I was diagnosed with Lupus in 2019, and one of the worst things you can say to someone battling an invisible disease is "You don't look sick".

In 1995 I was diagnosed with relapsing remitting multiple sclerosis. That was nearly 28 years ago. I am a walking talking example of the hope I want you to have. I have an active, fulfilling life and the changes have been positive. Hang in there, the shock wears off and life goes on: It's a new life but it goes on. 💜

I was diagnosed with MS in 2017 when I was 33. At first I was devastated, but it is not as bad as I expected. I'm still able to work full-time, travel and be happy. Of course I experience difficulties and fatigue, but I guess I'm used to it as it is part of my life now.

I was diagnosed in 2020 as the whole world was changing. It was a lot to handle at the time. My experience with vertigo from start to finish was 3 weeks. 1 day of room spinning and the rest was just balance problems. I haven't had it again, thank goodness. I know it's tough. I didn't tell anyone about my diagnosis (besides my husband) for over a year. Now I have infusions every 6 months and I'm free of new lesions and I actually feel really good. I try not to worry about what might happen. That'll drive anyone crazy. I get plenty of sleep, and I allow myself slow days when I need them. Also, I've learned not to say things like "it could be worse" because in the moment we are hurting. We are struggling. We arent functioning at the same capacity we used too (even if just temporarily) and its ok to recognize that we're not doing well in the moment. Yes, it could be worse but in that moment it's the worst we've likely ever experienced. When I had optic neuritis That was scary and didn't want to discuss how scary it was just because others might have it worse than me. 😊 I hope you start to feel better. 🙏 Praying you'll get stronger. Living with MS can be manageable

I was Dx’d w/ M.S. 35 yrs ago 1987 I was 27 ,I am now 63. I too am a walking talking example of hope I also want you to have. I have 4 grown children and 7 grandchildren. I have an active life and the changes I’ve made are positive. Just moving a couch , taking a walk , sweeping/ vacuuming, takes a lot out of me, rest when you can. If you need to talk I am here. Be strong warrior! MS💪

In case it gives anyone hope, REMYELINATION *CAN* HAPPEN, and lesions sometimes completely disappear. New or old lesions can also be asymptomatic. The unpredictability of autoimmune disease is often the worst part for me, but it's also a blessing when things get *better* : - ). Sharing stories like this helps. Thank you and good wishes! ❤

My heart goes out to you. So sensitive and articulate. My life took a sudden turn with a cancer diagnosis so fatigue is now part of life, aches and pains. I’m hopeful of a good recovery and know life won’t be the same, never as carefree and sometimes feels lonely but I choose to walk in the metaphorical sunshine. Attitude is yours to deploy as you wish. Sending my love and best wishes xx

Thank you for making this video. Because of my MS & cognitive changes, I've been forced into a medical retirement. It's been almost 4 years. I'm loving it now, but my self esteem took a huge hit when it happened.

I believe you apologized for being negative or something of that nature. The truth is not negative! It's just truth. And you are a brave woman to step forward and share this. I have utmost respect for you!

I never leave comments here on KZfaq , but you truly are a slice of light. Sending thoughts and prayers to you going forward and please remember what you are saying here - you truly are not alone.

I survived breast cancer 7 years ago, at 33 years old, and I completely relate to the feeling you were describing about how much to share. When being completely honest I felt like it was too much for people, but just pretending everything was fine also didn’t help the situation. Quite honestly, you might lose people in your life who really can’t handle hard things. There is a lot of toxic positivity out there, and it can feel very invalidating. For myself, there were some tough lessons in there about recognizing that most people are doing their best, and that they have their own stuff going on. It helps tremendously when everyone can just be honest with each other about feelings, personal limits, etc while still showing each other care and compassion. Sending you love as you navigate your future, I know this won’t be easy but I can see that you are already have such wise perspective. Thank you for your vulnerability in sharing.

I was diagnosed with Multiple Sclerosis in 2012. It was hard after 5 years of my diagnosis I has to quit my job and be place on total disability at 45. I’ve had my highs and lows but I just tried to push through. Just know their are other people out there that understand what your going through.

