Hi everyone! I celebrated (for lack of a better word) my two year anniversary of being diagnosed with endometriosis. Here's a few things I've learned since then.
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@summermurray36329 жыл бұрын
It has become a navigator and in its own way has shown me what I'm really made of. It has shown me fake people. It has shown me how much my husband loves me. It has shown me so much more that I would have never known before I was DX iabout six years ago. Much love my fellow warrior!
@thelifewriter1279 жыл бұрын
You making these videos makes me feel strong and feel less alone. I was diagnosed March 4,2014. I am 20 and have had one lap. My endo is back worse then ever. I'm in so much pain and work on my feet all day. I can relate. I am open to any endo sisters getting ahold of me also. Support for others is the best form of help we can get!
@drhikaru9 жыл бұрын
Kim Bee There are numerous support groups on Facebook that have been super helpful for me, I encourage for you to find one to join as well! Thank you for your kind words, and feel free to reach out to me whenever for support!
@summermurray36329 жыл бұрын
Glad to see you smile Hun! I like you don't talk about my pain as it is chronic and I am now disabled. I once was a runner. I once was a painter (I can't sit for more than five mins. Like you said each person w/ endo is different. My chronic pain requires me to be on narcotics to be"normal". I'm having excision surgery in march !15 and a total hyst later next year because of the adeno. I will still be dealing with bone loss disease and fibromyalgia.
@breannarg9 жыл бұрын
You are so inspirational, so real and so honest. I really enjoyed watching your videos. I would like to start a vlog myself!. I agree with you - we face emotions other people don't. We aren't dramatic, we are facing a reality that is so much more difficult than most people face in their entire life. I am so glad that you are an excision marauder... I hope we can work together in the future to change the way we view this disease. To help women get the help they need. I feel like the last two years of my life have been crazy - I nearly died twice. I had a doctor do a surgery in 2011... when the pain came back they literally let me get so sick I was near death before I got the help I needed (I had a bunch of other opinions, but they were OBGYNs... not experts and I didn't know). I just want to make sure women get the right care, we aren't defined by this disease and that we deserve to be as pain free as possible. Sending my love
@Sakana_Ren9 жыл бұрын
If I could say one thing that endo has taught me, then it has taught me that (for women) emotional pain and physical pain are interconnected. Before I was diagnosed, I didn't know that men can separate these two types of pain. As a result, in addition to talking about the pain that I am experiencing, I also need to remember that both types are interconnected. Take care. *hugs*
@drhikaru9 жыл бұрын
Sakana McLetsbuild Pain is such a tough thing to manage and even harder to explain to people. It affects us in so many ways and every person interprets, connects, and manages pain differently. Endo teaches us many lessons, and while some are easier than others, there are some that are universal across the board. One lesson for me that I struggle with is to be gentle with myself and not to ignore that endo causes trauma and heartbreak in all forms.
@knothere2day9979 жыл бұрын
I just ran across you today on You tube while I was look up videos on the subject of post endometral ablation syndrome (which by the way there are amost none) and one video led to another you get it and I came across your touching video " How I found out I had Endo" from back in 2012. By that time I was about 2 weeks post my 2nd surgery for endo and they also did the ablation that was supposed to stop the endo from coming back. well as I'm writing this I am trying to scope out the best place in my office to plug in my heating pad lol.I am so sorry you hurt. The pain is life changing and only someone else in chronic pain will understand!!!! I was diagnosed in 2009 with Endo after being in such severe pain I had lost 40lbs in a year. The pain started slowly and it was in my lower back and it started right after I had my baby. When it reached epic levels my family doctor sent me to get an MRI on my back and then to a neuro surgeon who said my back had bulging disks but they where not at the level my pain was. He said I must have a tilted uterus or endo and sent me to an OBGYN. I got in with that OBGYN the next week and at the appointment I told him what the neuro surgeon said and the next week I was on the operating table and the OBGYN was digging Endo out of my body. That was one smart neuro surgeon and cute too lol. Wish it was over there or endometriosis was the only thing i am dealing with. I also have fibromyalgia I am starting to show signs of Rhuemoid Arthritis and when i was 19 I keep getting precancerous cells on my cervix which caused me to almost a non existent cervix due to all the leeps and what not. I did manage to have a baby she is my miracle almost lost her that was very scary! My endo didnt start till after my baby so I am a wierd case like you say. I should stop Im sorry for my novel. I was just so excited I found you guys really Ive never joined a group for any of my conditions Ive just pushed on. Wow U are AMAZING MY DEAR AND TO BE SO YOUNG!!!!!!!
@drhikaru9 жыл бұрын
Nicole Burdett Thanks so much for your comment! I'm so sorry I didn't reply sooner, my notifications don't always seem to tell me everything! I'm so glad that you shared your story with me, the more people that are connected, the stronger we are as a force! Please let me know if there is anything I can do to support you in your journey!
@summermurray36329 жыл бұрын
As far as other people I have my husband. Because I can't plan my day,week or month I have been told I'm flaky and have lost friends. I have found out who is there for me and who want to understand what I'm going through. The one thing that makes me frustrated is how little support I am getting with up coming surgeries. It's as though it's no big deal. It's me, my husband and my parents...and unfortunately my younger sister has endo and probably adeno as well. This disease is not me.
@cyndybennett95629 жыл бұрын
I have blonde and blue hair too!! You rock girl!!
@GwynWalker9 жыл бұрын
Hi Doc. It is Endo Awareness Month and I just want to check on you and see how you are doing. Miss your videos. How all is better.
@drhikaru9 жыл бұрын
Gwyn Walker I've been preparing for EndoMarch 2015! So it's been a whirlwind through travel and my life. I'm working on getting more videos, my last one didn't quite upload and I'm not sure why. Boooo. But I am uploading my speech for EndoMarch. I hope you are well too!