The Parkinson's You Don't See: Cognitive and Non-motor Symptoms

Рет қаралды 1,109,812

Davis Phinney Foundation for Parkinson's

Күн бұрын

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Some of the first symptoms people with Parkinson's may experience are not visible to others. As Parkinson's progresses, cognitive, and other non-motor symptoms continue to be a significant aspect of living with Parkinson's. Joanne Hamilton, PhD, ABPP-CN, of Advanced Neurobehavioral Health of Southern California in Poway, CA, explains what to expect and how to distinguish symptoms caused by Parkinson's from those caused by medications. Her presentation for the Davis Phinney Foundation audience offers hope and practical strategies for understanding and managing cognitive and non-motor challenges.
This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation please visit: dpf.org/youtubedonation
0:00 Introduction
1:47 Recognize the symptoms, be an advocate for yourself and your loved ones
4:59 95% of people with Parkinson's experience cognitive changes
7:20 Executive dysfunction affects problem solving, planning, organization, decisions
10:28 Memory problems in Parkinsons are different than Alzheimer's
11:29 30-50% of people with Parkinson's experience some degree of depression
11:42 Suspiciousness, apathy, anxiety and lack of motivation are common
12:15 Movement disorder specialists can separate symptoms from side effects
12:57 Impulse control problems can be a side effect of medication
13:30 Sleep disorders can be aggravated by medications
14:32 Consult with your physician about over-the-counter drugs
17:46 Reduce stress to improve thinking and mood
19:03 Limit distractions and use memory aids, lists
20:03 Depression is a treatable condition
20:17 Exercise is essential for good physical and mental health
20:52 Care partners can schedule activities to help overcome apathy
23:37 Parkinson's symptoms are not limited to what we can see
24:40 Behavioral therapies and exercise can improve quality of life
25:15 Overall health provides strong foundation for coping with Parkinson's
25:28 Be proactive in communicating changes to your doctor

Пікірлер: 733

@RG-hf4et Жыл бұрын

Patients with Parkinsons do much better under the care of a neurologist than other md's. As soon as my dad's hand tremors started, I got him to a neurologist. He has had Parkinsons for about 10 years & now is 90 years old. He is doing a lot better than some 70 year olds!!! I am in the health care field & understand Parkinsons very well....Also, most patients are slower in the morning. My dad's best time for md appointments is 1:00 pm. Then we go to lunch, maybe stop at Home Depot or Costco, we return home & he is ready for a nap. Don't overschedule & try to do 2 md appointments in one day unless they are in the same building. Costco & lunch are fun things after a doctor appointment. Sometimes he wants to do both. Other days if he is tired, we just do one. Be flexible as a caregiver.

@davisphinneyfdn Жыл бұрын

These are really great strategies for care partners. Your dad is lucky to have you!

@RG-hf4et Жыл бұрын

@@davisphinneyfdn Thanks for your reply. I am the lucky one. My dad has always been there for me & has been a wonderful father my entire life. I couldn't ask for better dad. I will do anything I possibly can to try to make his life easier & fullfilling for the rest of his days. I have been blessed & feel very,very fortunate to have him as my dad.

@user-bz1dg3dg3u 7 ай бұрын

Mother is having parkinson for six good yrs.what is ur advice it get worsen daily

@dynoranch1205 3 ай бұрын

@davisphinneyfdn I'm 36 and just got diagnosed with it, it has started with my short term memory and my wife kept telling me it's fine, its fine your over worked, and stressed and I told her I'm not over worked and somethings off I need to get in and figure this out. We'll I'm kinda getting the answers to these questions.

@SimonRajan 2 ай бұрын

K@@dynoranch1205

@pattypeas2897 11 ай бұрын

I was diagnosed with PD just over 5 years ago and this video explains most of what I personally have gone through. I shared it with my friends and family hopefully they get it and understand it a bit more . All you Parkies out there remember to take ur meds in time and get your buts out of bed stretch, move your muscles , get some sun on your face , drink lots of water and smile cause your not gonna let this PD own you !!!! Ok nap time 😊

@danielherlihy4685 9 ай бұрын

Thank you so much for this information

@paullockton6005 8 ай бұрын

Which video is mentioned in the comments and quotes

@gulserentekbas555 8 ай бұрын

,❤

@vernaperreira2146 11 күн бұрын

Thank you.❤

@RAINYDAYS00505 3 жыл бұрын

I have been struggling WITH everything you have talked about...I wish I had known this, you changed my life...I would just put myself down and say I must be lazy, stupid and a )big baby concerning pain). I was diagnosed two months ago....out of the blue. Thanks to my "abnormal movement's"!

@bluecube7247 Жыл бұрын

Well, now I know... no longer in denial 🙌 😌 thank you for explaining everything we are experiencing because of Parkinsons... wow, jaw drop, sigh.

