Dr. Paolo Bolognese presents Chiari I Malformation, EDS, and Craniocervical Instability

  Рет қаралды 18,296

EDS Awareness

EDS Awareness

6 жыл бұрын

Dr. Paolo A Bolognese is the Surgical Director at the Chiari Neurosurgical Center at NSPC in Lake Success, NY - Learn more at: www.chronicpainpartners.com/w...

Пікірлер: 41
@fl3693
@fl3693 3 жыл бұрын
We need our own hospitals with comprehensive holistic and medical care. We are LOST in the "regular" medical system. The systemic issues overwhelm the undereducated and this allows for medical abuse and gaslighting re "conversion/hysteria/psychogenic" bullshit diagnosis. This guy is decades ahead of the normative conclusions
@tbbrink2329
@tbbrink2329 6 жыл бұрын
Excellent. As good an explanation of the current state of the art of understanding complex Chiari/EDS and CCI you could possibly get. It is a scientific pursuit in progress, therefore the choice of the word 'art'. Thank you Dr B.
@KimKozak
@KimKozak 5 жыл бұрын
Noting this for reference. Dr. Bolognese is doing great work.
@turnbullbuggs
@turnbullbuggs 6 жыл бұрын
Brilliant
@amgnico
@amgnico 2 жыл бұрын
I'd love to live in the USA with a lot of money because there are such great Tethered Cord and CCI docs!
@tiffanyspeer4661
@tiffanyspeer4661 Жыл бұрын
What are your thoughts on PRP injections prior to surgery for AAI or CCI?
@maryr7593
@maryr7593 Жыл бұрын
Has anyone researched Thoracic Outlet Syndrome (blood vessel being compressed in thoracic region, by various causes). YT channel, TOS MRI has many educational videos about TOS which has been a controversial diagnosis for last 10 yrs. It has lots of symptoms similar to orthostatic intolerance, headaches, painful use of arms and legs. I just discovered the syndrome which does have treatment. They say after treatment, far less pain and many ppl regain function of their limbs again. Please see if it fits anything with you or anyone you know. There is no research literature linking EDS and TOS...I assume because everyone has a hellish time getting diagnosis of either disease.
@dancingpianofairy
@dancingpianofairy Жыл бұрын
27:22 seems to be the start of the CCI section.
@sandywhat2429
@sandywhat2429 5 жыл бұрын
I am going to die here in Canada here very soon if I don't get help. God help me.
@bonniegallant6256
@bonniegallant6256 5 жыл бұрын
I feel the same way. Nobody wants to help me. I don't know if I can live this way anymore.
@sandywhat2429
@sandywhat2429 5 жыл бұрын
There aren't even health care advocates here Dr Bolognese will look at my case but I can't even find someone to help me fill out all the paperwork he needs I don't have the computer skills I'm going to die soon
@sandywhat2429
@sandywhat2429 5 жыл бұрын
@@bonniegallant6256 Neither. Bless you. Bless the both of us.
@bonniegallant6256
@bonniegallant6256 5 жыл бұрын
I can try to help you with the paperwork if you would like me to.
@sandywhat2429
@sandywhat2429 5 жыл бұрын
@@bonniegallant6256 Thank you, I need someone here in person with an updated computer and Word perfect skills etc. But thanks anyways.
@WildKatatHeart65
@WildKatatHeart65 6 жыл бұрын
"Eds people are mutants" lol
@sandywhat2429
@sandywhat2429 3 жыл бұрын
I wonder if any of these Chiari specialist NS's have seen patients who've stopped sleeping? I am dying here in Canada. God help me.
@sandywhat2429
@sandywhat2429 3 жыл бұрын
Dr B has my mri's. I can't get the money to talk to him. I'm in Canada with Chiari and EDS I no longer sleep I'm going to die soon if I don't get help God have mercy on me
@fl3693
@fl3693 3 жыл бұрын
hugs. so sorry xx
@charleneburgarello3618
@charleneburgarello3618 3 жыл бұрын
Do you have a gofundme or similar people can contribute to?
@sandywhat2429
@sandywhat2429 3 жыл бұрын
@@charleneburgarello3618 Thank you so much. ❤️❤️❤️🙏
@breezelight3357
@breezelight3357 3 жыл бұрын
What do you mean by you no longer can sleep? is it because the pain or do you have sleep apnea caused by the EDS & chiari?
@sandywhat2429
@sandywhat2429 3 жыл бұрын
@@charleneburgarello3618 no, only my paypal
@andreaphillips7595
@andreaphillips7595 4 жыл бұрын
Run, don’t walk, away from this guy.
@TheGlitzandglitter
@TheGlitzandglitter 4 жыл бұрын
why
@andreaphillips7595
@andreaphillips7595 4 жыл бұрын
Service Angel Luna long history of doing unnecessary surgical procedures... long history of settling medical malpractice suits out of court
@dianamorris5726
@dianamorris5726 4 жыл бұрын
He saved my daughter's life! I will be forever grateful for Dr. Bolognese!
@dianamorris5726
@dianamorris5726 4 жыл бұрын
The problem with Chiari is there is NO CURE!! Dr. Bolognese is saving the life of people that most doctors would not even try to help!! I am grateful for his courage to help and for all his research!!
@sandywhat2429
@sandywhat2429 3 жыл бұрын
You could say that about any surgeon. But not necessarily true. I'm in Canada, I cannot get surgery, not really even a proper assessment
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