You amazing girl! How you deal with so many serious, life-changing illnesses and remain as thoughtful and kind as you seem to be is utterly mind blowing. You have an old soul, sweetheart, and that it is probably why you are so intuitive about health and why you are handling all of this with such dignity. I feel so humbled by your post...here I am, 60 yrs old, and crabby because my knees hurt. You don’t deserve any of this, but you don’t act bitter or angry. I know I would never have been as noble as you at your age! I just feel sad that I cannot help you in some small way! It’s one thing to get treatment for your body health, but getting treatment for your mental health is quite another. I know you mentioned in a past video that you have a wonderful mom who supports you 100% and lots of good friends. Be sure to lean on them whenever you feel overwhelmed, afraid, sick or sad. And fight any urge you might get that tells you you’re a burden to any of them, because nothing could be further from the truth. I’m absolutely certain they are as inspired by you as I am! I hope you are able to enjoy the upcoming holiday season to the fullest, and I hope and pray 2018 is a MUCH better year for you!💕

I am 67 and did not get my hEDS diagnosis until I was 54.... Glad you got yours early.

I'm so glad that you felt well enough to post this video about your health! It sucks to be sick, especially when it is an invisible illness! My issues started in my early years too... well, early to me! Now, more than two DECADES later, I am finally fighting tooth and nail for an accurate diagnosis! I saw a neurologist who suggested Ehlers-Danlos hypermobile type and when I learned about it, I was floored by how well it fit me and my life. But, when I pursued the issue on my next visit, I quickly found out how hard it is to get a doctor who is willing to go on the record to actually be the one to say "yes, this is what is going on with you". I'm begging for imaging and genetic testing (to rule out other forms) to confirm the diagnosis, so I can take all of the evidence to my general practitioner for the diagnosis. So, considering my dislocations started around 13 and I'm 44 now, it's a lifelong struggle just to get to the point of diagnosis, much less to get to treatment for all of the issues that go along with it and the co-morbid illnesses. My point is this: it is GREAT that you got your diagnosis younger than me, so you can take the precautions to keep your joints in better shape than I have. I keep saying "if only I knew...". I've subscribed to your channel and hope that you can feel up to making more videos here soon. I found you from the Zebra Network facebook page, thank you for sharing all that you did there as well and I am so sorry for the loss of your Dad

Two of my children have Ehlers Danlos Syndrome. It’s tuff getting diagnosis and harder finding specialist consultants with knowledge. Having a syndrome means the multi symptoms they have. I wish you all the best. Please please do your physio daily it will help somewhat

I just found you tonight. I suffered a brain hemorrhage and I know other people who are going through other serious conditions. It helps me to listen to other peoples' perspectives. Thanks for sharing... You're very pretty. Peace.

You're amazing girl! I appreciate your strength your positivity you'll get over all illness,,, just make yourself happy and out of stress as it increases brain health and let your body fight this with all immunity.

Will continue to pray for your healing and strength 🌹💞💪🏻

Strong woman right here

You look good girl!! Sick or not, you're beautiful inside and out! Thanks for getting awareness out, so maybe more people will step out of seclusion, because we suffer in silence so often, because like you said, it's an invisible disease sometimes.

Amazing strength . Thank you for the update and the explanations. We appreciate the information on the illness.

Thank you for explaining EDS so well. I'm a fellow EDSer and am encouraged by your strength.

Sweetheart, I hope you are doing well. You’ve been through so much at a such a young age. Sending you most positive and healing thoughts ❤️

Hope you survived. your an angel

Very well done Marissa. I have EDS and several of the comorbid conditions you mentioned. Most don't realize all the conditions that are caused by the mutation in our collagen. Good job at sharing!

You are such a sweet young lady I will pray for you Love from Canada

Continued prayers 🙏🏻 hope you’re doing well

Despite everything you've been through you're looking gorgeous! Was great to hear from you again :)

God bless you Marissa, you are truly an angel here on earth. All my gratitude and prayers to you!

My heart goes out to you. I do hope so much you feel alot better in yourself. I have just watched your videos about your health,, i am so praying for you to be better. And we all do hope you manage to do another video soon,,, all the best.

I totally relate to not having the strength to share what you're going through on the regular. But when you do post, know that these videos mean much more to many of us than you know.

That's wonderful news =) I'm so happy for you!!!! May God keep you healthy from now on. Stay positive and strong as you've been doing so, God bless you baby girl

I am glad you're doing okay

Prayers for you 💖

hey .. its so good to see u marissa... thanx for keeping sharing about yourself.. praying for u always.. u are a wonderful soul!! i am a medical student . and u motivate so much to learn even more ... the most High Doctor will take care of you.. :) love u

I hope you did not give up and are much better now, don't stop fighting

I wish you get better girl. I am sending you good vibes from Brazil.

I’m so glad your tumors are getting smaller/gone! And I hope you start feeling better with your syndrome and that you can be happier and healthier. You are so strong and have faced so many hardships and honestly you can overcome anything!💖😘

Hope you are doing well! I admire your strength. Not everyone in your situation would still smile and be a positive person after going through all that you have. It takes real strength to keep going when times aren't ideal and it's truly inspiring to see it.

Prayers are always sent your way lady!! You are so amazing! I've seen some strong people but I've got to say that you are the strongest I've seen! You amaze me with how you have such a beautiful face and a look of full of life as you explain everything! I am so inspired by You! I too have some of the exact things going on with my body and if I can have half the courageous soul that you have I know I'll make it through. I'm so happy for you that your tumor is in remission and I will be praying that it stays that way so you don't have to have surgery! Please keep posting updates when you are feeling up to it because you are helping so many people girl! Love and prayers 100% your way! Thank you for your videos!!!

