My Colorectal Cancer Symptoms: Kelly's Story | The Patient Story

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The Patient Story

The Patient Story

Күн бұрын

When Kelly was 8 months pregnant she started getting symptoms including constipation, appetite changes, fatigue and blood in her stool. But her symptoms were repeatedly dismissed by doctors as pregnancy and postpartum changes. After nearly a year of advocating for herself, she finally got a colonoscopy that revealed a large tumor and was diagnosed with stage 3 colorectal cancer.
Rather than move forward with the planned chemo, radiation and surgery, Kelly was able to join an early clinical trial for an experimental new drug called dostarlimab. After 9 treatments over 6 months, scans showed Kelly's tumor had completely disappeared!
Full story & transcript → www.thepatientstory.com/patie...
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Contents of this video:
00:00 Introduction
01:10 My first symptoms
02:45 Being dismissed by doctors
09:18 Getting a colonoscopy
11:34 Getting the colorectal cancer diagnosis
13:47 Discussing fertility & cancer
18:47 Joining the Dostarlimab clinical trial
26:11 Words of advice
#colorectalcancer #colorectalcancerawareness #listentoyourbody #FightColorectalCancer #clinicaltrials #coloncancer #cancerawareness #symptomsofcancer #cancerscreening #colorectalcancer #cancerprevention #cancersymptoms #cancertreatment #cancerresearch #colorectalcancersurvivor #thepatientstory #cancerstories #cancer

Пікірлер: 452
@ThePatientStory
@ThePatientStory 10 ай бұрын
We’d love to hear from you: what were some of your first symptoms? Leave us a comment below 👇 Want to share your story 👉 www.thepatientstory.com/share-your-story/?KZfaq&
@lupepena8138
@lupepena8138 4 ай бұрын
I'm so sorry for your loss.🙏
@mariadahlback3894
@mariadahlback3894 4 күн бұрын
I am curious as to what the drug was called? Please share..
@lgibson9360
@lgibson9360 9 ай бұрын
The amount of doctors that dismissed her symptoms is appalling. This poor woman. Glad she is doing better now.
@alcoholya
@alcoholya 4 ай бұрын
yeah, and there are tons of videos of different people all with the same story...
@angelh3771
@angelh3771 2 ай бұрын
Happened to me before. Around the same time that happened to me, my son was diagnosed with leukemia and very long story short, it turned out he did not!!! 😮 Also, my husband was told he most likely had lung cancer. N he did not!!! Yep! Thats exactly what the DR said "you most likely have lung cancer" but the specialist he sent us to and the second opinion Drs said no, he did not have lung cancer. My uncle repeatedly was told that he had the flu. My aunt brought him home from the Dr for the 3rd time n she found him on the bathroom floor passed away the next morning. He had a pulmonary embolism. My aunt received a settlement for that one!
@jacktaylor1030
@jacktaylor1030 10 ай бұрын
MY MOM FOUND OUT SHE HAD COLON CANCER AND SHE DIED WITHIN A MONTH. MY SISTER WENT TO ER, WHERE THEY DIAGNOSED HER WITH COLON CANCER, AND SHE DIED WITHIN TWO WEEKS. COLON CANCER IS A KILLER!!!! YOU ARE VERY LUCKY!! I'M CURRENTLY SURVIVING LUNG CANCER THAT WAS CAUGHT REALLY EARLY SINCE IT SHOWED UP IN AN X-RAY FOR SOMETHING ELSE. I WAS LUCKY, SO FAR. GOOD LUCK SISTER, I LOVE YOU!!!!!!!!!
@angelh3771
@angelh3771 2 ай бұрын
Im sorry about your mom and sister 😢 I've had 5 relative/inlaws who've survived colon cancer. I have 8 relatives who are cancer survivors (5 colon, 1 skin, 1 one throat, and 1 breast) survivors.
@cat7434
@cat7434 15 күн бұрын
🙏🏾🙏🏾🙏🏾
@Chels-fz5uq
@Chels-fz5uq 9 ай бұрын
I am a physician and my autoimmune diagnoses plural were missed for almost 20 years. Close call with death, financial destitution, depression and complete career devastation I am now being treated right and somehow have my career back. I don’t know how I’m alive. Even as a doctor, I had to push and fight doctors to get answers. One surgeon almost killed me.
@boe1956
@boe1956 9 ай бұрын
Doctors cannot agree to what I am sharing here with you today, because of what they are taught and what they must adhere to legally. People globally are curing their cancer sir. Using a protocol with de wormer and added supplements like mushroom, berberine, curcumin, Annatto, cimetidine, CBD oil, ...ya it has over 160 research papers on it. Many are now alive and cancer free...and all they want to do is shut down these groups and channels..sad very sad...Just check these out and SEE for yourself what people are saying and their different protocols. So many different cancers and end stage and terminal made a complete 100% turn around,. My gastro doctor was in shock last week, when I told him about this guy Kevin from Beating Cancer Today on FB group who cured 4 stage colon cancer, set home to die. His mouth dropped open and he got sad, he said, they don't want a cure, they will lose billions of dollars and he shook his head. So...have a look doc. The protocols work right along side with chemo and immunotherapy. Google joe tippins blog. On FB 3 groups, join them all, just to see and listen, ur mind will be blown. My Cancer Story Rocks (password is Mulligan)(over 40,000 members globally. ) Beating Cancer Today, (cured his colon cancer and since over 100 have had success with HIS protocol.) Next.....Febendazole Cancer Support Group....all these are FB groups with cancer testimonies. I am on that protocol for bladder cancer. People are coming out with shrunk tumors on scans and as they continue, many 100% cancer gone.
