Embracing Your Value: Building Self-Worth in the Face of Multiple Sclerosis

Рет қаралды 2,503

8 ай бұрын

Multiple Sclerosis impacts your sense of self-worth: there is no doubt about that. But this is how I think we should try to redefine the perception of ourselves and try to practice more self-love.
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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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⚠️ DISCLAIMER:
My channel is in no way supposed to provide medical advice or guidance and I do not claim any medical knowledge of Multiple Sclerosis. I merely discuss MS-related topics from a patient's point of view. If you have a serious medical condition, please consult your medical practitioner immediately. By using this channel you do so at your own risk. "Life of Seb" KZfaq channel accepts no liability in part or in full for any damages or injury caused by the use of any content provided.
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Пікірлер: 37

@lilianadoval8927 8 ай бұрын

You are probably now a better person who has learned to overcome the "no" of life, who better understands your own suffering and the suffering of others and who has enough strength to put yourself out there and help others. The one who tries to enjoy the little great things in life, the ones that really matter. You worth Seb and you deserve the best. Don't let anyone convince you otherwise. Live for today, tomorrow is never promised for none of us human beings. Hugs.

@LifeofSebMS 8 ай бұрын

You are truly wonderful, thank you so much for these words Liliana 🥰🧡

@peterjansen5571 8 ай бұрын

Hi Seb, 4 years ago i had my last relapse. Got a new job at an export office instead of being an electrcian out in the field. Last weekend i felt something was wrong with my leg. Numbness. Today my neuroligist confirmed a relapse. My employer and colleges sent me so much hartwarming messages like : healthy first and take as much time as you need so i realy feel good inside. It may sound a bit weird but ms has given me al lot of good things. Every bad thing has a positive side. In this moment i really feel ok ish with my relapse😂. Sending good vibes to you and all your followers! We are awsome regardless of ms.

@LifeofSebMS 8 ай бұрын

I’m so happy to hear that you found a supportive work place! It’s super important. Sorry to hear about your relapse though… hope you get back on your feet soon! Hugs to you 🤗🧡

@lauracarlson9260 8 ай бұрын

My initial diagnosis really did not affect me much immediately as it was RRMS and my flares were far apart- like 12-18 months and they went away quickly with the steroid treatments. Not until about 12 years later did it have much impact on my life and only now is impacting me significantly like that I am retiring early. Hard to even type that. I'm starting to tell friends that I have MS. I took a trip to Scotland with one friend in May (in a group of 7) and she told me that I required a lot more assistance that she thought I would. I could tell she wouldn't want to travel with me again. Things like if the hotels (that she made the reservations in) didn't have elevators/lifts and I couldn't really move my luggage up the stairs on my own. She didn't realize that was a requirement I had. I didn't want to walk for miles with them on the streets- preferring to use hop-on hop-off buses and limit the walking, etc. I realized she didn't really understand what was going on in my life and the limitations I just naturally accept. These types of reactions affect my self-worth.

@LifeofSebMS 8 ай бұрын

That’s terrible… perhaps you need new friends? 🙏🏻🧡

@ulftruffe8723 8 ай бұрын

Yes we are still lovable. And I feel better about myself now. My MS made me stop and reflect. I didn't feel funny at first. And grief over what I couldn't continue with. But discovering one's self is both terrifying and amazing. I rushed through life on the highest wave. Now I do it with my whole self. Not as fast but I do. And it feels nice.❤

@LifeofSebMS 8 ай бұрын

Beautiful words, brother 🤗🧡

@yellowbird5411 8 ай бұрын

Seb, I don't know if you've ever done modeling, but if you haven't, you have missed one of your gifts. You are such a beautiful man, both inside and out.

@LifeofSebMS 8 ай бұрын

Thanks 😝🧡

@EvenSoItIsWell 8 ай бұрын

Such a wonderful and insightful video. Many who are diagnosed, especially at the beginning, lose our sense of self worth. I completely agree with you on how we can’t separate (and blame) our MS. It is indeed part of us. I can’t tear myself in two and love one part and then fight the other. Thanks for posting this.

@LifeofSebMS 8 ай бұрын

I’m so glad you agreed with my stream of consciousness video 😂 but it is exactly how you said it: we cannot choose to love only one part of who we are 🙏🏻🧡

@NYNC88 8 ай бұрын

Seb, I hope you'll be kinder to yourself. My issue is that I blame myself for the severity of my MS and subsequent trigeminal neuralgia. I tell myself that if I hadn't ignored symptoms, I wouldn't have so much pain and disability now. MS is so hard.

