Ep4: Haemochromatosis and Arthritis with Prof Graeme Carroll

Рет қаралды 7,117

3 жыл бұрын

Assoc Prof Graeme Carroll is a Consultant Physician in Rheumatology at Fremantle Hospital. WA and Associate Professor of Medicine University of Notre Dame Australia and University of Western Australia. In this podcast Graeme talks about the arthropathy associated with haemochromatosis, our current understanding of the prevalence, cause, treatment and potential future research in the field.

Пікірлер: 23

@amybrock9840 Жыл бұрын

Thanks so much for your video. So many doctors are not aware of this problem with hereditary hemochromatosis. It is a very painful condition.

@Mickymouse-lx8eb Жыл бұрын

Very good explanation and plan speaking thanks👍

@sarar5230 Жыл бұрын

Im researching this, due to a family member being diagnosed with this 5 years ago. There’s good info on the British Skin Foundation and a blog linked to skin and Hemochromatosis dealing with skin/pain conditions. Also Hemochromatosis help online

@grahamehynard-bc1jm Жыл бұрын

I would like to thank you for your video and correspondence to lead me to Dr Malcolm Handle at St Vincent's Hospital Sydney, I had almost given up on everything but I now have some relief, more importantly someone who has some idea with what is going on with HH. I am indebted to you.

@mcguv2 3 жыл бұрын

Interesting thanks for your help

@RPOLIVNICK 8 ай бұрын

I have high iron. Infrared sauna every night. If I go for more then a week without the sauna I feel sore in the joints.

@debbieingram1931 2 жыл бұрын

I started with arthritis in my knee and hips and hands, now 3 years on I seem to have it in every joint from my jaw down to my feet, I am only 53 and was only diagnosed with HH 3 years ago. Sadly my doctor had never heard of it and has no interest in learning, where can I go to find treatment for my bones, as he is just saying it's probably osteoarthritis, I did have x-rays done of knee and hip and that's where he drew he diagnosis from, but when I returned with other boney issues he just put me on a waiting list for rheumatology, this list is at least 4 years long! I want answers now and treatment now!

@amybrock9840 Жыл бұрын

I feel for you . I was diagnosed a little over 2 years ago. I too have lots of joint pain . I have tried deep blue cream and it helps with joint pain .

@debbieingram1931 Жыл бұрын

I have never heard of that? Is it prescribed or over the counter?

@amybrock9840 Жыл бұрын

It is over the counter .

@lauchlanguddy1004 Жыл бұрын

Ok dont quote me but..... My hands and knuckles , right hand were impacted but over the years have improved greatly. I recently developed "mild" arthritis in my right hip. long story short, I have been taking curcumin with pepper and glucosamine with chondrotin, one for three months and the Glucosamine for about a month and it "seems" to be moderating.... dont quote me but... My major concern is iron based dementia

@debbieingram1931 Жыл бұрын

@@lauchlanguddy1004 ok that's a new one on me! What is iron based dementia?

@judithpoulin2351 Жыл бұрын

Significant mineral balancing in the body? Copper balancing?

@minikensh 3 жыл бұрын

Very interesting Thank you I have hh

@judithpoulin2351 Жыл бұрын

Wonder if oxalate deposition in joints, maybe binding to the iron there, could be a factor ?

@linlivingstonjnr1615 11 ай бұрын

@JUDITHPOULIN ; YOUR SUGGESTION IS 💯 % SPOT ON... INTELLIGENT / CRITICAL THINKING ... THIS NEEDS TO BE RESEARCHED..!!!

@judithpoulin2351 11 ай бұрын

@@linlivingstonjnr1615 thanks for the compliment…I never see joint crystals actually analyzed (ouch) but I have huge oxalate issues. They seem to be referred to as another type of crystal than calcium oxalate. I’ve had a practitioner say Oxalates are due to tissue calcification…a mineral imbalance. Makes sense for sure…

@debravascukynas8491 Жыл бұрын

Can this happen with half gene of hemochromatosis? My ferritin level is 372 and I have extreme inflammation and joint pain.

@linlivingstonjnr1615 11 ай бұрын

@debravascuknas8491 ; I AM FULL OF INFORMATION & JOINT PAIN... JUST CHECK MY FERRITIN & RESULT WAS 360... SAUNAS / ACTIVATED CHARCOAL WITH WHITE CANE RUM... IS A MUST THERAPHY TO RID THE BODY OF THIS POISONS..!!!

@DeverVision 2 жыл бұрын

What about the heart. Does the iron levels drop. Or, does the iron and damage get pulled from the heart? And, what organ gets effected first? I have hemochromatosis and my body feels badly damaged. Any answers would be great. Thanks.

@amybrock9840 Жыл бұрын

I don't know about damage . When you have a phlebotomy it causes the body to use the iron that is stored in tissues and organs . This is what my hemotologist told me .

@braddywarbucks Жыл бұрын

He says in the video that it pulls the iron back out of organs. But not joints. I have read that life expectancy for well and early treated HH is almost that of a non HH person.

@mammamia200 2 ай бұрын

Thank you so much for this video. I have severe arthritis in my hip along with arthritis everywhere. I have hereditary hemochromatosis and also Alpha-1. I am SZ. I suffer terribly but do the treadmill almost daily 15 minutes. I need to get back to using weights. I am desperately trying to avoid a hip replacement. I will subscribe for future videos. Thank you again!!