Esophagectomy 5 1/2 years later

  Рет қаралды 7,253

Esophagectomy- My Journey

Esophagectomy- My Journey

Күн бұрын

Hello everyone! I'm still alive! So sorry it has taken so long for me to give you all an update. I appologize for not reponding to a lot of you. I have no excuse. However I do wish everyone and their families speedy recoveries. My best advice for everyone, is the moment something weird starts happening, like trouble swallowing, coughing after you eat, burning in your throat, especially at night and if your a stomach sleeper you are going to be a target for esophageal cancer.

Пікірлер: 79
@bertbowman5027
@bertbowman5027 3 ай бұрын
Hello from a seven year survivor of both esophagectomy and stomach removal! Glad to see your still doing ok ! Comment if you wish !
@89633
@89633 2 ай бұрын
How are you doing
@susanamberg3960
@susanamberg3960 Жыл бұрын
Good to see you!! Thank you for ALL of your videos, Iwatched your series just after my husband was diagnosed with a tumor in his esophagus on Dec 7, 2021. Not much out there to see what really goes on until your videos. My husband had his surgery 4/2/22, ended up one week later with a leak in the anastomosis, along with 2 ltr of fluid from his body and shingles. It was a bit of a mess. He had a stent placed in his esophagus and a wound vac to help it all heal. That went really well although he was kept on the feeding tube much longer than anticipated because of the stent. We are now past all of that. His left vocal cord was damaged and therefore paralyzed, voice therapy has helped some, but will probably have the block inserted to be permanently fixed. A few weeks ago he had his thoat diltaion as he has a ledge where food was hanging up and that too was a great success. Just finishing up his immunotherapy, Opdivo (novimulab), 2 more infusions left. His pathology report came back with clear margins, and his scans have all come back clear. I know I've rambled on here a bit, but every little bit of info out there for others with this affliction will help them get thru, then I'm glad to share. For anyone reading my comment please feel free to contact me if you need to talk, survivor or cargiver. Thank you again for your bravery in sharing your journey. Take care now! 🤗
@susanamberg3960
@susanamberg3960 Жыл бұрын
@@abhishekroy8646 he did need one, he had a bit of a " shelf" that things got stuck on. Doc got it opened to 3/4", all good now though. Today was his last immunotherapy. Yeah!! CT scan in month. Had the thyroplasy to help his vocal cord on June 9th, everything went well.
@aftabakhtar1983
@aftabakhtar1983 3 ай бұрын
How many cycles were given of imonotherapy
@bertbowman5027
@bertbowman5027 3 ай бұрын
Hi from a seven year survivor of both esophagectomy and stomach removal! Say hello if you wish ! Best wishes for your husband!
@ankursharma1128
@ankursharma1128 Жыл бұрын
Glad to see you after 5 yrs … My father had same surgery last year in October… Its been 6 months now he is back with his daily routine and he is cancer free.. Thanks for sharing your experience… Please keep updating us with your latest experiences as this keeps us motivated to fight with the problem…😊😊
@billapradeep6313
@billapradeep6313 Жыл бұрын
Too live normal life
@intrumental
@intrumental 7 ай бұрын
how did your father deal with acid reflux?@@billapradeep6313
@robertstrang4167
@robertstrang4167 Жыл бұрын
My father had this surgery back in 2013 and we were able to get 7 more years with him before he passed. It wasn't the cancer that got him, just other medical issues. Now, my best friend has the exact same cancer, is going through the exact same treatments (radiation and chemo). Next step is the surgery. I don't know what the odds are of knowing two people close to me having the same diagnosis and I wanted to find out even more information, if that was possible. I looked on KZfaq to see how the surgery was actually performed and I came across your videos. They are so reassuring and I'm going to pass them on to my friend. Thank you for your honesty and openness during this difficult time in your life and I'm so happy you are doing so well today. Good luck going forward and thank you again.
@Esophagectomy
@Esophagectomy Жыл бұрын
Thank you Robert, Sorry to hear about your father passing, those extra 7 years I hope were special.
@bertbowman5027
@bertbowman5027 Жыл бұрын
Thanks for the videos ! Best of wishes on continuing survival ! I have been a 5 year survivor of Esophagectomy and Stomach removal! So best wishes and enjoy every day you have !