My sister who lives with MS for the last 16 years started with this mental frame and similar symptoms, so I totally get you. However, the good news is that she leads the best possible quality life after figuring out, taking help, rearranging, and prioritizing all the things that work for her and creating that ecosystem. Her journey is incredible and she is one of the bravest people I know. And of course, she is on oral medication which has really kept her condition well under control . There's plenty of hope, sis. Please join the MS online communities and you will learn so much which can improve your life quality.

I’m now 70 & was diagnosed with RR MS at age 35 in 1988. I now have secondary progressive but still walk up & down my block as well as around the house. Also ride a stationary bike. Thank you for sharing your diagnosis and your reaction to it. I’m not very religious, but I really believe that on your site you are a blessing to other people who have any association at all with MS. Btw, I describe MS and it’s lesions on the central nervous system to obstacles/scars on railroad tracks that stop the train or messages from the brain to one’s extremities. Everything you say about MS, I have also felt and feel now. You are very normal. Please remember to not isolate yourself, do whatever you want/need to do and get a neurologist who is up to date and who listens to you. Bring someone with you to your medical appointments to have a second pair of eyes/ears. Use the MS Society for information, maybe join a support group (your husband, friends and other family can come too). With Love & Support, Nancy in California Think about all possible MS medications (I use Ocrevus). Contact the manufacturers of any medications to get assistance in paying for it.

Thank you for sharing this. I was diagnosed in 2020. It was a very scary and challenging time. Very isolating and hard because as you say it makes you feel like you are complaining all the time Tell your story. We all need to hear it. It is the only way that people will start acknowledging it and we are so close to finding a cure.

As much as I hate having MS, I am heartbroken when I see it attack the young.I know it seems a bit trite but, I have found that Doing and seeking the things that make you laugh, really does help a lot. Hang in there young lady ,you seem well grounded and show great promise.😀

As you were telling your story and I knew that there was a very good chance you were going to say MS. I have had MS for about 17 years now, I was diagnosed in my early 20's. My first symptoms were the tingly/numb feeling that engulfed my entire body. When I was finally diagnosed I went to tell a very good friend with a huge smile. He said why are you so happy about this? My comment was now I know what I have and this will not kill me. I am always proud to tell my story as you should too. I know MS takes many forms and not knowing how this will react with you, but I hope that you will be able to do anything that you can imagine in life. I have been on the injection Avonex, and even 17 years later, there are still weeks I do not want to stick that dumb needle in me, but I know that it is helping, and I can do this about anywhere. Last week we were camping and I was actually just telling my husband that we can do all these fun things and my MS and injection does not stop it. I am fortunate that I have very little problems with my MS and I am able to do all the outdoor activities I like. Hiking, camping, fishing, snowmobiling, just to name a few. I do get fatigued easier and the heat is a killer, but I push myself as much as I can. Just do not stop your life, keep moving and stay healthy. MS does not own you!! I am sure this is scary for you and pray God has a healing hand over you. Thank you for sharing and keep sharing!

I have a different autoimmune disease, autoimmune arthritis, and was diagnosed 8 years ago at 23, but my symptoms started in my teens. I’m almost 31 now and having a big flare lately. It hurts to walk or stand up or bend over, hurts soo much. I do feel alone, my family didn’t seem to believe me or really care when I was going through diagnosis years ago. Invisible illness is lonely. But I have a lot of empathy for those who are going through it. You never know what someone is going through.

I know this video is old but I hope you see this. Having an Invisible Illness is so difficult, especially as a younger person. People look at you and, as you said, you “look fine”. And, being young, what could possibly be wrong? I was about your age when I started my invisible illness journey and it is still difficult 17 years later. People who don’t live with it just don’t get it, and can be very mean. So glad you have a good support system, it makes a big difference. Sending you gentle hugs and all of the good vibes I possibly can!❤

Thanks for sharing your story 💕 I don’t have MS, but as someone with an invisible chronic condition it’s nice to feel less alone. Wishing you the best!

I was so rocked by your part about feeling doubted because you can mask your symptoms well. You feel like you can't win either way and it leaves you isolated in your own reality shouldering it all while others kinda get a blissful ignorance about it. It's not easy to talk about health issues without feeling like a downer or making things awkward but I'm so glad you talked about it so openly. I think a lot of viewers may resonate for one issue or another. Thank you

Thanks for posting this. The section about worrying about complaining and the isolation in that really hit home. Our early symptoms are different but so much of this is inline with my experience and it’s so reassuring to hear someone else talking about this.

