Expert Consensus Statements (clinical guidelines) of the U.S. ME/CFS Clinician Coalition

Рет қаралды 1,759

Жыл бұрын

Dr. Lucinda Bateman discusses:
- The goals of the U.S. ME/CFS Clinician Coalition
- How the Coalition was formed, and its members
- The Expert Consensus Statements and Recommendations produced on assessing and managing ME/CFS
- The importance and impact these consensus statements have to inform and guide the care of patients with ME/CFS and lingering long COVID

Пікірлер: 11

@susanphoenix74 Жыл бұрын

Thank you!!! ❤ ME/CFS 53 years, diagnosed 2022.

@pamelasmith2625 Жыл бұрын

Thank you so much for this in-depth video. It is so promising to see that there are doctors and scientists out there who are working so hard to find some answers for all those suffering such constant chronic pain. These Illnesses are totally debilitating and have robbed most of us of a normal life. We are not really living, we are just surviving. It gives me some hope that even if I don’t live long enough to benefit from new therapies and medications, the younger population won’t have to suffer for so many years as I have. I am now 77 and have been suffering with chronic pain from Fibromyalgia and CFS for nearly 35 years. My life has been a total struggle every day and I don’t know how much longer I can fight. My symptoms have become so much worse over the past few years since my activity is limited now and my fatigue is extreme. I have no quality of life anymore. Luckily for me I do have a wonderful family and great friends and neighbors who call me on a regular basis so I don’t get depressed. Thank you gain for your hard work.❤️🇨🇦❤️🇨🇦

@TheRenwmn Жыл бұрын

As a patient I've been so grateful for the work the coalition has been doing especially your consensus documents. I haven't seen a treatment document for ME/CFS that is so thorough as the one by the coalition.

@chansonette22 Жыл бұрын

Thank you all so much. This is greatly needed, and I'm looking forward to sharing the website with my new PCP soon.

@J0hnGustafson Жыл бұрын

I ❤ Dr. B!

@clairenaylor8346 Жыл бұрын

I wish your work would penetrate the barriers faced in the UK & Australia who seem adamant to continue to bury ME/CFS, or where it is acknowledged, it's viewed as either psychological or a choice to be ill.

@CricketGirrl 3 ай бұрын

I don't think they're reaching anyone who doesn't already have this disease. I've been severe for four years and the only person who would Google this disease was someone at a crisis hotline. I called them before a suicide attempt related to quality of life.

@viviennegilchrist3983 Жыл бұрын

Thank you all so very, very much 👍🏼👍🏼👍🏼💯💯💯💐💐💐

@pilarlb5646 Жыл бұрын

Thank you very much for your hard work! Give us hope.

@CricketGirrl 3 ай бұрын

Anyone in New Mexico? The providers out here think it's still the Wild West and refuse to read anything that would improve their knowledge level about anything.