Living With Parkinson's Meetup: June 2023 - Fear & Shame Part 2

  Рет қаралды 6,900

Davis Phinney Foundation for Parkinson's

Davis Phinney Foundation for Parkinson's

Күн бұрын

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During this session, panelists discussed shame and Parkinson’s. They talked about the difference between shame, guilt, and embarrassment, and they shared the various ways shame shows up for them. Again, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truth and share their journeys with all of us.
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Time Stamps:
0:00 - Introduction
9:06 - Start of discussion about shame
14:22 - Feeling a loss of relavancce
21:25 - Shame when I was diagnosed
32:00 - Shame around impulse control
42:07 - Side-effects of medications and shame
48:35 - Importance of community to overcome shame
57:40 - Conclusion

Пікірлер: 29
@jrrosania486
@jrrosania486 4 ай бұрын
Heather is so wonderful
@GETTINGPARKINSONs
@GETTINGPARKINSONs Жыл бұрын
This is a video everybody should see. It explains the essence of what it’s like to have Parkinson’s. You put into words exactly what I am experiencing. I want to been trying to write a book about but it’s too hard to put into words. I could watch this 10 times. It’s really awesome.
@kaystokes977
@kaystokes977 Жыл бұрын
27:30
@kaystokes977
@kaystokes977 Жыл бұрын
I have a lot of people(friends)that are uncomfortable around me.
@irenemanning182
@irenemanning182 Жыл бұрын
Hi my name is Irene and I enjoy listening to everyone’s story. I love dogs we had one for 17 years, because of my age my husband doesn’t thing it is good thing, the dog would out live me and it’s not fair to the pet.
@angelakindon9839
@angelakindon9839 Жыл бұрын
I love you guys!
@kennethbuscher6667
@kennethbuscher6667 Жыл бұрын
Thank you all honestly it help 🙏 😊
@sharonmaplethorpe9168
@sharonmaplethorpe9168 Жыл бұрын
Well said Robyn - totally agree👍
@clausdnk5163
@clausdnk5163 Жыл бұрын
I love you all! Thank you for your advices
@kendrapatterson4629
@kendrapatterson4629 Жыл бұрын
Thank you! I needed to hear this 💛🌈
@sharonmaplethorpe9168
@sharonmaplethorpe9168 Жыл бұрын
Likewise- thanks to all you guys, you help me so much with your honesty and openess❤❤ x
@davisphinneyfdn
@davisphinneyfdn Жыл бұрын
So glad!
@kendrapatterson4629
@kendrapatterson4629 Жыл бұрын
Thank you Mel ❤️ this panel saved especially during the pandemic
@clmims100
@clmims100 Жыл бұрын
I really miss walking freely without aid or help from others. I get frustrated holding a fork. I get tired of people turning their eyes away.
@lili1740
@lili1740 Жыл бұрын
I was diagnosed last July, I started to watch/listen this meet up since last September, it gave me so much encouragements to face my fears. Thank you very much!
@davisphinneyfdn
@davisphinneyfdn Жыл бұрын
You are so welcome
@irenemanning182
@irenemanning182 Жыл бұрын
Irene, forgot to tell you I m in Red Deer Albert Canada
@kaystokes977
@kaystokes977 Жыл бұрын
How do you become one of you? I love the closeness y'all have. I feel i have nobody to communicate with.😊
@davisphinneyfdn
@davisphinneyfdn Жыл бұрын
Know you're not alone! Please consider reaching out to one of our amazing Davis Phinney Foundation Ambassadors. davisphinneyfoundation.org/connect/ambassadors/ They are eager to talk with you.
@sharonmaplethorpe9168
@sharonmaplethorpe9168 Жыл бұрын
Oh no - is Mel leaving DPF? She is great at mediating and directing these webinars
@davisphinneyfdn
@davisphinneyfdn Жыл бұрын
Thank you, Sharon. I appreciate your kind words so much! I am leaving, but I hope to remain connected. See you in July!
@sharonmaplethorpe9168
@sharonmaplethorpe9168 Жыл бұрын
Not making light of a serious topic but I love the Shed comment 😂😂😂
@clmims100
@clmims100 Жыл бұрын
I have a genetic defect preventing me eating sugar in any form, my craving for carbs drives my blood sugar way up and I know that my doctor condemns me. It is like a slow suicide.
@rosanegurgel6665
@rosanegurgel6665 Жыл бұрын
Helloooo
@jrrosania486
@jrrosania486 4 ай бұрын
How does a person become an ambassador?
@davisphinneyfdn
@davisphinneyfdn 4 ай бұрын
For more information about all aspects of the ambassador program contact communities@dpf.org. Note that not all members of this panel are ambassadors. We develop the panelist group based on a variety of factors.
@erichouck9487
@erichouck9487 Жыл бұрын
I don't feel any shame but I do have quite a bit of fear. Like Davis I am a cyclist and ultra runner. I was diagnosed 11/21 but knowing the symptoms I believe I may have had it for close to 10 years. I am scared to death that what, and how long, my body will fail bad enough that I will not be able to compete. I also don't want to become a burden on my children.
@christineallred9130
@christineallred9130 Жыл бұрын
Heather have you had dbs
@davisphinneyfdn
@davisphinneyfdn Жыл бұрын
Yes. She has had DBS. She shares a lot about her experiences in these two interviews: kzfaq.infoYrAAo8FCr48 kzfaq.infoEDh6tV8wlHA
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