@farzan000 4 ай бұрын

This Doctor is a fantastic professor! 👏👏 English is my second language and I have been having problem undestanding some Americans and British accents, but I understood easily 100% of what she said. Literally! She speaks standard English and should be a role model for all lectures who want to present an intelligible lecture on the any international arena!

@davisphinneyfdn 4 ай бұрын

Thanks for this comment! We'll pass along your feedback.

@farzan000 4 ай бұрын

@@davisphinneyfdn It is appreciated! 👌🙏

@Rachel57294 Жыл бұрын

Thank you for your video. My father has Parkinson's Disease caused by Agent Orange while serving in Vietnam. One day my father stopped talking. He would just whisper. He whispered for about 4 months then stopped talking all together. I'd give ANYTHING to hear his sweet-caring voice. 😢 It's awful watching him choke and aspirate while he wastes away. We are doing everything in our power to keep him well and pain free. 🇺🇸

@williambarr2898 Жыл бұрын

No one has said what I deal with every day so well as this Lady has and made me understand it better. GREAT JOB.

@patriciatan1258 Жыл бұрын

O] I] {;;

@marylamb128 Жыл бұрын

How did they diagnose u did u have a tremor?

@terrieladow6423 Ай бұрын

Helpful for my family and I. Finally found out 4 months ago. I've gone through so much and now it's maintenance. I'm 60

@vonshango6311 Жыл бұрын

PD impairs: *ability to think flexibly *ability to problem solve *ability to initiate behaviors *behavioral regulations *cognitive problems changes in personality 50% unusual anxiety 90% sleep disturbances autonomic system dysfunction *bladder *constipation *heat problem, temp regulation *saliva/tear production 30% pain syndrome that cant get figured out 5:00 95% experience cognitive changes (in thinking) 25-30% develop some frank dementia; impairments that (temporarily) disrupt routine daily functions. executive and organizational function language and communication executive dysfunction affects *problem-solving *planning/organization *decision-making *retrieval of words (ex when excited) *cognitive flexibility initiation/motivation to engage (ex exercise or socialize) visual spacial dysfunction *depth perception (bump into things) *hallucinations speech/language problems 10:22 memory, difficulty retrieving (ex old memories), but once retrieved does not go lost again as in alzheimers. 11:00 personality changes *greater irritability *difficulty with frustration *anxiety *lack of motivation 13:30 dopamine therapies can cause sleep disorders *random daytime sleep attacks (dangerous in car, at work, if standing/walking) mixed with anti-histamines can cause confusion and higher risk of falls 14:50 you are not crazy or lazy; you have PD 16:15 movement disorder specialists grasp the complexity of PD and how Rx impact it all 19:36 speech therapy 20:20 exercise is as beneficial as any PD Rx 24:22 early DBS treatment may lower need for dopamine therapies later which can relieve/benefit non-motor challenges. DBS deep brain stimulation involves a brain implant invasive surgery.

@ElinWinblad Жыл бұрын

How is this different than adhd

@xyz-gx9oy Жыл бұрын

Why does she keeps lifting up her arm every so often?

@lorieauchter5880 11 ай бұрын

Thanks for putting this together. It helps to see it written down, especially in a list format.

@Katie-vy5rd 9 ай бұрын

Thank you so much

@Vbluevital 9 ай бұрын

It is incredibly nice of you to do clearly outline thee entire content. Great Appreciation!!

@sandym4494 Жыл бұрын

My husband was just recently diagnosed & this video explained it all… I had SO many questions! Thanks much… valuable info!

@AngelaMcCarthy-zz1fq 4 ай бұрын

1:22 my son in 1:52 law just diagnosed

@AngelaMcCarthy-zz1fq 4 ай бұрын

What can I do to help??

@charmcoop1 Жыл бұрын

I was diagnosed about a year ago and have to say thank you for addressing these issues. Mostly people look for visible signs and the only ones I had were falling for no reason. You addressed nearly every symptom I experience.

@TheOriginalKilamanjaro 4 жыл бұрын

Im 45 & was diagnosed this yr with this. My mood swings, & over all total body exhaustion is really hard to deal with. On maximum dose of medication for it & it helped the 1st month with my mind was clearer & i could think of each step to do thru the day. Now tho I'm already slowing down with thinking again. The anxiety & depression is just so crazy too

@OriginalAcefanatic 3 жыл бұрын

This is the best video I’ve found about Parkinson’s. I highly recommend it to anyone who knows anyone with Parkinson’s.

