Bro I thought there WAS a morbius syndrome 💀💀💀💀💀💀💀

Im morbing... aughhhhhhhhh!!!

@@N0v4.fr05t.IT’S MORBIN TIME

Hello.

@@tardlord7622 heheheha

I KNOW I have all of these

Me neither

satire?@@bobbyy-gc2vt

Same

me neither

“Sandvich”

One dude who suffered from autobrewery syndrome was Italian and he said curing it was painful.

"nice hustle tons of drunk, next time eat a salad"​@@SRobot08

Doesnt demoman canonically have auto brewery syndrome? ​@@SRobot08

He’s literally demoman

Thats not very fun

So is it like he's always drunk?

@@KaitouKaiju not exactly… it used to be that way but he’s been getting treatment

Could he avoid it but not eating carbs or sugars?

@@NeostormXLMAX carbs are like half the food on this planet. It’s impossible to avoid them

I believe the life expectancy has gotten to age 50. I genuinely believe that within the next few decades, the life expectancy will be raised to the human average. (I have a close friend who has it)

@@ihavenomothandimustscream6387it actually has already- kinda with trikafta the life expectancy can be up to 80 now! i also have cf and when i started trikafta my health skyrocketed and i grew a lot :)

That is very cool

That she lived so long i mean

yay!!!! :D

Some of my earliest memories were in that freaking machine. I'm way passed due for an mri

damn.. i can only imagine how tiring it must be to keep having to go get an mri every fuckin year. But hey, you can do something nice for yourself after the mri, that way you can associate the mri and something good so it doesn't get so tiring. I do that sometimes after my uncountable medical appointments and emergency room visits due to chronic pain

My earliest memory wasn’t signing Disney songs, or seeing a my new sibling, no no no, getting a IV at the hospital, because of NF.

I know about my yearly MRIs too. Actually, I ended up getting diagnosed with Moya Moya so they saved me.

I had to get brain surgery and it went well. I have to do these things called angiograms. They cut into an artery and they can see a very detailed map of your brain working.

it's nice that you could see the bright side. I hope everything goes well for you 🫶

Same!

orochimaru

Man, that sounds incredibly taxing, but I'm glad you can smile now x

Did you turn into Morbius after surgery

that’s good

Yay! That's so great :]

man i really hate being wired to a machine 1 hour 37 minutes and 59 seconds every day divided into two pieces at day and night and having to take enzimes pills (14 a day) every day

I have it too, man, luckily I’m in quite a good condition, best of luck to you dude

gl to u 3. stay strong we believe in you

it must be very tiring indeed. Just have in mind that you guys are fuckin awesome alright? you 3 deserve living the best lives ever

my cousin he has it. luckily for him, he should just avoid sick people, avoid smokers, take SO many pills a day, and breathe through a mask for about 20 minutes a day. i spend alot of time with him, so i really see how tiring it is. it must be so much worse for you and other people with more severe symptoms ❤ my heart goes out to you

It's nice that he is doing good! I hope he can stay like this, good with life and well.

i have a friend with this. hes 17 and also doing well!

I’m glad. Representations of disabilities pretty much only include those afflicted constantly suffering and having an awful life. Although this can be true, a lot of the time, they just have different lives, but it doesn’t mean they’re constantly sad or unable to do anything/

morbius

My nephew has a severe type and he is wheelchair bound at only 12. He is overweight due to the steroid therapy which makes people think he is in a wheelchair because of his weight and then look down on him and his mom. The world is overly judgmental

Same! And it's so simple

Agreed they are soooo good!

do you even care about the lack of love in the world right now?

@@oni793 what does that have to do with anything

Maybe cause it’s A l

wow, i read about gene therapy as an experimental treatment in highschool and that was only like, 2022, i can't believe the technology advanced that fast. and it was a pretty new class, so its not like the material was just old

i'm really sorry for your loss, i wish people didn't die young... i hope you're doing all right

Sending you nothing but supportive vibes and hopes for a brighter tomorrow.

im so sorry for your loss. i cant even imagine how devastating losing a friend like that could be.. my best wishes to you and her family ❤

I can’t tell if he’s telling the truth or if this is satire

@@Silly_Wawa_Catit’s true. This is what I found when searching for the origin of the name: “According to French and German mythology, the nymph Ondine/Undine discovered that her husband had committed adultery. Because he had promised his every waking breath to her, she cursed him that so long as he was awake he could breathe, but if he ever fell asleep he would stop breathing and die.” Because of the resemblance of the mythology with the medical condition, I assume they named it after that. Correct me if I’m wrong, though.

