрын
So happy for you! I’m so excited for the breakthroughs they are having with chronic illnesses! I have MS. I’ve always felt fortunate that I really don’t notice it. I also am very fortunate to be on a treatment that controls the progression of the disease. I am confident that future generations won’t know what these illnesses even are!
@LM4210
@LM4210 4 жыл бұрын
I was smiling all the way through this video, Morgan! I am absolutely thrilled for you and everyone that Trikafta will help!
@karianne1970
@karianne1970 4 жыл бұрын
I can’t express how happy I am for you, Morgan. Watching you with all this energy, and all that smiling and gesticulating ? Damn, it’s fantastic. You do my heart good, my dude. ❤️
@palmtreegal3
@palmtreegal3 4 жыл бұрын
This is so exciting! It's honestly incredible
@mrssabre2946
@mrssabre2946 4 жыл бұрын
So excited to see what your future holds
@jodiemorgan6809
@jodiemorgan6809 4 жыл бұрын
I’m so happy for the huge improvement that your experiencing. I’ve said it before and I’ll say it again that Vertex pharmaceuticals needs to win a Nobel Prize for this medication. What an amazing gift they have created for the C.F. community.
@SnoWhiteSally
@SnoWhiteSally 4 жыл бұрын
This makes me so happy. The difference is really noticeable too xx
@mikaeladevries1776
@mikaeladevries1776 4 жыл бұрын
You look so much more energetic than the last time I watched you a few weeks ago. Im so happy you found a medication that is helping you!
@katherinechizk2023
@katherinechizk2023 4 жыл бұрын
So awesome! I love the videos where you "rant" and just say exactly what you feel, then just lay out the reality.
@Nf-pu7nl
@Nf-pu7nl 4 жыл бұрын
i started crying while you were talking 'cause I was so happy for you ♥️
@ionagreen5314
@ionagreen5314 4 жыл бұрын
My lung functions at like 85 and I’m 14
@kendallr3187
@kendallr3187 4 жыл бұрын
Dude, this is amazing. I love that you're so proud of yourself. I'm really happy for you. I have very bad asthma but the way you explained how painful life was, I realized how much worse people with CF have it. You actually helped me learn about CF. I know what's it like to be out of breath all the time. I'm so glad your lungs are getting stronger.
@tricia6276
@tricia6276 4 жыл бұрын
Congratulations so happy for you!
@PotatoThatGotAway
@PotatoThatGotAway 4 жыл бұрын
I'm smiling as I watch this! Pure joy! Pharmacy is our future, indeed. So happy!!! I dream of developing medication as this one so I can help someone get better! You look great!! 💛💛💛💛💛💛💛💛💛💛
@scarlett5506
@scarlett5506 4 жыл бұрын
We are happy for you.
@Speakeronwheels
@Speakeronwheels 4 жыл бұрын
I'm glad you are doing so well!
@seancolgan6983
@seancolgan6983 4 жыл бұрын
Bro you are looking so much better I have been following you for a few years now can’t wait for trikafta
@rheagalarneau1366
@rheagalarneau1366 4 жыл бұрын
This made me tear up. I can see in your eyes how wonderful you are feeling.
@JoJohXD
@JoJohXD 4 жыл бұрын
Man..... You're not the same at all! I'm so happy for you, I imagine how 29 years has to be and now you can experience things you never did, live it at the most (even the little things like a flower smell)! 😍😘
@MarcelaMotaM
@MarcelaMotaM 4 жыл бұрын
I’m so happy for you, Morgan!! This is awesome!
@jmbtlfx2
@jmbtlfx2 4 жыл бұрын
This is an amazing video. You are so awsome and are giving so much hope. Thank you!
@lona7560
@lona7560 4 жыл бұрын
IM SO EXCITED FOR YOU! i’m so proud of you for not giving up.
@bluekime
@bluekime 4 жыл бұрын
I‘m so happy for you, Morgan!
@mackenzien4246
@mackenzien4246 4 жыл бұрын
So incredible! Happy for you!!
@newfienurse65
@newfienurse65 4 жыл бұрын
Very happy this is so effective for you and others with C.F.. Best wishes for continued improvement.
@angryrat2159
@angryrat2159 4 жыл бұрын
I'm so happy for you. I can't believe that finally something with this cells is going on. I'm just looking forward to when Trikafta will come to Europe and I hope I'll be able to take it.
@brunacastro5466
@brunacastro5466 4 жыл бұрын
This is awesome!! I know I'm just a random person in the internet but I am genuinely happy that this medication is available and people are benefiting from it!
@jess56
@jess56 4 жыл бұрын
I am so very happy that this medicine is helping you so much!!!
@emilythoreson8655
@emilythoreson8655 4 жыл бұрын
You look so healthy! Amazing! So happy to hear how well you're doing and so excited to get on the drug myself.
@kimkaye2219
@kimkaye2219 4 жыл бұрын
I’m so happy for you! It’s amazing
@rmjames83
@rmjames83 4 жыл бұрын
I watch the “Frey life”-on trikafta, Mary recently got a cold-usually that results in IV’s-she was able to get thru & recover on orals. Her catchphrase is “I Vertex can” or “I Trikafta can” SO AWESOME!!! I’m SO overjoyed life feels brand new for u Morgan, as well as for Mary!! It’s ABOUT TIME!! SO crazy it’s reality, SO special!!! SO UNBELIEVABLY AWESOME!!!
@hannahgrace8136
@hannahgrace8136 4 жыл бұрын
I love the hope radiating from this beautiful mans heart ❤❤ so good to see. So good!
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