@sandrahelmantoler7098 2 жыл бұрын

@barbarasherrick3007 2 жыл бұрын

@@sandrahelmantoler7098 i agree. I dont know how many people ive referred to this video. My husband has watched it a number of times

@Kenfederalway 2 жыл бұрын

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@Kenfederalway 2 жыл бұрын

@@barbarasherrick3007 io99o0 ooo ooooooiioop8

@annetjiebothma1442 2 жыл бұрын

Hoe is pd se progmode

@docrexaudilover5974 4 жыл бұрын

She managed that I kept on listening until the end of the presentation. It lasted a very long while because I was stopping the video and made plenty of notes. I learned a lot. Awesome presentation. Thanks a lot.

@debraj819 2 жыл бұрын

Thank you for this video…can you provide one for Parkinson’s without tremors?

@fauzanahmad3943 3 ай бұрын

Loll same. Double sided

@judemorales4U Жыл бұрын

I was just diagnosed at age 69. Honesty I am scared. I have to say this speaker has done a beautiful job, making an advanced topic be comprehensive. Simply brilliant.

@timbiglow9676 Жыл бұрын

I had my family watch this as they didn’t believe I had PD as I’m tremor free. Hang in there, Jude.

@judemorales4U Жыл бұрын

@@timbiglow9676 thank you so much

@muniraddas9743 11 ай бұрын

Porn you guys can get the car 🎉 nmmmmmmm my uh hey hi hi uuuuuhhjhhhhhh😢😢😢

@user-vp8zv6yn9z 10 ай бұрын

@@judemorales4Umy

@johnseymour1225 9 ай бұрын

4:26

@lyndafeig7465 Жыл бұрын

So thankful to be reminded of this reality with Parkinson's Disease. My husband was diagnosed in 2017. Like this presentation, reminders of the "hidden" realities of Parkinson's helps to remind me that my husband is not perposefully choosing to be difficult. I will share this with family and remind them once again that Chuck does not necessarily have control over his resistive responses toward us. Thank you!!

@marylyndurie7313 Жыл бұрын

😊

@carolynsole4651 Жыл бұрын

I have exactly the same with my husband. It is very hard to deal with someone who also does not accept help and gets aggressive. Im 59 and he is 73 and we have been together for 34 years. It is his inability to accept his situation, our situation, that is so frustrating for both of us and his behaviour towards me is so different to what he projects to others even our children. I have been trying all of these techniques, I think this video will certainly be very useful for him too. Thank you.

@annesquire8616 Жыл бұрын

@@carolynsole4651 l llll, m,😊😊

@nirmalakallianpur3191 Жыл бұрын

? 😊😊

@awolff1342 Жыл бұрын

z and guide 😊 l

@billzager4874 4 жыл бұрын

Nothing short of brilliant. Twenty-six life altering minutes for some people. Limitless thanks, Dr. Hamilton.

@erinreagan1054 Жыл бұрын

Iiiiuiuuuuiiuuiuuuiuuuiuiuiuuiiuiuuiuiuiuuuiiuuiuuuuiui😅

@alisonseaman5027 Жыл бұрын

i agree excellant

@symbyxbiome Жыл бұрын

Great lecture. In our opinion not enough discussion and awareness of the difficulty of managing the non motor symptoms, and also the side effects of some of the medications for PD. Thank-you for posting this.

@helenblyshak7015 22 күн бұрын

We need something positive

@marykaymorley8551 4 жыл бұрын

Thank you for putting this on You Tube. My husband has Parkinson's. This explains so very much. Thank you.....

@MichaelHarrisIreland 7 жыл бұрын

This is the best video on Parkinson's I've seen because the person knows what they are talking about. And that makes all the difference.

@parusudi1 4 жыл бұрын

I wish someone had talked to me like this 32 years ago...

@kennethnoseworthy8125 2 жыл бұрын

A man I very much admire has Parkinson’s. I have been trying for many years to explain my thoughts to him. After watching this, it o cures to me that as important as he has been in my life. I may actually be aggravating his situation by trying too hard to explain how important he has been in my life. This video explains many things that I really didn’t understand about what he going through.

@Fred-gt7gl 7 жыл бұрын

This is a very good talk. Thank you for posting it.

@16borabora 6 жыл бұрын

2008 I was diagnosed overactive thyroid problem 8 years ignore this disease 2016 February one day I was watching tv suddenly my both hands was numb I couldn't open my hands I was panic suddenly hear massive sound from my head it was mini stroke my tongue was shaking my face was red ! My thyroid level was high and I'm diagnosed Parkinson disease ! Silent stroke cause Parkinson disease ! Suddenly happened I was shocked unbelieveable

@waltwiesenhutter2784 4 жыл бұрын

Never realized all my symptoms of other things are really part of Parkinson’s. She really has researched Parkinson’s.