@@anda_panda911 thx bro

Thank god im not weird for thinking of ut first

It's central sleep apnea

fr

Diseaseballs does not sound fun

I forgot countryballs were a thing….OH SCHIẞE ITS REICHTANGLE

LOL

That's what I'm saying

wow, thanks for explaining! i've never heard of it before

Note to self Do this lmao

​@@neetard7360 The fact you make a note of this instead not to drive drunk says all about what kind of person you are

@@filipgaecki5480 I'm a silly jokester what can I say 🤪

@@filipgaecki5480nothings wrong with drunk driving. it’s the drunk crashers you gotta worry about.

@@forloco6508 said like a person avoiding responsibility for one's actions. My family member died becouse a drunk person ran into them. Your comment is so insensible and horrible I'm considering reporting it which I never do

I recall an anecdote about a kid who had it -- I think that's the right disease -- and he wanted so bad to go to camp, but his mom was worried about making sure he got the treatment (in his case, having someone beat his back for a long time every evening, to break up the mucus so it'd come out). Eventually he talked her into letting him go, and when she visited him at the camp she found that some of his fellow campers were helping him with the treatments! One boy had a stopwatch and would call out when to turn him, while another boy was pounding his back like it was a Serious Job that they were all gonna make sure got done right!

Why do you avoid others with your condition

@@altymogo3781 did you not watch the video he literally explained why in the video

@@altymogo3781 It's due to the chance they could already be ill and pass what they have onto another. With CF being a disease that expresses itself differently for each person, while some basic virus may be rough for one- it could be a death sentence for another dealing with CF. (Anyone dealing with CF feel free to correct/elaborate)

​@@DanielWilczek-nu7ffthat's exactly right

Damn, that blows!! My condition isn't quite as rare [Ehlers-Danlos Syndrome] but... I know the struggle of finding a physician who knows what to do about you! Hope you're able to get the care you need - stay safe. 💕

IM ANXIOUSLY GOOGLING EVERYTHING NOW😭😭😭

sometimes they piss me off lol

we are 🤡

hypochondriacs running to buy a lifetime supply of beer to claim to have the first one

Ok so do you mean health OCD, conversion disorder, or factitious disorder (munchausen). 1. Extreme anxiety about minor illnesses and normal bodily sensations 2. Mental issues "converting" into very real physical symptoms with no cause 3. Faking an illness to gain something emotionally

Fr💀

Ikr?? I got so happy

I saw it in the thumbnail and had to watch. It’s not somethin we’ll know. I never talk about cuz it can be hard to explain.

Yeah, every once in a while, some show will have a kid character with NF and it's clear that the writers just picked the name out of a hat. They give the kid all kinds of symptoms that have nothing to do with NF. 🙄

Yeah, I was surprised, too because there is little to no information about that topic. Me, my mom and my late grandma have NF1

Same here. I clicked the video so fast when i saw it

same!

thanks

I just wanna try a schnozberry.

Poor lady :( Glad she had a way to reduce the stress though

i had that too lol i always wanted that vest lol

My aunt has CF, she's in her 60s

I have CF, also the vest, which can I say it's hard to travel with? Like, it's so heavy

Debuff added*

WHY, WHY WOULD YOU DO THIS TO MEEEEE

*breathe

PetaQ!

tf2 reference?

​@@maristodal4119what makes me a good demoman?

If i were a bad demoman I won't be sitting here discussing

Imagine getting pulled over by the cops

Ayo! I was just about to say that!

Sneedon syndrome is 13:00

It likely does cause a handful of SIDS cases. At least Ondine's Curse can be mitigated.

@@flickcentergaming680 There are actually quite a few papers that claim it is a major cause of SIDS

It’s also pretty common to have something very similar amongst premies cause their brains are undercooked (source: I was an NICU baby who’d just. Stop breathing at times)

Actually, they recently figured out SIDS! There's a deficiency in an enzyme that wakes you up when there's danger (e.g. from not breathing); babies who die from SIDS have been demonstrated to (typically) have that deficiency. Not sure how much this might overlap with Ondine's Curse, or what percentage of Ondine's Curse adds to the SIDS deaths.

Seems more like a severe form of central sleep apnea to me.

lol

no u dont

Next fandom?

@@SpitfireEssa sign me up

Sorry chap, I guess your disease is not rare enough to cut it. Try harder in your next life 😂

Oh wow! Is there treatment for this or do you just have to avoid being cold?

i have this too

@@AnticitizenOnei just avoid being cold

@@AnticitizenOneif i get a huge rash or something though i take benadryl

sadly i think hEDS was included because it’s the most common and often diagnosed. (1 in every 5k, potentially more) and only one that’s never diagnosable through genetic testing unlike the other 12 types. and i have hEDS which. sucks but so does my mom.

Yeah, something like Brittle Cornea Syndrome or Periodontal EDS. But at least if someone is interested in rare diseases, it's likely going to show up in their research. Since Hypermobile EDS/Joint Hypermobility Syndrome are more common, that could be a window to learn about the others. But generally, I agree!