I have been living with Sjogren's Syndrome since I was 19. That's over 40 years. The symptoms can mimic MS, including migraines and trigeminal neuralgia. It's a part of my life. I make my decisions around it because I have to. Treating a chronic illness like a routine part of my life is only honest. It's a large part of why I am pursuing minimalism. Good for you for treating your illness openly. It's life with an autoimmune disease. Best to you.

Your video came up in my feed and I thought “this young woman is even lovelier than I last saw her”…and I watched. What a story of courage and hope! I almost didn’t comment because I thought why would you care about a comment from a random woman in TN. But actually I’m not random. It is no coincidence that I saw your story and I will pray for you and I hope you will continue to share your journey. You have a platform to spread beauty and hope. We all need both so much!

My name is Kelli . Thank You for telling us your journey as difficult as it may have been. I have MS as well. I understand everything you said and how you feel. It is very lonely. Many prayers and hugs coming your way. Try to stay positive and keep a good sense of humor its the best way to manage this disease.

What a brave, important example you’re setting. Thanks for trusting & God bless you, sis. 🙏🌸

I know what you mean about 'burdening' others with talk of pain and discomfort and not feeling well. I, too, feel that others don't understand because I look 'fine', and I don't feel well nearly every day. Having a group of people going through the same thing helps.. Thank you for sharing.

I can empathize with your circumstances, especially when you share the difficulties you experience from day to day as you manage your MS symptoms. When I wake up in the morning I look around me to decide the kind of day I'm going to have; whether I'm going to suffer from “cog fog” or if I will be able to walk w/o pain. I also understand the difficulties you have in feeling sociable with friends and family members. Nothing is easy any longer but maintaining a positive attitude from one day to the next will help you cope well with the life you have ahead of you. I'm a 74-year-old who has learned to manage each day by surrounding myself with friends and family members who care for me and understand my circumstances. You are going to do well 💕.

You were brave and kind enough to come here and tell everybody what it is like and how it feels like. I hope you stay firm and sincere to yourself first every single new morning. I bet we all wish you healing vibes to cope with it all along the journey. ♡

Thank you for sharing your story. I have a friend who was diagnosed with MS a couple of years ago. I was diagnosed with Crohn’s disease last year.

Thank you for sharing this. What a difficult journey you’ve been on. Please give yourself a lot of grace as you navigate this new life, because what you’re going through is very hard. Wishing you the very best.

Oh honey, I’m so sorry. My heart goes out to you. It took such strength to come out with this. Take care of you.

Beautifully spoken. Thank you for speaking so candidly. I actually know very little about MS, so it’s good to learn a bit from this video.

Oh hugs hon! I live with chronic illness and fatigue that goes with. It’s why I’m a minimalist and why I keep life simple! I’m in control, not my illness. You’re in good company- Courtney Carver started her minimalist journey when she was diagnosed with MS in 2006. It’s part of how she started project 333. She simplified her entire life. The “you seem fine” is really difficult! That’s NOT in your imagination! It’s very real! I got to where I am extremely careful who I share details with - I just say it is a couple of autoimmune diseases and I have serious weakness and fatigue. I am so done with the well meant advice - the magic cures that people want me to try - that I have tried and didn’t work. Grieving normal takes time. You didn’t express negativity- you sound like all of us navigating long term chronic illness that aren’t fixable but can be lived with successfully. ❤️🤗

I was diagnosed w M.S., I believe in 96, 20 years old I was diagnosed RA, I have chronic Lyme’s! I absolutely have been on roller coaster rides w/ it all, I’m still walking, I’m so more prone to catching a lot however, we’re all careful. I even have watched all my 6 grandkids since they were tiny! It’s all a blessing, each day! One thing I still work on, always, know when you’re wearing down, it can cause so much complicated situations, even mental more than normal. Much love, best in all you can find to help your own bodies system, I deeply wish you and all the greatest.

Thanks. I don't have MS. But hearing your story and other's helps me understand what a friend with MS is going through. You're great.