@myheavenlynails Жыл бұрын

I love this!! I have several clients with Parkinson but 1 with a rare Parkinson. I love working with all walks of life #elders #Parkinson #heavenlynailsonthegospa #love #blessings

@jalang63 2 жыл бұрын

Great instructional presentation. I sent to my immediate family once I was diagnosed. This explains the internal symptoms

@annemccarty7361 3 күн бұрын

Wow! Amazing resource for family members or caregivers who have a loved one with Parkinson's Disease. As a caregiver I wish I had discovered this video much sooner. Even though it is ten years old, the info still completely relevant. I deeply regret that I misjudged my husband's behaviors labeling them as spiteful and intentional and that I attributed his lack of commitment to exercise as 'laziness.' I can only imagine the frustration he must feel hearing me say "What?" each time he tries to speak and I don't hear him. The information in this video is very valuable, especially the part about trying not to overbook activities. Thank you for posting it. I hope this link makes it's way into the APDA Connecticut website.

@davisphinneyfdn 3 күн бұрын

Thanks for your comment. We're glad you found value in this video!

@jvargas454 4 жыл бұрын

Thank you, I found this very useful. Three years with PD.

@sandrafox367 4 жыл бұрын

Thank you clarify cognitive issues our gang of specialists never address or mention.

@user-ds8if9fk5q Жыл бұрын

Thank you for that! I’m 38 and I have been told that it’s probably Parkinson’s! Some of the things that you’ve mentioned resonates for well. I’ve always been very healthy, and always been strong guy. Many of the points that you have pointed out have not been addressed with my movement specialist, especially the pain in different parts of my body that have been undiagnosed. No doubt you have truly taken time to think about and analyze this disease. I’m the baby of a eight children and no one else has this disease but me. I appreciate that you truly are trying to understand and sympathize with peoples feelings. Even though it doesn’t seem that you are coping with this disease it’s nice when someone tries to empathize with you. Thank you again,

@davisphinneyfdn Жыл бұрын

We are here for you! If you haven't registered already, consider signing up for updates and to receive links for our monthly Meetup: davisphinneyfoundation.org/event/webinar-series-living-with-parkinsons-meetup/

@JohnJenner-pb6ue 6 ай бұрын

@thepinksidewalk 2 ай бұрын

Hi, very nice presentation. I am 84, and in the “do I or don’t I have Parkinson’s”. I have gone to 4 movement neurologists/Dr’s and are 2 to 2. NEGATIVE DAT scan. I tend to be, I don’t have or I am in denial! I am doing ok, normal disintegration we all have. Trudge on, my main problem is “organization”. Bless you, and I am sure you are doing well. SteveH

@evelina2363 3 жыл бұрын

Excellent presentation. Unfortunately I confirm many neurologists treating Parkinson limit their work to prescribing drugs to address motor symptoms and don't ever inform the patient and the family of the other symptoms or drugs side effects, so when those happen they are even more terrifying to witness because they are completely unexpected. Actually, I feel often doctors do not even recognize non-motor symptoms as relevant symptoms that can greatly impact the quality of life and should be addressed.

@JohnJenner-pb6ue 6 ай бұрын

18:20 18:21

@SirGeraint 8 жыл бұрын

EXCELLENT video. The best I have seen so far.

@averyholmes1790 4 жыл бұрын

@SamuelJLupica Жыл бұрын

Good friend of mine was diagnosed recently and as those of us within his inner circle prepare for the future this was a truly helpful presentation… thank you 🙏

@bonniekerr6890 Жыл бұрын

Bless you & your friends for making a plan to help. This man is very fortunate.

@shanemckenzie8681 10 ай бұрын

Bless you. Parkinson’s people are the best people. They always have the biggest heart.

@ingridakerblom7577 4 жыл бұрын

Studying to be a practical nurse, this was really helpful! Thank you!

@luzangeles3829 4 жыл бұрын

ifmy parkinsonsdisease deterioted, do i accting like crazy do i acct violence? tnx.

@stevenkingsley101 4 жыл бұрын

Help us come

@wilmabozenhardt5175 2 жыл бұрын

This is the best info on non motor symptoms of P D I hv ever heard. It is concise and clear and gives help to caregiver in learning how to respond and help your loved one.

@rbmedd 4 жыл бұрын

Should be required viewing for every PCP, neurologist, and psychologist who deal with maturing adults!

@michaeldickeos3783 3 жыл бұрын

@helenblyshak7015 22 күн бұрын

I agree 200 percent.

@roscoro Жыл бұрын

Excelente charla. Reconoce la importancia del ejercicio y además dice la verdad acerca de los agonistas, producen efectos no deseados. Es difícil para los cuidadores y familiares entender los síntomas no motores, pero para el paciente es mucho más difícil ya que tiene que convivir con ellos sin entenderlos tampoco.

@elliekahn1681 4 жыл бұрын

As a care partner, it has been difficult for me to be as helpful as I can. Thank you for your detailed explanations along with ways to handle/deal with them as a partner and for my husband as well.