@gattitudine
@gattitudine 9 ай бұрын
Can I ask which desease if you want to tell? It's like my story
@sarahok6589
@sarahok6589 9 ай бұрын
omg you need to write a book
@sarahosborne7477
@sarahosborne7477 2 ай бұрын
The sewer smell was it from gas? Or just a smell coming from your pores etc..?
@sanapowers
@sanapowers 23 күн бұрын
Interesting, very informational. I'm looking at APR resection end colostomy , and removal of part of vagina, total hysterectomy. It's after chemotherapy & radiation treatments did not get the tumor, still active 😔 I'm not sure how many infections are ahead, radical surgery. Although though it shrank significantly it's active on PET scan. Quality of life, ostomy, urinary issues, and infections are troubling. I'm on zero medication & healthy despite treatments, so I am still processing not being this healthy, and a life long customer of medicine, and infections. It's a beast, and sexual dysfunction is an understatement as to women considering the surgery, and radiation, chemotherapy after effects of trying to treat this. I'm 57, just turned 58. I was hoping chemo radiation would have been remission. Your treatment was successful, and I pray 🙏 that good health, remission, and no tumor in your future. I've had 4 children, and am celibate for 7 years, and that has helped me, otherwise I'd be devastated for my husband, so that is a positive for me now.
@laurareynolds2239
@laurareynolds2239 10 ай бұрын
Its concerning how dismissive and uneducated Doctors today can be.😳
@dorothybrown8859
@dorothybrown8859 9 ай бұрын
Uncaring, Laura Reynolds. On the other hand, some look at you, think you look good, so think nothing could possibly be wrong!
@ogle1go
@ogle1go Ай бұрын
ICAM I know they know how cancer is starting younger than ever. smdh
@laurawalker9035
@laurawalker9035 9 ай бұрын
As a former cancer clinical trial researcher who worked on trials exactly like yours, it's encouraging beyond all measures to hear your success story! Researchers fight so hard and feel utter discouragement when a patient is lost. Please, please, please stay on top of your follow ups for decades to come! I can't stress this enough to you. So many patients are lost years later because they became too relaxed with being "cancer free." You can do this! You are stronger than you know ❤
@ThePatientStory
@ThePatientStory 9 ай бұрын
Laura, thanks for your work in clinical research! -Stephanie
@ahphong2904
@ahphong2904 9 ай бұрын
These doctors should be reported to the Medical Review Board.
@katytaylor681
@katytaylor681 4 ай бұрын
Very interesting. I am in awe of these people who are not bitter towards the doctors who fail to diagnose early. I have zero medical training yet if anyone mentioned blood in their stools I would instantly know they need to be checked!
@gilly8876
@gilly8876 9 ай бұрын
The bloodwork with many cancers always comes back fine until very late stages. So it makes me so mad when they say, "Your bloodwork is fine."
@desertweasel6965
@desertweasel6965 4 ай бұрын
Cancer depletes red blood cells. Usually, it will show up in your blood work. It won't tell them what kind of cancer, or even if you for sure have it. They may not even mention cancer to the patient and just schedule them for a Scan or colonoscopy and endoscopy to find out what is depleting the red blood cells.
@dr.bhavyaharikumar5483
@dr.bhavyaharikumar5483 Ай бұрын
Seriously?
@ThusSpokeanotherman
@ThusSpokeanotherman 8 күн бұрын
The body easily adapts to minor blood loss so it might be true. Not always but you know
@TexasbyStorm
@TexasbyStorm 10 ай бұрын
I was gaslighted for a year. I was 37 when I started having symptoms. It took 18 months and being admitted to the hospital and saying I won't go home until they find out what is wrong with me. I knew my body and knew something was wrong. They did laproscopic surgery and the second the scope was put in they found my entire abdominal cavity filled with a bright green mucinous substance. My appendix had filled with cancer, ruptured and been dumping this stuff into my abdomen for close to two years. Since I began complaining of intense stomach pain. My doctor gaslighted me. Said it was IBS. 3 surgeries, one of which was an experimental heated chemotherapy belly wash, and 2 rounds of chemo later I was cancer free. Always advocate for yourself!
@juliec4985
@juliec4985 10 ай бұрын
Holy crap! Good for you for advocating for yourself. Sorry you had to. Best wishes!
@nickawilliams5175
@nickawilliams5175 10 ай бұрын
I'm so glad that you advocated for yourself and had got heeled.
@amyb42481
@amyb42481 9 ай бұрын
Did you have an ultrasound at any point?
@TexasbyStorm
@TexasbyStorm 9 ай бұрын
​@amybelcher6908 I did not have an ultrasound. They did a CT scan, couldn't see my appendix on CT, saw fluid, told me it was a ruptured cyst and I would get better on my own. Went in a couple months later, another CT scan, no appendix in scan and fluid. Again another ruptured cyst, told me I should go on birth control. I went back in a day later in terrible pain. They did another CT and there was even more fluid. They knew there was no cyst because I'd just had a scan the day before. The fluid was coming from an unknown area. That's when the doctors began arguing over what to do. I was in the hospital on and off NPO for 3 days while they argued. Finally I told the doctor that wanted to do the surgery that he was the one I wanted to care for me and just find out what is going on. That's when they found the cancer. My appendix had been ruptured and open leaking into my abdomen for at least months since my first CT, which is why it wasn't visible.
@mycharmedunicorn8715
@mycharmedunicorn8715 9 ай бұрын
Wow that is awful
@cathernandez3174
@cathernandez3174 2 ай бұрын
I'm 36 and currently experiencing these same symptoms, had my second child 18 months ago. I've taken two FIT tests both came back abnormal, I've lost so much weight and just don't feel well. Cancer runs in my family so I'm hoping I won't have to jump through any hoops to get my colonoscopy. Thank you for sharing your story.
