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I still think about it everyday. Takin meds ever few hours makes you think about it. But since the meds work for a good amount of time, it doesn’t consume my everyday. Are you newly diagnosed? I feel the same way you did for the first year or two.

I was the same way for the first year, PD consumed my every thought. Then one day I realized I wasn't living in the moment and appreciating the time with family and friends. I have really put it behind me as much as possible.

@@brianbaker4648 You did have stiffness as well if I'm not wrong. is that right? The stiffness is killing me. And I have more off days than on days. They still have not been able to adjust my medication. Going too high up gives me similar symptoms but much exaggerated. I was on way too high medication. Lowered it and started feeling better but it only lasts for a short period. Doctors are not responding and I have to suffer for 10 to 20 days at a time before someone responds to me. I'm so lost. How did you handle yours and did you have issues with adjustment?

Thanks for checking in. I am doing well. I am not currently on any PD meds. Biggest thing is I don't have any off periods.

You should

I found high sugar foods, caffeine a no go. You should look up the mind diet. I found this helpful for me. A dietitian nutritionist would be worth talking with.

@@JessieTheBeagle oh wow had no knowledge of caffeine. And how long apart before and after the medication ?

Levadopa is absorbed in the upper intestine. Not the stomach. So you want to take your sinemet on an empty stomach and wash it down with a full glass of water. Then give it an hour. That maximizes levadopa that makes it to the brain. It also eases nausea from the med as it isn’t in the stomach long.

@@vincewatkins8439 Empty stomach, one hour or 2 after food? Since my Rytary and Levedopa wear off within 2.5-3 hours, I will have to increase my dosage from every 4hrs to every 3hrs, which would make it tougher to manuever. Interesitngly, I told my pharmacy that I have heard in many places to eat on empty stomach. Her response was food or no food OK. :0

Here's the link to share: www.youtube.com/@thesecretlifeofparkinsons

I take my medication at the same exact time every day: 7am, 11am, 3pm, 7pm, 10pm. I take it with a glass of water. Sometimes food sometimes not. But always water

I know you didn't ask to be part of this group, but if you find the right support, the PD community is an amazing group of individuals! There's no harm in starting meds now. You want to live the best you can right now. So if that means taking a low dose of meds to reduce the PD symptoms, do it. Your body doesn't build immunity to these drugs, which some people believe, and then they think they "won't work" later. What happens is, because it's a degenerative disease, we are getting worse over time. So then we need more medication. But there comes a point where the medication can only do so much. I compare it to my friend that gets severe, chronic migraines. If she took advil NOTHING, and I mean NOTHING would change. She would still be in pain. Same with us. When our disease gets worse, the carbadopa/levadopa can only do so much. I hope that helps!

@@thesecretlifeofparkinsons thank you very much

I haven't noticed either of these having an impact, but of course everyone reactions are different with PD.

If you would like to email me at jessica@thesecretlifeofpd.org and I can put you in touch with a friend of mine who has Parkinson's and is also a photographer.

I recommend using a tripod and shooting short videos or “burst mode” where the camera captures a series of pictures. Configure your camera for maximum video image stabilization. A single pole ‘tripod’ (long selfie stick with base on the ground) can steady your shot and also help provide stability as you are walking. Alternative would be an off-road wheel chair with a camera mounted to it. You can then edit the video or burst mode shots for the screenshot that provides the best still photo view.

I have it as well and I still have a very tough time dealing with the diagnosis and the quick progression. And having to search on my own to find helpful information. My understanding is PD also causes depression on its own. So it would be helpful to get assistance from your doctor with medication if he feels accordingly. My doctor was going to give me Ativan for the sudden anxieties that I get when I have the symptoms. But after doing some research I have requested propanolol which has helped me some as I think Ativan and is more addictive.

I recently started on Lexapro and have found it helpful.

Try not to sink in your own misery. I know is difficult and we like to isolate but socializing and getting out help a lot

Definitely getting out will help. But some medications help the anxiety more than the others. Have you ever tried Effexor? If I'm not wrong Lexapro is from the same family as well that addresses anxiety as well.

Essayer d améliorer le microbiote : probiotiques ,spiruline, phycocyanine, curcuma, enzymes digestives,

Here is a podcast we did with an ENT: kzfaq.info/get/bejne/aKxdoKybrtrYqnU.htmlsi=9sET-43BHphsTrVp

And another podcast with a nurse/therapist who works at that ENT: kzfaq.info/get/bejne/qJ2flNiGzLnGmoE.html

It’s called Guide Beauty: www.guidebeauty.com

Thank for the feedback. Do you have any tips or ideas for future podcasts? Did you check our our first tips and tricks (episode 8)? What would you like to learn? If it’s not something we produce, I can probably point you in the right direction to another podcast or resource. Happy to help