@skylerstraight7697 3 жыл бұрын

Can i ask you question?

@drmarkusmaur6745 3 жыл бұрын

This may help, kzfaq.info/get/bejne/l9GldLinvta-Zok.html

@davidik1 2 жыл бұрын

@@skylerstraight7697 qqqd D C C Cccccc

@angelacharlebois6567 3 жыл бұрын

Being a Health Care Worker to someone with Parkinson's, i found this to be the most informative video i have seen. She is so well spoken. I am going reccomend this video to anyone i know affected by this complex disease.

@barbaracollier8751 2 жыл бұрын

Excellent! I fear I haven’t been diagnosed with PD. I plan to bring it to my physician’s attention as well as my family’s. I must be pro-active.

@SlothyWoffy 4 жыл бұрын

Best parkinsons video I've seen yet. She done great. What an amazing speaker.

@kerryevermann1626 3 жыл бұрын

@judymccarthy9423 4 жыл бұрын

Thank you so much for this talk. Exercise so important.Yes. So many great tips and information. Helps me to know what to do for my husband. Staying active. YEP!

@tedfuetsch7564 3 жыл бұрын

I found this presentation to be precisely accurate. My wife and I watched it together. I worry that my current neurologist doesn’t seem interested in the non motor aspects of my experience.

@stevewinter1058 2 ай бұрын

Exactly! My movement disorder neurologist is at one of the top five Parkinson's treatment and research facilities in the Country. He is very well respected in the field when it comes to evaluating and treating the non-physical symptoms of the disease but has very little advice regarding non-motor symptoms. Fortunately, I have had a long-term psychiatrist treating my ADHD who has a lot of experience treating people with non-motor symptoms of Parkinson's.

@Thrivebeyond65 4 жыл бұрын

Thank you, for this fabulously informative video about the many complications of PD I had no idea about.

@lourdesorellana9343 2 жыл бұрын

I am very happy to heard someone can explain Parkinson disease so clear and even make us feel secure optimistic, thank you for an excellent explanation! I wish more people can listening specifically those like me that have a son 27 years old now going in our 5th anniversary with PD and discovering so many of the topic she explained this disease is not only a tremor or walking slow is a lot more and definitely we all need to be educated

@davisphinneyfdn 2 жыл бұрын

Lourdes, I'm so glad you got value out of this presentation. We are al about continuing to educate the community on ALL of the symptoms of Parkinson's, not solely the most commonly represented. I hope you continue to find our content valuable.

@fransdecock8933 2 жыл бұрын

Frans De Cock I was diagnosed 10 Years ago. In a few minutes now I recognised my own non motor disorder. A partnerrelation meanwhile ended because of compulsiivedysorder and family discussions about mental health lay behind.Watched twice in tears. Now time to move on, exercise and work, challenge together.

@davisphinneyfdn 2 жыл бұрын

Frans, so glad you found value in this video. I hope you realized you are not alone! Don't hesitate to reach out should you have any questions.

@terikc2012 7 жыл бұрын

I was just diagnosed and this really fits me to a T. Best video I have watched so far.

@lahoucine66 7 жыл бұрын

good news for you . vitamin b1 Benfotiamine reverses parkinson's .

@rogueveteran77 5 жыл бұрын

Stop with the BS please

@rochellekovar8764 4 жыл бұрын

@@rogueveteran77 ANCD Andshajai3.

@kathysmith8330 6 жыл бұрын

And here I thought I was just turning into the laziest woman in the world! I've had the strange gift of this diagnosis for two whole weeks. I'm the same person I was before, except I've lost the comfort of my denial. This talk has given me hope.

@ambriadaniels-dovolis7496 4 жыл бұрын

Good luck Kathy

@gregorymalchuk272 4 жыл бұрын

Has medication helped at all?

@mombotron58 3 жыл бұрын

Me too! I used to be very physical. I miss it.

@drmarkusmaur6745 3 жыл бұрын

This may help, kzfaq.info/get/bejne/l9GldLinvta-Zok.html

@pberndt33 9 жыл бұрын

I live with PD and one of the hardest things is family gatherings for me like holidays. The hard thing is that feeling of pity that comes from family members you have not seen in awhile as they watch you tremor, eat, walk and so on. The facial expressions and stares make the holiday not quite as enjoyable. I am happy to see them but I have to keep reminding myself its they who have the problem not me.

