Long COVID & Post-Viral Syndromes ECHO: When Exercise Doesn't Help

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Long COVID & Post-Viral Syndromes ECHO
When Exercise Doesn't Help
Bateman Horne Center and the University of Utah Health ECHO teams join forces once again to provide a case-based learning series illuminating strategies for assessment and management of Long COVID (PASC), ME/CFS, and related comorbid conditions.
Patient cases are shared in this session for educational purposes. In some cases, the information does not relate to an individual, and instead represents a compilation of disease presentation. In cases involving individual patient information, the patients have authorized the discussion of their case in this setting.
Occupational therapist, Amy Mooney, MS, OTR/L, and physical therapist, Clayton Powers, DPT address the importance of screening for PEM and redefine "exercise" in patients with PEM/PESE.
Powers and Mooney discuss:
- Research data on CPET testing and PEM
-How dysfunction in aerobic metabolism pushes patients into the anaerobic system at lower heart rates when compared to pre-illness.
-Cerebral under perfusion
-Screening for PEM
-Energy conservation tips
-When graded exercise protocols are contraindicated
-Heart rate biofeedback pacing
-Pacing upright activity
-Case examples from a physical and occupational therapy perspective
-Goal of OT: Improve quality of life through participation in meaningful and purposeful activities
-Working with Frames of Reference (FOR) to therapeutically support strengths and deficits
Identify/determine immediate & delayed symptoms
● Prioritize/analyze activity within PEM limitations
● Manage pre-emptive and recuperative rest
The most effective treatments for PEM are:
○ Education
○ Activity pacing
○ Energy conservation
Note to community members: We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current regimen.
Bateman Horne Center’s involvement in this program is made possible with the additional support of the Open Medicine Foundation.
TIME STAMPS
00:00 Introduction
01:29 PEM and Orthostatic Intolerance
06:35 Energy Systems
09:24 Cerebral Under Perfusion
10:31 Screen for PEM and the Ideal Therapy
12:26 Clayton Powers Case Presentation 1
21:19 Clayton Powers Case Presentation 2
24:32 Occupational Therapy for Post-Viral Syndromes
25:55 Pacing for PEM
31:30 ME/CFS Functional Scale
33:29 Amy Mooney Case Presentations
46:21 Question and Answer

Пікірлер: 17

@simonduckworth5941 6 ай бұрын

This is brilliant and should be a MUST WATCH for GPs and anyone working in a Long Covid clinic. Thankyou so much👏👏👏

@beeholtzclaw7935 6 ай бұрын

Thank you for a detailed presentation, wish we had this just 5 years ago! Our lack of information and 0 help from doctors caused our son to be severely bedridden, it is a life changing event for my husband and I to be full time caregivers for our son, it has taken 2 1/2 years just for him to be able to stand and walk to the bathroom, he is improving slowly . I would encourage patients to follow these steps and have all family and friends watch this video!

@mdvern9753 3 ай бұрын

I have experienced this for years. No one seemed to understand this phenomenon. Thanks you for describing it so well.

@AJansenNL 6 ай бұрын

Please say 'post-infectious', not 'post-viral'. Viruses aren't the only pathogens that can trigger this.

@booksinbed 6 ай бұрын

I have POTS and possibly ME/CFS and am trying to figure it out, and I really appreciated this presentation, especially the case studies. Thank you for uploading!

@kristak6244 6 ай бұрын

This is an excellent presentation. Great for everyone who has anyone dealing with these health challenges in their life.

@noelynebredrup9364 6 ай бұрын

All the patient examples had POTS. Is this applicable to patients that do not have that comorbidity along with ME or LC including obvious PEM?

@apple369 6 ай бұрын

Only two minutes in and already the ableist language is present. "PEM is a frequent symptom that patients complain of". Yeah, we're not complaining, we're reporting our symptoms.

@booksinbed 6 ай бұрын

It's unfortunate that's totally normal word usage amongst medical professionals. (even such thoughtful and patient-focused professionals as these!) Two other common phrases that always stick out to me are compliant/noncompliant and "patient denies x". I read a brief article recently discussing changing some of this language titled "Presenting complaint: use of language that disempowers patients".

@apple369 6 ай бұрын

@@booksinbed thank you for your response. That word was in such sharp contrast to the rest of the presentation and I'm glad I stuck around. Many of us navigate an absurd amount of stigma and it's all the more isolating coming from health professionals. I can see you understand and also give this some thought.

@lukaskidd4621 5 ай бұрын

@@booksinbed THE entire medical field is based on gaslighting.

@RamsesJ777X 5 ай бұрын

Only two minutes in and you two are already getting offended, lol. Complain is to express unhappiness, dissatisfaction or worries. Nobody is happy, satisfied and not worried about PEM. Stop looking for an excuse to offend yourself and find something better to do with you time instead of complaining.... LOOOOL

@KittenCasserole 4 ай бұрын

Agreed 👏🏻

@ttrihe10 6 ай бұрын

I had Post-Viral/CFS - I did a 40hr fast - CFS gone - was life changing for me - felt reborn had normal energy again - I recommended it to anyone to try, as it was recommended to me to try who had the same