The Autonomic Nervous System, Dysautonomia, and its Relationship to Cranio-cervical Instability

  Рет қаралды 37,369

The Ehlers-Danlos Society

The Ehlers-Danlos Society

4 жыл бұрын

Dr. Fraser Henderson, Sr. talks at the 2019 Global Learning Conference in Nashville, and explains how cranio-cervical instability can be connected to issues in Autonomic Nervous System and Dysautonomia.
Transcript coming soon! Slides are available from bit.ly/37zvtAk

Пікірлер: 61
@mariellalavado9236
@mariellalavado9236 5 ай бұрын
After watching this presentation I feel I know more than doctors in my country.
@user-mo6dt9lw7g
@user-mo6dt9lw7g Жыл бұрын
I FINALLY understand SO MUCH MORE about my life, fears, humiliations, and loses! And how my multiple surgeries, dislocations, subluxations, pains, sprains, scars, hospital stays for mysterious reasons, and veins breaking a million times when IV or blood work was necessary, splattering blood all over... AWFUL POTs since I am 8 (when I began to be very aware something was the matter) being able to swim in VERY cold water for long time but not being able to drink hot liquids or tolerate a hot day without passing out, not being able to sweat, etc etc etc, are connected! Most definitely not by collagen, but the lack of it. My lack of collagen is the glue that glues all my symptoms together!
@lashawnab.441
@lashawnab.441 3 жыл бұрын
What an intelligent and educated dr I wish all drs were like him. And I wish this dr was my dr in need a good dr badly. Thank u for sharing God bless
@jupitersmalls1507
@jupitersmalls1507 2 жыл бұрын
What a fantastic webinar. Such an articulate and bright presenter. Just loved it and really needed these clarifications. Exceptional! Thank you.
@KiwikimNZ
@KiwikimNZ Жыл бұрын
What an incredibly talented Dr. I got so much out of this presentation, Fabulous thank you.
@LivingFree207
@LivingFree207 Жыл бұрын
This was explained so well Makes so much sense now. Thank you!
@thadsamazingjourney
@thadsamazingjourney Ай бұрын
Its great someone knows the relationship, but fixing this is the challenge.
@lindasplaylist100
@lindasplaylist100 7 ай бұрын
Fantastic lecture
@jackiem9423
@jackiem9423 2 жыл бұрын
Great talk!
@guitarlearningtoplay
@guitarlearningtoplay 3 жыл бұрын
#1 wouldn’t group HIV into Autoimmune disease. #2 EDS and Mito I would group into hereditary or genetic disease. #3 I would characterize Lyme, TB and Botulism into infectious diseases
@AceHardy
@AceHardy 4 жыл бұрын
👑🙏
@jodysterk8771
@jodysterk8771 3 жыл бұрын
They say my neck is shaped wrong! I’m having always trouble with temperature pain dizzy, faint feeling rapid heart!i think they said a the wrong way
@jodysterk8771
@jodysterk8771 3 жыл бұрын
EDS DX in 2014 after several operations my bodie can not maintain a normal blood pressure low real low after surgery
@sueelliott8085
@sueelliott8085 3 жыл бұрын
My wife has HDS and most of these symptoms plus Dyspraxia. I notice he mentions bumping into doors. Surely this must be related?
@AdellBridges
@AdellBridges 4 жыл бұрын
Any chance of getting a copy of the slides from this?? :-D
@TheEhlersDanlosSociety
@TheEhlersDanlosSociety 4 жыл бұрын
Yes. bit.ly/37zvtAk
@merrilynstanger7241
@merrilynstanger7241 3 жыл бұрын
I wish I as him. Right now with my severe pain and weird gut problems I know cane on post face down fall as I am still traumatised by the fall and I get horrible pain but little movement I can’t eat but I have to
@janetatum8966
@janetatum8966 3 жыл бұрын
@@TheEhlersDanlosSociety I can't get the link to work for Dr. Henderson's slides. Assistance? A new link? Thanks! Update: found PDF of slides on your website by Googling...but link update still good.
@womaninamerica4572
@womaninamerica4572 3 жыл бұрын
@@TheEhlersDanlosSociety thank you! For this information and slides I have cfs/ fibromyalgia /cptsd this is very helpful. I've had many of these symptoms since childhood. Very much appreciated
@anthony14rmg
@anthony14rmg 3 жыл бұрын
@@janetatum8966just take screen caps of the slides. You can pause the video and take them.
@timcepin3386
@timcepin3386 Ай бұрын
Does anyone else with dysautonomia not feel the temperature or touch of their hand or hands on their body or face? Also, does anyone else with dysautonomia have lack of sensation in their head AND/OR lack the power to or doesn’t yawn when tired? Lastly, does anyone with dysautonomia find it difficult to keep to a schedule and details?
@fedfin3869
@fedfin3869 3 жыл бұрын