@RandomPerson-yc4vm
@RandomPerson-yc4vm Жыл бұрын
Its good your alive and well. Keep watching your health and be well. Definitely keep us updated
@user-ph3bz1sp3g
@user-ph3bz1sp3g 5 ай бұрын
My husband is 5 years in after his esophagus removal and we are definitely interested in joining your chat room
@Remedyz-tp9nb
@Remedyz-tp9nb 5 ай бұрын
Wish you all the best brother. Stay strong 💪🏼
@amccann7
@amccann7 Жыл бұрын
Happy to see a new video from you! Your videos really helped me prepare for my gastrectomy in January of this year. Thank you for making them. Your sense of humour and general outlook are also inspiring. I’m presently cancer-free, but I look forward to being 5 years cancer-free. It’s such a hard thing to go through, the operation and recovery. My experience was almost exactly like yours was, and we were the same age going through it. I’m so happy for you to be healthy and fully recovered! Your pond looks great, and again I thank you for helping me to prepare for the hardest thing I’ve ever been through!
@sunnyday5120
@sunnyday5120 9 ай бұрын
Was so happy to see this latest episode! Glad to see you are still doing well! My bf of 16 yrs passed away from esophageal cancer in 2019. It was horrid for him. Maybe his was too much into a later stage then yours, but there was never any mention of the surgery you had. He was 72 at the time but in good health other then the cancer that popped up. I wish he would of had the chance to undergo the surgery you had. Never heard of that procedure until I came across your video on youtube.
@ralph1133
@ralph1133 Жыл бұрын
Thanks for your story. It helped me understand what was going to happen and then what to expect after especially the leak test. I had to wait for the end of the weekend also. I am 2 years and a few months since my operation. Good luck and thanks for the update.
@ronaldexford8754
@ronaldexford8754 Жыл бұрын
Thank you so much for your videos. I'm two years out now. Definitely wasn't an easy journey, but I'm glad to be a live. I truly thank God. You helped me in so many ways through this process. Thank you so much. I only have two issues my left vocal cord is paralyzed and I can't gain any weight. Rather than that I'm good. Once again thanks for the videos hope to see more.
@k91221
@k91221 Жыл бұрын
Good to see you alive 😃😃. I'm sorry...but I thought something terrible had happned to you....as you did not post for the last 5 years. I'm sorry about my thought. God bless you ma man !! Best of luck 👍👍
@johnbremner8533
@johnbremner8533 Жыл бұрын
Watched all your videos,and came away with hope that i did not have,so thank you.....I am facing chemo and then same operation,hopefully getting started in next few weeks...all the best,
@shanelittle1025
@shanelittle1025 9 ай бұрын
Your dogs are adorable! Good luck with you..
@carltontattoo
@carltontattoo Жыл бұрын
Thank you so much for uploading a new video. You have really helped me through my journey. That’s been about three years now. I do have a question and maybe you address it in the video I stopped it to ask you this question a bit early. Did you ever get dumping syndrome? Or do you still? I used to get it quite often until I started learning certain foods and things that would help navigate it a bit better. I’m definitely excited to try the oatmeal as far as keeping things from coming up at night. I’ve definitely woke up choking a few times and it’s awful. Again wonderful to see you doing well and thank you so much for updating us.
@Esophagectomy
@Esophagectomy Жыл бұрын
Hello Joshua, Yes I get dumping syndrome almost every time I eat. I'm supposed to eat small meals several times a day, but nope not me, I stuff myself and I pay the price afterwards. Especially with anything greasy or sweet.... oh Donuts.....
@Stacy-jw1ty
@Stacy-jw1ty Жыл бұрын
wow...hello! thank you for all the updates. My husband had his stomach removed in late December after 6 rounds of chemo. Learning the new diet is always a challenge. I am glad you are doing so well. My husband did not have a Esophagectomy , there was no cancer there but the entire stomach was involved..He is cancer free now but as we know this crap loves to come back so one day at a time! ....BTW Your property is beautiful and dogs adorable.God bless you and your family.
@Esophagectomy
@Esophagectomy Жыл бұрын
Hi Stacy, Thank you. Great to hear about the cancer free for your husband.
@Stacy-jw1ty
@Stacy-jw1ty Жыл бұрын
@@Esophagectomy thank you. He is at the stage of needing CT scans every 3 months probably for the first year after surgery.. His official diagnosis is Signet Ring Cell Gastric Cancer, stage 3....He has had some dumping syndromes, but has to learn how to eat better , smaller etc. Lost 20 pounds pretty fast after surgery but just so he stays a healthy skinny is all the counts. He feels good and went back to work! thanks for your response! :)
@fubarnow8907
@fubarnow8907 Жыл бұрын
Gonna get scoped Thursday, glad yer here, gives me encouragement
@CliveDrone
@CliveDrone Жыл бұрын
Thanks Man. My turn in 2 weeks. I am buoyed by your experience. But it still sucks.