@Lindascrafts
@Lindascrafts 20 сағат бұрын
It’s a disgrace how many health professionals missed this persistent symptoms. My heart cries for your plight. ❤️
@elizabethbeth9930
@elizabethbeth9930 9 ай бұрын
Im going through cancer and im doing it by myself, i have people around but no parents or siblings etc. I'm trying to be strong and I have God
@walterwally983
@walterwally983 4 ай бұрын
How are you now?
@crocadoodle7101
@crocadoodle7101 4 ай бұрын
❤️
@ccalexander1924
@ccalexander1924 Ай бұрын
I hope you are doing ok. I have an extremely small family. So I know how it feels to have to do everything on my own without much help. I hope you are doing ok
@elizabethbeth9930
@elizabethbeth9930 Ай бұрын
@@ccalexander1924 thank you I’m doing good thank God I’m just happy to be alive
@Coratime
@Coratime Ай бұрын
❤. You are in my thoughts.
@ZeldaZelda-RichesToRags
@ZeldaZelda-RichesToRags 10 ай бұрын
My niece was 33 lost her life a few weeks ago of colorectal cancer… it was beyond heartbreaking. She had her own practice in psychiatric practice for treating young children with autism by combining natural and western medicine… she ignored the symptoms and was too late…. She was a very beautiful and very smart young woman,
@magicalhealerclairvoyant521
@magicalhealerclairvoyant521 10 ай бұрын
I’m so sorry to hear of your family member passing. It’s a frightening disease and we all navigate through it the best we can.
@greeneyes6311
@greeneyes6311 10 ай бұрын
I'm so sorry for the loss of your niece. She is a loss for our world, as well.
@Bankaimg
@Bankaimg 10 ай бұрын
What do you mean she ignored the symptoms? What did she have? Sorry to hear that. So freaking young 😢
@Tina-bp7wt
@Tina-bp7wt 10 ай бұрын
So sorry to hear that 💔
@DB26423
@DB26423 10 ай бұрын
😢❤❤❤❤
@lifesaver5384
@lifesaver5384 8 ай бұрын
Just found your channel.I was 63 when I was diagnosed . I had symptoms for about a year. I told 3 of my doctors but they said it was the medication I was on. And to be fair, it could have been. I had severe constipation and that was my only symptom. I asked my GP for a colonoscopy but she was reluctant and said it was my medication and hemorrhoids. I finally told her I will keep calling and keep coming in until I get tested. She agree to the mail in test. It was positive. So they still said probably nothing but did schedule me for a colonoscopy. As soon as the doctor came in after I woke up I could tell by her face. Yup, they found a very large growth. It was the most common kind of colon cancer. So I was scheduled for a colectomy. Stage 2A and they removed a big section of my small intestine. Checked 32 lymph nodes. All were clear. The tumor had almost completely blocked my colon. But they got everything. No bag, no chemo, no radiation. I just had my year later colonoscopy and everything is clear. If you feel something is wrong, KEEP PUSHING! Advocate for yourself.
@America46744
@America46744 7 ай бұрын
How bad was your bleeding, was it just on your poop or would you bleed without pooping?
@sarahosborne7477
@sarahosborne7477 2 ай бұрын
Whats a colectomy?
@RainyRoth
@RainyRoth 9 ай бұрын
I was gaslit for over six months by a doctor who said I was depressed, had hemorrhoids, and my five days of vomiting was “just the flu”. I made them refer me to a gastroenterologist. I called them directly and they got me in the next morning. I was admitted to the hospital and the next day had a colonoscopy to confirm stage 3 rectal cancer. Controversial, but I don’t think this happens to men as much as women.
@mycharmedunicorn8715
@mycharmedunicorn8715 9 ай бұрын
You mean the cancer or the gaslighting happens more in women? For a serious illness, I would rather go see a woman Dr.. I feel men doctors don’t take me serious for some reason. Do they think all women are hypochondriacs? I sort of feel a woman is more in tune with her body. Since giving birth many years ago, I feel like I can connect my brain to internal parts of my body and “feel”.
@abigailbacon4318
@abigailbacon4318 10 ай бұрын
Got dx with colorectal cancer at 29 years old while having a 8 month old boy. Crazy how similar our story is. Glad you are doing well and so upsetting to see new young moms getting this cancer!😢
@angelfirelite
@angelfirelite 7 ай бұрын
Too many people all ages getting too much cancer these days.....hmmmm!
@gail4972
@gail4972 10 ай бұрын
I feel so bad for her because they didn't take her seriously. So sad that just because you're young, they assume nothing is wrong...I hope everything works out for her.
@debbieschultz106
@debbieschultz106 10 ай бұрын
I'm glad you shared your story, sweetie. I'm in my 60s, and I'm getting a colonoscopy. I have had them before, but I feel something is wrong this time. I'm a huge advocate of taking your health into your own hands and persisting these tests. Your doctors failed you. You could have caught it early. I'm glad you're doing well.
@d.h.1691
@d.h.1691 9 ай бұрын
I pray and hope that your colonoscopy went well and that there is nothing wrong. 🙏🏻 Would love to hear an update on you.
@mthomas183
@mthomas183 10 ай бұрын
The way my jaw hit the floor after you went to the EMERGENCY ROOM and they brushed you off again!! How embarrassing for those doctors, clinics and hospital. They should be ashamed.
@peterbland7227
@peterbland7227 4 ай бұрын
My mother died of colon cancer in 1993. She lived for five years after her diagnosis, largely because she was in the clinical trials for the chemo port. A few years after she died, I stared working for Genentech, who developed Avastin - the first biological approved colon cancer. Now there are the next generation of treatments, like the one you are on what a blessing!