Also, any thoughts about what could link POTS, post-viral sindromes such as ME/CFS (and apparently now long covid, which seems to me a form of ME/CFS), hypermobility (eg. Ehler Danlos) and small fiber neuropathy? These four conditions are very frequently comorbidities and I am wondering what is the link? Many thanks
@peteraguilar2405
@peteraguilar2405 3 жыл бұрын
There’s a book called “what really causes pots” check it out, its part of the puzzle I believe.
@darlenemestas8347
@darlenemestas8347 3 жыл бұрын
CFS is from polio vaccine. Look up Judy Markowitz (sp?) She discovered it.
@fedfin3869
@fedfin3869 3 жыл бұрын
@@darlenemestas8347 yes I know the story. Unfortunately there is no evidence for that though
@darlenemestas8347
@darlenemestas8347 3 жыл бұрын
@@fedfin3869 you must not have seen the video I saw then. Buut thats fine.
@anthony14rmg
@anthony14rmg 3 жыл бұрын
@@darlenemestas8347 I never had the polio vaccine, but still have CFS.
@christinelambin1905
@christinelambin1905 4 жыл бұрын
Bonjour, avez-vous une traduction de cette conférence en français, s'il vous plaît ?
@ClaireGraceMarshall-jr5mm
@ClaireGraceMarshall-jr5mm 11 ай бұрын
I think there is a function to do auto translate and sometimes you can even choose the language setting on videos too.
@malindawoodring982
@malindawoodring982 3 ай бұрын
Is this guys name Dr. Ross Hauser?
@timcepin3386
@timcepin3386 Ай бұрын
Does anyone else with dysautonomia feel that their head is detached from their body? Does anyone else with dysautonomia deal with histamine sensitivity?
@dustyfeller
@dustyfeller 2 жыл бұрын
Anyone: How do I find a doctor specifically for cranial instability with Dysautonomia and related disorders? If you’re knowledgeable, what terms would you suggest I use to search in my area for a doctor?
@drdavidknight9856
@drdavidknight9856 2 жыл бұрын
You're looking for a neurologist with a focus on your primary diagnosis, PTSD,EDS,etc... I would Google these terms then get a referral from your regular doc. Hope that's helpful.
@dustyfeller
@dustyfeller 2 жыл бұрын
@@drdavidknight9856 thank you for taking a moment of your time to help-I hope you have a triumphant day 🍀
@michellemustari498
@michellemustari498 2 жыл бұрын
Dr.ross Hauser in ft. Myers fl. That's where I go
@bhawks9325
@bhawks9325 2 жыл бұрын
@@michellemustari498 has he helped?
@cassianyhvh7220
@cassianyhvh7220 2 жыл бұрын
Dr. Ross Hauser has fixed more upper cervical instability than probably any doctor in the world. He has many very helpful youtube videos related to both upper cervical instability and Ehlers Danlos.
@JMcMac4t
@JMcMac4t 17 күн бұрын
I was not properly diagnosed until I was 60 after pushing thru pneumothorax’s, placenta abruptia, polyneuropathy , insane headaches caused by brain sag at 10cm… burning pain in spine, trigeminal neuralgia… gastro issues beyond severe… The worst part, the gaslighting by doctors because of their own ignorance… My half sister died from Chiari at 43… My mother had scoliosis and many of the symptoms I had… As Yankees we touched out far too much.. She died when a lead tore her artery … My daughter too has this.. Bottom line, had I known I would Never had had a child knowing what I could pass on to her… European studies were far ahead of anything I found in New England… An awful, terrible, way to become totally disabled..
@lisaa6099
@lisaa6099 2 жыл бұрын
So what to do about it
@theresageiger584
@theresageiger584 2 жыл бұрын
Where is this doctor
@danare5851
@danare5851 2 жыл бұрын
he is with the metropolitan neurosurgery group in Maryland. He does not take insurance😢looong wait list. I'm on it 3 months now without an apt set up yet. He only sees 2 hypermobility patients a week. I know this is it! I have been saying it's my neck/skull for 20 yrs. I just got tired of lay down mri and CT scans and Drs saying everything was fine so I gave up ..until things got much worse. of course this gave researchers time to actually figure it out lol
@1Mssimplybeautiful
@1Mssimplybeautiful 2 жыл бұрын
What doctors do you even see if you have this?
@timcepin3386
@timcepin3386 Ай бұрын
(Functional) neurologist for one.
@joannmcfadden5425
@joannmcfadden5425 2 жыл бұрын
Does childhood trauma cause dysautonomia?
@timcepin3386
@timcepin3386 Ай бұрын
I wonder about that, too.
@theresageiger584
@theresageiger584 2 жыл бұрын
WHAT ABOUT BRAIN LEAKING
@theresageiger584
@theresageiger584 2 жыл бұрын
I went down crazy town crazy crap
@JohnBedson
@JohnBedson 3 жыл бұрын
He sounds like he has Covid.
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