@mryt090909
@mryt090909 11 ай бұрын
Five year mark congratulations I’m a year and half from surgery and clean more power to you
@amydouglas6576
@amydouglas6576 Жыл бұрын
hi. I can't find your name anywhere, so sorry for that. I think you are really courageous. I would freak out if someone ran off with my stomach ! at the moment I'm having some weird symptoms and dreading I might have cancer.....watching you makes me feel a bit braver. I love your garden surroundings, anyway reply if you want but if you don't want it's ok. I just needed someone to talk to. Amy, in England. 💚
@Esophagectomy
@Esophagectomy Жыл бұрын
Hello Amy from from England! Can you share with us what your symptoms are?
@Beagleboysmom
@Beagleboysmom Жыл бұрын
Thank you for the update! Congratulations to you! Happy to hear you’re so healthy! I am 5 months post op! And am cancer free! I am doing Immunotherapy therapy. Looking forward to my 5 year mark! I’m having difficulty swallowing due to scar tissue buildup at the connection site. I have had 3 dilations so far and it has not felt any better, the scar tissue comes back and the opening keeps closing. Other then dealing with this, I’m doing fairly well. I’ve made a few videos of my journey. If any one needs help feel free to reach out! I wish you continued success!
@Esophagectomy
@Esophagectomy Жыл бұрын
Hi Stephanie, 5 Months in and 3 Dialations already? Sorry to hear that. I was warned about needing dilations but so far have not needed any. Well at least we are still alive and kicking, a lot of people are not so lucky with this sneaky cancer. Wish you the best!
@Beagleboysmom
@Beagleboysmom Жыл бұрын
@@Esophagectomy yes we are so lucky and blessed! I haven’t come this far to only come this far! I have faith the docs will be able to get me to swallow better, either more dilations or possibly a stent.
@boblengs39
@boblengs39 Жыл бұрын
I’ve had many dilations. At first my opening was about the size of a pencil and I was constantly chocking..fast forward to my 5 year after surgery and I get it done about every 10 months or so. Keep the faith, it will get better. I lost about 35lbs after my surgery and will probably never get that back but praise God I’m still here
@Beagleboysmom
@Beagleboysmom Жыл бұрын
@@boblengs39 Hey! So glad you’re doing so well! I’ve had 8 so far, I noticed a big improvement after the 7th one, no more regurgitation, I’m going in for my 9th one next week for maintenance as I am starting to feel a little closure happening as I’m starting to choke down my food again. Unfortunately the cancer is back already, i have a spot on my liver now, starting chemotherapy again next week as well. Hopefully I can kick this out of me once and for all! Best wishes to you, and good health!
@Beagleboysmom
@Beagleboysmom Жыл бұрын
@@abhishekroy8646 I just had my 9th dilation today! I’m eating much better then before!
@Stonecutter007
@Stonecutter007 7 ай бұрын
I have had my Own Journey with EC. After watching it kill my Brother, I was shortly after diagnosed with exactly the same condition, 8 years NED now but the fear of it coming back will never leave.
@silvana11221122
@silvana11221122 Жыл бұрын
oh wow you are amazing ... yes i found you for the wrong searching reasons for answers :( thanks for sharing your story .. you havent. been shitty ... well done thats all i can say.
@user-wf7il2rk3r
@user-wf7il2rk3r 11 ай бұрын
Thank you for details god bless you
@charlesquinn8498
@charlesquinn8498 Жыл бұрын
Thanks for your story my operation is on april 19th not really looking foward to it. Least get summer off
@jakhaughton1800
@jakhaughton1800 Жыл бұрын
I’ve been diagnosed with oesophageal cancer at 70 years old. I’m not worried as what will be will be. I’ve yet to have a date for either chemo or surgery. Your posts have helped. I strongly believe that if anyone feels reflux or difficulty swallowing go to your doctor immediately
@plain22jane
@plain22jane Жыл бұрын
Prayers and hugs to you.
@meleealindseth7992
@meleealindseth7992 11 ай бұрын
My Dad had chemo, radiation and the surgery in April 2023. He is 78. He would love to share his experience.
@clevermind9201
@clevermind9201 10 ай бұрын
​@@meleealindseth7992 did he have a tube feeding?
@gerrykhoo1940
@gerrykhoo1940 Жыл бұрын
Glad to see you around. I'm 4 years post op. Are you still taking any ppi (proto pump inhibitor)?
@Esophagectomy
@Esophagectomy Жыл бұрын
Thank you and congrats to you. No I don't remember ever taking those.