@lindalester9151
@lindalester9151 4 ай бұрын
Thank you for sharing your journey. I'm sure your Mom is very happy for the career path you have chosen. Her bravery to go through the trial for the chemo port was an extremely important trial. I'm so sorry for your loss. You should feel proud to be a part of this company and life saving research they do. Why are we as the public, not hearing more about this drug? Was the drug you mentioned what this girl in the video was given?
@peterbland7227
@peterbland7227 4 ай бұрын
@@lindalester9151 Thank you. AvastinI was approved in 2004 for colorectal cancer. Although not a cure, it was one of the first Biotech drugs to extend lives and improve the quality of life. I believe what this person rd River is s new class of Immunotherapy drugs that are achieving these kinds of remarkable results. As the Paul Simon song says “age of miracle and wonder”. Ironically, I suffer from Macular Degeneration, and receive a small dose of Avastin in my right eye every 6 weeks to keep my vision stsble.
@helentaylor7132
@helentaylor7132 2 ай бұрын
@@lindalester9151 No, not the same. Googled it. Avastin is bevacizumab. This young lady received dostarlimab.
9 ай бұрын
I live in a third world country called Paraguay. I went to the proctologist and said: I just poop blood. After a quick check he said: colonoscopy. No cancer was found, only polyps.
@Sshruff1
@Sshruff1 9 ай бұрын
Ugh. I’m so sorry. I hate that we have to fight doctors for our health. I was diagnosed with colorectal cancer with all those same symptoms during Covid. The worst was the constipation and I couldn’t sit down for more than about 30 minutes without being in pain. They kept saying it was probably hemorrhoids! I was too young and healthy to have cancer they said. When I finally said they had to do something about my pain, they agreed to give me an MRI and because of the inflammation in my buttocks, they couldn’t see anything. Sent me to the ER and I got admitted for an emergency colonoscopy. They couldn’t even get far into my colon because I had a large tumor blocking it. Thank god I pushed and pushed. I have been in remission for almost 3 years. Radiation was the worst for me. The burns were horrible. But it did shrink my tumor a lot. Still had to have a 17 hour surgery but I’m alive.
@Sanaesanita-il4gm
@Sanaesanita-il4gm 9 ай бұрын
How olde are you🙏
@Oogieone
@Oogieone 9 ай бұрын
Doctors really need to get past their pre-conceived notions. I was ignored because I am overweight. So their advice to me was lose weight. Even when I told them I am losing weight and I’m not trying to. Too many people suffer needlessly because they don’t listen. We know our bodies.
@mianimranahmad8040
@mianimranahmad8040 2 ай бұрын
Can u please tell what’s ur symptoms were?
@mianimranahmad8040
@mianimranahmad8040 2 ай бұрын
I loose weight if I reduce diet. If I do exercise of walk weight goes down very fast. I lost 8 kg in two months. If i don’t monitor my diet, my weight goes down 250 gm daily. If I take eonough food my weight donot loose.
@monicamolloy5105
@monicamolloy5105 3 ай бұрын
I am a great believer in clinical trials for drugs, vaccines, and devices. I appreciate your participation. My best, Monica
@AS-yz2iz
@AS-yz2iz 9 ай бұрын
I get the part about it all hitting you later, after treatment. It was the same with my son who had leukemia at 19. He was so strong and positive during treatment, but suffered PTSD anxiety after. Honestly, I went thru the same thing as his caregiver. It's hard. When youre in the midst of the battle, you're just focused on surviving. It's not till after that you have time to reflect.
@kermitandmisspiggyb
@kermitandmisspiggyb 9 ай бұрын
Cancer is hard on the patient and the caregiver. You’re a good mom. Hope you’re doing well now. For me the passing of time has helped. I’m glad your son survived. Wishing you both the best life, this life has to give.
@magicalhealerclairvoyant521
@magicalhealerclairvoyant521 10 ай бұрын
What an inspiring message. It appears more common than not to be dismissed by healthcare providers. To get an honest answer is only by tons of research, people like you whom are transparent, willing to share your journey and learning the right questions to ask. Truly we navigate our own health. Thank you for sharing and congratulations on the birth of your new little girl. ✨💖✨
@shoppinmadnesz22
@shoppinmadnesz22 Ай бұрын
*The amount of times I've heard doctors dismiss a patient's serious symptoms and then a nurse swoops by to give the most sage, life-altering advice is appalling*
@carolinefrederico1712
@carolinefrederico1712 9 ай бұрын
These stories are absolutely heartbreaking for us in Canada to see. We pay not a cent for our universal coverage and get whatever tests we want, when we want. I had a benign polyp removed 30 years ago and I get a colonoscopy every five years just to check. No symptoms required. It staggers the mind that the richest country in the world has a for profit health care system that gaslights young patients because they don’t want to do costly tests. Tragic!
@slowrunner40
@slowrunner40 7 ай бұрын
I don’t know where you live in Canada but they is not our experience. My sister passed away from this because her dr refused to give her a colonoscopy even though she had symptoms for 10 years! By the time she got one it had spread to her ovary. She fought for three years. Now even with a family history and having had a polyp my dr said a colonoscopy is recommended only every 10 years! Even when you show symptoms it takes 3 months to even get a specialist appt or longer. We live in Vancouver.
@carolinefrederico1712
@carolinefrederico1712 7 ай бұрын
@@slowrunner40 I am so sorry for your loss, that’s terrible she was refused a colonoscopy on time. I lived in Toronto for the thirty years this applied. I even had one in the first few months of the pandemic. I guess not all provinces are the same. I’ve returned to my home province of Nova Scotia and we are painfully underserved by family physicians and the colonoscopy waitlist is around 9 months now. I hope you are able to get the tests you need and not wait 10 years!