@LifeofSebMS 8 ай бұрын

Sorry to hear that 😔🧡

@jenniferb8983 8 ай бұрын

Thank you so very much for sharing a beautiful, insightful way of thinking. I was only diagnosed this year and have been struggling with a lot. Thank you I’m going to try to start thinking differently!

@LifeofSebMS 8 ай бұрын

Hopefully this way of thinking will help us all 💪🏻🧡

@arielatomhc 7 ай бұрын

I had Optic Neuritis 10 years ago but nothing else MS related. My vision is now 85% in the affected eye. Iv watched your videos for years. I just wanted to say a lot of the mental challenges you mention in your videos are no different to everybody else's. You shouldn't blame MS for these challenges. For example everyone has to build and maintain their confidence levels or own self esteem and some people struggle with this. It took me a long time to trust my immune system again but i am fine now.

@LifeofSebMS 7 ай бұрын

You’re right, self-confidence is indeed almost everybody‘s weak spot. But what I’m saying is that MS is like the nagging voice of self-doubt becoming just a little louder 🙏🏻🧡

@livingwithms 8 ай бұрын

Been giving this topic a lot of thought myself. Great video! Thanks for sharing 🙏🏻

@danielklementi 6 ай бұрын

Thank you, Dear Seb, again and again !!!

@LifeofSebMS 6 ай бұрын

Thank you!! 🤗🧡

@bettyjones3276 8 ай бұрын

Good to see you you are looking good and healthy ❤

@LifeofSebMS 8 ай бұрын

🤗🧡

@martinschultz2631 8 ай бұрын

The glasses are awesome!!!! 😎 for how long do you take ocrevus now?

@LifeofSebMS 8 ай бұрын

Thanks ☺️ every 9 months for the past three years 🙏🏻🧡

@martinschultz2631 8 ай бұрын

@@LifeofSebMS thank you! Do you have any sideeffect of the drug?

@julieb737 8 ай бұрын

I didn’t have confidence or self love before MS so 23 yrs later I’m unlikely to have it now . A don’t work now after being disability pensioned off at 36 yrs old after working for 20 yrs .Confidence isn’t so much of a thing for me now as I’m at home on my own apart from carers coming , seeing me . I know I need to care about my mental state as I’m a long term sufferer of depression , but that didn’t start until yrs after I’d stopped working . It’s hard going with MS but it’s sad when I have no one to try my best for .

@LifeofSebMS 8 ай бұрын

So sorry to hear that Julie 😔🧡

@yellowbird5411 8 ай бұрын

For those with disabilities that keep them at home, there is a lot you can still do to help others. There are support groups online for just about every illness and condition, both physical, emotional and mental. We all, no matter what our situation, have a lot to offer others, and we can't always know what will make a difference. Sometimes just a word, sharing our experience, offering hope and compassion or just listening can turn others' lives around. So I encourage everyone to get into a support group at least to try it out, or even more than one. If it doesn't feel right, you can always drop out. Online support groups are great, but in-person ones are even better sometimes. And never feel that you can't do your best. You can set examples for others, even if you don't even know them. Seb is a great example!

@julieb737 8 ай бұрын

I tried the local MS society gatherings twice but it was like being an outsider , a stranger in a new school , wasn’t part of the click . I couldn’t get away with it , unfortunately .@@yellowbird5411

@NYNC88 8 ай бұрын

I'm sorry about your suffering. I hope you'll find things that bring you joy.

@shawnmcanthony5724 8 ай бұрын

Julie i have fallen into depression to because ms is a disease the constant neurotic pain is overwhelming. What helps me is being one of Jehovah's witness i know for fact according to Jehovah gods word at isiah 33:24 no one will say i am sick. It was Jehovah gods original purpose on earth just like in the garden of eden . Speak with one of Jehovah's witness or contact them online❤❤

@lararose9106 8 ай бұрын

Hi seb how r u its ur dizzy friend lulu hope ur doing great😊..seb i wanted to ask u if u remember i told u im not on DMTs and im only second year diagnosed im 36 btw. Im in a wheelchair but according to physiotherapists and drs i still have function but im unable to stand and walk ive weakened from dizziness ataxia and being inactive. My neuro said physiotherapy wont do anything and to me its ridiculous that he wud even say that to a patient. Do u thnk its ethical to refuse to work on the reserve i have just because i made a personal chose not to take DMTs for now

@LifeofSebMS 8 ай бұрын

I wouldn’t want to speak to what a doctor should or shouldn’t do, although I do think it would be ethical for the doctor to explain to you the benefits of taking a DMT 🙏🏻🧡