@twosun3068
@twosun3068 9 ай бұрын
You give me hope bro. Im 32 male and had burning pain in stomach last week and than my throat felt burnt. Also felt like something ks stuck in chest or throat not sure. It's been a week now and no over the counter medicine foelr acod reflex os working. The only other sighn it points to is esophagus cancer. Im a smoker as well
@paulmccarthy7461
@paulmccarthy7461 9 ай бұрын
Check it out. Get an endoscopy,but just know that some peeps have terrible GERD pain w/out cancer, Barrett's without cancer, but symptons for years. Wishing you peace of mind through medical evaluation.
@giampierobisi3729
@giampierobisi3729 7 ай бұрын
Il 30 marzo 2017 mi hanno diagnosticato un carcinoma all'esofago vicino allo stomaco. Ho fatto 4 cicli di chemioterapia e 23 sedute di radioterapia. Questa è stata la parte più penosa perché alla fine non mi reggevo più in piedi e ho perso 20 kg di peso (che non ho più recuperato). Il 14 novembre 2017 sono stato operato a Padova da un'equipe specializzata con un'operazione in laparoscopia; mi hanno fatto solo un taglio nella schiena tra due costole e divaricandole le hanno fratturate. E' stato il solo inconveniente di cui ho sofferto dopo l'operazione. Per il resto è andato tutto bene. Che dire: dopo 14 TAC e altrettante gastroscopie fatte in questi ultimi 6 anni, dall'ospedale si sono congratulati e mi hanno detto di non farmi più vedere. Soffro solo di dumping syndrome e devo mangiare poco e spesso. Facciamoci gli auguri perchè abbiamo avuto fortuna. Ciao. Giampiero. Cagliari - Sardegna
@starchylde46383
@starchylde46383 11 ай бұрын
Did you have any cancer recurrence?
@vickym7570
@vickym7570 Жыл бұрын
Congrats on 5 1/2 years.Tater tots are very greasy but yummy.I am 20 months out and I know when you get reflux it is very bad and takes hours to subside.If I slide off the wedge it happens.
@intrumental
@intrumental 7 ай бұрын
My father is in same situation. He can't sleep coz of reflux. Any suggestions? He had his surgery 3 weeks ago.
@vickym7570
@vickym7570 7 ай бұрын
@intrumental sleep on a wedge,pile of pillows, or recliner chair. Meds for reflux and don't eat for at least 2 hrs before bed.But sometimes it still happens
@intrumental
@intrumental 7 ай бұрын
my father just had surgery . he complains about acid reflux any suggestions to help him?
@atulbhardwaj9337
@atulbhardwaj9337 8 ай бұрын
Can you share the pic of your bed….just wanted to get an idea
@chootrain57
@chootrain57 6 ай бұрын
Have you tried omeprazole I use it for the same thing at night, but I have not had the procedure
@Esophagectomy
@Esophagectomy 5 ай бұрын
I use it occasionally. but manage it now with Frosted Mini Wheats. Seriously! I have a new video coming out soon to talk about it.
@Angelarc33
@Angelarc33 6 ай бұрын
Are you doing ok now. What stage were you at. My brother is at stage 4
@Esophagectomy
@Esophagectomy 5 ай бұрын
I was at stage 2.. very lucky
@teeka7777
@teeka7777 Жыл бұрын
Don't eat at least a couple hours before you go to bed, our digestive systems slow down when we sleep at night, so if you go to bed with food in your belly it will move very slowly through your digestive system.
@sarahtt-xc3cj
@sarahtt-xc3cj 9 ай бұрын
He knows better what to do than u
@teeka7777
@teeka7777 9 ай бұрын
@@sarahtt-xc3cj no need to be a smartass!
@ravijain5236
@ravijain5236 10 ай бұрын
my mom had esophectomy surgey same has u its been 1.5 yrs shes back to routine ...but the prb is the weight is not increasing...can u tell me y it is so....and she has a stone in kidney
@intrumental
@intrumental 7 ай бұрын
Did she had reflux?
@ravijain5236
@ravijain5236 7 ай бұрын
​@@intrumentalshe is fine ....juzzzz weight is nt increasing ....sometimes breathing prb is also ther
@intrumental
@intrumental 6 ай бұрын
can she sleep on the side? my dad is having trouble sleeping on side. any suggestions?@@ravijain5236
@athylahushmand1772
@athylahushmand1772 Жыл бұрын
Hi Did you had esophagectomy?
@Esophagectomy
@Esophagectomy Жыл бұрын
yes
@athylahushmand1772
@athylahushmand1772 Жыл бұрын
@@Esophagectomy I had too. thank you for your inspiring video It gave me heart warming
@karanvyas125
@karanvyas125 7 ай бұрын
​@@athylahushmand1772how are you now ?
@fubarnow8907
@fubarnow8907 Жыл бұрын
I have lots-o-pillows. My Pillow
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