@ykook7000
@ykook7000 6 ай бұрын
USA is the richest 3rd world country
@aniello4633
@aniello4633 6 ай бұрын
American taxpayers money goes everywhere in the world except its own citizens. Our healthcare system is overwhelmed by non citizens that don’t pay, it’s out of control what’s going on.
@carolinefrederico1712
@carolinefrederico1712 6 ай бұрын
Oh please, you must be a Republican. Your contributions outside are a minuscule number of your GDP. Your healthcare is not overwhelmed by non-citizens, it’s overwhelmed by lobbyists of Big Pharma and Insurance companies that don’t want to see their grotesque profits affected by universal healthcare. @@aniello4633
@berna_emec
@berna_emec 9 ай бұрын
So sorry for the things that you went through and that you were dismissed before! :( I’m so happy that the new drug worked for you and that you don’t have cancer anymore! 🙏🏼❤️
@29sagittarius51
@29sagittarius51 10 ай бұрын
What a fantastic story!! Thank you for sharing your journey. Sending love, light and prayers to you and your family 💕
@krebbyzkydzfantasyart7311
@krebbyzkydzfantasyart7311 9 ай бұрын
Same thing happen to my 37 yr old daughter Northern NY. Baby was born and 10 days later the news was delivered. Colon cancer spread to liver. She passed 2019 leaving 2 beautiful children and husband
@KBauer700
@KBauer700 4 ай бұрын
I am so sorry about your daughter. I lost my mom when she was 64. They all kept telling her she was bleeding due to menopause and she needed a hysterectomy. Her side hurt all the time and she would bleed heavily every two weeks. Her tumor was found off a cat scan by a regular doctor in the lining of her colon. It was the size of an orange. She was a very healthy person. She was loyal about getting those done and her previous colonoscopy was 4 months before. The doctor missed it. It was already too far gone in her liver and lymph nodes but she did the chemo. She passed away 3 months later. Now as I reflect on these stories my mom didn’t want to bother the doctors and stand firm now I blame myself for not letting me go with her because I loved her so very much and she never ever complained.
@sunnygirl1714
@sunnygirl1714 10 ай бұрын
Great interview. She is so relatable and kind. I’m very happy her story ends well.
@nicford548
@nicford548 10 ай бұрын
That statement you made about “not being able to see a doctor” because you don’t have health insurance is absolutely shocking!!! This is suppose to be an “advanced” country!! WTH?
@misswinnie4.8
@misswinnie4.8 10 ай бұрын
She could have seen anyone. In America it is illegal to be turned away.
@katcihealer
@katcihealer 9 ай бұрын
This is not an advanced country in regards to health care. If you think this country cares about your health, you are sadly mistaken.
@kwester318
@kwester318 9 ай бұрын
​@misswinnie4.8 I have a relative that is 63 years old, in very poor health, and on Medicaid. The only way you can see a specialist is with a referral. Getting his PCP to refer him has been next to impossible. When you are poor, no one cares about your health care has been his experience. It's so very sad.
@lynnelee4390
@lynnelee4390 24 күн бұрын
That's just not true. I have no money, and have been in the error and hospital twice recently. Youu do have to advocate for ur own Healthcare tho, whether u have insurance or not. If it's a long term illness u go on indigent care, which is medicaid, it's free
@bichonbeach3859
@bichonbeach3859 10 ай бұрын
Two weeks-for results I can’t believe how long you waited for all of this. You picked a great hospital. I hope you are doing better!!!
@etlay5684
@etlay5684 2 ай бұрын
As a RN, I am shocked to hear that you were dismissed by many doctors especially with your later symptoms of losing weight, blood in the stool and abdominal cramps, they are the typical symptoms of colorectal / colon cancer. In Australia, we get a 50th birthday gift from the government , a free stool kit send to us not long after our 50th birthday and we receive them every 2 year (if negative) to check for blood in the stool and a few people that I've known found out their early cancer from this life saving kits. Glad you are doing well and wishing you all the best.
@temmietaft2552
@temmietaft2552 10 ай бұрын
Thank you so much for sharing your story. It has truly encouraged me to listen to my body!!
@elainetyler5800
@elainetyler5800 10 ай бұрын
What a beautiful lady! Thank you for sharing such a traumatic experience!
@richardhutchison3123
@richardhutchison3123 9 ай бұрын
What a roller coaster journey you have been through! Congrats on baby #2 through all of the things you have been through. I wish all four of you the very best that life can offer! Listening to your body is the BEST advice that you gave. Thank you!
@juliesmoochy3996
@juliesmoochy3996 10 ай бұрын
I pray for a total cure 🙏 ❤️ from this horrific disease. My best wishes to you and your family.
@GS-om4xk
@GS-om4xk 6 ай бұрын
Wishing you the best and congratulations!
@SaraCarrera-yf8tr
@SaraCarrera-yf8tr 4 ай бұрын
These stories are so important for people to hear
@colemacedo-phillips5768
@colemacedo-phillips5768 4 ай бұрын
You’re amazing Kelly! Thanks for sharing. 🥰🙏🏻
@nkratochvil122
@nkratochvil122 10 ай бұрын
What is this treatment...thats amazing!! Praying for you❤
@hannahdarosanutrition
@hannahdarosanutrition 2 ай бұрын
Amazing lady. ❤ Thank you for sharing your journey
@michelle3830
@michelle3830 9 ай бұрын
I had same symptoms ( know the smell) but not much blood. I was angry when my family physician insisted i see GI & get colonoscopy. I do not have cancer but feel like a fool for my resistance. So your story helps ppl like me as well. I wish you an end to tiredness & symptoms and a a healthy life. Thanks for sharing.