I just wanted to say that I am so sorry about your diagnosis and pain. I also have an autoimmune condition so I know how isolating and scary they can be. I hope that you are able to find relief and good dr's to help you navigate this part of your life. May you be at ease in your body, mind, and heart.

Last year I was diagnosed with MS and it completely changed my life. But I stayed positive and read books, believed God. And always said to myself that now I have to live with it. I always do strengthening exercises. So now I have improved my walking and somehow able to fight with it.

I also have MS and have learned Don’t give up Don’t stop living You! There are many struggles and limitations but Don’t let the “you can’t” stop you!

God bless you! You remind me of my daughter who struggles with a chronic illness and is learning to live her own best life on her own terms. "Invisible" illnesses can really highlight a lack of understanding and even compassion on the part of others. I'm glad to hear you have a loving husband and family by your side. Thank you for sharing your story.

I am a recent follower and I appreciate your kindness in sharing your story. I am a 62 year old wife and mother of 2 with MS. I was diagnosed in 1992 at age 32 a few months after the birth of my first child. It took months to diagnose especially then. I had all the many related and unrelated tests they could think of. So worried it was a stroke or cancer or anything that I was tested for. When I finally was diagnosed with MS I took it kind of well. I knew what I had and could research what to do to help. The unknown was just too much. I had an old school neurologist that helped me medically but suggested no children and I had to follow my life plan even without out that support. I am very blessed that I have never had pain with my MS (I am a pain but have no pain😉) Over these 30 years I certainly have declined in my energy levels and walking. My husband reminds me I have a limited amount of energy each day and I should try to do those things most important to me. I often feel worse for my husband as he didn’t sign up for this but thankfully abides with for better or worse attitude ! It is natural to be cautious about the future as none of us know how our health will be or what these strong meds will do to our bodies. Telling family and friends was hard. So worried about being pitied or treated differently but that never happened. There are always people better than you or worse. As I say, Everyone has something, this is just the little “perk” God gave to me💗We just take each day as a gift and try to be a light to others💐 Please feel free to reach out privately if you wish. Love and prayers, Cathy Gunn

Sending my love and support! My mom was diagnosed with MS in 1987 when she was about 50. She had spent 15 years trying to get answers to her miscellaneous symptoms. She was treated like a stupid hypochondriac woman by so many doctors. That was very hard on her self-esteem! She had a slow progressing form of the disease, so that is probably why she didn’t get diagnosed earlier. Here are a few things that she realized: -She couldn’t have 2 busy days in a row. That would set off a bad couple of weeks. As she got to be in her 70’s and 80’s, she would only do one or two things a week. We would combine trips to a doctor visit with lunch (we would sit in the car to eat), a pharmacy pick-up and sometimes a quick trip to the grocery store. That would be about 3 hours and more than enough time out. She stopped going to clubs and church in her last 5 years, but that wasn’t because if MS, but more from depression and elderliness. -She needed to avoid getting too hot so she would carry ice water with her at all times and stay in the shade. She sold her black car with a black interior and bought a white car with a tan interior. -If she did light exercise every day, that helped her emotionally and physically. -If people were doubters, she felt sorry for them. She tried to learn from their faux pas and be more empathetic when others had difficulties. By coming forward and talking about this, you will be helping so many people! There are viewers that are having symptoms, or have people in their lives who have symptoms and have no clue that they need to get checked! And those that are already diagnosed need support and can offer support! Bless you and I hope you continue to be open about your journey!

I have a family member with MS. Unfortunately she was discriminated against and humiliated by a waitress and manager of a restaurant that falsely accused her of being intoxicated because of the way she was walking. When she told the waitress that she has MS she was told that maybe she shouldn't go out to places like their establishment because of her disease. I was so shocked that I spoke to the manager privately to explain the situation. He told me if my family member really did have MS that he felt sorry for her but still refused to serve her. When we first arrived we had one frozen beverage at the bar before we moved to our table to eat and enjoy her friend Mac's singing and guitar playing. My family member was so humiliated that she is afraid to go out to restaurants or bars ever again and rarely leaves her home now. The restaurant employees lack of compassion and empathy was disgusting! My family member was hit by a drunk driver in her early twenties and was diagnosed with MS in her mid thirties. The pain she suffers daily is horrendous even with prescription medications. She is the strongest person that I know.