@susiepoo51 4 жыл бұрын

pber57 Imagine if it was one of your relatives with PD. Knowledge is power, and anything that is new to us is new to us, and we don’t know how to respond. Just a thought. I’m sure they must not be aware of their facial expressions. If they did I think they would try and change it. Anyone with staring problems should be talked to. I think if we were more open with each other, it would be so much easier. Maybe explain to them about your general issues, and I’m sure they’d be less curious and more relaxed in your presence. Blessings

@henrilou 4 жыл бұрын

@@susiepoo51 I totally agree with that..I have PD...but before i had it I didn't have a clue...I have a friend who has Rhemutoid Arthritis..before I knew her I thought it was creaky joints..its not its pain..all the time..but she complains that no one knows...of course not..why would they...I don't blame people for not getting what is often an invisible illness...on the other hand there is nothing wrong with explaining..not lecturing..and informing people about this...most people think PD is tremors..and we all know..at least the PD people and folks who live with them that is just one part.so Pber57..it is what it is..enjoy yourself..live your life..and like the tree who has a root that stops working find a new path..be an advocate...and tell your relatives about what PD is...and what you are doing in your life to try..against ridiculosuly difficult odds to make it better...good luck to you

@timothymason6783 4 жыл бұрын

Doctors do no want to hear , I read, or I saw this video. I was told 6 years ago I was to young for l dopa. I take Klonopin for the anxiety. I also have spinal stenosis with extreme pain. I have been prescribed several SRI and Tricyclics and wind up in the ER with serotonin syndrome. Where do I go from here??????????

@bikerslow2598 3 жыл бұрын

May be be upfront about this. My dad just got diagnosed and I'm.sire he won't want any pity looks! I admire people who manage to stay strong. Live well and thank you for the comment.

@andrejackie1122 3 жыл бұрын

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@roberttomasetti3654 Жыл бұрын

Excellent presentation. I would welcome corresponding with you, Dr. Hamilton. My first indication of PD was "loss of smell."

@jeanettesdaughter 4 жыл бұрын

Families ALWAYS develop denial. So glad she included the reaction responses of “ normal” people without the diagnosis. It puts the people diagnosed in a much more humane context. We all have brain tics, n’est ce pas? I like her humble approach to conditions of rather hard facts that can be harsh and disruptive to live with.

@dmitchell9453 Жыл бұрын

Excellent webnair about general "What is Parkinsons

@seanmacentee7214 Жыл бұрын

Loss of p0wer in my legs

@seanmacentee7214 Жыл бұрын

Killexiaw

@christopherwadsworth1930 Жыл бұрын

@@seanmacentee7214I

@Vbluevital 9 ай бұрын

Yes indeed, it is both heartbreaking and difficult.

@melvaperunko5902 4 жыл бұрын

Thank you for this! I’ve experienced all of these symptoms but couldn’t relay to my neurologist or family. I just thought I was losing my mind. I’ve now discussed this with my spouse and that’s a big help. The most stressful part of PD are family members that say “Well you don’t wobble all around like Michael J Fox so the diagnosis is wrong”. These ☝🏽are the unseen issues that are difficult to deal with.

@Nebulagalaxy2525 4 жыл бұрын

Excellent presentation. Leaves one without questions. Thanks

@tajvargoudarzi7754 3 жыл бұрын

Please please

@riverbender9898 4 жыл бұрын

Excellent information! Thank You.

@randytans1 7 жыл бұрын

Good presentation. I still believe one of the main causes of PD is an infected brain. I had meningitis before. I suffered PD for 9 years and my breakthrough improvement came when I started bio-resonance therapy to eliminate the pathogens. After each treatment I see improvement in my movements and my shaking hand becomes more flexible and less stiff.

@rickraybourn7456 3 жыл бұрын

Look at the one about Biden, Joe Biden is sick

@mariamarfil1620 3 жыл бұрын

@@rickraybourn7456 We have to wait...

@windhorsepixy7784 2 жыл бұрын

Soon Heng Tan - my husband with PD also had meningitis - long previous to his diagnosis.

@sandrasmeenk5811 Жыл бұрын

@caralinehowden2951 11 ай бұрын

@@rickraybourn7456 That comment is truly disgusting and no need to put this here or anywhere for that matter. Try thinking about how it would feel if you had parkinsons and forget what you might think others have, heavens forbid you get it, its horrible truly horrible. There is no need to respond because you have had enough to say as it is.

@nourahk3262 4 жыл бұрын

Thank you for explaining this!

@kristenjohnson153 2 жыл бұрын

Thank you for making this video.... I think I have Parkinson's... My father and auntie did and I am now on the road to finding out what I have .... I have high CK and I yesterday just woke up and was unable to walk right ... But I have all on these on a very low level... So thank you for giving us this information...... I was in the ER... But will soon be able to talk to my PCP about this.

@victoriakendrick6906 3 жыл бұрын

I found this very useful and interesting.....right to the end of video.Im a part time support giver for a friend who is 7yrs down the line with Parkinsons Disease.I recognise much of what was discussed.This learned woman put it into words for me.