@psrwhite
@psrwhite 10 ай бұрын
Thank you for sharing your story, Kelly. I am a breast cancer survivor. You have encouraged me to keep pushing for new screenings in areas of my body where I'm not feeling right. Yes I always worry that my cancer may return! Im trying not to over worry of course. I think you would make a great therapist or counselor for others who are going through cancer, whether they are newly diagnosed or, like me, 18 years out! The worry never goes away. It is important to keep pushing for answers when things don't feel right. Thank you again! You are so reassuring!!
@stephaniewillson9383
@stephaniewillson9383 10 ай бұрын
❤😂
@Catherine3296
@Catherine3296 10 ай бұрын
I am happy to hear Kelly the drug worked and your tumour went down. And congratulations on your new baby .
@lisabourque1321
@lisabourque1321 9 ай бұрын
Thank you for sharing your story ❤️
@alyssasawyer9429
@alyssasawyer9429 9 ай бұрын
I’ve been dismissed for 7 years. I finally met a GI who told me I’m probably constipated. I’m so glad I stood up for myself and I told him “I don’t care what you think, schedule the scopes”. I have them on Sep 26 and I really Hope they find what I’ve been feeling.
@claireashley427
@claireashley427 8 ай бұрын
Praying your colonoscopy/endoscopy went well and you got the answers you're looking for and that it isn't cancer! How are you doing? Did they find anything? Good for you for advocating for yourself!❤
@sonyaskogstad3849
@sonyaskogstad3849 8 ай бұрын
Good luck and its great you are advocating for yourself.
@katiebarquet8783
@katiebarquet8783 8 ай бұрын
How did your scopes come out ?
@mysteriousromania6121
@mysteriousromania6121 7 ай бұрын
What did you find out after your colonoscopy? Hope you’re fine!!!
@mysteriousromania6121
@mysteriousromania6121 7 ай бұрын
@alyssasawyer9429 What did you find out?
@jjaniga7043
@jjaniga7043 9 ай бұрын
Hi Kelly, I was a new mom too at 32 and they assume my systems were due to being a new mom. I had colon cancer. I knew something was wrong like you did. I believe my daughter saved my life. God blessed me with her and the pregnancy is what saved me.
@alexandratewell5337
@alexandratewell5337 9 ай бұрын
Did you have bleeding? Or did you find out before the rectal bleeding start
@stephgendron937
@stephgendron937 8 ай бұрын
did you have bleeding on a regular basis? Constipation?
@jjaniga7043
@jjaniga7043 7 ай бұрын
Yes I did have bleeding but they kept telling a lot of pregnant women have bleeding due to hemorrhoids. So when my daughter was 4 months, I went to my family doctor and he did a rectal exam. He sent me in for testing and that was when they diagnosed me with colon cancer.
@juliekelderman4041
@juliekelderman4041 Ай бұрын
Congratulations on your new baby!!!
@amccar27
@amccar27 3 ай бұрын
Wow you are such a brave amazing woman! You’re an inspiration. Thank you for sharing
@deesparklebazinga9374
@deesparklebazinga9374 10 ай бұрын
Thank you for sharing xx
@capimermaid2787
@capimermaid2787 2 ай бұрын
Congratulations on your precious pregnancy and good health❤
@lindamargolies7759
@lindamargolies7759 9 ай бұрын
A person needs to advocate for themselves...push it....❤
@ThePatientStory
@ThePatientStory 9 ай бұрын
Couldn't agree more!
@valerienelson3296
@valerienelson3296 9 ай бұрын
Thank You for sharing your amazing story & congrads on your new baby ❤
@debcokinis
@debcokinis Ай бұрын
BLESSINGS TO YOU AND YOUR BEAUTIFUL FAMILY! 🙏❤️
@Gengingen
@Gengingen 2 ай бұрын
Thank you very much for your inspiring story which is sure to help many people fight their own battles.
@cindyrose4155
@cindyrose4155 10 ай бұрын
GOD Bless you! 🙏💖🙏 I had all the symptoms, exactly how you described them! Went to a specialist, turned out I had something completely unrelated…..we never know what has invaded our body, I’m glad you were aggressively pushing for answers.
@jennevans85
@jennevans85 9 ай бұрын
What did you have?
@f.d.6648
@f.d.6648 3 ай бұрын
Great to hear your story and how well your doing well now stay on top of your future checkups just in case many blessings
@godseeseverything_1
@godseeseverything_1 10 ай бұрын
Smart that you took pictures!
@christyemmons7279
@christyemmons7279 10 ай бұрын
Thank You for sharing your story 🤗💗
@Tracylynn62
@Tracylynn62 2 ай бұрын
We women are dismissed too often. "it's period pain, it's anxiety or depression". I was dismissed for 15 years until finally a wonderful doctor tested and diagnosed me with Lupus.
@deadinthewater218
@deadinthewater218 9 ай бұрын
Thanks for sharing. You're beautiful. Prayers your way.
@powers1217
@powers1217 9 ай бұрын
Rule #1 if you have any rectal bleeding: INSIST on a colonoscopy done by a gastroenterologist. I was diagnosed at age 16 with hemorrhoids. 16. I had severe rectal bleeding and was ridiculously anemic (oh, it’s her period 😑). Fast forward to age 30: I’m in the hospital because I’m rectally bleeding all the time and haven’t been able to eat or hardly drink water for 6 weeks and nearly collapsed. Over half of my large intestine had to be surgically removed because of severe ulcerations. I got diagnosed with ulcerative colitis. A month after surgery, I started bleeding began. I was referred to a different gastro who put me on a type of chemo/immunosuppressive drug and the bleeding eventually stopped. He did a gene test and found out I actually have Crohn’s disease, which affects the entire digestive tract, and gastroparesis (delayed emptying of the stomach). That doctor literally saved my life. I’m 53 now and haven’t relapsed. The gastroenterologist eventually retired and his son took over. He’s an amazing doctor, just like his father. I’m thankful every day for both of them.