Thank you so much for sharing your story. I was just diagnosed in September of 2022, still learning so much about it. Also, still trying to learn, understand and accept my limitations. While very scary to learn the diagnosis it was also a relief in a way to learn that there is an explanation for so many symptoms that I've been struggling with for years.

I just discovered your channel and then found this touching video. You explain the struggle so well... I am currently in chemotherapy and the fatigue is so overwhelming. I look perfectly fine and fit though so I feel like no one really gets it. And I'm not just tired; it's profound, deep fatigue... just doing simple tasks becomes this overwhelming challenge. I don't want to seem lazy or complain too much, but I'm also incredibly frustrated by my limitations and feel like no one could understand, especially because I look fine. Anyway, your video found me at a really relevant time in my life. Thank you for posting something so honest. Btw, I personally find channels where the KZfaqr has this idyllic, perfect life annoying and depressing. This channel feels real. So thank you for that.

I am experiencing many many symptoms of MS. Its pretty scary! My doctor has ordered an MRI so now I'm waiting for a call to book the MRI and see my results. The waiting for me is really hard because its scary not having answers and not know what to do to help my symptoms. Thank you for sharing your story because i related to a lot of the things you have talked about.

Medical advancements are discovering ways to hopefully halt the progression of many of these types of diseases. My daughter has CMT and at her neurological hospital appointment last week we heard about many studies and trials continually taking place all around the world to bring a stop to these conditions advancing. 🙏

I am facing something that is potentially very serious. Health related. I have not told anyone. Mainly because my grandson is getting married soon an I don't want anyone focused on anything bad. Just be happy for these kids. As soon as they finish their honeymoon, I will go to the doctor. I know it will lead to surgery to remove cancer. Thank you for ur story an ur bravery. Praying for you love.

At 31 I was diagnosed with RA. A year leading up to it I felt achy and feverish for a year. There were days I could hardly walk. I was scared to go to the dr. I literally homeschooled my children from bed many days. When I got the diagnosis I wept alone as well. Granted, treatments had come so far, but the worst scenarios easily come to mind. And the meds carry heavy duty side effects, including heart disease and lymphoma. So researching meds and treatments and what's covered can be frustrating. Now at 44, I am glad I found a lesser dangerous med, have lost 110lb, and I'm doing well with minimal flare ups. It may seem less significant than an MS diagnosis, but I can relate, as do so many others. And I totally get not wanting to be the Debbie Downer. That's the hardest part. When you want to cry, or scream, or vent, or even ask for help, but feel you can't. I have found much comfort in my faith. When you find there's no where else to look, look up.

Ooh Elin I just wished I could give you a big hug 🤗. I shed a few tears listening to you but do know that I will keep you constantly in my prayers. You are a beautiful and exemplary young lady and I’m so happy that your family and friends support you. Lots of love ❤️

You are helping so many people by sharing your journey. A true friend loves at all times.💕

Thank you for finding strenght to share. I HATE when people think one complains just to get attention. Why is there such a bias that if you look fine you ARE fine. These people have never been not well. You don't necessarily look bad when you feel awful. You are strong and please stay that way. I find what helps is not to concentrate on your symptoms. It is new you, this is how you process the world now, the best is to embrace it. Sending love ❤️

Wow, what an amazing attitude you have. I'm sorry. I wish you the best and am praying for you.

Omg thank you for this ❤.. my son is your age and his life was changed this weekend after getting 2 MRI’s , spinal tap and a phone call telling him about a lesion on his brain. He was immediately given a prescription for prednisone and was told the MS society will be in contact with him. What a shock to say the least but you have helped me understand a little bit more . Thank you and I am sending prayers to you and your family .