@salmailyas7760 4 жыл бұрын

I work with people with parkinsons and dementia and this is very interesting and worth watching and learning everything she said is spot on its very hard for someone to live a normal life and its heartbreaking to watch someone with the both parkinsons and dementia it breaks my heart xxx

@eileenancona8374 2 жыл бұрын

So informative & clearly stated. Thanks for always helping.

@davesmithshaman23 8 жыл бұрын

Thanks for this presentation very informative answered a lot for me and my Parkinsons issues

@Cruella-Deville 3 жыл бұрын

you are a lovely person ,so many things i recognise with my Parkinson’s

@mosecall9046 6 жыл бұрын

I just subscribed hope you do more videos on different illnesses you are a good send of information and mindset you are so beautiful inside and out your way of saying what is fact is very nice and whoever needs information about this will get it good bless you and love your videos

@silverace08 4 жыл бұрын

superbly explained-goes into very useful discussion of parkinsons aspect that are generally ignored but vital to wellbeing

@onfriendsd 4 жыл бұрын

Thank you for the presentation . Helped me and my family

@frederictudor3882 3 жыл бұрын

Wry clear and rational presentation recognizing many issues of PD.

@cathleeneichhorn9358 Жыл бұрын

I was diagnosed with PD 9 months ago but I know now I had symptoms starting about 5 years ago. My tremor is mainly only in my left hand so not a big problem when I am not stressed. I used to be very organized and would enjoy taking on projects. Lately I have given up my volunteer position because I don’t feel I can do a good job any more. This video helped me immensely to understand some of the symptoms I was not aware of.

@patricianorman7302 Жыл бұрын

One of the most difficult[t symptoms is speech and the loss of speech or jumbled speech and not being understood It means I have to carry note paper and trying to get understood . The problem most of life is done at a cracking pace from the supermarkets to getting problems fixed. It is alright if you have someone who does not work that can go with you

@rosebowala8547 Жыл бұрын

Thank you very much madam

@garyyoung1141 Жыл бұрын

😅😅

@garyyoung1141 Жыл бұрын

😊

@subh1510 Жыл бұрын

Did you have sleep problem fatigue or smell problem or constipation before any motor symptoms.

@ravenelder7325 4 жыл бұрын

Wow. This might be the most helpful video I've seen so far. She's amazing. She explains things so perfectly and I felt like she was speaking my story.

@Anonymous-lq2bs 3 жыл бұрын

Thanks, my mom has Parkinson’s and I’ve been looking for a solid video to educate myself.

@maryfitzpatrick6331 4 жыл бұрын

This is an excellent presentation especially for patients and their families recently diagnosed with PD.

@hettieels5540 Жыл бұрын

Thankyou 💕

@GulfVet213 10 жыл бұрын

Excellent presentation ! Helped me understand much better.

@debargus9196 4 жыл бұрын

Thank you so much for your Insight and knowledge. I have nursed for 42 years. Your sound advice and humanity is absolutely welcome and astounding.You are a great listener and I will practice your kindness in my work.

@heleningvalson2003 2 жыл бұрын

This video is filled with helps for a Parkinson’s caregiver. She understands the problems very well.

@melissamelancon1153 10 ай бұрын

I was diagnosed last November, 2023. I am 70 years old and have suffered with anxiety and panic attacks all my life. I take meds for that. I am generally a fun happy person but lately I seem to be depressed terribly and I exercise every day, play ping pong, pool, foosball, take a rock steady boxing class twice a week. But my anxiety has really interfered with my daily functions, that scared feeling. I am going to seek help tomorrow to see a psychologist to get help for that. I love your book. It has helped me a lot. I have a sign on my bathroom wall that says rising helix because that is what I want to be for others! God bless you!

@davisphinneyfdn 10 ай бұрын

Thanks for your comment. We hope your visit went well and you found it helpful.

@user-mc1xh3yx4o 2 ай бұрын

what about mobility?

@397diarystaringataces4 6 жыл бұрын

Good Stuff- all my data was stripped and had to be rebuilt over two years - clips like this empowers while fighting harsh battles

@ercankaradeniz7383 4 жыл бұрын

dik durus egzersiz

@jojoo4827 3 жыл бұрын

Great info. My husband goes to a cognitive clinic and I think a Parkinson’s clinic doctor would be better at managing his meds. He was diagnosed with Lewy Body Dementia and everything you addressed he has. He does have difficulty walking fast as he did in the past and complains of stiffness in his thigh muscles, .

@alicesamekbenoit5990 3 жыл бұрын

*Check: **kzfaq.info/get/bejne/l9GldLinvta-Zok.html*

@cosmichealth3907 2 жыл бұрын

Thanks...brilliant presentation Along with the diet , vitamin and minerals have played a huge role in the recovery of clients...