You are one of strongest woman I've seen in my entire life, I was about to give up on myself because of this disease but I'll fight until I win this battle. Thank you☺

Cute as a button and such a brave girl! Thank you for the follow up.

Praying for you 😘

Wow so glad that your tumors are going into remission!!! :) I have a close friend who also has a brain tumor and the doctor's aren't too sure what to do. She just found out that it isn't cancerous though so that's super exciting!!! Just liked and subscribed. I hope you're able to post more videos soon! I'd love to know how you're doing.

I am glad that you are feeling better and I hope that you are doing good

Thank you for sharing your story. You really are inspirational, and you have an incredible personality. I hope you are doing well, and would love to see an update.

Thanks for the update and good luck with everything else going on! You have this!

I love you so much 💕 you are so strong ❤️I hope you are fine now

It’s crazy to me how many people have EDS and I’ve only heard of it in the last few years. There’s HUNDREDS of videos of people who have it which is insane!

Hi Marissa how are you doing? you are such a strong girl and in my prayers xxx

I hope you are doing well in these days. I wish you all the best. Bye!

Hi Marissa, I don't think I'm the only one that's hoping you're doing fine. We love to "hear" from you soon

Also, as far as herniated disc goes, if you can, you might want to consult a good chiropractor on this (there are few that I know are really good, but I don't live not even near them, unfortunately, but you might...). P.S. You should upload more videos, an update on your health, progresses hopefully, etc. Although I do understand that you might not have the energy and/or concentration to do it... Get well, my friend.

Sorry to hear about your health, girl. But you are lucky in one respect for sure - and it's your natural beauty and incredible cornflower eyes. I bet you can beat Kristina Pimenova there. Please post more pictures of yourself because looking at beautiful faces makes people happy. And it is bound to make you happier by making others happier.

Hoping you're well

I hope you get better

Oh no not more sickness, I really feel,for you, you are suffering so much, every art of your body, bulging discs I know about, but I exercise a lot and that helps Having your joints dislocate , that’s sheer hell, I wish I could help,you , a couple people on here are saying about eating well, green smoothies, no sugar, we have to keep our immune system in top condition, to fight any disease, please try it, I follow so much on natural health , and some documentaries have the top drs from the top hospitals and universities all agreeing on this I send lots of hugs to you that this is the end of your troubles, so sad, you should be out enjoying yourself, let’s hope they find some sort of cure xxx🙏🏻🙏🏻🙏🏻❤️❤️❤️🇦🇺🇦🇺🌹🌹🌺🌺

🙏🏼✊🏼💕❤️ keep keeping on beautiful, sorry your in pain I do know how this feel 🙏🏼❤️💕 keep you in my prayers glad to hear the tumor news! Xox

Strong girl 😍

I pray for you to get through this :]

Good for You sweetie

I am praying for you.

Hi dear,, how r u now???

Hi Marissa,ive been following your news since last year,so sorry to know that.For your info im from Borneo island,survivor from the pituitary tumor( benign) sorry for my bad english but i would be greatful to share on personal message if u like,regarding the tumor topic that ive been through since 2015.

Never give up

Stay strong!💖

How are you doing Marissa Anne????????? 💕

You look awsome ;)

Sounds like what I have been going through all my life! Small brain tumour, EDS of numerous ileals. Aneurysms and a dissected aorta and a new heart valve. I am sincerely so sorry anyone has to go through this. Sadly it appears it was passed down in some ways to my kids. Mast cell issues to beat the band.

Ah, so many things happening to you?.. Plz stay strong and may God be with you, all the health problems go away.. Eat lots of oranges, drink some warm tea. guarantee they will make you feel better..

Did the tumor come from eds? I also have eds and wondering if the two are linked

mri report n syndrome report.how u r still alive with all these? May God bless u

About auto immune diseases - check out Dr. John Bergman's videos on this topic - some times (many?) the mainstream medical system categorizes as "auto immune disease" conditions caused by lifestyle choices (diet mainly). Just so you know another perspective on this topic...

How are you now ? Are you ok ? Hop everything is great for you

Are you alright, I constantly have headaches in one particular part of my head should i be worry?

Hi, try to eat only organic raw food, nothing else. It will help for sure!

I wonder why people with a ehlers danlos have allergies.i thought it just affected the connective tissue.as well, I am hearing that people with ehlers danlos can be prone to anxiety.i wonder if it is a more complex illness than we know.

Update? I want to know...

hope your doing welle

Does eating collagen powder help?

Thank you for taking the time. your videos give me hope. Do you have a public Facebook account?

Hughes and kisses, all the love there is in the world sent to you😍😍😍😍😍😍😍🤗🤗🤗😍🤗😍😍😍😍😍🤗🤗🤗😍😍😍😍😍😍😍

❤Brave❤

Garlic! Mexican remedy!!!!! it works!!!

How are you hunny

How are you now ?

how are you my dear,big hugs

You might want to change your lifestyle, my friend, as a preventive measure. Mainly change diet. Let me know and I'll link here more info about what I'm talking about.

I have a prolactinoma and im so scare of the surgery :(

How do I know if I need to get checked for a brain tumor? I have some of the symptoms and I’m worried but I don’t want to go get an MRI if I don’t need one?

Poor thing! Just be careful with all these diagnosis because sometimes when doctors don't know what it is they just diagnosed a disease.

How are you doing now?

How are you doing?

Have ever seen courtelizz1 she make brian tumor look like it's the end of world don't get me wrong I'm not saying it must be horrible but she makes it so look so dramatic

How are you doing Melissa ?

Have you tried eating healthier? No pizza, sugar, bread, etc. Buying a juicer and making green smoothies? Could help. Good luck!

RIP she died this morning:(