I was diagnosed with CHF in 2018. I remember going through similar stages of emotions. My first thought was that I was going to die too. I was terrified until I understood more about my disease. Through diet and exercise and medication my heart has healed substantially. I pray that you will find strength and support in our KZfaq community. 💝

Oh my goodness....I'm so sorry 🙁 2 bits of advice....read The Wahls Protocol and look into articles and videos by Terry Wahls. Also, Courtney Carver from Be More With Less was diagnosed with MS a while back. You are so right...every persons journey is different but you may find bits and pieces from each of these resources that will directly relate to you or that you can find inspiration in. I have Crohn's disease and the situation in similar in that each person is helped by different things....what works for me won't necessarily work for others. However, we can all come together as people with autoImmune disease and help each other. Please know I am thinking of you and sending you tons of healing thoughts and love ❤

Oh wow Elin. My mom has episodic ms is 89 and so much has changed with diagnosis and treatment in her lifetime. She still talks about that spinal tap 70 years later. She took her nutritional health and supplements in her control to feed her nerves and manage her stress and except for flares has had what she calls a normal life. Career pregnancies physical activity the works but had to respect her need for rest. Where I live is world hotspot of ms you are just south of us. I have had vertigo for a year it was starting to settle then I got a cancer diagnosis. Social support system has been huge. I’m in remission now from cancer will eventually have to figure out the vertigo ( I just restricted my life to function ). I used to invite people I met with new diagnoses of ms to meet my mom because she’s so positive and has learned to adapt to the challenges. I’ve been able to remain working as a therapist mostly right through it all by working virtually but virtual work and vertigo takes a lot of lying down between sessions. I have to take way more notes in sessions to focus and track now and you will find your limits and process as you go. I’m older 62, it’s just so unfair at any age but especially young. I’m reaching out if you want to connect.

I'm coming to a place where MS looks like it could very well be my diagnosis. Dealing with and getting to this has taken its toll on me. I had to stop this video twice because it was just too similar to my story. I suffered a seizure in May and have been steadily declining for a few years up to and including now. It's horrible and I am scared. I've given up so much already, I'm afraid of what the future will take away from me. Thank you for this video none the less because even with all my issues, it's enlightening to see you handling this with grace and honesty. I wish you nothing but a long healthy life!

My dear, you are worrying too much about people. You are doing amazing! May God Bless your heart and soul with peace and health! I will be praying for you. If you lived near me, we would have lunch ❤️😊

I am praying for you... you are brave and strong for sharing this.. take rest when you have to.. no pressure in terms of vlogs or anything from us, your community... May you be well soon in JESUS name..

You are very noble and a strong warrior. Thank you for sharing.

Even though it can be terribly difficult to tell our stories, it can also help more people than you would think. I’m a sharer….it’s just my nature but I’ve found so many people with similar conditions and stories that it’s been so therapeutic and healing for myself and others. I guess our biggest fear is being judged and thinking that others won’t see us the same anymore. What they really do see is a very authentic person who is brave and courageous in so many ways.❤️🙏

I appreciate your story. I'm 55 and just diagnosed. My journey is just beginning so hearing others does help. ~ Thank you.

Hi Elon: Great video:) Our invisible disease. Glad you are on good treatment. All these symptoms are familiar. The future is for sure scary. We are fortunate to have an explosion of research in MS in our near future. I was diagnosed 1 year ago on Kesimpta doing well. Be kind yourself & stay strong mentally & physically as much as you can. We carry foward 🙋‍♀️ Love from Colo Fatigue & brain fog is real.

Thank you for sharing! I remember that feeling when I was diagnosed with RRMS last summer. I had convinced myself that there was nothing wrong with me because..."I was a healthy person". When the neurologist told "looks like MS" I essentially had a panic attack, no exaggeration lol. I had never had a doctor tell me something was clearly wrong with me. It was really hard, lots of tears. My husband wasn't allowed either, so the doctor talked to him over there phone. It was a surreal experience. I definitely count me blessings because my diagnosis came very quickly but it was a shock. You got this! Thanks again for sharing!

Oh Elin…. I just found your channel a few weeks ago and I just want to let you know that my heart goes out to you. A very close family member was diagnosed with MS and you’re right. Your entire personal world changes. I wish you nothing but the best, young lady. And I’ll keep on following your channel and journey. Big virtual mom hug. ❤️

My heart goes out to you. The health care system can really be horrid. I hope you feel better for telling us. MS is so weird. My daughter has it too. Be good to you all the time. I believe in you.

