Episode #23: Tips from a Parkinson's Caregiver

Рет қаралды 6,454

2 жыл бұрын

The Secret Life of PD: In this episode, we welcome Ruth Stenberg. Brian and I exercise with her husband Rick, who was diagnosed with Parkinson's a few years ago. We appreciate all the caregivers out there and want to give a special thanks to Ruth, for opening up and sharing personal insights that may help another PD patient or caregiver. My favorite takeaway was when she discussed the importance of COMMUNICATION. Having Parkinson's, people naturally want to help and do things for you. But sometimes we want to do it on our own. So talk to your PD patient or talk to your Caregiver on areas you want help/support and areas you don't.

Пікірлер: 16

@jeancattoi2796 2 жыл бұрын

Very informative from a caregivers point of view!

@annesnaj3363 2 жыл бұрын

What an amazing lady ! And so calm and sweet ! Jessica and Brian, PwP without the tremor, could this be a topic for another time ? I don't have a tremor (yet) and a lot of the invisible symptoms and 24/7 tingling in my lower legs. I can not find very much about it. In my opinion it took so much longer to get a diagnosis than I hear from people with a tremor as one of the first symptoms. Thank you for another great episode !!

@auroramatera7555 Жыл бұрын

Very informative. Thanks for sharing ❤

@kitkat20221 Жыл бұрын

It would have been nice if all caregivers showed as much interest as this amazing lady.

@tammygarrett6963 Жыл бұрын

thank you for sharing this message ❤

@MrDjinxbass 11 ай бұрын

I just stumbled onto this. As real as it gets. So far, for none of you, has it been the beast of 30+ years ago. They've come so far. My wife is 4 years diagnosed, and with light meds, good eating, and some exercise, she's really still really good. She just retired at 65, and I'll probably be soon behind. My biggest fears are feeling guilty spending time on myself fishing, and holding my patience over the long haul.

@thesecretlifeofparkinsons 10 ай бұрын

Don't feel guilty - everyone needs to focus on themselves at some point. Especially caregivers!

@luanndavis-jindela3223 2 жыл бұрын

Loved this!!

@luanndavis-jindela3223 2 жыл бұрын

Great insights!

@user-zh6lw5zy1w 2 ай бұрын

I am so sorry, I didn’t think about that I will email you.

@valelliott2106 10 ай бұрын

This had so little to do with the care giver feelings and emotions. Trust me when you get to late stage and years of making adjustments to make your partner comfortable all of the time. There is something to talk about and hear.

@user-zh6lw5zy1w 3 ай бұрын

Hello my name is Danny Cockrell. I’ve had PD 8 years I had DBS in 2019. I would like to have a phone number or way to get in touch with one of you guys. Thanks

@thesecretlifeofparkinsons 2 ай бұрын

Sorry, but for privacy reasons we don't give out our phone numbers. But you can reach us via email at info@thesecretlifeofpd.org