Agreed

there are 100+ channels that use this format to explain these

I have too

I have Duchenne Muscular Dystrophy. Sorry to hear that leatnukelerbombs

Me too

same

Same I was surprised to see it In the list

(Good video)

Who the hell would willing use sweat to help depression

Good for you not getting a very bad disease.

@@_thisnameistaken He is a carrier. So you are right.

@@madcat1914 let’s just hope he doesn’t reproduce

How do you even know that?

​​@@tritonwe8937usually family genetic history! Often times, there will be evidence that one parent has passed on copy of the gene, and that the other parent did not pass on a copy. That's how it is in my family with colorblindness (of which, I am a carrier for it). Otherwise, genetic testing can reveal this for individuals who may be at risk of having kiddos

Glad you like them!

Indeed

My friend has this syndrome

Demoman has auto brewery syndrome

​@@Thefox0922right, its literally a 1:80000000 ratio for those who have this

@@Ocoro_ yeah. He told me he was diagnosed with it. Dont know for sure but he told me

Most of the videos on KZfaq are ~8 years old.

My friend left me

​@@theRealMaMoI'm so sorry to hear that... But I'm glad he had such a good friend. Please take care of yourself. 💖

Central sleep apnea? I've been reading about sleep apnea because I'm getting tested for it soon.

@@vivianloney yeah, I got tested a while back and it said I have a mild case but they never called me back so I can do something about it.

@@phoebefowler That is weird. Everything I read said it was super important to treat, even if it's mild. Was it a home apnea test or a polysomnography?

@@vivianloney It was a polysomnograph

That is caused by a pathogen. He should've specified congenital rare diseases.

bro really forgot to include autoimmune polyendocrinopathy candidiasis ectodermal dystrophy 💀

Ummm which one?

@@love.within.chaos0917 neurofibromatosis type 1. Never had any serious effects besides a small growth in my ear that I had removed as a child. video is right that it can be devastating, but luckily for the majority of people that have it, we get very little to no negative effects.

​​@@taylordiachenko684same dude Mine gives my constant pain and I'm way overdue for an mri

Maybe one day!

imagine being the guy who was ought to be remembered by the illness they had, being sick is not pretty. there is no virtue in being sick and neither do you get paid for being sick. I have no single idea to as how "getting paid" can remove you from the privilege of naming anything. its not like all the people who were sick with previously unnamed illness were denied in getting paid. + the credit should go to the doctor because their profession is much more straining and stressful than that of an averege Joe given how much training there is and how little break there is.

the patient often isn't old enough to make such decisions, and parents often don't want their children to be internationally popular, as that raises the risks of assassination and stalking.

There is a greater push in modern times to name diseases after their causes or their resulting condition (ie "cystic fibrosis"). Consider that many diseases like those in the video where discovered before the 21st century or in countries outside of America, so they had different ethics and norms.

​@CultReport, why would people assassinate over a disease name?

I wouldn't want to be known for my disease tbh

the real danger of human euthanasia being legal is that when society considers you a burden, they may offer you euthanasia as a treatment but nothing else. canada has been an interesting example regarding this recently (it’s legal there)

@@scrungyes I’ve heard they are considered offering mentally ill people euthanasia. Just imagine you have a depressed child and they get a letter asking them if they would like to kill themselves. Absolutely disgusting.

@@scrung Exactly this. And for people who don’t have conditions that affect their life span (such as craniofacial deformities) the mistreatment faced due to ableism may cause people to seek out euthanasia. It’s deemed to be a solution for suffering people, but the idea of what counts as suffering is broad. It’s like what you said, where people seek euthanasia because no medical cure is available. But instead of medical cure, it’s societal perception of disabled people. Both can be sought out or changed instead of resorting to death.

Its a slippery slope that leads to horrific results

@@scrung That VA audio still upsets me so so much. Such a dark path the Canadian VA's taken.

You don’t want NF

💀

Instant death

Ör maybe no

Glad you think so!

it's the colloquial names. like how most people know yersinia pestis better as plague or black death

That will impact someone's life though

idk it sounds horrifying to me. you wouldn't be able to leave the house, interact with others, talk, exercise, or have sexual feelings. you'd have to basically live in the shower eating charcoal, which would also mean you can't take other medications to help the social anxiety. imagine how bad the periods would smell.

I have been awakened

Make a video then tf

had a relative with systemic scleroderma, which is extremely uncommon. Like one in 10,000 rare. Not here. Also definitely underresearched considering how much its sister disease lupus is (at least relative to it)

How would they cover EVERY rare disease?

You're right, I think over 7K diseases are considered rare diseases, there's likely many more that aren't discoverable. I don't think it's possible to cover every rare disease but the title is misleading.

@@mroof523 Or, now hear me out, people could actually title their videos accurately?

Only people who have it or expert’s can explain it well.

@@EPICSTUFZ True, like the main symptom of the condion was chosen to be mentioned as a side effect

Frft