@wowzatrishiebunz
@wowzatrishiebunz 10 ай бұрын
You’re sharing this will help save lives! You are so brave!!!!
@melbrown6019
@melbrown6019 3 ай бұрын
It seems like this is common for new mothers. I had a brain tumor that was found 2 months after I had one of my sons in 2007. My primary doctor thought I had postpartum depression and referred me to a psychologist even though my symptoms were passing out, not eating, confusion, forgetfulness etc. My family finally took me to the ER where I was given an MRI. I’m thankful that you finally found a doctor who was willing to listen and not just brush you off again. It seems like once a doctor hears you’re a new mom, any other symptoms can’t be from anything else. I had blood in my stool and my doctor at the time had me do a stool sample and colonoscopy right away. It turned out to be nothing. Thank you for sharing your story.
@elizabethbeth9930
@elizabethbeth9930 9 ай бұрын
Thanks for sharing your story! ❤ God bless you
@davidmaschari2282
@davidmaschari2282 6 ай бұрын
As bad as the situation is, you are beyond blessed to get to take the trial drug. I’ve heard other stories of people getting fortunate enough to selected fir these trials and fir the most part they usually seem to work out with these trial drugs.
@maryl4620
@maryl4620 14 күн бұрын
Sometimes it is very hard to get a correct diagnosis. You know your body and have to push ahead. Thank you for sharing your journey.
@CaribbeanLife2023
@CaribbeanLife2023 9 ай бұрын
So sad how some PCP’s or Doctors in general just brush off their patients. It just goes to show that individuals must ADVOCATE for themselves and be PERSISTENT. It might save your life. 🤦🏾
@marthalopez307
@marthalopez307 10 ай бұрын
Thank you for sharing
@bibiijaz6238
@bibiijaz6238 8 ай бұрын
My mom was told she had a cyst for three years! New doc immediately sent her to get colonoscopy. Stage 4 metastatic cancer. Last month she had surgery and a 90 minute chemo wash. She has no evidence of disease! As close as it comes to cured. She’s 80 years old and has many more years ahead of her! I can’t say enough good things about Oregon health sciences university and Dr Sood! And it was all covered by Medicare
@ThePatientStory
@ThePatientStory 8 ай бұрын
This is amazing! If you and your mom are up for sharing your story, please email us at alexis@thepatientstory.com and stephanie@thepatientstory.com.
@nickawilliams5175
@nickawilliams5175 10 ай бұрын
I've been suffering after my miscarriage in Feb 2023 w/ severe abdominal pain and going in and out of hospitals and doctor appointments. These doctors now a day really do just brush their patients off until it's something extremely severe. 😢
@karendavidson6272
@karendavidson6272 9 ай бұрын
So sorry you went through this .
@DB26423
@DB26423 10 ай бұрын
Congratulations 🥳
@Arthur-tx8fd
@Arthur-tx8fd 6 ай бұрын
Thank you for.sharing..by doing this you are.saving lives
@CBB672
@CBB672 2 ай бұрын
I admire your strength 🙏
@dianewristen
@dianewristen 8 ай бұрын
THANK YOU FOR SHARING YOUR JOURNEY WITH CANCER. YOU ARE A BEAUTIFUL LADY AND HAVE AN OPPORTUNITY TO HELP OTHERS BY DOING THIS VIDEO. I WILL HAVE TO LOOK AT YOUR SITE AND SEE YOUR NEWEST BABY....YOUR SON IS A DREAM CHILD...BEAUTIFUL LIKE HIS PARENTS. I SEND PRAYERS AND BLESSINGS FOR A WONDERFUL FULL LIFE.
@mpower5171
@mpower5171 9 ай бұрын
Such a positive story.. so wonderful to hear that she was ok .. hope they can find more treatments like this for everyone with cancer of any types 🙏🙏🙏
@llsa2009
@llsa2009 9 ай бұрын
Thanks for sharing your story ❤can you tell us what drug you used? It’s amazing 🎉
@gma904
@gma904 9 ай бұрын
You were so encouraging! So glad it all worked out ! No colonoscopy bags…. You just never know what God will do. And that pic of the baby looking at you is priceless.❤
@gail9906
@gail9906 9 ай бұрын
Fantastic results 💞🎉❤️🇦🇺🦘
@girlfromsouth214
@girlfromsouth214 10 ай бұрын
Kelly shared her story in such an authentic way. It's sad that her doctors originally didn't hear her pleas and perform further testing. But, it's amazing that experimental treatment worked for her!! Imagine all the lives that will be saved and the years of better quality time patients who are able to benefit from the medicine will see! And, all because Kelly and the other early patients were brave enough to take the leap of faith and try it. It's touching that Kelly now sees the big picture and realized her newest baby will come (or maybe came! ) at the exact right time the baby was supposed to be here. Does Kelly have a social media page where we can learn more about her journey and the medication that worked for her?
@girlfromsouth214
@girlfromsouth214 10 ай бұрын
@@JanJan-jx9ty Thank you!
