instablaster.

Even when the signs, symptoms of the condition get so blatantly obvious to a chipmunk most of the so called "professionals" will STILL dismiss the facts and say nonsense like "we can't find anything" or they will give you a fictious label like the notorious made up IBS because they are too lazy to do their job.

I agree I suffered from fatigue and feeling run down for years . I was told I was overweight and had too much stress. My brother was diagnosed with hereditary hemochromatosis first .I had never heard of it.

In a comment section elsewhere someone wrote in to say that cod liver oil can raise ferritin levels considerably. After taking clo he and a friend landed up in hospital with severe infections and sky-high ferritin levels.

Absolutely! I had many symptoms prior to being diagnosed and they were getting more and more painful very subtly as time went on. Many symptoms such as bad chest pains, excruciating leg cramps, arthritis in many joints including knees, hands and feet, etc. There was also alot of worry because I was wondering what was happening to me. Due to all this I believe that ferritin/iron levels should be tested whenever any signs of arthritis show. Many people suffer and sluff it off until the damage is done. In my biased opinion I think that an iron test should be part of any blood test, because there are many people with this disease. Since my phlebotomies started all my symptoms have gone except the arthritis stayed, but has remarkably gotten better. I have ate well and ran/jogged for many years now, still do, and believe that has helped me in many ways in my recovery from the symptoms of type 1 hemochromatosis. Sorry i went on so long covering some ground, but i want everyone to know there may be hope.🧲🩸💚

What 3200 you mean your ferritin level?

That tired feeling you get is because your body is not reproducing red blood cells as fast as they should or it could be they are producing fast enough but blowing up before they can deliver O2

@@pabloblanco2656 adding magnesium and sodium (in the form of sea salt) may help with energy levels as well...also bee pollen for copper. Morley Robbins is a very good resource.

@@krogden4318 good advice for the guy that posted the comment. I was just providing an explanation to why he feels tired immediately after the blood loss

Back to say that I've been on maintenance since about January 2022 and have become a blood donator as often as they let me(depends on iron level etc etc factors) give it so far. To all those that can give, enjoy giving blood, as they say it is always needed and can be a great way to maintain hemochromatosis too!💜🩸

Can you take IP6 it lowers ferretin..

@@vikkiprevette2934 I do not know.

Yes absolutely irrefutably true

Yes 50/50 you've got it i have my sister hasn't.

I do have hemochromatosis .

Potatoes made your joint pain go away ?

Hey My overall skin gets darker day by day for nearly 1-2 years now My age is 21 years , i have done hormonal test but it is rormal. My skin gets darker particularly when masturbate .in last 3-4 months i am not go in sun exposure still my skin colour gets darker every day . Is that any similarities?

Can you guide me what should i do

Why don't we screen babies for this . It would help to know for the future.

@@pradeeprevankar8760 I have same problem for my skin I think u need to go to se a dr

@@amybrock9840 no business for docs in the future..

It's been known to happen.

"Sixteen months after institution of aggressive phlebotomy therapy, serum LH, FSH, and testosterone were normal, and potency and libido had returned. Twenty months after diagnosis the patient fathered another child."

Good to hear that. How old is the patient at that time?

@@keanamuba "37-yr-old"

damn I HOPE SO

I thing I have this

@@zozansinde9610 want to talk about it ?

@@FEXAZb my phon # 5402169108 u can call me

Because it’s their normal, good/bad days, told is ibs, stress, no real investigations. It gets worse with age and we complain but no one gets it. I did a dna health test and uncovered it myself

can we talk ?@@villasoka884

700 is high. Get it down fast with phelebotomies.

Did you test positive for hemochromatosis?

Use curcumin with peperine in capsules to help bring down levels. I take 3 capsules with each meal. Level coming down steadily

how are you doing now? are your numbers better now and did you find the cause?

First and foremost you need to know that labs have different equipment and different ranges so your starting point should be to get the same test performed BUT at a DIFFERENT lab and compare. If the results are similar than it becomes a matter of interpretation but if the results are drastic then you would know you can not rely on the results of any one lab and at that point you would need to have the same test performed at a third lab and go with the results of the two out of three labs that are closer to each other in results

Inflammation is found in every diet including dairy and plant based not just meat

@@user-uv7up4vg6i Dr. Jerome Sullivan RIP believed ferritin is not required. He believed the only way to be 'proof positive' there is no iron in storage, causing problems, is to lower the ferritin to zero.

@@user-uv7up4vg6i Five excerpts from discussions on the ferritin issue with Dr. Jerome Sullivan: 1] Achieving a zero ferritin is diagnostically useful. At a zero level of stored iron, we can be fairly confident that a state of iron overload is not present at the time of the determination. The only way to have any real confidence that stored iron is not contributing to a patholgic process is to remove it and see if the patient does better clinically. Patients with hepatitis C or diabetes may have an iron overload in this sense without having the hemochromatosis genes or the classic histologic findings of liver iron overload. If you insist that iron overload exists only when stringent, traditional criteria are satisfied, you may not find a higher proportion of iron overload thus defined in the study population. Nonetheless removal of small iron burdens may result in marked clinical improvement. Attached below is the abstract of an important paper on hepatitis C and phlebotomy. Even after all stored iron was removed and the liver function tests improved, removal of more iron resulted in more improvement even after ferritin bottomed out. I would argue that these patients had a clinically significant degree of iron overload even though the amount of iron in question was microscopic in comparison with the amounts seen in traditional iron overload. Studies showing that a certain percentage of patients with this or that illness have iron overload are deeply flawed. By only looking at massive iron overload these studies are blind to any important effects of lower stored iron levels. Jerome L. Sullivan, MD, PhD