Your story is almost identical to mine. Took me 10 years to get diagnosed. Have been suffering from this devastating, debilitating illness for nearly 30 years. Like you it has totally destroyed my life. I haven’t been living for 30 years with .Fibro, I have just been surviving. I just wish I could get some relief for the years I have left. I’m 76 now but can’t see any help in sight. Like you the only thing which gives me a small amount of relief is gentle swimming lengths. I can’t even do the water aerobics anymore. It just exacerbates my pain. I also do gentle yoga. The last year I am having walking difficulties where my legs and hips feel like lead and I can only walk very short distances without a walker. Also recently having severe numbness and tingling in my hands and arms. It just never ends and every year I get more symptoms. Luckily for me I do have some friends who have stood by me and two wonderful sons. Mind you my sons don’t understand why I can’t do more as I look ok. They think I should be traveling and doing more. They just have no idea the excruciating pain and discomfort I deal with every waking moment. Take care of yourself my dear. Big hugs from one pain sufferer to another. We have to try to stay positive and hope for a miracle some day soon. ❤️🇨🇦❤️🇨🇦

I’m sorry for both of you, it’s so hard to be diagnosed. I find walking is best for me, if I do too much exercise I get very fatigued, and the pain keeps me awake alt night, then I can’t do much at all. People don’t understand, as we look well. and I can move fairly well.

Welcome, I’m from down under Australia 🇦🇺🐨

Hello from Australian 😊

There's a test that helps diagnose lupus along with symptoms. You need see doctor rheumatology for testing

@@paulasheerin9781 I have had the Ana test done, but it came back negative. Is that the test you are talking about?

My mother had lupus at 15 died when I was 15 she had me early I only weighted 2and half lbs brother full term only 5 lbs … read you comment I have both idk how you can get secondary illness and then another

Cured?what exactly did he prescribe. That Cured it.

Cured how 🤷🏼‍♀️

I don’t believe there is a cure, better managed yes 👍 cure no.

Can I ask how you got cured

How terrible of that doctor. How can they call themselves doctors when they don’t help you with your pain. Disgusting. I have been on a low dose of oxycodone for a number of years. My doctor is desperately trying to get me off them. I have tried every kind of pain medication and cannot tolerate any of them. I get very severe side effects. She asked me to see another doctor while she was away on vacation. This Doctor also says I shouldn’t be on them. She wants me to try “yet another” medication (a mood changing drug). I don’t have a problem with my moods, only frustration that I can’t function properly. She told me I will have side effects, but to stick with it for at least a month. I told her that when I was I. A really severe flare up for over a month one day I took 2 pills instead of 1. It totally calmed my symptoms down and I could function. I went swimming, went for a short walk and did some shopping. Before then, I could hardly get out of bed. Also when I was in the flare up, my blood pressure went up and so did my blood sugar. I told her either I take oxycodone or have a heart attack from my blood pressure going up. I know none of the drugs are good for us, but I am 77 now and would just like a few years of relief from my constant pain. When I talked to my Pharmacist about the new pill this doctor wants me to go on, she said the side effects will be pretty bad for the first 3 - 4 weeks. Why can’t they just leave me alone and keep me comfortable with my pain meds. Every time they give me something new it messes up my whole body and puts my Fibro into a flare. Just sooo frustrating. If these doctors have to suffer like we do, they would be taking anything they could to get relief. Hope you get some help my dear. Take care. Hugs from a fellow sufferer.❤️🇨🇦❤️🇨🇦

Me again. I also lost my job many years ago and it was very difficult on our family income. Just a hint. I keep a notepad next to my bed and another one next to my chair. Whenever I think of things I need to tell the doctor, I write it down then and there. Then before I go to see them, I rewrite it with the most important things on top. It definitely helps, as, like you my Fibro fog is awful and I always forget to tell them things.

@pamelasmith2625 Thank you for your suggestion 🙏 I do try to write things down, I now keep notepads in every room and the car. I have just started recording notes on my phone too, but still forgetting that I've done that on some days 😏 I just wish that there was a machine invented where we could go to the doctor, we both plug ourselves into this machine, and the machine would let the doc feel our pain. If only when something is working regarding meds, they just leave us on it with regular medical reviews and not try to keep changing or stopping them. I truly hope that you can get to a place of manageable pain, but I feel that when it comes to chronic pain and meds it will be a struggle for us sufferers for a number of years yet. Sending you virtual hugs 🫂 Try to stay strong ❤️

@@pamelasmith2625 I agree with you, if you find a drug that helps why not stick to it, let’s face it, it won’t take the pain away completely , however we need something to get us through the day, and get us out in society to improve our quality of life . I’m 77 too, if I’m on a meds to get me through the day and I’m told they’re addictive, then who cares at our age !! I take Tramadol 2-3 times a day and Panadol in between. I’ve tried a long list of drugs, antidepressant meds for nerve pain make me very depressed, or make me put on weight. We know what helps, having a caring understanding Dr is a blessing. I have one, who knows I don’t like taking meds, he also knows I need to manage my pain. If one Dr doesn’t help then look for another. Believe me if doctors had a couple of days with fibromyalgia, they’d soon know what it’s about. Watch a Dr Rutherford video he has fibromyalgia, he knows what it’s all about. Good luck my thought are with you.

The Drs name is Martin Rutherford he has fibromyalgia along with thyroid problems. This Dr is excellent he knows his stuff. He has over 40 years in practice please UTube him. Good luck never give up on finding ways to improve our lives with fibromyalgia. 💕