@ThePatientStory
@ThePatientStory 10 ай бұрын
Thank you so much for watching! The trial Kelly was on is Dostarlimab. Here is Kelly's full story: www.thepatientstory.com/patient-stories/colorectal-cancer/kelly-s/
@HopeWins777
@HopeWins777 9 ай бұрын
I've had some weirdness I would say the last 6 months. Been working with my fiber and all that. What I'm concerned about now is if it is early stages, does anyone ever catch it? I don't have insurance. I have a couple of the symptoms including the funny smell suddenly coming on. But I've got polyps or hemorrhoids or something showing up also. My aunt died of colon cancer because she never told anyone until she was too late to save. I'm tempted to contact the cancer center first and work my way backwards but without insurance is there any hope? $7,000 to $9,000 deductible plus a monthly premium was more than I could do. I'm 62 years old so I just figured I would deal with it if something happened. I have a chance it's nothing and I have a chance of living if I catch it early enough but without insurance who's going to listen to me? I have launched my 4 kids and all are living their lives with their families. I thought this was my time to Blossom. I will get out on the website but I would welcome any First Steps advice from anyone. Raising four kids over 40 years you have a lot of contact with medical issues Plus friends and church family. This is different and it's that knowing that something's not right that is so scary. I would love to get your favorite resource for my situation. Thanks for reading
@girlfromsouth214
@girlfromsouth214 9 ай бұрын
@@HopeWins777 Please consider googling to see where there are free cancer screenings near you. In my state, there is a health center that treats patients without insurance, that provides preventative tests and then, if someone does need further care; they help them apply for free insurance. Have you ever applied for insurance under your state's Medicaid program? I know able bodied, working adults who qualify based on income. One of my friends thought that she wouldn't qualify, but she did. Maybe there is a program in your area that you would qualify for. You are also near the age that your local council on aging might be able to assist you. Sending you gentle hugs.
@ThePatientStory
@ThePatientStory 9 ай бұрын
@@HopeWins777 First, so sorry to hear that you seem to be going through this alone. We have worked with great colorectal cancer groups like Imerman Angels who will match you to a mentor, someone whose been through a similar situation. Here is their info: imermanangels.org/ .. Hope that helps with a first step. -Stephanie
@karenmccabe2371
@karenmccabe2371 10 ай бұрын
So you never had surgery? My son at 46 years old went through this 2 years ago…chemo, radiation, and colostomy bag. In 2022. Please let me know….he is a constant worry to me.
@int_pro
@int_pro 10 ай бұрын
I know a very similar story as far as someone being dismissed by the ER doctor when they went in with a whole array of symptoms. The ER doctor was dismissive and condescending, seemed to think he was all knowing. I try to give the ER Dr leeway, even despite how my relative was treated. ER Drs aren't necessarily trained up enough to recognize cancer in a CT scan. Sadly. But it doesn't help when they bring too much hubris to the situation and can't say something simple like "we aren't equipped to diagnose this kind of issue in an ER"... My relative had a long road to travel before they finally got access to a specialist who could properly diagnose the situation.
@sheriserrano9599
@sheriserrano9599 10 ай бұрын
Oh, bless you girl🥰 no side effects is such a blessing….
@fiftiesandfabulous
@fiftiesandfabulous 10 ай бұрын
A classic case of medical gaslighting. Absolutely disgusting
@lumailisa
@lumailisa 9 ай бұрын
That baby at 26:12 is seriously cute 🥰 🚼 this was an amazing story to watch, thank you for sharing it ❤ I wish you well on your journey.
@juliej5917
@juliej5917 10 ай бұрын
I have a young friend about your age, Kelly, that had similar symptoms. Dismissing concerns seems to be the common denominator with young ppl getting these cancers. My young friend had her bowel, anus, vagina and all reproductive organs removed, and has a permanent ostomy. They were able to save her bladder. She had eggs frozen. I’m so thankful that this new treatment came at the perfect time. 🌻🌻🌻
@raychelhill9208
@raychelhill9208 10 ай бұрын
Vagina removed??
@eggbenedict-gt7mw
@eggbenedict-gt7mw 10 ай бұрын
What are the symptoms
@sha-sha7665
@sha-sha7665 10 ай бұрын
Her vagina??? What do you mean? The birth canal?
@bethteer1509
@bethteer1509 10 ай бұрын
How sad for your friend, altho it's great she still survived.
@sandralrho9455
@sandralrho9455 9 ай бұрын
It’s not just young people mist docs could give a rats behind
@donnawilliams7683
@donnawilliams7683 10 ай бұрын
There is so many of my family members before me that died of colon cancer or lived with a colostomy bag. My generation is having regular colonoscopys and having polyps removed before it can become cancer. My kids are now having a problem because if the colon cancer isn't in your immediate family they can't be tested until 45. The system isn't working for my kids or my nieces or nephews.
@misswinnie4.8
@misswinnie4.8 10 ай бұрын
Please get tested for HNPCC aka Lynch Syndrome
@solveignielsen8646
@solveignielsen8646 10 ай бұрын
Wish you and your family the very best⚘️🇩🇰⚘️
@meelauramee
@meelauramee 10 ай бұрын
I loved the story 🫶🙏
@lyndsaythompson4614
@lyndsaythompson4614 Ай бұрын
Thanks for sharing your story. How are you doing now ?? Would love a follow up .....
@avachristie8010
@avachristie8010 9 ай бұрын
You are amazing 🌻🥰
@NMW80
@NMW80 9 ай бұрын
Some doctors are disgusting how they brush off so many people’s symptoms and don’t look into things. It’s not fair at all. I need a new doc cos mine is not thorough at all. He is lazy. I’m sorry to hear about your diagnosis 😢
@hkm3933
@hkm3933 17 күн бұрын
Its sad to see how much the patient has to convince the doctors to get things checked. If there is one thing I am super proud about my country, is the access to medical facilities and very less waiting time. And I am glad you are fine and happy now !!
@esthergarcia1780
@esthergarcia1780 3 күн бұрын
What country…so we can move there ❤
@winniecash1654
@winniecash1654 10 ай бұрын
I'm so sorry you went through this, at a time in your life when you should be enjoying motherhood and your sweet baby 🩷
@Lovelinessoverload
@Lovelinessoverload 9 ай бұрын
wow thank u for ur story ❤ Thank G-d for everything...
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