@rosemaryclarke6250 5 ай бұрын

Excellent presentation. Thank you

@susanwood8086 4 жыл бұрын

you are totally spot on x

@KawaiiBazuga 4 жыл бұрын

Thank you! Your presentation and the whole topics are impressive definitely. This video's also useful for my project involved parkinson's behavirol expression, as well.

@keithdavis6085 4 жыл бұрын

ปั้น ปานรัตน์ Great job..

@vggv1394 4 жыл бұрын

Excellent!

@waiyanwong1964 4 жыл бұрын

Excellent lecture. Very useful info

@anthonychristian8030 4 жыл бұрын

Very valuable information helps me understand as a Boxing coach

@junecricri3782 2 жыл бұрын

I am 38 yrs with pd yes it has affected the way i think hear ,see , speak , awareness . My way of reacting quickly if it is in movement and or thinking has been affected. In other words i compare my pd to a outdated smart phone that it has slowed down and glitchy when you want to open apps .

@ShinobiEngineer 7 жыл бұрын

Thanks a lot for this upload! A family member was diagnose one year ago and this video was very helpful.

@Jaylo1954 4 жыл бұрын

Wonderful video!

@gayle8962 3 жыл бұрын

Awesome! Thank you so much

@LSander153 7 жыл бұрын

Extremely well done presentation. This lady knows her stuff.

@jimgallagher5902 4 жыл бұрын

Agreed 100%. I have frontotemporal dementia and I wish I had seen this video before I got the diagnosis.

@timwheeler7545 4 жыл бұрын

I am having my daughter and son-in-law (we live together now for financial and mental support.) watch this video so that we can work together and communicate better concerning my Parkinson’s.

@loismorehouse137 4 жыл бұрын

Lou Sande

@jesustornero 4 жыл бұрын

Very informative. Thanks you. :)

@jbroughful 6 жыл бұрын

I have had difficulty describing my PD symptoms, especially the cognitive problems. Now I know why.

@deliagonzales4314 3 жыл бұрын

@puchieat49 2 жыл бұрын

I like this video. Great professional information. It's easy to understand. She explain very well and made it easier to understand. Thank you

@suzanwilmshurst3020 Жыл бұрын

This is great. I was beginning to think I was losing my mind prior to seeing this. Mood regulations, sleep issues, personality changes and cognitive etc were really worrying me

@davisphinneyfdn Жыл бұрын

Suzan - Yes, unfortunately, it is common. I'm sorry you are experiencing these symptoms, and I hope you will take a few ideas from this talk and see if they work for you.

@elisabethmorre-deen3506 Жыл бұрын

Thank you. Makes so many moments clear for me.

@Frank-bz2ub 3 жыл бұрын

Thank you for this video it is very informative !

@sheliacockerham-pi7tj Ай бұрын

The best explanation I have ever heard. thanks ⚘

@marktrout885 4 жыл бұрын

This young ladyi has her stuff together. Best I have ever seen, More iknowlege in her head than a whole gaggle of doctors.

@saskiadriehuizen4266 3 жыл бұрын

accounts.google.com/signin/v2/identifier?passive=1209600&osid=1&continue=https%3A%2F%2Fmyactivity.google.com%2Fconsent%2Fassistant%2Fvaa%3FDmsa%26Dvaa&followup=https%3A%2F%2Fmyactivity.google.com%2Fconsent%2Fassistant%2Fvaa%3FDmsa%26Dvaa&flowName=GlifWebSignIn&flowEntry=ServiceLogin

@rickraybourn7456 3 жыл бұрын

Look at the one about Biden, Joe Biden is sick

@gaylenemorley916 3 жыл бұрын

Biden wont last long get him out of his goal

@sherrymargolis2922 3 жыл бұрын

@@saskiadriehuizen4266 and

@bimalgupta4985 3 жыл бұрын

Good speech

@ronmclanahan9320 4 жыл бұрын

Very informative !

@siobhanjohnson8088 7 ай бұрын

Thank you for this lecture.. it has really helped me understand what could be happening to my husband as he undergoes tests for possible Parkinson disease 💕

@davisphinneyfdn 7 ай бұрын

You're welcome. Please let us know at blog@dpf.org if we can help moving forward. You might find value in this content: davisphinneyfoundation.org/new-diagnosis-aid/

@judyrichardson5837 5 ай бұрын

Multiple Sclerosis also has Cognitive Dysfunction. I've had MS 44yrs + cog issues are my main symptom. Very hard to get help for it, even from MS Queensland. Luckily found 2 psychologists over the years who have really helped me with helpful coping methods + also just to let me talk out my anxiety in dealing with the frustration! Learn about it and be yr own advocate. ❤

@davisphinneyfdn 5 ай бұрын

Thanks for sharing your story. We're glad you found helpful support!