I am so glad you are sharing your story. When I was young, people didn't talk about many illnesses that they discuss now. Be good to yourself, you deserve it. Tina, Al's wife

How brave of you to tell your story and in such an eloquent way. My MS story is very similar to yours, with similar symptoms and lesions in the same places. If my house was in order and clean, I’d be almost be inclined to say we are kindred spirits 😊

I was diagnosed in May 2021 and also got a terrible spinal headache and thankfully relief with the blood patch. I own a photography business and am hesitant to share about it online thinking future clients won't book me because of it or it will put doubt in my current clients minds. All my close family and friends know and my even my part-time job, but sharing online is an entirely different level. My MS symptoms are different, but I can really relate to what you are saying. My cousin has Lyme's disease and talking with her during the beginning of my diagnosis was really helpful in many ways. The older I get the more I realize you can understand something but not really get it unless you experience it yourself. Thank you for being brave and sharing your story. It's a big deal.

I became chronically ill a couple of years ago. I am very misunderstood by family and friends. "just go for a walk" or "think positively" are hurtful things people say. No fault of their own, they have no experience to draw on. But it feels very isolating. I started decluttering during covid to try and create a clean, germ free home. Now I am a minimalist because I am not able to keep a maximallist home clean any longer.

So sorry to hear about this. Sending healing thoughts to you

hi i can relate, having spinal arthritis, and fibromyalga, its tiring and you feel alone, but there are others out there that understand, and people close to us, sending love and healing vibes x

Girl, you’re gonna be okay! I work in the PAD prior auth department for state of CA (infusions/ Chemo/ hematology). There are soooo many options to help you and as you learn more, it’s gonna get easier to know how to help your body. Eat healthy, stay hydrated, get good rest. I’ll be cheering you on!!!

I am so moved by just how thoughtful and insightful you are with your life. You have a wonderful attitude.

I'm so sorry you have to deal with all this. Nothing is more important than your health. I hope you quickly find your new normal and get all the help you need. You are so strong for sharing this. I hope it brings you more support. Thinking about you and wishing you all the best.

I'd never judge you because you have a type of sickness. I think your very courageous for sharing and what your going through. Stay strong Much love

Oh Elin, my heart goes out to you. Thank you for sharing your story and reminding us all that nothing in life can be taken for granted. I know more people than I should living with MS. All are doing well and still living very active lives. If you are able to connect with Courtney Carver on her MS journey I think that would be helpful.

I have the same thing that people can’t see anything wrong with me, my husband is that way and he doesn’t understand MS and doesn’t want to know. Thank you for giving me a place to share this with someone who can understand what I’m going through.

My daughter (age 39) was diagnosed with MS earlier this year. Following the birth of her daughter 6 years ago she suddenly had a severe episode of Bell's Palsy which she was told was probably caused by a virus. It went away after a few months; then six months later she had double vision for a few months thought to be related to the palsy. She wore an eye patch on one eye for a while and her vision normalized. For several years she had no other symptoms. Then a few years ago she had sporadic numbness and tingling in certain muscle groups but specifically in her feet. She is in advertising and drives from client to client all day long so it was chalked up to the stress of driving and getting in and out of the car all day. Looking back, the symptoms were there but they were so intermittent that the connection was not made until a few months ago when the symptoms escalated. Her first MRI lit up like a Christmas tree and showed classic MS. She has had remarkable physicians and is on some amazing therapies. Through an act of God, literally, she was able to become a patient with a major MS researcher and is considered to be one of the leaders in the field. It is a scary diagnosis, but the medications now available are remarkable. Do not be discouraged. You have much to live for. Just never settle for treatment you are not comfortable with or do not think is being effective. Stay positive and stay proactive. I will be praying for you. Here's a tip about blood draws: it does help if you will drink a great amount of water about an hour before the draw. Hydrating your tissues can help the technician find a vein.

