I was 17 when my Mom had her last baby at age 44. Our precious little jewel was born with Down’s syndrome. She spent her first 42 days in neo-natal unit. Then we brought her home. I can’t tell you what a joy she was to us and to everyone around her. Our Mom died when our little girl was 20 years old. My siblings and I stepped in to help our Dad care for her. But let me tell you, she was one independent young lady. She had a lot of the side effects associated with Down’s syndrome. Heart, lungs, eyes, thyroid and other issues. She graduated from high school when she was 21. At age 54, we lost her to Covid even though we had tried protecting her from the public. I can’t imagine what my life would have been like without her. Our own children loved her just as we had loved her. Even though we grieve every day for her, I know she’s with her Mommy and Daddy in heaven. I have a picture of our Cammy when she was Winnie’s age. They look so so much alike. Much love and prayers to your family and little Winnie as she grows. You will be amazed at her progress and her love for life and every one around her.

My son Paul has Down syndrome, he will be 48 this weekend. He lives independently, is very literate and has researched our family history, travels to London and back by train and taxis for meetings at Mencap, and has just secured a part in a play the the Crucible Theatre in Sheffield. Paul works part time in a charity shop. When he was born we were told he would be a 'cabbage', nothing could be further from the truth. He used to be very fit, swam in special Olympics for UK and took part in gymnastics when he was young, He has an amazing memory for dates, names and facts about football. Unfortunately Paul does have health problems associated with the syndrome but he doesn't let any of them get in the way of his very full life. Your daughter is beautiful and I am sure with your determination she will have a wonderful life. Thank you so much for making these videos.

i love your story about down syndrome more people should speak out

What a great job you are doing! My son was born with Down Syndrome in 1981, he passed away a few days ago at 42. What a great source of information you have started. Develop it, refine it... sustained effort and don't burn out❤🌞.

Your baby daughter is so precious- what a wonderful mom you are to reach to others as well.

My daughter was diagnosed with B-cell ALL with Philadelphia like chromosome at age 19. We thought we were safe as this normally happens at earlier ages. So BE AWARE parents! Happy to say she is doing extremely well and is thriving🎉🎉🎉🎉

I don't know you, but I wanted to say that you have the most adorable little girl. God bless your beautiful family

I have never experienced giving birth to a Down Syndrome baby, but I have taught some, as a teacher. They are usually delightful and can teach other children a lot. How? About accepting someone just as they are, how to live in the moment and how to find joy in the little things. I also learned a lot! Winnie is gorgeous and it's a good job you don't live near me, in England, as I would always be on your doorstep, ready for play with Winnie and her sisters. ❤❤❤

Great video - knowledge is power. I randomly ended up having a nice chat and a couple of jokes with a guy with Down's in a supermarket today. He was 50 and I'm older. He looked as healthy as me. Sadly, we were both in a hurry, or we would have gone for a coffee, as we we really clicked. We didn't talk about Down's or my health issues, (Why would we?) but we did talk about what we like to eat and a bit of current affairs. Nice guy.

Great job and you are so lucky to have all 3 of your beautiful girls. They are also lucky to have you as their mom!❤

You are doing very well, great mummy ❤

You are a beautiful and inspirational Mom 💗 Please remember, no matter how much you love your little angel, it's okay to feel a little resentful sometimes about the extra work and stress involved. Please remember to take care of yourself. God loves you just as much as He loves your precious little girl. 💗

Maybe someday when a mom or dad Googles Downs Syndrome.. your videos will pop up first so they aren’t so scared of the unknown or how things used to be ❤

I recently became reacquainted with a former student w/DS. I knew her when she was 6-9 and now she’s 27. She was born with a heart defect that was corrected with surgery before one year, then she had leukemia as a toddler. She also came from a non English speaking home, so she struggled with language. She was way behind in expressive language, and it was hard to know exactly what she understood. Now, she speaks in sentences that are mostly clear to me as an unfamiliar listener. Progress can be slow, but progress is made. 😊

Very informative! Great video!❤

Yes I had to stop googling everything with the diagnosis. I am 34 weeks pregnant with twin girls,one of whom has been diagnosed with DS. We just all want our kids to be healthy. And I have realized I have to take what may comes one day at a time. I havent even told my family. I wanted as stress free of a pregnancy as possible without potential judgement from family/friends. May I ask have you started early intervention for her already? Ty!!

Very helpful video, thanks for sharing. My son is almost 3 months and has DS. He also has the tear duct issue but it’s not too much of an issue. What you went through when your daughter had the breathing issues sounds scary. We are just heading into winter so I am going to be extra carful with hand washing etc.

Wonderful. Information

She is so darn cute❤

That was a perfect video of retractions mom .

I'm sorry I miss spelled Winnie's name in my last post.

Rory built a one room school on his farm for his DS daughter and other similar children in the town.

Good Morning

Can bairly hear your videosss

Only palm crease indicate down syndrome when I was pregnant doc said my baby is small but 24weeks ultrasound my baby is not sga but 31weeks scan my baby is measuring 30weeks after birth my baby is so small and a small palm crease is also his hand please answer me my baby is down syndrome and 20 weeks anomoly scan no anamoly seen in Tha fetus

The survey you quoted in the beginning about downs people being happy w who they are and their lives… but just asking them those questions is in itself saying they are dif there is some thing wrong w them. Let’s round up all the downs people and ask them if they are happy w themselves bc how could they be type vibes.

Do the Drs think the temperature regulation will become less of a concern as she gets older?

I LOVE YOU BABY

Well of course you want too believe the glass is half full ( but she will be with you in your home unless she gets in a group home is a option

Hello … I am from India and my baby is having DS or seizure, I think both are same ! I am very tensed about him 🥹

hello, not so much medical issue, than just a common thing showing with down syndrome - the tongue out. i don't know if this is a german thing, but my God child got a little plastic thing to put into the mouth. that was used twice a day for 10minutes. only works as long as there are no teeth. he got an imprint made of his upper jaw including the palate. short before the end of the plastic thing they formed a little rounded cone. what happened then was, he started to try and touch the "cone" with the tip of his tongue, just like lots of people do with a cavity or a new tooth filling. this led to general better control of the tongue and the ability to keep the tongue in his mouth most of the time during the day. exceptions are - up until today, and he's 25y now - when he gets real tired or is in full concentration. if I remember correctly the docter back then said, besides the fact that the tongue is simply not showing it was also health benefits that came with it. i just don't remember them. maybe it was something with the teeth, or maybe correct breathing.

You have a wounderful special liittle sunshine girl. I am watching from Germany and we have nice actors also one girl became a Kindergarten care taker so the World is full of intressting adults. I hope you have a wounderful time together. ( Dr. GOOGLE ) IS NOT ALWAYS RIGHT . So take care and be happy. Many greetings Christiane from Berlin Germany 😊❤

Audio is too quite even with my phone all the way up, I can't hear. Please invest in a good clip on mic