Thank you for posting this. You made me feel so much less alone. This video found me at the right time. I lost a position as a retail manager in 2020 because this happened to me. I love your videos. Thanks for being here. 🙂

I want to thank you for sharing. I am turning 59 this month, I have a son with special needs, 35, my daughter, now 30. I was in car accident just 7 months pregnant, towards end of pregnancy, led to bed rest until her lungs developed. My eye doctor 23 years ago told me i had MS, so I had another MRI. I have been thru a lifetime of medical issues, starting in my 20"s. I have not officially been told of MS being part of me, but the MRI and the medical explanation, on one report is positive, next time negative, we don't care when what it is, we want to fix it. My experiences are similar, but listening to you today, it is the first time a person spoke, possibly explanation of why for over 30 years that I have systems, liaisons in the brain and spine,. My family and friends, are few and far between, because it is hard to be around me, they don't know why weight loss, they believe basically crazy and looking for attention. People can be cruel, my experience with my son. You have inspired me to keep fighting, and your honestly going to inspire allot of people. Hope your day is a good one..

Thanks for sharing your story. I, too, was diagnosed with RRMS in Oct 2021 after suddenly losing vision in my left eye (optic neuritis). It was shocking and I was terrified, sad, angry and bunch of other emotions. It’s been a roller coaster this past year but I’m now on a high efficacy DMT, eating well, exercising and trying to keep stress to a minimum. I’ve learned through all of this how important my friends and family are and how to not take the little things for granted. I still have my bad days but doesn’t everyone? Best of luck to you 🧡🧡

I can really relate to you. I dealing with autoimmune POTS. It's another invisible illness and people think if I look fine from outside that I must be fine. It's very frustrating. Please know that you are not alone. Thank you for talking about this.

Thank you for sharing your story. It hit me on many levels. I too,have a chronic illness that I fight each day,but please know that life can still be very beautiful and worth.living. God bless you and your family,it’s really gonna be okay.

What a blessing that you now have found a life path that is satisfying. I’ve only seen a few of your videos but you seem like such a level-headed and self sufficient person. God bless you and your family. ❤🙏🏻

I also have MS, but I have learned from the outset, to keep thinking posiitive no matter what you are told. Always remember, if you think positive your life will be positive.

It took years before I was diagnosed with MS. I have to use a walker because of balance issues. I am afraid of falling. I have fell a few times Already.. When I was diagnosed everyone said it was my imagination. Please give yourself lots of Grace.

You’re a beautiful and courageous young woman! You are Exhibiting extraordinary strength and very difficult times.

Sending you so much love, strength, and heaps of healing 🙏❤🙏

How brave you are, so giving in sharing how you feel. Even in your pain you are helping others. Sending ❤️ love

So sorry to hear about your struggles. Wishing for you long periods of remission, better luck with the medical red tape, and especially a cure discovered.

Praying for your health and journey. Thank you for being vulnerable.

I can totally relate to "you seem fine" struggle, I constantly feel, that people don't believe me that I actually am exhausted, or that I feel dizzy - it is not obvious that I do struggle inside and this struggle takes huge efforts and energy out of me. But I haven't find a solution or a way to keep the balance between taking care of myself and my feelings and not overburdening people around me with my condition... You are so brave, honest, vulnerable and powerful at the same time. You are a beautiful human inside and outside, thank you for sharing this with us. I wish you strength both physical and mental to take control over your life ❤

You are incredibly brave to share this story. I can’t believe you are still doing videos. Take care of yourself ! You are an amazing woman. Sending hugs and positive energy from Montreal 💚💚💚

I never comment on KZfaq videos but wanted to take the time to thank you for sharing your story. I absolutely love all your videos, and appreciate you being vulnerable with this community. Sending you love and support. 💗

This is the first video of yours that I stumbled across, and I am so very glad I watched it. Thank you for being so real and open about your diagnosis. Your light shines so very bright. I relate well about feeling alone because I have endometriosis and it gets hard to explain to others. But give yourself grace and more than anything build a community beyond your family and friend who have MS. They will be able to help and inspire you. Praying for you! 🌻🌻

Elin - thank you for sharing your journey. Please know that so many of us are holding you in our hearts & prayers, & will continue to support and follow your journey. Allow yourself the space & grace to navigate this new direction life shoved you into. We are all here to listen & support you in all the twists and turns. Thank you for having the courage to allow us in. #TeamElin!❤️

Thank you for sharing your journey and being open/honest. Sending you light!!!

I’m so sorry this is happening to you. I hope you are able to find a support group for emotional support. Hopefully your symptoms will subside and you can find a protocol that works well for you.